Finally!

[Guest guest]

Congrats! Have a great vacation. A change of pace often does wonders.

>

> I had a left TKR on April 29, 2009, and a right TKR on July 23, 2009. The

first one was way more painful but rehab went fairly well for both extension and

flexion. The second was way less painful but rehab has not been nearly as fast.

I finally, after 2 months of being at 90 degrees, got measured at 95 on Friday!

Woohoo...I was getting so discouraged! My therapist says I am 'over the hump'

and it should start moving again. Off to Mexico on Wednesday though...no 3Xweek

physio. I will have to do a lot of water walking and exercise for two weeks!

> Chris

>

[Guest guest]

Hi

I read that email and thought maybe I wrote it!! (My son is Noah, recently dx High Functioning Autism for paperwork because AS is not qualified in AZ, but we all agree its AS)

It took a year to get the dx on paper. I'm now about to go back to the school to get a new IEP and psych eval, now that I have the dx. (IEP currently based on ED and dx OCD, ADHD w/anxiety)

Thanks!

Lori

( ) Finally!

Dear Group:

I haven't emailed in awhile. But I've been catching the emails (at least for the most part).

Did any of you other parents out there find sense of relief when you got an official diagnosis of either asperger's or autism? The school psychologist, principle, and other teachers are finally seeing what I see. At home it just so happens we see more of it. Now I don't seem like I'm imaging this stuff. I'm not relieved that Noah's has asperger's. But it's a load off my shoulders to know what we're actually dealing with.

Sometimes I get frustrated with the emotional outbursts that can last two hours until he comes to his senses. Sometimes I'm tired of being threatened. Even with the issues he's dealing with I won't put up with being hit. However, if I could go back in time to when he was born and get another boy I wouldn't do it. Noah and are the greatest joys in our life. The other day I was extremely tired and dozed off in the chair even though it seems like I had a million things to do. Noah fixed the coffee and brought it to me all on his own. My hearts is burdened for him because I know his life won't be an easy road. But it's a road we're on together and I won't ever give up on him,

Thank you,

H

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.5.425 / Virus Database: 270.14.65/2502 - Release Date: 11/14/09 07:43:00

[Guest guest]

Hi ,

I've recently gone through the same thing & even though it sounds bizarre,

'congratulations on the dx.' I worked tirelessly for over a year to get others

to realize my DS's social difficulties. The only person who stood by me 100%

was my DS's preschool teacher. Husband, family, friends, etc all made me out to

be some unknowledgable, evil, controlling mom. Sometimes, I even questioned

myself. When we finally got the formal dx from a neuropsych, I slept well for

the first time in over a year. Now I believe we are on the 'right track' and

will be able to move forward. The dx has allowed me to redirect my energies

from " he shows this, this, and this issue " to " we need to do this, this, and

this to help him. " What a long journey. And, I too, wouldn't give him up for

the world. Sometimes I do wish I had known from day 1 though, so that I would

have understood him better & been a better mom from the get go.

Best wishes.

Sincerely,

>

> Dear Group:

>      I haven't emailed in awhile.  But I've been catching the emails (at least

for the most part).

>      Did any of you other parents out there find sense of relief when you got

an official diagnosis of  either asperger's or autism?  The school psychologist,

principle, and other teachers are finally seeing what I see.  At home it just so

happens we see more of it.  Now I don't seem like I'm imaging this stuff.  I'm

not relieved that Noah's has asperger's.  But it's a load off my shoulders to

know what we're actually dealing with.

>      Sometimes I get frustrated with the emotional outbursts that can  last

two hours until he comes to his senses.  Sometimes I'm tired of being

threatened.  Even with the issues he's dealing with I won't put up with being

hit.  However, if I could go back in time to when he was born and get another

boy I wouldn't do it.  Noah and are the greatest joys in our life.  The

other day I was extremely tired and dozed off in the chair even though it seems

like I had a million things to do.  Noah fixed the coffee and brought it to me

all on his own.  My hearts is burdened for him because I know his life won't be

an easy road.  But it's a road we're on together and I won't ever give  up on

him,

>

>                Thank you,

>

>                        H

>

[Guest guest]

It took some time to "accept" the diagnosis, but once we did, I felt relief. It helped to have a known reason for all of the quirks and anxieties we saw. Before, I had blamed myself (and my husband blamed me too) for my son's meltdowns and emotional issues. Now there is no more blaming, we just try to understand our son and his needs and get him all the help we can. Having a diagnosis gives you a focus instead of the constant wondering "What's wrong? Why is he acting like this?" I also feel like I'm not on my own, since we have a counselor and psychiatrist we can go to for help if new issues come up.

~~~~~~~~~~~~~~~~~~~~~~

Suzanne

suzmarkwood@...

From: tsnoo1 <tsnoo1@...>Subject: ( ) Re: Finally! Date: Sunday, November 15, 2009, 7:47 AM

Hi ,I've recently gone through the same thing & even though it sounds bizarre, 'congratulations on the dx.' I worked tirelessly for over a year to get others to realize my DS's social difficulties. The only person who stood by me 100% was my DS's preschool teacher. Husband, family, friends, etc all made me out to be some unknowledgable, evil, controlling mom. Sometimes, I even questioned myself. When we finally got the formal dx from a neuropsych, I slept well for the first time in over a year. Now I believe we are on the 'right track' and will be able to move forward. The dx has allowed me to redirect my energies from "he shows this, this, and this issue" to "we need to do this, this, and this to help him." What a long journey. And, I too, wouldn't give him up for the world. Sometimes I do wish I had known from day 1 though, so that I would have understood him better & been a better mom from the get go.Best

wishes.Sincerely,>> Dear Group:> I haven't emailed in awhile. But I've been catching the emails (at least for the most part).> Did any of you other parents out there find sense of relief when you got an official diagnosis of either asperger's or autism? The school psychologist, principle, and other teachers are finally seeing what I see. At home it just so happens we see more of it. Now I don't seem like I'm imaging this stuff. I'm not relieved that Noah's has asperger's. But it's a load off my shoulders to know what we're actually dealing

with. > Sometimes I get frustrated with the emotional outbursts that can last two hours until he comes to his senses. Sometimes I'm tired of being threatened. Even with the issues he's dealing with I won't put up with being hit. However, if I could go back in time to when he was born and get another boy I wouldn't do it. Noah and are the greatest joys in our life. The other day I was extremely tired and dozed off in the chair even though it seems like I had a million things to do. Noah fixed the coffee and brought it to me all on his own. My hearts is burdened for him because I know his life won't be an easy road. But it's a road we're on together and I won't ever give up on him,> > Thank you,> >

H>

[Guest guest]

Yes, yes, yes, yes! My son was dx with AHDH several years ago and he began having meltdowns that resembled my Xhusband and it was scaring me. I did a lot of research and thought that it was likely that he had either bipolar or AS. I took him in and spoke with the dr and she explained the difference between the meltdowns in each (which was fascinating as one was the X and the other was the kid) and she dx him with AS. She explained why he was having meltdowns and they have dropped off dramatically now that I understood what was going on. I was really relieved that it wasn't the same thing as a his father. I know it is a lot of work but I'm OK with that and I'm hopeful for the future. BeckyFrom: tsnoo1 <tsnoo1@...> Sent: Sun, November 15, 2009 9:47:18 AMSubject: ( ) Re: Finally!

Hi ,

I've recently gone through the same thing & even though it sounds bizarre, 'congratulations on the dx.' I worked tirelessly for over a year to get others to realize my DS's social difficulties. The only person who stood by me 100% was my DS's preschool teacher. Husband, family, friends, etc all made me out to be some unknowledgable, evil, controlling mom. Sometimes, I even questioned myself. When we finally got the formal dx from a neuropsych, I slept well for the first time in over a year. Now I believe we are on the 'right track' and will be able to move forward. The dx has allowed me to redirect my energies from "he shows this, this, and this issue" to "we need to do this, this, and this to help him." What a long journey. And, I too, wouldn't give him up for the world. Sometimes I do wish I had known from day 1 though, so that I would have understood him better & been a better mom from the get go.

Best wishes.

Sincerely,

>

> Dear Group:

> I haven't emailed in awhile. But I've been catching the emails (at least for the most part).

> Did any of you other parents out there find sense of relief when you got an official diagnosis of either asperger's or autism? The school psychologist, principle, and other teachers are finally seeing what I see. At home it just so happens we see more of it. Now I don't seem like I'm imaging this stuff. I'm not relieved that Noah's has asperger's. But it's a load off my shoulders to know what we're actually dealing with.

> Sometimes I get frustrated with the emotional outbursts that can last two hours until he comes to his senses. Sometimes I'm tired of being threatened. Even with the issues he's dealing with I won't put up with being hit. However, if I could go back in time to when he was born and get another boy I wouldn't do it. Noah and are the greatest joys in our life. The other day I was extremely tired and dozed off in the chair even though it seems like I had a million things to do. Noah fixed the coffee and brought it to me all on his own. My hearts is burdened for him because I know his life won't be an easy road. But it's a road we're on together and I won't ever give up on him,

>

> Thank you,

>

> H

>

[Guest guest]

Hi Kathy,

I have used Fentanyl patches and found them to work pretty well. Some people get 3 days relief from a single patch, but I changed mine every 48 hours. I started with the 50 mcg patch (before revision) and was up to 175 (100 + 75) after my revision surgery. One negative thing I will mention is that they were very difficult for me to taper off of. I don't know if that is because the medication is so strong or if it is a result of the long half life. The lowest dose made at the time I was using them was 12 mcg......from 12 to zero caused some uncomfortable withdrawal symptoms. My surgeon wanted me off of the long acting fentanyl patches before I had cervical disc replacement (one year post revision). Withdrawal issues are a problem with all opiates though.....so don't let that scare you from getting the best possible pain relief that you need right now. I hope they work for you!

Melody

FINALLY!

Since my Flatback causing surgery in 2007, it has never ceased to amaze me how far doctors will push things until they take action. I'm a really tough B-----, & it takes ALOT to push me to my breaking point. Today was once again one of those days. When I went to my pain management doc's office, I had to stand on the side of the bed and bend over & lay face down. By the time the doc came in, I was in tears. I had had ENOUGH of the pain & I was TIRED! Mind you, this is the same doc that argued with me about taking 5 instead of 4 Vicodin per day. Suddenly seeing that I was on the edge looking over, he FINALLY prescribed Fentanyl patches in addition to the Vicodin & Flexeril. So this makes #3 on the "Tears got things done" list. The first time FINALLY got my surgeon to admit I had Flatback Syndrome...the second was with the Social Security reviewing doctor (got approved the 1st try)... & now my pain management doc is FINALLY taking me seriously. Chaulk one up for being "feisty"! Now I just hope it works! Anyone have success with the patches?...............Kathy

[Guest guest]

Hi

Kathy,

I

have used Fentanyl patches and found them to work pretty well. Some

people get 3 days relief from a single patch, but I changed mine every 48

hours. I started with the 50 mcg patch (before revision) and was up to

175 (100 + 75) after my revision surgery. One negative thing I will

mention is that they were very difficult for me to taper off of. I don't

know if that is because the medication is so strong or if it is a result of the

long half life. The lowest dose made at the time I was using them was 12

mcg......from 12 to zero caused some uncomfortable withdrawal symptoms. My

surgeon wanted me off of the long acting fentanyl patches before I had

cervical disc replacement (one year post revision). Withdrawal issues

are a problem with all opiates though.....so don't let

that scare you from getting the best possible pain relief that you

need right now. I hope they work for you!

Melody

-----

Original Message -----

From: KATHYINBK

Sent: Friday, April 02, 2010

6:31 PM

Subject:

FINALLY!

Since my Flatback causing surgery in 2007, it has never

ceased to amaze me how far doctors will push things until they take action. I'm

a really tough B-----, & it takes ALOT to push me to my breaking point.

Today was once again one of those days. When I went to my pain management doc's

office, I had to stand on the side of the bed and bend over & lay face

down. By the time the doc came in, I was in tears. I had had ENOUGH of the pain

& I was TIRED! Mind you, this is the same doc that argued with me about

taking 5 instead of 4 Vicodin per day. Suddenly seeing that I was on the edge

looking over, he FINALLY prescribed Fentanyl patches in addition to the Vicodin

& Flexeril. So this makes #3 on the " Tears got things done " list.

The first time FINALLY got my surgeon to admit I had Flatback Syndrome...the

second was with the Social Security reviewing doctor (got approved the 1st

try)... & now my pain management doc is FINALLY taking me seriously. Chaulk

one up for being " feisty " ! Now I just hope it works! Anyone have

success with the patches?...............Kathy

[Guest guest]

Hi everyone. So I finally went to the rheumatologist yesterday. Ironically I do

his medical transcription from home too! I do have seropositive erosive RA. I

told him how I got my diagnosis last year, but have been leery of the

medications. The doc who diagnosed me wanted me on Arava and Enbrel. My Dad has

RA too, and he sees the rheumy I transcribe for too. Last year my Dad got a

virus and couldn't get rid of it and was really sick for a couple months.

Because of this, my doc said lets try starting you just on Arava and see how you

do. If that controls the progression for now then we can save the anti-TNF for

down the road if we need it. I am happy that he wants to start off slowly since

he knows I am scared, so we will see what happens! My husband is picking up my

prescription today and then I will start. I am happy to be hopeful that the

medication will give me some pain relief and possibly stop some damage and am

hopeful that the medication won't keep me on the toilet all day!!!!!!

I hope everyone is feeling good (or as good as we can feel), and thanks for

always being supportive and understanding!

Donna

[Guest guest]

Hi Donna.  Great you are starting on the RA meds.  I am wishing you great

success with this med. and hope you will be feeling better soon.

 

Hugs,

 

Barbara

From: koala2u <koala2u@...>

Subject: [ ] Finally!

Date: Friday, July 23, 2010, 11:22 AM

 

Hi everyone. So I finally went to the rheumatologist yesterday. Ironically I do

his medical transcription from home too! I do have seropositive erosive RA. I

told him how I got my diagnosis last year, but have been leery of the

medications. The doc who diagnosed me wanted me on Arava and Enbrel. My Dad has

RA too, and he sees the rheumy I transcribe for too. Last year my Dad got a

virus and couldn't get rid of it and was really sick for a couple months.

Because of this, my doc said lets try starting you just on Arava and see how you

do. If that controls the progression for now then we can save the anti-TNF for

down the road if we need it. I am happy that he wants to start off slowly since

he knows I am scared, so we will see what happens! My husband is picking up my

prescription today and then I will start. I am happy to be hopeful that the

medication will give me some pain relief and possibly stop some damage and am

hopeful that the medication won't

keep me on the toilet all day!!!!!!

I hope everyone is feeling good (or as good as we can feel), and thanks for

always being supportive and understanding!

Donna