Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 You might want to contact the owners of the 's website and ask their advice. They mention some of the problems they've had (as long as you're not going to be a competitor!). >Well I have to admit that I realy like sprouts. I've always wonderd >what it would be like to make a living selling something that is so >good for us and animals to I live in marin co. ca. not in the city but >I do not have any farm land either. Drives me crazy that I can't grow >basic foods like corn and soybean and other goods foods. Also have >phisical diabiltes that will not alow me to do that kind of bending and >lifting. " Darn " So I got me an idea I want to grow sprouts and fresh >herbs and of corse a create a market. I know that I'm not going to get >rich over night. But I do have a small market already. I have another >idea but it's by big secret. I will let you folks know if it pans out >because it's just to good of an idea to keep it to myself. And >promoting sprout eating is whats it's all about anyway. I know that I >can put out a good crop of sprouts and herbs. And thanks too, for the >knowlegde that I've been learning from sprout pepole. Well I was very >happy to receive the great amount of info. I like to that you folks >like what I like cool. I need feed back and Ideas. And if you have >working knowledge better yet. >Bill > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 > > Hey All, > > I am new here and though to introduce myself. > > Chat with ya soon, > Al Mad > > --------------------------------------------------------- > The Best Free Ad Portal > www.saharaclassifieds.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 There is a point to biopsy. It is the conventional way to diagnose what is suspect. However, the point you are probably making, or should make, is whether or not you want that diagnosis at the risk of 'seeding cancer cells from the invasive biopsy. While some physicians scoff at this when it is brought up, honest physicians will admit there is the 'risk' of those 'seeded' cells circulating throughout your body and finding a place to root. They will then point to a 'benefit to risk' but I would respond, the risk is 100% for the person that does get a seeding of cancer cells. I hope you get solid information regarding your situation because you will be getting a lot from sincere people. Your job will be to use good sense to ferret out what your best course of action will be. Joe C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Hi, gvence. Joe is right, you will be looking to find your best course of action. But I would also like to encourage and strengthen you, I hope, by telling you that, as someone who has been living successfully with cancer since 1989, it is a strong belief of mine that the very fact of making the decision to take control of your own treatment is a strong step toward getting better. I believe it lessens or eliminates your view of yourself as a patient, who must be told what to do by mainstream doctors, to a client, who makes his own decisions about what he does about treatment. The art/science of psychoneuroimmunology is vast and multi-faceted, but one area of it is how you think and act about dis-ease, and I believe the immune system is generally strengthened far more by a person who believes he is in " client " status than one who believes he is in " patient " status. One other thing: In your quest to find out the best path personally for you, keep in mind that a DEgenerative dis-ease like cancer needs REgenerative treatment. That will mean doing simple, straightforward things, such as keeping your body well hydrated, keeping yourself from suffering any prolonged negative stress, getting sufficient sleep, eating a WHOLE foods diet, getting regular, moderate exercise, breathing clean, fresh air and exposing yourself to sensible doses of sunlight. For me, those things are the foundation to which I would add things like Poly-MVA and other supplements. Best wishes and best of health, Elliot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 I'm so very sorry to hear a mass has been found in your lung, but there are strong measures you can take! Just a few posts earlier, (who has been on the Budwig protocol and has done very well) added a few other arms to her arsenal. While she has a different sort of cancer than do you, she has chosen well. I'll paste in a small quote from her letter. " May '07 but have recently had an " inconclusive " MRI that showed a 5cm contrast enhancement. Because of this, I have added essiac, LDN, and proteolytic enzymes. " Looks as if she has a sound program planned. Warm wishes and improving health, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Thank you so much. I just started proteolytic enzymes, am going to get essiac tea, and am going to look up LDN (?). Not heard of this. Thank you for your note. I appreciate it. Gloria >From: Jan Buskell >I'm so very sorry to hear a mass has been found in your lung, but there are strong measures you can take! >Just a few posts earlier, (who has been on the Budwig protocol and has done very well) added a few other arms to her arsenal. While she has a different sort of cancer than do you, she has chosen well. I'll paste in a small quote from her letter. > " May '07 but have recently had an " inconclusive " MRI that showed a 5cm contrast enhancement. Because of this, I have added essiac, LDN, and proteolytic enzymes. " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 My MS doesn't have pain, nor the major loss of much, but my cognitive, oh dear... and right now it's gone Jean From: Sent: Thursday, August 21, 2008 12:34 PM Subject: I am a new member My name is M and/or Sefardisafran.I am 67 years old, at the present time I have Post Polio Syndrome, had a mild attack of polio back in th mid 40's.Since 1973 developed certain problems such as losing my balance, incontinence etc.In 1986 was dx'd with Multiple Esclerosis.In 1998 had to retire from teaching Advanced Mathematics and Logic at BrooklynTech HS after 34 years of service.My "mild MS" progressed to Primary Progressive MS.Began using a manual wheelchair.Stop walking in 2000.Began using a battery operated wheelchair in 2002.About 3 months ago, the neurologist requested some tests and he found I have (cream on top of the cake) Motor Neuron Disease NON ALS! that's good because ALS or Lou Gherig Disease is mortal within 3 years.This type of MND produces acute nerve-muscles pain.Have limited use of the left hand.Try to leasd a life as relaxed as possible have a wonderful wife of 44 years and 3 children all out of the nest, try not to worry about tomorrow, but human as I am some days I get a bit depressed and try to leave that behind as soon as possible.My hobbies are: READING, HAM RADIO OPERATOR (n2gki), write for monthly MSMusings (poetry), collection of used stamps.Used to tutor students from s Institute of Technology a university located across the street where I live with doctoral thesis etc, had to give it up due to extreme fatigue.Again, there are other little problems but these are the ones most pesky for me.Hope to find and make new friends here,SefardisafranHoboken NJUSA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 > > My MS doesn't have pain, nor the major loss of much, but my cognitive, oh dear... > and right now it's gone > Jean > > > From: > Sent: Thursday, August 21, 2008 12:34 PM > > Subject: I am a new member > > > My name is M and/or Sefardisafran. > I am 67 years old, at the present time I have Post Polio Syndrome, > had a mild attack of polio back in th mid 40's. > Since 1973 developed certain problems such as losing my balance, > incontinence etc. > In 1986 was dx'd with Multiple Esclerosis. > In 1998 had to retire from teaching Advanced Mathematics and Logic at > BrooklynTech HS after 34 years of service. > My " mild MS " progressed to Primary Progressive MS. > Began using a manual wheelchair. > Stop walking in 2000. > Began using a battery operated wheelchair in 2002. > About 3 months ago, the neurologist requested some tests and he found > I have (cream on top of the cake) Motor Neuron Disease NON ALS! > that's good because ALS or Lou Gherig Disease is mortal within 3 > years. > This type of MND produces acute nerve-muscles pain. > Have limited use of the left hand. > Try to leasd a life as relaxed as possible have a wonderful wife of > 44 years and 3 children all out of the nest, try not to worry about > tomorrow, but human as I am some days I get a bit depressed and try > to leave that behind as soon as possible. > My hobbies are: READING, HAM RADIO OPERATOR (n2gki), write for > monthly MSMusings (poetry), collection of used stamps. > Used to tutor students from s Institute of Technology a > university located across the street where I live with doctoral > thesis etc, had to give it up due to extreme fatigue. > Again, there are other little problems but these are the ones most > pesky for me. > Hope to find and make new friends here, > Sefardisafran > Hoboken NJ > USA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 WELCOME TO THE GROUP LUIS;; SORRY TO HEAR WHAT ALL YOU HAVE GOING ON IN YOUR LIFE BUT YOU SOUND LIKE AN UP BEAT GUY WHICH IS GREAT;; I KNOW THERE ARE DAYS WE CANT ALWAYS FEEL THAT WAY BUT IT IS SO MUCH BETTER TO TRY TO STAY POSITIVE;; & IM SO HAPPY THAT YOU HAVE A GOOD WIFE FOR SUPPORT;; TAKE CARE;; POSITIVE ((HUGS)) DORT FROM MICH From: <lmn2gki@...>Subject: I am a new member Date: Thursday, August 21, 2008, 12:34 PM My name is M and/or Sefardisafran.I am 67 years old, at the present time I have Post Polio Syndrome, had a mild attack of polio back in th mid 40's.Since 1973 developed certain problems such as losing my balance, incontinence etc.In 1986 was dx'd with Multiple Esclerosis.In 1998 had to retire from teaching Advanced Mathematics and Logic at BrooklynTech HS after 34 years of service.My "mild MS" progressed to Primary Progressive MS.Began using a manual wheelchair.Stop walking in 2000.Began using a battery operated wheelchair in 2002.About 3 months ago, the neurologist requested some tests and he found I have (cream on top of the cake) Motor Neuron Disease NON ALS! that's good because ALS or Lou Gherig Disease is mortal within 3 years.This type of MND produces acute nerve-muscles pain.Have limited use of the left hand.Try to leasd a life as relaxed as possible have a wonderful wife of 44 years and 3 children all out of the nest, try not to worry about tomorrow, but human as I am some days I get a bit depressed and try to leave that behind as soon as possible.My hobbies are: READING, HAM RADIO OPERATOR (n2gki), write for monthly MSMusings (poetry), collection of used stamps.Used to tutor students from s Institute of Technology a university located across the street where I live with doctoral thesis etc, had to give it up due to extreme fatigue.Again, there are other little problems but these are the ones most pesky for me.Hope to find and make new friends here,SefardisafranHoboken NJUSA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 My name is my husband has just been diagnosed with RA I am hoping to learn more about this disease from people that are dealing with it . is having a very hard time with the medications and I am not sure what to expect from one day to the next. They have him on Methotrexate and he is doing infusions of Rimicade He taked six pills every Sat.He is totally wipe out all of the time .He is now suffering with dizzy spells .He is seeing the Dr. today at 3:00 His speach was slurred this morning .I guess I just feel like peopel who are dealing with and have delt with this for years will be more help. Thank you for any advice you might have .I love my husband we have been married for many years and I want to do what is best for him . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Welcome to the group, ! I applaud your efforts to find out everything and anything that you can about your husband's RA. I wish more men were like you It sounds like they are treating him fairly aggressively, which is good. Slow the train before it destroys everything in its path. I was wiped out all of the time with the MTX pills. When I switched to the injection, it decreased those days from 3-4 down to 1-2. Plus, there is not stomach or GI problems as the injection bypasses all of that. What other meds is he taking? Does he have any other diagnosis other than RA? Please let us know how your appt goes today. I wish you both the best. It sounds like you have a good Rheumy. Sometimes I think that's half the battle - finding a Rheumatologist who is knowledgeable, friendly, listens to what you are saying, is available when you need him and is aggressive in his treatment of your hubby's RA. There are a lot of websites out there with tons of information on RA. Our moderator, provides all the latest and greatest of info as it comes off the press as well as some oldies, but goodies. Here are a few sites that have been helpful to me: http://www.arthritis.org/ http://www.arthritistoday.org/DrugGuide http://rawarrior.com/ The last link is a friend that I found on Facebook. She had tons of information about RA - but you don't have to be on FB to read her info. Welcome again to the group. I hope that we will be able to help you along the way with your husband's illness. Its sad that there is no cure for RA, but there IS life WITH RA..... Doreen My name is my husband has just been diagnosed with RA I am hoping to learn more about this disease from people that are dealing with it . is having a very hard time with the medications and I am not sure what to expect from one day to the next. They have him on Methotrexate and he is doing infusions of Rimicade He taked six pills every Sat.He is totally wipe out all of the time .He is now suffering with dizzy spells .He is seeing the Dr. today at 3:00 His speech was slurred this morning .I guess I just feel like peopel who are dealing with and have delt with this for years will be more help. Thank you for any advice you might have .I love my husband we have been married for many years and I want to do what is best for him . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Thank you for the warm welcome ,The Dr, took off Methotrexate and also folic acid . He has another infusion next FRi. Then they will decide what the next medication they will try .He is still feeing lousy and dizzy headed . I am going to read a lot more about RA. I recieved a letter from a friend that had and article about working around mineral oil and was a mechanic for over 30 years it is and interesting article.His mother also suffered from RA.It is nice to know that there are others I can ask question about this.Thank you all. who lives in Florida. http://www.webmd.com/rheumatoid-arthritis/news/20050923/motor-oil-rheumatoid-art\ hritis-link Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 How long has he had the RA and is he seeing a Doctor or a Rhemuatologist? Stan [ ] I am a new member My name is my husband has just been diagnosed with RA I am hoping to learn more about this disease from people that are dealing with it . is having a very hard time with the medications and I am not sure what to expect from one day to the next. They have him on Methotrexate and he is doing infusions of Rimicade He taked six pills every Sat.He is totally wipe out all of the time .He is now suffering with dizzy spells .He is seeing the Dr. today at 3:00 His speach was slurred this morning .I guess I just feel like peopel who are dealing with and have delt with this for years will be more help.  Thank you for any advice you might have .I love my husband we have been married for many years and I want to do what is best for him .       Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 That's an interesting article, . I've gone swimming in motor and hydraulic oils for about 20 years. Maybe that's the reason I got it so early. I did have a predisposition for it since many of my maternal relatives had RA. I do believe will do better with an injection of liquid MTX, it'll bypass the stomach and he may not feel any ill effects. It'll help get the RA under control, but he needs to see a Rheumatologist to do things right. Dennis in eastexas On Thu, Jul 15, 2010 at 2:45 PM, Dorothy <runsandplayz@...> wrote: > > > > Thank you for the warm welcome ,The Dr, took off Methotrexate and > also folic acid . He has another infusion next FRi. Then they will decide > what the next medication they will try .He is still feeing lousy and dizzy > headed . I am going to read a lot more about RA. I recieved a letter from a > friend that had and article about working around mineral oil and was a > mechanic for over 30 years it is and interesting article.His mother also > suffered from RA.It is nice to know that there are others I can ask question > about this.Thank you all. > > who lives in Florida. > > > http://www.webmd.com/rheumatoid-arthritis/news/20050923/motor-oil-rheumatoid-art\ hritis-link > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 Good Morning everyone. My name is Donna. I am 49 years old. Just very recently moved from Iowa to SC to be near family and also have their support. I was diagnosed with RA only a couple of months ago. I have not seen a Rheumatologist yet because with the move and not being able to get in to see someone soon enough before the move. I have only been here in SC a month or so and have recently gotten a primary physician and she will be referring me to someone she believes is a good Dr for me. I am lucky because the primary physician understands RA and autoimmune diseases because it runs in her family. So I feel confident and happy with my first appointment with her. I have other heath issues as well and she took charge immediately getting me set up in the directions I need most help with right now! The onset of my RA has been horrible. I experience Pain redness and swelling where ever it decides to strike! I feel like my body in attacking me (and it is literally) and its hard to deal with. I am moody,irritable,mad,and shockingly amazed at the pain! Its is very very hard for me to walk and that seems to be an increasing problem! I am on a low dose of Prednisone and also take Hydrocodone as needed for now. Thank you for having me here. Although I am going through a period of alot of pain and emotions I can still see the beauty in life and find many things to be grateful for. Wishing You all a good day, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 Hi Donna. Welcome to our group, and I am so sorry you have RA. It is a very painful disease, and we never know what part of our bodies will be struck. I have had RA for 6 years and my feet and ankles were hit the worst. I am glad you have a nice PCD, and hope you find your Rheumy as nice. It is hard to start over in a diff. state, then try and find good Drs. I had the same problem when I moved here to Florida from Cape Cod.  RA does change our lives that's for sure. I hope you feel better soon as it stinks to be in pain all the time. Good luck at your Rheumy appt. Please keep us posted.  Hugs,  Barbara From: mischievouskitten <mischievouskitten@...> Subject: [ ] Re: I am a new Member Date: Friday, July 16, 2010, 5:47 AM  Good Morning everyone. My name is Donna. I am 49 years old. Just very recently moved from Iowa to SC to be near family and also have their support. I was diagnosed with RA only a couple of months ago. I have not seen a Rheumatologist yet because with the move and not being able to get in to see someone soon enough before the move. I have only been here in SC a month or so and have recently gotten a primary physician and she will be referring me to someone she believes is a good Dr for me. I am lucky because the primary physician understands RA and autoimmune diseases because it runs in her family. So I feel confident and happy with my first appointment with her. I have other heath issues as well and she took charge immediately getting me set up in the directions I need most help with right now! The onset of my RA has been horrible. I experience Pain redness and swelling where ever it decides to strike! I feel like my body in attacking me (and it is literally) and its hard to deal with. I am moody,irritable,mad,and shockingly amazed at the pain! Its is very very hard for me to walk and that seems to be an increasing problem! I am on a low dose of Prednisone and also take Hydrocodone as needed for now. Thank you for having me here. Although I am going through a period of alot of pain and emotions I can still see the beauty in life and find many things to be grateful for. Wishing You all a good day, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2010 Report Share Posted July 17, 2010 Thank you Barbara I see the Rheumy September 1st. A ways off but at least I have an appointment now! Have a good weekend Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2011 Report Share Posted March 17, 2011 Hi Deidra, welcome to CAST! Yes, bracing will generally not correct and often not hold progressive cases of infantile scoliosis. Our experience had been that you really have to go the distance with casts in a solid block of time, for us it's been over 2 years but worth every minute in the long run. You can read my son Bexon's story on the website link below, just click on Bexon's Story at the top of the home page. There are many other wonderful success stories on the ISOP website as well. Our experience was that the first cast at age 19 months created a setback of only a few weeks or so and then our son was back to doing everything he had before. I don't know how MD will impact that, but most children do very well with Mehta casts and they are the best option out there for this condition, in my opinion.Again, welcome and ask any and all questions you have of this great group! Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: "deidrachapman@..." <deidrachapman@...>infantile scoliosis treatment Sent: Tue, March 15, 2011 4:13:04 PMSubject: I am a new member Hi may name is Deidra. My son Garryl was diagnosed with infantile scoliosis at his 3 month checkup. We started at Shriners and they didn't know alot about my son's central core disease (Muscular Dystrophy)so we changed to Cinncinnati Childrens Hospital. When we started at Cinncinnati Garryl had a s curve at 75 degrees. He had the first riser cast put on at 11 months and 2 more later totaling 6 months. When he had the cast on his spine it got to 45 degrees but when they took the cast off it went back to 60 degrees. We put a brace on him and 2 weeks later his back was back was at 86 degrees. This was in January. Now they want to put a mahta cast on Monday March 21. He is so close to walking and I am afaid this casting will set him back again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2011 Report Share Posted March 17, 2011 Hi Deidra, welcome to CAST! Yes, bracing will generally not correct and often not hold progressive cases of infantile scoliosis. Our experience had been that you really have to go the distance with casts in a solid block of time, for us it's been over 2 years but worth every minute in the long run. You can read my son Bexon's story on the website link below, just click on Bexon's Story at the top of the home page. There are many other wonderful success stories on the ISOP website as well. Our experience was that the first cast at age 19 months created a setback of only a few weeks or so and then our son was back to doing everything he had before. I don't know how MD will impact that, but most children do very well with Mehta casts and they are the best option out there for this condition, in my opinion.Again, welcome and ask any and all questions you have of this great group! Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: "deidrachapman@..." <deidrachapman@...>infantile scoliosis treatment Sent: Tue, March 15, 2011 4:13:04 PMSubject: I am a new member Hi may name is Deidra. My son Garryl was diagnosed with infantile scoliosis at his 3 month checkup. We started at Shriners and they didn't know alot about my son's central core disease (Muscular Dystrophy)so we changed to Cinncinnati Childrens Hospital. When we started at Cinncinnati Garryl had a s curve at 75 degrees. He had the first riser cast put on at 11 months and 2 more later totaling 6 months. When he had the cast on his spine it got to 45 degrees but when they took the cast off it went back to 60 degrees. We put a brace on him and 2 weeks later his back was back was at 86 degrees. This was in January. Now they want to put a mahta cast on Monday March 21. He is so close to walking and I am afaid this casting will set him back again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2011 Report Share Posted March 19, 2011 Hi Deidra, Our son had just started to take more steps right when his first Mehta cast was applied at Cincy Children's. Certainly, it was hard for him because he needed to learn how to balance his body again and was CONSTANTLY falling but by the end of the 9 weeks, he was running and climbing on top of things. You will be amazed how they bounce back and how resilient they are, a word you will hear often. As a 1st cast " survivor " , I can tell you that is NOT easy and you do worry a lot; that's why there are groups like this one so we can vent and find support. Our boy is getting his 2nd cast on March 21, as well. If you can we can meet, I would love to. If you are up for it, send me a private message. Good Luck and take care, Tania- Sebas' mom- done with 1st cast, starting 2nd cast soon. > > Hi may name is Deidra. My son Garryl was diagnosed with infantile scoliosis at his 3 month checkup. We started at Shriners and they didn't know alot about my son's central core disease (Muscular Dystrophy)so we changed to Cinncinnati Childrens Hospital. When we started at Cinncinnati Garryl had a s curve at 75 degrees. He had the first riser cast put on at 11 months and 2 more later totaling 6 months. When he had the cast on his spine it got to 45 degrees but when they took the cast off it went back to 60 degrees. We put a brace on him and 2 weeks later his back was back was at 86 degrees. This was in January. Now they want to put a mahta cast on Monday March 21. He is so close to walking and I am afaid this casting will set him back again. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2011 Report Share Posted March 19, 2011 Hi Deidra, Our son had just started to take more steps right when his first Mehta cast was applied at Cincy Children's. Certainly, it was hard for him because he needed to learn how to balance his body again and was CONSTANTLY falling but by the end of the 9 weeks, he was running and climbing on top of things. You will be amazed how they bounce back and how resilient they are, a word you will hear often. As a 1st cast " survivor " , I can tell you that is NOT easy and you do worry a lot; that's why there are groups like this one so we can vent and find support. Our boy is getting his 2nd cast on March 21, as well. If you can we can meet, I would love to. If you are up for it, send me a private message. Good Luck and take care, Tania- Sebas' mom- done with 1st cast, starting 2nd cast soon. > > Hi may name is Deidra. My son Garryl was diagnosed with infantile scoliosis at his 3 month checkup. We started at Shriners and they didn't know alot about my son's central core disease (Muscular Dystrophy)so we changed to Cinncinnati Childrens Hospital. When we started at Cinncinnati Garryl had a s curve at 75 degrees. He had the first riser cast put on at 11 months and 2 more later totaling 6 months. When he had the cast on his spine it got to 45 degrees but when they took the cast off it went back to 60 degrees. We put a brace on him and 2 weeks later his back was back was at 86 degrees. This was in January. Now they want to put a mahta cast on Monday March 21. He is so close to walking and I am afaid this casting will set him back again. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2011 Report Share Posted March 19, 2011 Hi Deidra, Our son had just started to take more steps right when his first Mehta cast was applied at Cincy Children's. Certainly, it was hard for him because he needed to learn how to balance his body again and was CONSTANTLY falling but by the end of the 9 weeks, he was running and climbing on top of things. You will be amazed how they bounce back and how resilient they are, a word you will hear often. As a 1st cast " survivor " , I can tell you that is NOT easy and you do worry a lot; that's why there are groups like this one so we can vent and find support. Our boy is getting his 2nd cast on March 21, as well. If you can we can meet, I would love to. If you are up for it, send me a private message. Good Luck and take care, Tania- Sebas' mom- done with 1st cast, starting 2nd cast soon. > > Hi may name is Deidra. My son Garryl was diagnosed with infantile scoliosis at his 3 month checkup. We started at Shriners and they didn't know alot about my son's central core disease (Muscular Dystrophy)so we changed to Cinncinnati Childrens Hospital. When we started at Cinncinnati Garryl had a s curve at 75 degrees. He had the first riser cast put on at 11 months and 2 more later totaling 6 months. When he had the cast on his spine it got to 45 degrees but when they took the cast off it went back to 60 degrees. We put a brace on him and 2 weeks later his back was back was at 86 degrees. This was in January. Now they want to put a mahta cast on Monday March 21. He is so close to walking and I am afaid this casting will set him back again. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.