Re: Hello...Newbie here

[Guest guest]

Nell,

You came to the right place for answers....just ask those

questions.

Dick

At 05:03 PM 9/14/04, you wrote:

Hi everyone...I'm

Nell. My anti-body test came back postive

twice...currently waiting for the results of the viral

load/genotype. I was wondering if anyone out there knows of someone

who kicked this thing? I am holding out hope that I fall into

the

12-15% that do...but my NP said I would be quite aware if I had

kicked it. Also...anyone go to a gastro to follow this? There

seems to be no hepatologists in my area....only gastros...and

the 'expert' in my gastro practice (I have had gastro issues for a

while and recently had my gallbladder out) is an NP.

If, unfortunately, my tests come back showing the virus alive and

well, can I get some advice about questions to ask or things to be

aware of?

Any help or suggestions are greatly appreciated. I know this

disease is slow....but I wish everyone moved faster to give me some

damn answers!

Thanks!

[Guest guest]

Hi Nell! Welcome. You've come to the right place. Between us, we know, like EVERYTHING! Problem is, we often can't remember! lol. Ask us anything!

Our own Gail killed the dragon 5 years ago. I think your 12-15% range is off. You'll need your genotype to know the correct percentages -- types 2 & 3 respond better to treatment (tx) than type 1. I'm type 1, currently on tx, with a 40-50% chance of success.

De

Faith is the ability to not panic.

-----Original Message-----From: nella2075 [mailto:nella2075@...] Sent: Tuesday, September 14, 2004 8:04 PMHepatitis CSupportGroupForDummies Subject: Hello...newbie hereHi everyone...I'm Nell. My anti-body test came back postive twice...currently waiting for the results of the viral load/genotype. I was wondering if anyone out there knows of someone who kicked this thing? I am holding out hope that I fall into the 12-15% that do...but my NP said I would be quite aware if I had kicked it. Also...anyone go to a gastro to follow this? There seems to be no hepatologists in my area....only gastros...and the 'expert' in my gastro practice (I have had gastro issues for a while and recently had my gallbladder out) is an NP. If, unfortunately, my tests come back showing the virus alive and well, can I get some advice about questions to ask or things to be aware of?Any help or suggestions are greatly appreciated. I know this disease is slow....but I wish everyone moved faster to give me some damn answers!Thanks!

[Guest guest]

Thanks for the response De and Dick....by 12-15%, I meant the

percent of people who kick it without treatment....their bodies just

fight it off. At least that is what I have been told! But I am

coming to find out that there is such a mass of information out

there...it is hard to keep it all straight.

How is treatment going for you? That is what scares me the most. I

have read so many horror stories.

Can the virus just sit in your system and not cause damage? Or if

it is in my system, that does not necessarily mean that treatment

will ever be necessary right?

> Hi Nell! Welcome. You've come to the right place. Between us,

we know,

> like EVERYTHING! Problem is, we often can't remember! lol. Ask

us

> anything!

>

> Our own Gail killed the dragon 5 years ago. I think your 12-15%

range is

> off. You'll need your genotype to know the correct percentages --

types 2 &

> 3 respond better to treatment (tx) than type 1. I'm type 1,

currently on

> tx, with a 40-50% chance of success.

>

> De

> Faith is the ability to not panic.

>

> Hello...newbie here

>

>

> Hi everyone...I'm Nell. My anti-body test came back postive

> twice...currently waiting for the results of the viral

> load/genotype. I was wondering if anyone out there knows of

someone

> who kicked this thing? I am holding out hope that I fall into

the

> 12-15% that do...but my NP said I would be quite aware if I had

> kicked it. Also...anyone go to a gastro to follow this? There

> seems to be no hepatologists in my area....only gastros...and

> the 'expert' in my gastro practice (I have had gastro issues for a

> while and recently had my gallbladder out) is an NP.

>

> If, unfortunately, my tests come back showing the virus alive and

> well, can I get some advice about questions to ask or things to be

> aware of?

>

> Any help or suggestions are greatly appreciated. I know this

> disease is slow....but I wish everyone moved faster to give me

some

> damn answers!

>

> Thanks!

[Guest guest]

What and my "Simon" is exempt from discussion, just because he has been incarsarated. does mean he is gone for good.. Kathy B. Pat McBride <pmcbride1@...> wrote:

Go Sick Em DRAGON SLAYER!!! Re: Hello...newbie here> Connie I needed that laugh! I am going to have to come up with a> name =) I talk to myself tons, and it will be no surprise to anyone> if I start yelling at a dragon.>> I am glad Clyde is dead....and I wil pray for Barrys timely demise.>> > > Hi everyone...I'm Nell. My anti-body test came back postive> > twice...currently waiting for the results of the viral> > load/genotype. I was wondering if anyone out there knows of> someone> > who kicked this thing? I am holding out hope that I fall into> the> > 12-15% that do...but my NP said I would be quite aware if I had> > kicked it. Also...anyone go to a gastro to follow this? There> > seems to be no hepatologists in my area....only gastros...and> > the 'expert' in my gastro practice (I have had gastro issues for a> > while and recently had my gallbladder out) is an NP.> >> > If,

unfortunately, my tests come back showing the virus alive and> > well, can I get some advice about questions to ask or things to be> > aware of?> >> > Any help or suggestions are greatly appreciated. I know this> > disease is slow....but I wish everyone moved faster to give me> some> > damn answers!> >> > Thanks!> >> >> >Kathy Brunow

[Guest guest]

Tabby, did your husband's rheumatologist not advise him to take folic

acid to minimize the side effects of methotrexate? If not, please call

the doctor about the proper amount to take.

Sue

On Jul 11, 2010, at 4:24 PM, jesse_mom2000 wrote:

> Hello. My husband was recently diagnosed with Psoriaatic Arthritis

> which they said is a form of RA. I was diagnosed 2 yrs ago with

> Crohn's Disease and have joint pain as well. My husband is in a

> great deal of pain and rests alot. He's on Methotrexate and just

> started the new increase Friday of 5 pills. He'll take another 5

> this Friday and then go to 6 pills the Friday after that. Since he

> is off Friday and Saturday nights, he takes the pills Friday's and I

> am lucky if I see him all weekend. A friend of my brother in law has

> a sister that has RA and with medication and a special diet she's

> doing good. Was wondering if there is a good diet for him to see

> about going on? I give him a daily vitamin, glucosamine (spelling),

> and iron along with his everyday Methotrexate, 1 and a half pills of

> Prednisone, Meloicam and Nexium (for any hurt burn). He hardly eats,

> he's dropped like 40 pounds the last couple months and he often

> feels sick. When he takes the Methotrexate he feels like he's got

> the flu and just worked out. I feel so bad for him. Our son has

> difficulties at times understanding why dad could do things just a

> few months ago and now he can't. He's also seeing a Dermatologist

> because of the skin issues. He's got creams and shampoo for that as

> well. He's only 35 yrs old and it's really hit him hard. Any insight

> would be helpful and welcomed.

> Thanks...Tabby

[Guest guest]

Tabby.  Do you mean your husband takes MTX everyday?

 

Hugs,

 

Barbara

> Hello. My husband was recently diagnosed with Psoriaatic Arthritis

> which they said is a form of RA. I was diagnosed 2 yrs ago with

> Crohn's Disease and have joint pain as well. My husband is in a

> great deal of pain and rests alot. He's on Methotrexate and just

> started the new increase Friday of 5 pills. He'll take another 5

> this Friday and then go to 6 pills the Friday after that. Since he

> is off Friday and Saturday nights, he takes the pills Friday's and I

> am lucky if I see him all weekend. A friend of my brother in law has

> a sister that has RA and with medication and a special diet she's

> doing good. Was wondering if there is a good diet for him to see

> about going on? I give him a daily vitamin, glucosamine (spelling),

> and iron along with his everyday Methotrexate, 1 and a half pills of

> Prednisone, Meloicam and Nexium (for any hurt burn). He hardly eats,

> he's dropped like 40 pounds the last couple months and he often

> feels sick. When he takes the Methotrexate he feels like he's got

> the flu and just worked out. I feel so bad for him. Our son has

> difficulties at times understanding why dad could do things just a

> few months ago and now he can't. He's also seeing a Dermatologist

> because of the skin issues. He's got creams and shampoo for that as

> well. He's only 35 yrs old and it's really hit him hard. Any insight

> would be helpful and welcomed.

> Thanks...Tabby

[Guest guest]

>

> Hello. My husband was recently diagnosed with Psoriaatic Arthritis which they

said is a form of RA. I was diagnosed 2 yrs ago with Crohn's Disease and have

joint pain as well. My husband is in a great deal of pain and rests alot. He's

on Methotrexate and just started the new increase Friday of 5 pills. He'll take

another 5 this Friday and then go to 6 pills the Friday after that. Since he is

off Friday and Saturday nights, he takes the pills Friday's and I am lucky if I

see him all weekend. A friend of my brother in law has a sister that has RA and

with medication and a special diet she's doing good. Was wondering if there is a

good diet for him to see about going on? I give him a daily vitamin, glucosamine

(spelling), and iron along with his everyday Methotrexate, 1 and a half pills of

Prednisone, Meloicam and Nexium (for any hurt burn). He hardly eats, he's

dropped like 40 pounds the last couple months and he often feels sick. When he

takes the Methotrexate he feels like he's got the flu and just worked out. I

feel so bad for him. Our son has difficulties at times understanding why dad

could do things just a few months ago and now he can't. He's also seeing a

Dermatologist because of the skin issues. He's got creams and shampoo for that

as well. He's only 35 yrs old and it's really hit him hard. Any insight would be

helpful and welcomed.

> Thanks...Tabby

>

Hi Tabby~

I take Methotrexate once a week on Fridays & it's only 2.5 mg. I'm also on

Humira injections every other week.

I do take a lot of vitamins that boost up my immune system at least 7 a day. I

have not been sick with a cold, flu etc in 2 1/2 years.

I do not eat any RED meats at all. Chicken, turkey & fish & lots of veggies.

Plenty of water & green tea. This works for me. I also take plenty of Folic Acid

as my hair has been falling out being on Mtx. That has improved a lot.

I feel really bad for your husband. This seems to have hit him hard.

I do know that you have to take this into your own hands, do your homework &

speak to his Rheumy. This is what I did.When I was 1st dx my Rheumy had me on

all kinds of meds, until I started reading about the heavier drugs. That's when

I told him to put me on Humira & that was in April of 2008. I monitor & read

about everything that he wants to give me or try & then I make the decisions on

what I read & if it will do me any good. I still am working. I do have stiffness

from sitting, but once I get up & start walking around it goes away....until I

sit again. The morning is the toughest...trying to get up out of bed.....it's

slow, but I start walking & stretching it goes away. There are times when I can

actually run up & down stairs... & those are really good days.

I hope this may help your husband.

Always speak to his doctor about anything that may concern him.

Regards,

Patti

[Guest guest]

Hi...

I took the oral MTX for six months, it is very hard on your digestive system and

I some of the same side effects you mentioned. Eventually I started the

injections and found it to be way way better. But it sounds to me like he's just

starting and it takes six to eight weeks for methotraxate to really start to

become effective. In any case, you should try to get him not to take it on an

empty stomach , even if it's just ahlf a piece of toast and a little juice I

found it to be much more comfortable. You should talk to the Doc about getting

him started on Folic Acid and Vitamin D. Exhaustion is a big part of RA and it's

very difficult to learn to manage but at last it sounds to me like he's getting

the support he needs from you.

Stan

Seattle, Nice weather for a change.

[ ] Hello...Newbie here

Hello. My husband was recently diagnosed with Psoriaatic Arthritis which they

said is a form of RA. I was diagnosed 2 yrs ago with Crohn's Disease and have

joint pain as well. My husband is in a great deal of pain and rests alot . He's

on Methotrexate and just started the new increase Friday of 5 pills. He'll take

another 5 this Friday and then go to 6 pills the Friday after that. Since he is

off Friday and Saturday nights, he takes the pills Friday's and I am lucky if I

see him all weekend. A friend of my brother in law has a sister that has RA and

with medication and a special diet she's doing good. Was wondering if there is a

good diet for him to see about going on? I give him a daily vitamin, glucosamine

(spelling), and iron along with his everyday Methotrexate , 1 and a half pills

of Prednisone , Meloicam and Nexium (for any hurt burn). He hardly eats, he's

dropped like 40 pounds the last couple months and he often feels sick. When he

takes the Methotrexate he feels like he's got the flu and just worked out. I

feel so bad for him. Our son has difficulties at times understanding why dad

could do things just a few months ago and now he can't. He's also seeing a

Dermatologist because of the skin issues. He's got creams and shampoo for that

as well. He's only 35 yrs old and it's really hit him hard. Any insight would be

helpful and welcomed.

         Thanks...Tabby

[Guest guest]

Tabby

Hi I have RA and Crohns......and the two common

issues to both (for me) are pain and fatigue.

Deb RN

Sent from my iPhone

On Jul 11, 2010, at 3:24 PM, " jesse_mom2000 " <jesse_mom2000@...> wrote:

Hello. My husband was recently diagnosed with Psoriaatic Arthritis which they

said is a form of RA. I was diagnosed 2 yrs ago with Crohn's Disease and have

joint pain as well. My husband is in a great deal of pain and rests alot. He's

on Methotrexate and just started the new increase Friday of 5 pills. He'll take

another 5 this Friday and then go to 6 pills the Friday after that. Since he is

off Friday and Saturday nights, he takes the pills Friday's and I am lucky if I

see him all weekend. A friend of my brother in law has a sister that has RA and

with medication and a special diet she's doing good. Was wondering if there is a

good diet for him to see about going on? I give him a daily vitamin, glucosamine

(spelling), and iron along with his everyday Methotrexate, 1 and a half pills of

Prednisone, Meloicam and Nexium (for any hurt burn). He hardly eats, he's

dropped like 40 pounds the last couple months and he often feels sick. When he

takes the

Methotrexate he feels like he's got the flu and just worked out. I feel so bad

for him. Our son has difficulties at times understanding why dad could do things

just a few months ago and now he can't. He's also seeing a Dermatologist because

of the skin issues. He's got creams and shampoo for that as well. He's only 35

yrs old and it's really hit him hard. Any insight would be helpful and welcomed.

Thanks...Tabby

[Guest guest]

Maybe his doctor could prescribe him Enbrel, it works really well for a lot of

people.

Janet

[Guest guest]

Patti,

I'm sorry you and your husband are having to deal with these issues. I hope he

gets some relief with the meds. I always take my methotrexate before I go to bed

so the worse symptoms have subsided while I am sleeping. I have also cut red

meat and most sugar out of my diet but he may have other triggers. Good luck and

I wish you the best.      Amy