Re: LDN???

[Guest guest]

LDN is NEVER BEEN DOUBLE BLIND tested for what the LDN follower say that it

works for...it has a cult like following..please do some research...Have

you tried remicaide? I used mtx and remicaide for many years with no side

effects and a huge reduction in pain disability. I think that LDN benefits

are about the same as taking a placebo. what other medication could you take

1/10 of the dose and it be effective for new diseases. Granted the dose is

so small that the likelihood of adverse reactions is slight.

Just my opinion..

Deb RN

From: [mailto: ] On

Behalf Of Fiona

Sent: Tuesday, July 20, 2010 10:42 PM

Subject: [ ] LDN???

Anyone tried low dose Naltrexone for RA? I'm considering it.

Tried Plaquenil, Methotrexate & Minocycline. I'm 50-had it for 6+

years. Trying to avoid drugs with possible scary side effects.

Thanks, Fiona

[Guest guest]

Thanks Deb RN,

            I started taking the LDN last night at 1mg dose. Will keep all

posted when/if I start to

see some pain & inflammation relief from hands & wrists.

                                                                                \

                        Fiona

[Guest guest]

Good luck Fiona.  I hope it works great for you.

 

Hugs,

 

Barbara

From: Fiona Vallejo <fionavallejo@...>

Subject: RE: [ ] LDN???

Date: Thursday, July 22, 2010, 11:41 AM

 

Thanks Deb RN,

            I started taking the LDN last night at 1mg dose. Will

keep all posted when/if I start to

see some pain & inflammation relief from hands & wrists.

                                        \

                                        \

                        Fiona

[Guest guest]

I think the key will be improvements in labs rather then subjective

improvements.....that is the one thing LDN is good for and that is placebo

affect/effect. I hope that u feel better......

Deb rn

Sent from my iPhone

On Jul 22, 2010, at 10:41 AM, Fiona Vallejo <fionavallejo@...> wrote:

Thanks Deb RN,

I started taking the LDN last night at 1mg dose. Will keep all

posted when/if I start to

see some pain & inflammation relief from hands & wrists.

Fiona

[Guest guest]

Hi Fiona,

 

Awesome!  I am thinking about trying LDN too so am very interested to hear how

it works for you. 

Sheryl

From: Fiona Vallejo <fionavallejo@...>

Subject: RE: [ ] LDN???

Date: Thursday, July 22, 2010, 10:41 AM

 

Thanks Deb RN,

            I started taking the LDN last night at 1mg dose. Will

keep all posted when/if I start to

see some pain & inflammation relief from hands & wrists.

                                        \

                                        \

                        Fiona

[Guest guest]

Hi All, I've been on LDN now for about 2 weeks. Did 1mg per night for 10 days,

have now

doubled it to 2mg per night for a few nights. Notice relief of pain &

stiffness-but still have 2

swollen , red slightly sore knuckles. Will bump it to 3mg in another week or so.

Does anyone

know if this is a DMARD or is it still unknown? Definately notice that certain

foods like Marinara

sauces, bell peppers & mushrooms give me more pain. Any one who thinks they can

continue

on their merry path of sodas, aspartame, high fuctose corn syrup, white breads ,

Fruit Loop

style cereals  & salty msg laden foods is sorely mistaken. Clean it up. Read up

on the food

groups-do some research -take control of your bodies, the Dr you see doesn't

feel your pain.

Incidently -omega oil capsules are to be swallowed, so one will not taste fish

and the same

goes for turmeric capsules-you won't taste the " spice " . Please let me know if

anyone else

is using low dose naltrexone (LDN) Look it up-if you don't know it.

                                                               Cheers, Fiona

[Guest guest]

Fiona,

Low dose naltrexone is not considered a DMARD for rheumatoid

arthritis. I am not aware of any large studies which have shown it to

be a safe and effective treatment for RA.

Not an MD

On Mon, Aug 2, 2010 at 12:25 PM, Fiona Vallejo

<fionavallejo@...> wrote:

> Hi All, I've been on LDN now for about 2 weeks. Did 1mg per night for 10 days,

have now

> doubled it to 2mg per night for a few nights. Notice relief of pain &

stiffness-but still have 2

> swollen , red slightly sore knuckles. Will bump it to 3mg in another week or

so. Does anyone

> know if this is a DMARD or is it still unknown? Definately notice that certain

foods like Marinara

> sauces, bell peppers & mushrooms give me more pain. Any one who thinks they

can continue

> on their merry path of sodas, aspartame, high fuctose corn syrup, white

breads , Fruit Loop

> style cereals  & salty msg laden foods is sorely mistaken. Clean it up. Read up

on the food

> groups-do some research -take control of your bodies, the Dr you see doesn't

feel your pain.

> Incidently -omega oil capsules are to be swallowed, so one will not taste fish

and the same

> goes for turmeric capsules-you won't taste the " spice " . Please let me know if

anyone else

> is using low dose naltrexone (LDN) Look it up-if you don't know it.

>                                                                Cheers, Fiona

[Guest guest]

Hi, haven't posted here in a long time, but my daughter (15yo in 5 days) started

on LDN, 4mg/night, in October, '09 and has seen *dramatic* improvement. Within

a few weeks she was feeling as good as taking heavy doses of NSAIDS (which she

was no longer able to take due to stomach pains from them) and continued to see

improvement over the following months to the point where she almost feels

disease free. She tried a couple weeks w/o and started to see some return of

pain and inflammation. Prior to LDN she had tried methotrexate and saw no

improvement at all even at the highest dose. We tried all kinds of things and

besides some help with pain with taking nsaids this is really the only thing

that has made a difference for her.

Sharon

[Guest guest]

I love the title of your post..ldn??? and that about sums it up..I will say

that I am so happy that your daughter feels well.

Deb RN

From: [mailto: ] On

Behalf Of caranddan

Sent: Thursday, September 02, 2010 3:19 PM

Subject: [ ] Re: LDN???

Hi, haven't posted here in a long time, but my daughter (15yo in 5 days)

started on LDN, 4mg/night, in October, '09 and has seen *dramatic*

improvement. Within a few weeks she was feeling as good as taking heavy

doses of NSAIDS (which she was no longer able to take due to stomach pains

from them) and continued to see improvement over the following months to the

point where she almost feels disease free. She tried a couple weeks w/o and

started to see some return of pain and inflammation. Prior to LDN she had

tried methotrexate and saw no improvement at all even at the highest dose.

We tried all kinds of things and besides some help with pain with taking

nsaids this is really the only thing that has made a difference for her.

Sharon

[Guest guest]

I just finished trying LDN for about 5 weeks for RA. Started at 1mg 1st wk, 2mg

2nd wk, 3mg

3rd week-felt some pain relief in hand & wrist. I decided not to go up to the

4mg dose because

I was waking up 3-4x per night on it and felt depressed & weepy during the day.

Plus it did not

reduce the 2 big swollen knuckle joints in my hand. It is still unknown if it

can do more than help

with the pain. Had my 1st infusion of Orencia today-want to stop further joint

damage to my hands & feet. Glad it works for your daughter-so young! I'm a

" young " 50.

                                        \

                                        \

          Cheers, Fiona

[Guest guest]

Fiona

Orenica is a great drug….one of the only biologics that I saw effects after

the second dose..

Deb RN

From: [mailto: ] On Behalf

Of Fiona Vallejo

Sent: Thursday, September 02, 2010 5:14 PM

Subject: RE: [ ] Re: LDN???

I just finished trying LDN for about 5 weeks for RA. Started at 1mg 1st wk, 2mg

2nd wk, 3mg

3rd week-felt some pain relief in hand & wrist. I decided not to go up to the

4mg dose because

I was waking up 3-4x per night on it and felt depressed & weepy during the day.

Plus it did not

reduce the 2 big swollen knuckle joints in my hand. It is still unknown if it

can do more than help

with the pain. Had my 1st infusion of Orencia today-want to stop further joint

damage to my hands & feet. Glad it works for your daughter-so young! I'm a

" young " 50.

Cheers, Fiona

[Guest guest]

Fiona, initially my daughter just saw pain relief (and increased mobility along

with it) as well, but the longer she was on it the more the swelling started to

reduce. She also had some insomnia initially, but after a few weeks or so she

adjusted to that... definitely no comparison to the side effects of the usual

drugs to be sure!

Sharon

>

> I just finished trying LDN for about 5 weeks for RA. Started at 1mg 1st wk,

2mg 2nd wk, 3mg

> 3rd week-felt some pain relief in hand & wrist. I decided not to go up to the

4mg dose because

> I was waking up 3-4x per night on it and felt depressed & weepy during the

day. Plus it did not

> reduce the 2 big swollen knuckle joints in my hand. It is still unknown if it

can do more than help

> with the pain. Had my 1st infusion of Orencia today-want to stop further joint

damage to my hands & feet. Glad it works for your daughter-so young! I'm a

" young " 50.

>

                                        \

                                        \

          Cheers, Fiona

>

[Guest guest]

The title wasn't mine, I was responding to a previous title here.

Sharon

>

> I love the title of your post..ldn??? and that about sums it up..I will say

> that I am so happy that your daughter feels well.

>

> Deb RN

>