Guest guest Posted October 27, 1998 Report Share Posted October 27, 1998 Hi Gail, This is a come and go type symptom for me. Usually at it's worse when I am herxing bad. No matter when I sleep, day or night, seem to wake up pretty damp....rarely if ever have them when I am awake though. I am loving this nice cool weather we are having here in the East now, I am not a fan of summer or heat. Marta >From: IAMAVIPTWO@... > >Hi everyone.....anyone get the sweats really bad, my hair gets drenched and I >can't stand the heqt or the sun anymore!! anyone else? Gail > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2000 Report Share Posted August 4, 2000 Hi all! I just had to say something about this. I don't want to get too graphic, but sweating has always been a MAJOR problem for me too! I used to have trouble with stinky shoes (not as much of a problem now- but, man, my parents can attest...yikes!). I am always warm. My gramma still gives me a hard time about not wearing a coat in 35-40 degree weather. My hands sweat constantly (though still not as much as when I was younger-does age affect this? I am 28 now.). I am getting married in December. LATE December. Need I say more?? Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2001 Report Share Posted February 2, 2001 Dear Liz, This is ironic timing because months ago, after starting Biaxin, I got the same thing. You might remember my letter jokingly beginning with Stink, stank, stunk. The smell was awful and it would come back within hours no matter what kind of deodorant I used. The ironic part is that this very morning, I noticed that the smell was not there. For at least six months I had been taking biaxin at 500mg twice a day. Then two months ago, I added to that, tetracycline at 500mg twice a day. The smell never changed. But just this week, I decided I was taking way too much medicine, so I have been taking only one 500mg capsule of tetracycline on one day and 500mg of Biaxin on the next. I don't know if the decrease in medicine made the smell go or if it is due to an improvement in my RA or if the smell will return tomorrow. I have noticed a decrease in inflammation lately although I still have a lot of pain in knee and elbow especially. I guessed that the smell which was also reported by someone else on the list, was caused by the toxins released in the process of killing the disease and in the herx which was terrible on biaxin. I did not get that smell though when I took minocycline; I just got better with no herx or anything. Just another mystery. love, Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2001 Report Share Posted February 3, 2001 I feel that the drugs you are taking are killing off microorganisms and that die-off produces wastes and toxins that your body trying to get rid of. Also it could be a byproduct of the drug, like when you take lots of garlic you smell like garlic. If you stink....I always take it as a very good sign. Hopefully, though, it should pass as you reduce your toxic burden. kathy Re: rheumatic sweating >Dear Liz, > This is ironic timing because months ago, after starting Biaxin, I got the >same thing. You might remember my letter jokingly beginning with Stink, >stank, stunk. The smell was awful and it would come back within hours no >matter what kind of deodorant I used. The ironic part is that this very >morning, I noticed that the smell was not there. For at least six months I >had been taking biaxin at 500mg twice a day. Then two months ago, I added >to that, >tetracycline at 500mg twice a day. >The smell never changed. >But just this week, I decided I was taking way too much medicine, so I have >been taking only one 500mg capsule of tetracycline on one day and 500mg of >Biaxin on the next. >I don't know if the decrease in medicine made the smell go or if it is due >to an improvement in my RA or if the smell will return tomorrow. I have >noticed a decrease in inflammation lately although I still have a lot of >pain in knee and elbow especially. > I guessed that the smell which was also reported by someone else on the >list, was caused by the toxins released in the process of killing the >disease and in the herx which was terrible on biaxin. I did not get that >smell though when I took minocycline; I just got better with no herx or >anything. > Just another mystery. >love, >Gloria > > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2001 Report Share Posted February 4, 2001 > I feel that the drugs you are taking are killing off microorganisms and that > die-off produces wastes and toxins that your body trying to get rid of. This is the kind of info I'm trying to get at, if it is toxins, what exactly are the toxins comprised of and why would everyone not get this reaction? I understand the concept of the mycoplasma dying off at a higher rate once you are on the treament, and how fragments or even frragments with parts of the hosts cell membranes (like Dr. Nicolson describes) triggering a reaction like the herx, but are these microbes actually producing toxins? Like as with botulism toxin? Or is this just an artifact of my metabolism reacting with tetracycline drugs. Incidentally, I got the reaction too while on Biaxin and off tetracyclines temporarily, while treating another infection with a penicillin antibiotic. > Also it could be a byproduct of the drug, like when you take lots of garlic > you smell like garlic. If you stink....I always take it as a very good > sign. Hopefully, though, it should pass as you reduce your toxic burden. Well, I've been on the treatment 3 years now, how toxic should I still be by now? I would hope not all that much. Incidentally and mostly unrelated--has anyone taken yellow dock for liver detox? And here are a couple of links I found while trying to puzzle this out. I'm just trying to analyze this because I think it may offer an important clue for me. If I figure anything out, I'll let you all know. sweat links http://zebra.biol.sc.edu/smell/ann/myth5.html http://members.aol.com/nonverbal2/fear.htm Liz G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2001 Report Share Posted February 4, 2001 Mycoplasma in particular and other organisms create a little wall of toxin around themselves for protection. As the antibiotic attacks the wall, it breaks up and the toxins circulate around the body. Chris. >This is the kind of info I'm trying to get at, if it is toxins, what exactly >are the toxins comprised of and why would everyone not get this reaction? I >understand the concept of the mycoplasma dying off at a higher rate once you >are on the treament, and how fragments or even frragments with parts of the >hosts cell membranes (like Dr. Nicolson describes) triggering a reaction >like the herx, but are these microbes actually producing toxins? Like as >with botulism toxin? Or is this just an artifact of my metabolism reacting >with tetracycline drugs. Incidentally, I got the reaction too while on >Biaxin and off tetracyclines temporarily, while treating another infection >with a penicillin antibiotic. > >> Also it could be a byproduct of the drug, like when you take lots of >garlic >> you smell like garlic. If you stink....I always take it as a very good >> sign. Hopefully, though, it should pass as you reduce your toxic burden. > >Well, I've been on the treatment 3 years now, how toxic should I still be by >now? I would hope not all that much. Incidentally and mostly >unrelated--has anyone taken yellow dock for liver detox? > >And here are a couple of links I found while trying to puzzle this out. I'm >just trying to analyze this because I think it may offer an important clue >for me. If I figure anything out, I'll let you all know. > >sweat links >http://zebra.biol.sc.edu/smell/ann/myth5.html > >http://members.aol.com/nonverbal2/fear.htm > >Liz G. > > > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2001 Report Share Posted February 5, 2001 Dear Liz, Did anything change about your medicine right at the time you started stinking? I started when I added biaxin. I am guessing that the smell came from herxing, because when I reduced my medicine significantly this week, I started to feel better right away and the smell went away at the same time. Even this morning, when I had heavy quilts on and the children got up an cranked up the heat, causing me to break into a heavy sweat, I don't have any smell. It is hard to believe I have been herxing all these months and causing damage by taking too much medicine. But it looks like that must be the case. I even ate out last night and ate some soup that had tomato in it. I also cut the celebrex down to 100mg in the morning instead of twice a day because of that bleeding incident over the weekend. I expected to be worse this morning I have pain, but I actually walked better than ever for this time of day (I had to go into the train station to buy a monthly pass for my daughter at 6:30am.) The whole disease and indeed, my whole life is one big mystery. I hope God is in control because I sure am not. love, Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2001 Report Share Posted July 8, 2001 Marjorie, Yep can cause it, but rule out other factors too. Like thyroid. An optimum thryoid (I have read) for women is 1 to 2. Tho tests say up to 6 is good, they are finding that for many women, over 2 starts giving hypothyroid symptoms. About.com has a lot of good info on thyroid. I'm no doctor k, this is just what I've read. I sweat too, easily and get hot flashes, not so much as I used to before treatment and during tx. So hopefully even that is getting better But I'm still sensitive to heat ick! alley http://communities.msn.com/LiverDiseaseSupportGroup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2001 Report Share Posted July 8, 2001 Marjorie, Yep can cause it, but rule out other factors too. Like thyroid. An optimum thryoid (I have read) for women is 1 to 2. Tho tests say up to 6 is good, they are finding that for many women, over 2 starts giving hypothyroid symptoms. About.com has a lot of good info on thyroid. I'm no doctor k, this is just what I've read. I sweat too, easily and get hot flashes, not so much as I used to before treatment and during tx. So hopefully even that is getting better But I'm still sensitive to heat ick! alley http://communities.msn.com/LiverDiseaseSupportGroup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2001 Report Share Posted July 8, 2001 Marjorie, Yep can cause it, but rule out other factors too. Like thyroid. An optimum thryoid (I have read) for women is 1 to 2. Tho tests say up to 6 is good, they are finding that for many women, over 2 starts giving hypothyroid symptoms. About.com has a lot of good info on thyroid. I'm no doctor k, this is just what I've read. I sweat too, easily and get hot flashes, not so much as I used to before treatment and during tx. So hopefully even that is getting better But I'm still sensitive to heat ick! alley http://communities.msn.com/LiverDiseaseSupportGroup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2001 Report Share Posted July 8, 2001 Marjorie, Yep can cause it, but rule out other factors too. Like thyroid. An optimum thryoid (I have read) for women is 1 to 2. Tho tests say up to 6 is good, they are finding that for many women, over 2 starts giving hypothyroid symptoms. About.com has a lot of good info on thyroid. I'm no doctor k, this is just what I've read. I sweat too, easily and get hot flashes, not so much as I used to before treatment and during tx. So hopefully even that is getting better But I'm still sensitive to heat ick! alley http://communities.msn.com/LiverDiseaseSupportGroup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 Marjorie.... I suffer with the heat, constantly drenched in sweat and it has nothing to do with my change whcih has been over for years. A lot of folks seem to think it's associated with treatment, but that isn't the case with me. About 7 years ago I started suffering from heat ....I've been on tx for 11 months. Long before tx I'd be drenched in sweat all summer long. Even in air conditioning I get hot...unless it's truly frigid. So I'd be interested in sharing any info you get on this. I think it must be associated with either the hep c or the liver damage but have no clue. Tatezi Margie Delese wrote: > I've read several post on Sweating. I'm not on trmt. have tried it > twice. I use the hormone patch so it cant be hot flashes and it is > different than haveing hot flashes. It has got to where I'm sweating a > lot of the time. Can anyone give me any insight into this and why > some of us have it, is it just a side effect of the hep c. Thanks for > any info. Regards, Marjorie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 Marjorie.... I suffer with the heat, constantly drenched in sweat and it has nothing to do with my change whcih has been over for years. A lot of folks seem to think it's associated with treatment, but that isn't the case with me. About 7 years ago I started suffering from heat ....I've been on tx for 11 months. Long before tx I'd be drenched in sweat all summer long. Even in air conditioning I get hot...unless it's truly frigid. So I'd be interested in sharing any info you get on this. I think it must be associated with either the hep c or the liver damage but have no clue. Tatezi Margie Delese wrote: > I've read several post on Sweating. I'm not on trmt. have tried it > twice. I use the hormone patch so it cant be hot flashes and it is > different than haveing hot flashes. It has got to where I'm sweating a > lot of the time. Can anyone give me any insight into this and why > some of us have it, is it just a side effect of the hep c. Thanks for > any info. Regards, Marjorie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 I used to have temperature problems but these went when I changed my diet and went boringly pure. now on treatment I am still temperature free. love Sylv Sweating > I've read several post on Sweating. I'm not on trmt. have tried it twice. I use the hormone patch so it cant be hot flashes and it is different than haveing hot flashes. It has got to where I'm sweating a lot of the time. Can anyone give me any insight into this and why some of us have it, is it just a side effect of the hep c. Thanks for any info. Regards, Marjorie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 I used to have temperature problems but these went when I changed my diet and went boringly pure. now on treatment I am still temperature free. love Sylv Sweating > I've read several post on Sweating. I'm not on trmt. have tried it twice. I use the hormone patch so it cant be hot flashes and it is different than haveing hot flashes. It has got to where I'm sweating a lot of the time. Can anyone give me any insight into this and why some of us have it, is it just a side effect of the hep c. Thanks for any info. Regards, Marjorie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 I used to have temperature problems but these went when I changed my diet and went boringly pure. now on treatment I am still temperature free. love Sylv Sweating > I've read several post on Sweating. I'm not on trmt. have tried it twice. I use the hormone patch so it cant be hot flashes and it is different than haveing hot flashes. It has got to where I'm sweating a lot of the time. Can anyone give me any insight into this and why some of us have it, is it just a side effect of the hep c. Thanks for any info. Regards, Marjorie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 I used to have temperature problems but these went when I changed my diet and went boringly pure. now on treatment I am still temperature free. love Sylv Sweating > I've read several post on Sweating. I'm not on trmt. have tried it twice. I use the hormone patch so it cant be hot flashes and it is different than haveing hot flashes. It has got to where I'm sweating a lot of the time. Can anyone give me any insight into this and why some of us have it, is it just a side effect of the hep c. Thanks for any info. Regards, Marjorie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 Tatezi, I was never sweaty like I am now before treatment. Since I began 15 weeks ago...all I do is sweat. So far, my thyroid numbers are well within normal. I sweat the worse in the mornings. I am also sensitive to direct sunlight...can't stand it. I used to be colder than everyone I know, but now I am by far the hottest. I am driving up my electricity bill and freezing my family out of the house. Edie Re: Sweating > Marjorie.... > > I suffer with the heat, constantly drenched in sweat and it has nothing > to do with my change whcih has been over for years. > > A lot of folks seem to think it's associated with treatment, but that > isn't the case with me. About 7 years ago I started suffering from heat > ...I've been on tx for 11 months. Long before tx I'd be drenched in > sweat all summer long. Even in air conditioning I get hot...unless it's > truly frigid. > > So I'd be interested in sharing any info you get on this. I think it > must be associated with either the hep c or the liver damage but have no > clue. > > Tatezi > > Margie Delese wrote: > > > I've read several post on Sweating. I'm not on trmt. have tried it > > twice. I use the hormone patch so it cant be hot flashes and it is > > different than haveing hot flashes. It has got to where I'm sweating a > > lot of the time. Can anyone give me any insight into this and why > > some of us have it, is it just a side effect of the hep c. Thanks for > > any info. Regards, Marjorie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 Tatezi, I was never sweaty like I am now before treatment. Since I began 15 weeks ago...all I do is sweat. So far, my thyroid numbers are well within normal. I sweat the worse in the mornings. I am also sensitive to direct sunlight...can't stand it. I used to be colder than everyone I know, but now I am by far the hottest. I am driving up my electricity bill and freezing my family out of the house. Edie Re: Sweating > Marjorie.... > > I suffer with the heat, constantly drenched in sweat and it has nothing > to do with my change whcih has been over for years. > > A lot of folks seem to think it's associated with treatment, but that > isn't the case with me. About 7 years ago I started suffering from heat > ...I've been on tx for 11 months. Long before tx I'd be drenched in > sweat all summer long. Even in air conditioning I get hot...unless it's > truly frigid. > > So I'd be interested in sharing any info you get on this. I think it > must be associated with either the hep c or the liver damage but have no > clue. > > Tatezi > > Margie Delese wrote: > > > I've read several post on Sweating. I'm not on trmt. have tried it > > twice. I use the hormone patch so it cant be hot flashes and it is > > different than haveing hot flashes. It has got to where I'm sweating a > > lot of the time. Can anyone give me any insight into this and why > > some of us have it, is it just a side effect of the hep c. Thanks for > > any info. Regards, Marjorie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 Normal TSH (what they measure for hypothyroid) is .5 to 5.5. Mine was always fine until rebetron blew out my thyroid several months ago and it jumped to 110. But hypothyroid (underactive) causes you to be cold while hyperthyroid (overactive) causes heat. Go figure....all I know is that up until about 7 years ago I didn't mind the heat at all and now I really suffer from it. Hey, maybe it's age that does it <g> and it has nothing to do with our hep or livers. Alley/Pat wrote: > Marjorie, > > Yep can cause it, but rule out other factors too. Like thyroid. > > An optimum thryoid (I have read) for women is 1 to 2. Tho tests say up > to 6 > is good, they are finding that for many women, over 2 starts giving > hypothyroid symptoms. > > About.com has a lot of good info on thyroid. > > I'm no doctor k, this is just what I've read. > > I sweat too, easily and get hot flashes, not so much as I used to > before > treatment and during tx. So hopefully even that is getting better > > But I'm still sensitive to heat ick! > > alley > http://communities.msn.com/LiverDiseaseSupportGroup > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 Normal TSH (what they measure for hypothyroid) is .5 to 5.5. Mine was always fine until rebetron blew out my thyroid several months ago and it jumped to 110. But hypothyroid (underactive) causes you to be cold while hyperthyroid (overactive) causes heat. Go figure....all I know is that up until about 7 years ago I didn't mind the heat at all and now I really suffer from it. Hey, maybe it's age that does it <g> and it has nothing to do with our hep or livers. Alley/Pat wrote: > Marjorie, > > Yep can cause it, but rule out other factors too. Like thyroid. > > An optimum thryoid (I have read) for women is 1 to 2. Tho tests say up > to 6 > is good, they are finding that for many women, over 2 starts giving > hypothyroid symptoms. > > About.com has a lot of good info on thyroid. > > I'm no doctor k, this is just what I've read. > > I sweat too, easily and get hot flashes, not so much as I used to > before > treatment and during tx. So hopefully even that is getting better > > But I'm still sensitive to heat ick! > > alley > http://communities.msn.com/LiverDiseaseSupportGroup > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 tat says <<Normal TSH (what they measure for hypothyroid) is .5 to 5.5. >> If you'll read the newer stuff on thyroid, they found that for women esp, anything above a 2 can cause hypothyroid problems. It did with me. I was 5.75, my test said normal was 6. As my thyroid slowly lowers after treatment, my symptoms are slowly going away too. Just becuase they say something is " normal " doesn't always mean it's normal for you. So be careful, check things out, find a thyroid specialist if you think it could be that. Sometimes, it's just the hep and some things we have to deal with it the best we can. If the sweats really bother you, see a specialist alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 tat says <<Normal TSH (what they measure for hypothyroid) is .5 to 5.5. >> If you'll read the newer stuff on thyroid, they found that for women esp, anything above a 2 can cause hypothyroid problems. It did with me. I was 5.75, my test said normal was 6. As my thyroid slowly lowers after treatment, my symptoms are slowly going away too. Just becuase they say something is " normal " doesn't always mean it's normal for you. So be careful, check things out, find a thyroid specialist if you think it could be that. Sometimes, it's just the hep and some things we have to deal with it the best we can. If the sweats really bother you, see a specialist alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 tat says <<Normal TSH (what they measure for hypothyroid) is .5 to 5.5. >> If you'll read the newer stuff on thyroid, they found that for women esp, anything above a 2 can cause hypothyroid problems. It did with me. I was 5.75, my test said normal was 6. As my thyroid slowly lowers after treatment, my symptoms are slowly going away too. Just becuase they say something is " normal " doesn't always mean it's normal for you. So be careful, check things out, find a thyroid specialist if you think it could be that. Sometimes, it's just the hep and some things we have to deal with it the best we can. If the sweats really bother you, see a specialist alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 tat says <<Normal TSH (what they measure for hypothyroid) is .5 to 5.5. >> If you'll read the newer stuff on thyroid, they found that for women esp, anything above a 2 can cause hypothyroid problems. It did with me. I was 5.75, my test said normal was 6. As my thyroid slowly lowers after treatment, my symptoms are slowly going away too. Just becuase they say something is " normal " doesn't always mean it's normal for you. So be careful, check things out, find a thyroid specialist if you think it could be that. Sometimes, it's just the hep and some things we have to deal with it the best we can. If the sweats really bother you, see a specialist alley Quote Link to comment Share on other sites More sharing options...
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