Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 I was thinking yesterday, in the middle of a flare that had me barely crawling-and still having to work. I don't allow negative thoughts very often, but I just wished for one day that I could wake up and not be in pain- for that one day. I have an engagement party (cooking for 30)at the house this week for my daughter and her fiancee'. So I bit the bullet, called the doc and asked for a medrol dosepak. I am already feeling better today between the pred and the enbrel, and wish that the pred side effects were not such that I couldn't be on it full time again. I know all the reasons I can't- I just sometimes wish I could since it would improve my quality of life so much. If I could have that one day that I didn't hurt at all, it would be my daughter's wedding day. But it doesn't matter if I do hurt or not- I will choose joy. I will choose to see the wonder of these two beautiful children committing to follow Christ together for the rest of their lives. I will choose to see the laughter, and the love, and the radiance on the faces of my family and friends as we covenant to love and support them. For that day,I will refuse to let the pain win. If I'm gonna hurt anyway, might as well dance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Janet, OMG... I will pray that at the very least, that your daughters wedding day, will be as pain free as possible. We deserve one special day, and God can create miracles! Stay strong and keep your head up. Bonnie > > I was thinking yesterday, in the middle of a flare that had me barely crawling-and still having to work. I don't allow negative thoughts very often, but I just wished for one day that I could wake up and not be in pain- for that one day. I have an engagement party (cooking for 30)at the house this week for my daughter and her fiancee'. So I bit the bullet, called the doc and asked for a medrol dosepak. I am already feeling better today between the pred and the enbrel, and wish that the pred side effects were not such that I couldn't be on it full time again. I know all the reasons I can't- I just sometimes wish I could since it would improve my quality of life so much. If I could have that one day that I didn't hurt at all, it would be my daughter's wedding day. But it doesn't matter if I do hurt or not- I will choose joy. I will choose to see the wonder of these two beautiful children committing to follow Christ together for the rest of their lives. I will choose to see the laughter, and the love, and the radiance on the faces of my family and friends as we covenant to love and support them. > For that day,I will refuse to let the pain win. > > If I'm gonna hurt anyway, might as well dance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Hi Jane: So sorry you are in a bad flare. When RA rears its ugly head, the pain is unbearable. I am glad you called your Dr. and got the Medrol pack. I hope you get relief soon, and that being on it short term, you won't have any problems with it. I say too, dance the day away at your daughters wedding. It is a day to rejoice. That's what I did, also enjoyed many Tia 's. It was so worth what I had to suffer the next day. Take care, and wishing you many pain free days ahead. Hugs, Barbara --- In , " janeatregis " <janeatregis@...> wrote: > > I was thinking yesterday, in the middle of a flare that had me barely crawling-and still having to work. I don't allow negative thoughts very often, but I just wished for one day that I could wake up and not be in pain- for that one day. I have an engagement party (cooking for 30)at the house this week for my daughter and her fiancee'. So I bit the bullet, called the doc and asked for a medrol dosepak. I am already feeling better today between the pred and the enbrel, and wish that the pred side effects were not such that I couldn't be on it full time again. I know all the reasons I can't- I just sometimes wish I could since it would improve my quality of life so much. If I could have that one day that I didn't hurt at all, it would be my daughter's wedding day. But it doesn't matter if I do hurt or not- I will choose joy. I will choose to see the wonder of these two beautiful children committing to follow Christ together for the rest of their lives. I will choose to see the laughter, and the love, and the radiance on the faces of my family and friends as we covenant to love and support them. > For that day,I will refuse to let the pain win. > > If I'm gonna hurt anyway, might as well dance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 I know what you mean. I too...choose to focus on the positive instead of the negatives of RA. Of course, I understand that it's easier for me because I respond well to the medication.....When I'm in the midst of a flare, I allow myself a pretty fine pity party...lol. But, we do have so many things to be thankful for! Our ancestors pretty much had nothing to help them battle this disease. We have several to choose from! My husband's grandfather suffered with RA and was bedridden for years before passing away. So, I remind myself that my suffering only lasts for a short time.. Have you noticed that you tend to have flares when you are getting ready for a special occasion? I have noticed that happens to me.....STRESS is not a friend of RA. But, thankfully it doesn't happen every time I have a special event. So, that's something positive. I will pray that your RA behaves itself this week and that you can fully enjoy your daughter's happy occasion. Witnessing the engagement and union of a two young Christians is truly a reason to celebrate. God bless you and yours. Jackie Cogburn On Thu, Aug 20, 2009 at 3:32 PM, janeatregis <janeatregis@...> wrote: > > > I was thinking yesterday, in the middle of a flare that had me barely > crawling-and still having to work. I don't allow negative thoughts very > often, but I just wished for one day that I could wake up and not be in > pain- for that one day. I have an engagement party (cooking for 30)at the > house this week for my daughter and her fiancee'. So I bit the bullet, > called the doc and asked for a medrol dosepak. I am already feeling better > today between the pred and the enbrel, and wish that the pred side effects > were not such that I couldn't be on it full time again. I know all the > reasons I can't- I just sometimes wish I could since it would improve my > quality of life so much. If I could have that one day that I didn't hurt at > all, it would be my daughter's wedding day. But it doesn't matter if I do > hurt or not- I will choose joy. I will choose to see the wonder of these two > beautiful children committing to follow Christ together for the rest of > their lives. I will choose to see the laughter, and the love, and the > radiance on the faces of my family and friends as we covenant to love and > support them. > For that day,I will refuse to let the pain win. > > If I'm gonna hurt anyway, might as well dance. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 Yes, He can! thanks so much for your prayers and encouragement. I am a single mom and she is the youngest of six (I raised 4 and have 2 steps) so I am used to carrying the load on my own but gosh it's hard sometimes! thanks again, Jane > > > > I was thinking yesterday, in the middle of a flare that had me barely crawling-and still having to work. I don't allow negative thoughts very often, but I just wished for one day that I could wake up and not be in pain- for that one day. I have an engagement party (cooking for 30)at the house this week for my daughter and her fiancee'. So I bit the bullet, called the doc and asked for a medrol dosepak. I am already feeling better today between the pred and the enbrel, and wish that the pred side effects were not such that I couldn't be on it full time again. I know all the reasons I can't- I just sometimes wish I could since it would improve my quality of life so much. If I could have that one day that I didn't hurt at all, it would be my daughter's wedding day. But it doesn't matter if I do hurt or not- I will choose joy. I will choose to see the wonder of these two beautiful children committing to follow Christ together for the rest of their lives. I will choose to see the laughter, and the love, and the radiance on the faces of my family and friends as we covenant to love and support them. > > For that day,I will refuse to let the pain win. > > > > If I'm gonna hurt anyway, might as well dance. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 Jane, Enjoy your party and your dosepak. My daughter got married earlier this summer and I was determined to enjoy the whole deal-parties,shopping planning -and I did. . I too take enbrel and added low dose steriods. My doctor actually said if i could keep it at a low dose it would probably cause less long term problems than the inflammation levels I was experiencing. Sometimes quality of life needs to be a priority-and a daughter's wedding qualifies in my book. I have now added mtx (again-it quit working and made me so exhausted I quit taking it several years ago) in the hopes of cutting out the steriods. If not I will stay on low dose and enjoy what quality I can because with it I can function at a somewhat normal (but slower) level. Congrats on the engagement and enjoy this special time with your daughter. linda From: janflneatregis <janeatregis@...> Subject: [ ] Some random thoughts Date: Thursday, August 20, 2009, 3:32 PM I was thinking yesterday, in the middle of a flare that had me barely crawling-and still having to work. I don't allow negative thoughts very often, but I just wished for one day that I could wake up and not be in pain- for that one day. I have an engagement party (cooking for 30)at the house this week for my daughter and her fiancee'. So I bit the bullet, called the doc and asked for a medrol dosepak. I am already feeling better today between the pred and the enbrel, and wish that the pred side effects were not such that I couldn't be on it full time again. I know all the reasons I can't- I just sometimes wish I could since it would improve my quality of life so much. If I could have that one day that I didn't hurt at all, it would be my daughter's wedding day. But it doesn't matter if I do hurt or not- I will choose joy. I will choose to see the wonder of these two beautiful children committing to follow Christ together for the rest of their lives. I will choose to see the laughter, and the love, and the radiance on the faces of my family and friends as we covenant to love and support them. For that day,I will refuse to let the pain win. If I'm gonna hurt anyway, might as well dance. Quote Link to comment Share on other sites More sharing options...
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