I am a new member

[Guest guest]

Hi welcome to the group.

My name is Lori and I live in Miami, Florida. I have a son, who has down

syndrome and he just turned 9 on Friday. I also have a daughter who turns 13

next month.

[Guest guest]

Hi welcome to the group.

My name is Lori and I live in Miami, Florida. I have a son, who has down

syndrome and he just turned 9 on Friday. I also have a daughter who turns 13

next month.

[Guest guest]

Hi ,

I'm Deb. I've been married to Tim for ten years. We have three great kids:

, 8yo (Ds), Blake, 6yo & Hannah, 3yo. We are all very active in our

local parent group and are looking forward to the Buddy Walk here in

Northeast Indiana on the 29th (of September).

[Guest guest]

Hi ,

I'm Deb. I've been married to Tim for ten years. We have three great kids:

, 8yo (Ds), Blake, 6yo & Hannah, 3yo. We are all very active in our

local parent group and are looking forward to the Buddy Walk here in

Northeast Indiana on the 29th (of September).

[Guest guest]

Hi ! Welcome to the group! My name is , too. My husband is

and we have 5 kids. My two oldest, (Beth-14 and -13) are

from my 1st marriage, but and I have been together since they were

4 and 5. Anyway, we also have together, Kimber-7 and Hannah-almost 16

months and -her twin. was diagnosed with DS and

hirschprungs disease (which resulted in colostomy), reflux, g-button and

fundoplication, repaired AV canal heart defect, and hypertrophic

cardiomyopathy. He's had his share of medical issues! We live in

Southern Illinois. Can't wait to get to know you better. Till later.

[Guest guest]

Hi ! Welcome to the group! My name is , too. My husband is

and we have 5 kids. My two oldest, (Beth-14 and -13) are

from my 1st marriage, but and I have been together since they were

4 and 5. Anyway, we also have together, Kimber-7 and Hannah-almost 16

months and -her twin. was diagnosed with DS and

hirschprungs disease (which resulted in colostomy), reflux, g-button and

fundoplication, repaired AV canal heart defect, and hypertrophic

cardiomyopathy. He's had his share of medical issues! We live in

Southern Illinois. Can't wait to get to know you better. Till later.

[Guest guest]

Hi,

I am also a new member. My name is and I am the mother of 1 yo

(DS). He is the light of mine and his fathers life. I am interested in

hearing from any one who has their children on the Nutrivene vitamin

protocol. We have had our son on it for just about 2 months. We are also

interested in the piracetem and would like to hear from anyone who has any

history with this drug.

Also any hints on getting to crawl.... he knows to get on the hands and

knees and rock, but can't seem to motivate him to move.

[Guest guest]

Hi,

I am also a new member. My name is and I am the mother of 1 yo

(DS). He is the light of mine and his fathers life. I am interested in

hearing from any one who has their children on the Nutrivene vitamin

protocol. We have had our son on it for just about 2 months. We are also

interested in the piracetem and would like to hear from anyone who has any

history with this drug.

Also any hints on getting to crawl.... he knows to get on the hands and

knees and rock, but can't seem to motivate him to move.

[Guest guest]

,

Hi. hope you enjoy the group. it's a very informative, funny, inspiring,

knowledgable bunch. My daughter amanda is 11 DS and in 5th grade inclusion

and has been since 1st grade. My son jesse is 7 in 2nd grade and I am a 2nd

grade NYC teacher. Speak to you soon!

~ mom to the above and wife to ralph who also is very involved

[Guest guest]

,

Hi. hope you enjoy the group. it's a very informative, funny, inspiring,

knowledgable bunch. My daughter amanda is 11 DS and in 5th grade inclusion

and has been since 1st grade. My son jesse is 7 in 2nd grade and I am a 2nd

grade NYC teacher. Speak to you soon!

~ mom to the above and wife to ralph who also is very involved

[Guest guest]

> Also any hints on getting to crawl.... he knows to get on the hands

and

> knees and rock, but can't seem to motivate him to move.

Hi ,

Welcome to the group. If I can remember way back when, when we were trying

to get to crawl, I recall that they used to use cheerios or goldfish

(or a desirable toy) and put him on a slight decline (it was a firm foam

wedge) and put a trail of cheerios to give him some incentive to crawl.

Good luck!

R.

Mom to (7, ds) and Grace (4)

[Guest guest]

> Also any hints on getting to crawl.... he knows to get on the hands

and

> knees and rock, but can't seem to motivate him to move.

Hi ,

Welcome to the group. If I can remember way back when, when we were trying

to get to crawl, I recall that they used to use cheerios or goldfish

(or a desirable toy) and put him on a slight decline (it was a firm foam

wedge) and put a trail of cheerios to give him some incentive to crawl.

Good luck!

R.

Mom to (7, ds) and Grace (4)

[Guest guest]

Welcome Leigh. you will find this group vey helpful. i haven;t been a member

too long, but already i am getting to know quite a few of the ladies, and

look forward to checking my emails each day. I have 3 children, the middle

daughter is HFA and is almost 7. We live in australia. hope to hear from

you. Cheryl

I am a new member

Hi! My name is Leigh and I am a 29 year old mom of 2 severely

autistic children. My son is 7 and my daughter is 6.

is also classified as Trainable Mentally Handicapped(TMH). I

am so glad to see this group cause my daughter's needs are so very

different from my son. Please feel free to email me at

four_eyes1972@... or foureyes1972@.... If there are

any newsletters or mailing lists for autism that you know about,

please add me!!!! Always willing to chat, my ID is

four_eyes1972, just let me know you are a parent of an autistic child

and I will add you!! Thanks so much:)

[Guest guest]

Hi Leigh,

Welcome... I am very glad you joined us. We have a list of bookmarks located

at Autism_in_Girls/links

and great group of people working together to help all our children. You

might want to check out the hyperlinks at our bookmarks list to different

web sites and if you find any new web sites... please, add them.

Take Care and God Bless,

Beverly Weakley

Mom of Jen and Kim

[Guest guest]

Hi Leanne,

Glad you found the group. You are so right about asking for the

tests. There are a lot of people in this group that were

misdiagnosed as well. " Its all in your head " being a phrase a lot of

us know well.

I feel lucky that I was diagnosed relatively quickly.

I'm glad you're doing well now.

Keep posting -

> Hi,

> I stubled across this site, maybe is was a blessing.

> I suffered from swallowing problems for the last two years. I went

> through many procedures to find out what was wrong with me. I was

> finally told I was under stress and this was causing me to throw up

> during and after I ate.

> I went through many tests after tests and finally after only being

> able to survive on a cup of soup daily as I had to watch what I

ate

> at work because I was continually throwing.

> I continued to go to the doctors for help. They performed throat

> examiniations (where they insert a camera down my thoat) could not

> find anything wrong. They said it was due to stess. I agreed as O

> had been under a lot of family issues over the last 12months and

> agreed.

>

> This continued and I was loosing more weight (I thought this was

> great) but when I lost about 2 stone and could only drink liquid

> soup. I found myself isolated from anyone, familily functions,

work

> functions etc. I found myself alone. I could not enjoy what

> everyone eas enjoying. The after work functions. I felt alone.

>

> Finally after many tests they finally diagnosed achalasia.

>

> I went to one hospital and the section put tubes down my nose (not

> very pleasant) but could not find anything wrong. They made an

> appointment with me to see a Diatician. She ran tests and found

out

> the I could not get any food down. She asked for one of the

> Doctors to come up and have a look to see what the problem was.

> They did not have the time and asked me to make another appointment

> for about two weeks later. I went out the hospital with a kydney

> bowl because I could not keep nothing down .

>

> Well I finally went to another doctor who ran test and within 5

> minutes could see what the problem was. I went straight to a

> Specialist and he was able to admit me straigt away and performed

> surgery and now I am able to eat and dring with a little help of

> fluids and what I feel is a normal life.

>

> I suppose I am just hoping I can help someone out there who is

> frustrated. Ask the question first if you are experiencing

> swallowing problems. Could I pleae have a swallow test. It would

> have saved me two years of pain and frustration.

>

> Leeanne

[Guest guest]

Welcome to the list and welcome to the world of wacky diagnoses. It sounds like

you went through the same thing that many of us have been through. We will keep

you in our prayers.

+Dave

PS. Could you give us your first name?

I am a new member

>

>

> I am an adult, married female. I was finally diagnosed with Reactive

> Arthritis last year, but I now believe I have had it for over 10

> years. I believe it began with an infection while traveling in Mexico

> and Central America. I initially had an inflammed thyroid (related?),

> followed by chronic urethritis and conjunctivitis. I have also had

> IBS type symptoms. I was diagnosed as having an " incomplete reactive

> arthritis " in '03 by a UCI Rhuematologist. It is considered

> incomplete because I do not have ankylosing spondititis. I did test

> positive for the HLA-B27 gene. I live in Orange County in So. CA. My

> worst symptom these days has been the inflammation in my eyes. It

> seems the inflammation has been slowly progressing from

> conjunctivitis to episcleritis and lately to scleritis. I have been

> keeping the scleritis " at bay " with Mobic and prednisone eye drops.

> Last spring I had a dreadful experience with oral prednisone which I

> had to take in high doses for three weeks to keep from damaging or

> possibly losing my left eye. I am now very leary of using oral

> prednisone again. I now also take flax seed oil and fish oils,

> numerous supplements and eat a fairly healthy diet. I do not drink or

> smoke. I was having some joint pains and started water exercizes at

> my local gym and my joints are feeling better. Currently, I am able

> to work and keep up with my family commitments. But I am prepared to

> cut back if I must for my health if necessary. I am peri-menopausal

> and am hoping and praying that I will improve as I navigate thru'

> this change.

> I am most grateful to have found this site. I am still learning about

> computers but am willing to learn as I go along. I welcome any input

> and hope I will eventually be able to offer help as well.

>

>

>

>

>

> -------------------------------------------------

> Post message:

>

> Set your subscription to digest (one email a day)

/

>

> Contributions to RISG.ORG are tax deductible. Credit Card or PayPal

> http://www.risg.org/contributions.htm

>

> You're Not Alone!

> http://www.risg.org

>

[Guest guest]

Welcome!

I like what you said about the water exercises. I want to do deep water

walking as soon as we can get moved and a steady income.. I think the Y is

the cheapest.. i love to water walk.. shallow is nice too though of course

not as easy on the joints..

Anyway---I'm glad you are here.... Any questions just ask away:0

Liz

~~~~~~

" Happiness comes of the capacity to feel deeply, to enjoy simply, to think

freely, to risk life, and to be needed. " **Storm on**

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

EMAIL: juliette@... **** liz_kitten@...

PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK

ADDult ADD GROUP PAGE: http://members.tripod.com/~LizK/addult.htm

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

Connie

Welcome.

What type of problems are you having? How did you fall and on what

part of the leg? In August 2002 we were in an auto accident. The

airbag hit my left knee and pushed my right hip back. The natural knee

was swollen and sore and I had arthoscopic surgery to clean it out. It

took months to feel better. As for the RTHR, it bothered me and got

worse. Finally in May of 2004 they decided the stem was very lose. I

had a revision in June 2004 and am now doing great.

So it takes time for an injury to heal. It may also take time to see

if anything is wrong with the prothesis. But you have seen your OS and

PT and they are aware. I went back every six months until they saw the

loosening. If it gets worse call the OS. Otherwise give it some time.

Good luck.

Sue

> HI,

>

> My name is Connie and I am new to the group. I had hip replacement

surgery

> in Nov 2003 at age 38 and, on Feb 21 2005, I fell and, have been

having

> problems ever since. I have already been to my surgeon and PT and,

it is not

> getting any better. I am here because, I would like to know if

anyone else has

> had to deal with this yet and, if you can give me some insight in

what else I

> can do. I hope I am in the right group.

>

> Connie

[Guest guest]

Hi Connie,

Did the doctor say there was no damage from the fall? Did he/she take x-rays or do an MRI? What kind of problems are you having? Is it continuous pain, or pain when you do certain activities such as stand or sit?

Take care,

Carol

tashadow@... wrote:

HI,

My name is Connie and I am new to the group. I had hip replacement surgery in Nov 2003 at age 38 and, on Feb 21 2005, I fell and, have been having problems ever since. I have already been to my surgeon and PT and, it is not getting any better. I am here because, I would like to know if anyone else has had to deal with this yet and, if you can give me some insight in what else I can do. I hope I am in the right group.

Connie

[Guest guest]

I have pain in the thigh on the left side of the left leg and, when I try to get up, I can't explain the pain there but, it is painful. I fell off my bed landing on the left side of the left leg which is the side I had surgery on. I see the OS again on the 15th of April but, I am supposed to work alone tomorrow at my job and, I don't think I can do it. I know it takes time but, it doesn't seem to be getting even a little better.

Connie

tubbs8695@... writes:

ConnieWelcome.What type of problems are you having? How did you fall and on what part of the leg? In August 2002 we were in an auto accident. The airbag hit my left knee and pushed my right hip back. The natural knee was swollen and sore and I had arthoscopic surgery to clean it out. It took months to feel better. As for the RTHR, it bothered me and got worse. Finally in May of 2004 they decided the stem was very lose. I had a revision in June 2004 and am now doing great.So it takes time for an injury to heal. It may also take time to see if anything is wrong with the prothesis. But you have seen your OS and PT and they are aware. I went back every six months until they saw the loosening. If it gets worse call the OS. Otherwise give it some time.Good luck.Sue

[Guest guest]

He said there was no damage to the new hip itself and, the x-rays showed no fractures or anything but, did say that I probably sprained my groin which is where a majority of the pain is. If I sit, sometimes it is okay but, sometimes it isn't. If I stand or walk around, it is excruciating sometimes.

Connie

carolann1312004@... writes:

Hi Connie,

Did the doctor say there was no damage from the fall? Did he/she take x-rays or do an MRI? What kind of problems are you having? Is it continuous pain, or pain when you do certain activities such as stand or sit?

Take care,

Carol

[Guest guest]

Hi Connie,

Then maybe you should talk to a physical therapist? Perhaps a heating pad, icing or other treatment might help while the muscle repairs itself.

Take care,

Caroltashadow@... wrote:

He said there was no damage to the new hip itself and, the x-rays showed no fractures or anything but, did say that I probably sprained my groin which is where a majority of the pain is. If I sit, sometimes it is okay but, sometimes it isn't. If I stand or walk around, it is excruciating sometimes.

Connie

carolann1312004@... writes:

Hi Connie,

Did the doctor say there was no damage from the fall? Did he/she take x-rays or do an MRI? What kind of problems are you having? Is it continuous pain, or pain when you do certain activities such as stand or sit?

Take care,

Carol

[Guest guest]

Hi Connie.

You said you fell and your having problems what kind of problems are you having ?

Well I hope your feeling better and try to take one day at a time.

Susie

-------------- Original message --------------

HI,

My name is Connie and I am new to the group. I had hip replacement surgery in Nov 2003 at age 38 and, on Feb 21 2005, I fell and, have been having problems ever since. I have already been to my surgeon and PT and, it is not getting any better. I am here because, I would like to know if anyone else has had to deal with this yet and, if you can give me some insight in what else I can do. I hope I am in the right group.

Connie

[Guest guest]

Hi Connie,

Is this something you can do with a heating pad? It might help until the muscle heals.

Good luck,

Caroltashadow@... wrote:

I do see a PT once a week and He puts heat on it for 10 minutes. It ends in 2 weeks but, I may have to go longer.

Connie

carolann1312004@... writes:

Hi Connie,

Then maybe you should talk to a physical therapist? Perhaps a heating pad, icing or other treatment might help while the muscle repairs itself.

Take care,

Carol

[Guest guest]

Yes, I had the heating pad on it all night last night. I know you aren't supposed to but, I do. Connie

carolann1312004@... writes:

Hi Connie,

Is this something you can do with a heating pad? It might help until the muscle heals.

Good luck,

Carol