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[Fwd: Welcome to Fibromyalgia-CFS]

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Early morning cheerfulness can be

extremely obnoxious- Feather

Mom to Bear, Wife to

Hello,

My name is Rev. Dennis Austin and I have had Fibro for 2 years. Before this

I would walk 7 to 12 miles a day and now I cannot do much of anything. I am

taking steroids right now. Have a Blessed weekend.

In His Love,

Rev.

Pastor Of Mission Services

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  • 3 months later...

Welcome ,

My name is and I am also 23 yo. There are some days that I feel 80. Used

to

be more but lately I am doing well. I feel achy tonight because I just did my

first

shift at my new part-time job.

I have CFS, Fibro and Postural Hypotension which is a fainting disorder. Since

being diagnosed with PH and treated for it, my health has dramatically improved.

I

hope that you feel better soon. This is such a hard illness especially when we

are

young. It is easy to get discouraged.

Feel free to mail me anytime to talk.

& wrote:

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> Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM

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> ------------------------------------------------------------------------

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> Subject: Re: Welcome to

> Date: Fri, 1 Sep 2000 21:45:04 EDT

> From: EnigmaGurl@...

> To: -owneregroups

>

> Hi,

>

> I'm from Framingham, Massachusetts…I'm 23 years old…yet I feel

like

> I'm 80. I've been suffering from fibromyalgia….and restless leg syndrome

> (which isn't just in my legs,,,but in my arms, stomach, face, wrists). I

> guess I have pretty much isolated myself over the last three years. My

> conditions have only worsened which have left me with a lack of hope for the

> future. I guess I decided to join these newsgroups in the hopes of finding

> people who can relate to and understand what I'm going through. No one in my

> life has what I have therefore it is impossible for them to understand. I

> feel extremely alone and set apart. I dropped out of college because I can't

> sit still for a class….and the pain from the fibromyalgia makes it nearly

> impossible to concentrate. I do have my own celebrity photograph business,

> which I run from home..fortunately that is pretty successful. I don't want

> to sit around and feel sorry for myself but the pain is just overwhelming and

> I am really sick and tired of it. I've seen all the specialists….been on

> every medication known to man….and no relief whatsoever. I look forward to

> meeting people on here! So please feel free to email me…I would love to

hear

> from you!

>

>

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>> " I have CFS, Fibro and Postural Hypotension which is a fainting

disorder. "

what's PH and what are some of the symptoms?

** , Stinky's caretaker**

Music washes away from the soul,

the dust of everyday life

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I forgot to add. My symptoms rendered me immobile and bedridden for over a

year. Some people have the symptoms but can carry on with life...I had to

lay down and stay laying down as I never knew when I was going to faint.

andy24747@... wrote:

>

> >> " I have CFS, Fibro and Postural Hypotension which is a fainting

> disorder. "

>

> what's PH and what are some of the symptoms?

>

> ** , Stinky's caretaker**

> Music washes away from the soul,

> the dust of everyday life

>

> ~*~CHAT TIME:~*~

> MON & THURS

> Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM

> Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM

> WHERE: /chat/

>

> VIP

> If there is a problem on this list notify.

> Co-Moderator

> The_List_Owner@...

>

> Add or view links about fibro/CFS.

> http://www.onelist.com/links/

>

> TO unsubscribe.

> Go to: http://www.onelist.com/ to this list and unsub from it.

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