Re: RESEARCH - Interstitial lung disease has a poor prognosis in RA: results from an inception cohort

[Guest guest]

Personally. I think this SUX..I read the whole article and it says ILD

(Interstitial Lung Disease) once diagnosed gives about a 3 year prognosis.

I was just diagnosed with ILD 3 weeks ago. Does this mean my days are

numbered?

Penny

_____

From: [mailto: ] On

Behalf Of

Sent: Sunday, July 18, 2010 9:31 AM

Subject: [ ] RESEARCH - Interstitial lung disease has a poor

prognosis in RA: results from an inception cohort

Rheumatology Advance Access originally published online on March 11, 2010

Rheumatology 2010 49(8):1483-1489; doi:10.1093/rheumatology/keq035

Interstitial lung disease has a poor prognosis in rheumatoid

arthritis: results from an inception cohort

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06:35:00

[Guest guest]

Hi, Penny.

Sorry. Try not to worry. I wouldn't interpret the results of the study

that way. Also, every individual's situation is unique. ILD in RA is

not necessarily rapidly progressive.

Be sure to read the accompanying editorial I sent which points out the

significant limitations of the study:

/message/136666

http://rheumatology.oxfordjournals.org/cgi/content/full/49/8/1425?etoc

As Brusselle notes, there are serious questions about the ILD

screening and diagnosis of the participants, and some of the study

subjects may have been diagnosed with ILD late in the disease course.

In addition, it's fair to expect that the prognosis of someone

diagnosed with ILD in 2010 would be better than for someone who was

diagnosed in the 80s.

In the study, it is reported that 28 out of 52 (53.8% - not 100%)

patients who were diagnosed with ILD eventually died of what was

believed to be RA-ILD within the 20-year period. It's possible though

that some of the deaths were related to RA treatments or infections.

It may be helpful to print out the study and editorial and bring them

to your rheumatologist and/or pulmonolgist for discussion and

reassurance.

One last thing: It is very important that, if you smoke, you quit immediately.

Hang in there,

Not an MD

On Sun, Jul 18, 2010 at 11:14 AM, Penny Virag <pmvirag@...> wrote:

> Personally.  I think this SUX..I read the whole article and it says ILD

> (Interstitial Lung Disease) once diagnosed gives about a 3 year prognosis.

> I was just diagnosed with ILD 3 weeks ago.  Does this mean my days are

> numbered?

>

>

>

> Penny

[Guest guest]

Penny,

My husband also has ILD caused by RA. He was diagnosed 8/08 and he is still

working full time. He is on very strong medications and oxygen on exertion. He

goes to a rheumatologist and a lung doctor. There is always the option for a

lung transplant but his lung doctor said he is no way near needing one yet.

Which medications do you take right now?

Take care,

Lynn in Louisiana

>

> Personally. I think this SUX..I read the whole article and it says ILD

> (Interstitial Lung Disease) once diagnosed gives about a 3 year prognosis.

> I was just diagnosed with ILD 3 weeks ago. Does this mean my days are

> numbered?

>

>

>

> Penny

[Guest guest]

Penny,

My mother had RA in her lungs (RA-ILD), she died in 1989, after having lung

involvement with her RA for over 20 years. This when State of the Art

medication/treatment was Gold Shots and prednisone. So your outlook can and

should be decades longer than 3 years. So don't pack your bags just yet. Well,

unless you were planning a trip to the South Pacific.... lol.

So calm down, and don't let things like this get to you. Some researchers tend

to find what they were looking for, and some researchers let the data speak for

itself.

>

> Penny,

> My husband also has ILD caused by RA. He was diagnosed 8/08 and he is still

working full time. He is on very strong medications and oxygen on exertion. He

goes to a rheumatologist and a lung doctor. There is always the option for a

lung transplant but his lung doctor said he is no way near needing one yet.

Which medications do you take right now?

>

> Take care,

> Lynn in Louisiana

>