Re: RA factor question - Melynda

[Guest guest]

Hi Melynda,

Sorry it took so long for me to get back to you. Lots of Birthdays this

month.

Ahhhh Texas. That must be nice. I've never been that side of the USA.

My Cousin lives out there. And I have an Aunt and Uncle that snow bird

there every year. OH it must be so nice! I wish I could share some of this

snow with you. We have PLENTY! You can take it all, it won't hurt my

feelings a bit.

I was diagnosed with RA in early 2008. But I've had it much longer than

that. I'm one of those people that don't go to the doctor unless they

think that they are seriously dyeing of something. The mysterious symptoms

started in 2004, but the flares were less frequent. I guess what broke the

straw on the camels back was in 2008 I had to wake up a neighbor to help me

get ready for work one morning. I couldn't use one of my arms and the pain

was real bad. Okay... that did it.. I went to doctors and that is when

they ran there tests and diagnosed me. There's no joint damage according to

the X-Rays. But the disease is very active. So I'm not sure what they mean

when they say the disease is severe or mild. I take Enbrel. I really

hate the shots with a passion! Prescribed to take the enbrel once a week

but I only take it when I can't stand the pain any more which is almost like

every 2 weeks. I know, I know... I can get into trouble for that one...

Not following doctors orders. ..

We are close to the same age. I'm 42 years young. Wow! You sure do have

your hands full with problems. I'm so very sorry. What is the difference

between Junior RA and regular RA? I know, like my husband always tells me

when I ask him something... " Google it. " I hate that! LOL!

That's funny about how that doctor reacted to you telling him you smoke to

help the pain.

Yea.. it is legalized here in Michigan but I don't have the guts to bring

it up to my doctor. Even though it is legalized. Some doctors here still

make a fuss about prescribing it. I'm not sure where my Rheumy stands on

this. Not yet anyway. I've only seen him twice so far. I like him a lot.

Better than the last Rheumy that wouldn't help me at all with the pain.

Well.. Yeah I guess in his mind he was trying to help by trying to reduce

the inflamation. But wouldn't help with immediate pain. And when I would

tell him the symptoms I've been having he would just say " hmmm interesting. "

LOL!! He had to go.

I don't know if my blood pressure goes up during a sever flare. How do I

find that out without going to Doctors office?

Thank you for all the warm wishes Melynda. And the same goes for you!!

Michigan

_Re: RA factor question - Mimi _

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Posted by: " Melynda Gamez " _melyndagamez@... _

(mailto:melyndagamez@...?Subject= Re:%20RA%20factor%20question%20-%20Mimi)

_melyndagamez _

(melyndagamez)

Fri Feb 12, 2010 10:35 pm (PST)

HI LISA, I SO TOTALLY NO WHAT UR TALKING ABOUT. ONE MINUTE UR FEELING THIS

WAY,

THEN THE NEXT U FEEL THIS WAY. IT'S SOO ANNOYING!

WELL,I'M GLAD TO HEAR U DON'T HAVE LUPUS.HOW LONG HAVE U HAD RA? IS IT

SEVERE?

WELL,MY NAME IS MELYNDA. I HAVE NOT POSTED IN A WHILE THEN I SAW YOUR POST

&

COULD RELATE TO U.. I'M 40YRS.YOUNG & HAVE JRA,OSTEO,MONOPLYGI H &

NEUROPATHY.

IS THAT LIKE NOT ENOUGH OR WHAT???

WANT TO HEAR SOMETHING? TODAY IT'S LIKE I HAD THE WORST APPT.EVER WITH A

DR.HE

SPECIALIZES IN " PAIN MANAGEMENT. " I ANSWER ALL THE Q'S HE ASKED & THEN HE

SAID, " WHO

SENT U HERE? " I SAID, " MY PCP,HE FELT I COULD USE THIS & IT WOULD WORK. "

I'M THINKING TO

MYSELF, " I FEEL LIKE AN IDIOT. " SO, I STOOD UP, TURNED AROUND,HE CHECKED MY

SPINE &

MY LEFT SIDE OF MY WHOLE ENTIRE LEG. THEN HE ASKED, " WHAT TYPE OF MEDS DO U

TAKE FOR UR PAIN? " I SAID,NORCO,TRAMADOL & MARAJUANA!!! M

HE SO " FREAKED OUT. " HE WAS WHAT DO YOU USE THAT FOR? I SAID, " FOR MY

PAIN " , THEN

HE ASKED DOES IT HELP? I WAS LIKE " IT SO TOTALLY HELPS WITH MY SEVERITY OF

MY PAIN.

I'M NOT AN ADVID USER BUT WHEN I'M IN THE PAIN,THAT I WAS IN THIS WEEKEND

I SMOKE

SOME.......

MY OTHER DRS. SO AGREE THEY SHOULD LEGALIZE IT IN TEXAS, I DO TO!!!!!

WELL,I HOPE I PUT A SMILE ON UR FACE,BUT THEN AGAIN U COULD B LIKE THIS

WOMAN

IS " KRAZY. "

MY THOUGHT'S FOR U LISA R TO KEEP TELLING UR DRS. HOW U FEEL & THE TYPE OF

PAIN U FEEL... THERE'S SO MANY WAY'S TO DESCRIBE OUR PAINS(ACHING,PAIN U

FEELPAIN U

THROBBING,NUMB,THROBBINGTHROBBING,NTHROBBING,NTHROBBING,NUMB,<WBR>TINGLING,<

WBR>IRR

U NEED,LISA. " HERE'S A QUESTION FOR U,WHEN UR IN SEVERE PAIN DOES UR BLOOD

PRESSURE TEND TO GO UP?

PLEASE,LET ME NO? MINE GOES UP EVERYTIME! WELL,MY PRAYERS WILL B WITH

U,LISA.GOD BLESS,~MELYNDA~