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Re: Judy B. Propulsid

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Judy,

Are you aware that Propulsid was pulled off the market on July 14? There is

some

indication it may cause heart problems. Have you talked to your doctor about

continuing it? Don't stop it without talking to your doctor, however.

Take care, Bill and Charlotte

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Yes, Bill, we are aware of the problems with propulsid. We discussed it with

our doctor months ago. However, it is my understanding that in certain

cases, it will still be available from the manufacturer, and we (doctor, Ned

and I) feel it is still the best medicine for Ned. With all of his

swallowing problems (swallowing difficulties was one of his early, major

symptoms and the one that caused his employer to put him off on permanent

disability) propulsid works the best for Ned relative to reflux/aspiration

etc. We are still waiting to hear from the manufacturer to see if Ned fits

their " profile " of someone who could still benefit from this drug.

Thanks for mentioning it to us though. If we had not known of the problem

with Propulsid, it would have been important for us to learn about. Judy B.

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Judy B.

Just wanted to check. Charlotte has used both Prilosec and Prevacid and both

worked great with the acid reflux. We open the capsules and put the contents in

Redi Whip usually. The granules do not go through the PEG easily.

Take care, Bill and Charlotte

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Jhbiedenha@... wrote:

> Yes, Bill, we are aware of the problems with propulsid. We discussed it with

> our doctor months ago. However, it is my understanding that in certain

> cases, it will still be available from the manufacturer, and we (doctor, Ned

> and I) feel it is still the best medicine for Ned. With all of his

> swallowing problems (swallowing difficulties was one of his early, major

> symptoms and the one that caused his employer to put him off on permanent

> disability) propulsid works the best for Ned relative to reflux/aspiration

> etc. We are still waiting to hear from the manufacturer to see if Ned fits

> their " profile " of someone who could still benefit from this drug.

>

> Thanks for mentioning it to us though. If we had not known of the problem

> with Propulsid, it would have been important for us to learn about. Judy B.

>

>

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  • 2 weeks later...

Thanks for the input on Prevacid. I think that is what the doctor is going

to switch Ned to since getting the propulsid now requires testing (EDG) etc.

and Ned is not up to u ndergoing further tests. Judy B.

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