Guest guest Posted March 29, 2006 Report Share Posted March 29, 2006 Great analogy, Martha! Sally in Little Rock here and that really cleared up why you could be allergic to penicillin and not the mino-thank-you! Hugs & Good Health! Sally Re: rheumatic Questions > .... Penicillin was origionally made from a mold found on bread. > Tetricycline (from which Minocin is a third generation product) is a > different > structure and attacks different bacteria. Sort of like some people are > allergic to ragweed and others may be allergic to hay. Both are plants > yet people > who are allergic to one may not be allergic to the other. I realize this > is > very simplistic, but I am not a scientist and this is the best I can come > up > with!!! Martha > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 Note: forwarded message attached. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 Hi Susie; Could he be sensitive to gluten and or other things that he has eaten.Check out www.celiac.com as this is very frequent in people with any disease..I had absolutely no idea that I had a gluten intolorance until my very good AP doc had me tested .What a shock when I also found out that I can't have anything " cow " ,i.e. beef,yogurt ice cream etc.No citrus,grapes,asperigus,legumes of any kind and anything sweetened from sugar cane.It took over a year to get better and I suspect that my SD was caused by the celiac.You can do your own testing so check out www.enterolab.com They send a kit,you send back a stool sample and they send you the results by e-mail. Lynne G / SD wrote: > Hi, Susie from Oklahoma here. I have two questions and hopefully > some of you men can help me. > > My husband is 53 and very stubborn. Yes, I mean STUBBORN. He has > always been such a mellow man and now he seems full of anxiety, and > he is not fun to be around. We went to New Mexico for a 4 day trip > and I noticed that after 2 to 3 hours after eating, he would get > anxious and gripey. I told him I thought maybe his blood suger was > off and that he should eat some crackers when he felt like that. It > did help him and he would calm down. Could he be going through > midlife crisis? Anway, I made a list for him to take to the doc and > he didn't even talk to him about it. The list was: blood test for > diabetes, thyroid, and anxiety. What should I do? I asked him if I > could go along with him and he said " no " . Please men....help me > with this. > > Also, now to me. I take 2 pills daily of mino. I know I am getting > better every day...trying to walk and watch what I eat. I'm 54, dx > with sd and I'm gaining weight through my middle. I often wonder if > it is caused by some of the meds I'm on. I take Lyrica, ultram, > percocet and synthroid (Graves disease years ago....now > hypothyroid). Plus....I'm really depressed. I try really hard to > smile and put on a " happy " face, however, I have a problem taking > antidepressants....they make me feel weird and numb. I started back > on estrogen due to having a total hysterectomy 2 years ago....it > helps the hot flashes. To say it all very simply.....I don't really > like myself right now. I often wonder if it is the state of the > world, since I am so hypersensitive to everything. > > I really hate to whine....because that isn't me. And Maritza...my > sweet friend....thank you for all of your support. I really don't > know what I would do without you. > > I would appreciate any advice. Thanks for listening. > > Susie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 I dont know if Dr. Feng can fix scarring !! My explant surgery was $7,700.00 for capsulectomy My surgery was 6 hours long. My insurance did not pay for anything at this time. Yes, Dr. Feng does admit to implant illness and proper removal. But she is unsure how to treat the illness of implant illness. Love In a message dated 6/4/2008 2:36:41 A.M. Eastern Daylight Time, dusty.com@... writes: My dear friend needs medical attention ASAP Please tell me your experience with Dr. Feng My friend is BIG TIME SHY I want to help her through this nightmare Can Dr. Feng fix past scarring from original explant ? Approximate cost of surgery ? How long was your surgery ? Afraid insurance will find out it's implant related Anyone have a problem ? Does Dr. Feng admit to implant illness ? Please list any information that will be of help Much Appreciation, Sandy~ Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Sandy ~ Reguarding insurance and surgeries ..... Right now, the FDA, drug companies, and most doctors say that there is NO relationship between implants and any kind of problems or illness. Her diagnoses is PAIN.......and she will have an exploratory and removal of what ever found that is causing the pain in her chest .It cant be implant related, as the people in control of all this mess say that implants are completely safe. It must be a coincedence that she has pain near where she had safe implants, cuz it couldnt be from implants ! Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 My doctor used pain for my medical reason and still my insurance did not pay for it. In a message dated 6/4/2008 10:23:42 A.M. Eastern Daylight Time, DGRAHAMA@... writes: Sandy ~ Reguarding insurance and surgeries ..... Right now, the FDA, drug companies, and most doctors say that there is NO relationship between implants and any kind of problems or illness. Her diagnoses is PAIN.......and she will have an exploratory and removal of what ever found that is causing the pain in her chest .It cant be implant related, as the people in control of all this mess say that implants are completely safe. It must be a coincedence that she has pain near where she had safe implants, cuz it couldnt be from implants ! Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 I would fight it ! Did your doctor send to the lab for pathology what she took out of your chest ? ? If so, what exactly did the pathology say ? Many times there are exploratory surgeries for chronic pain ! and you had chronic pain for a few years in your chest......... apeal, apeal, apeal ! ! ! Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 I have been appealing for the last 3 months.... I dont know what else to do.....the doctor Dr. Feng put on there surgery due to pain and size of capsules I sent everything into the insurance co. well my husband did and keeps coming back doctor out of range !!! Another words doctor not in the network of doing the surgery. I wanted the drains and she was the only one in my area to do this surgery. In a message dated 6/4/2008 11:53:14 A.M. Eastern Daylight Time, DGRAHAMA@... writes: I would fight it ! Did your doctor send to the lab for pathology what she took out of your chest ? ? If so, what exactly did the pathology say ? Many times there are exploratory surgeries for chronic pain ! and you had chronic pain for a few years in your chest......... apeal, apeal, apeal ! ! ! Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Look at your ins policy, see if it has an area that talks about seeing a doctor out of network, and see if they cover partial for doc out of network Also, appeal with a letter stating that none of the doctors in network use drains to get the fluid off to keep you from infection and chance of getting a seroma. Seroma is very common with breast surgery. Which would cost them more in the long run..... Did she send what she removed to the lab to check the pathology and all ? ? If so, do you have a scanner where you can scan it and email me a copy ? I will see what I can find in that report that may be of help. I worked in the med field 26 years and have an eye for those things..... Hugs ~ DedeGet trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 Hi Paddy! You have lots of questions and that is a GOOD thing!I will try to answer them below, in the body of your letter: >> How long do you typically have to wait until the surgery can be > done...how far out are the doctor's schedules?It all depends on the doctor...some are booked, but others can get you in right away. I'm thinking that in this economy, you should be able to get in soon!> > Does everyone seem to have the same general type illness or are there > a wide variety? We have the same general symptoms --the ones listed on our home page--but there are a wide variety of degrees of disability. Some women have a strong reaction like I did, and are down for the count in a matter of days or weeks, while other women seem to have small, little problems crop up over a period of years that they tend to shove off as aging, or stress, or working too hard, etc, and then it develops into a full blown autoimmune condition that leaves them unable to function well. Many can't continue working and become bedridden. Are there names for the most common illnesses amongst > women with implants?All the autoimmune diseases: rheumatoid arthritis, Multiple Sclerosis, Lupus, sjogren's syndrome, fibromyalgia, chronic fatigue syndrome, Multiple chemical sensitivity, Hashimoto's thyroid disease, and then there are the fungal infections such as candida and bacterial infections that can be secondary.> > Did anyone have surgery in MN...explant surgery? Mayo hasn't been of > any help? I mean they weren't for me, after I spent a week with them > (actually very, very rude), but hoped maybe someone had a better > experience?We've heard nothing but horrible stuff from Mayo. They do not acknowledge that implants are making women ill.> > Are there specific tests I should be having at this time...blood > tests? Any thing specific to look for?You can look for signs of autoimmunity, such as elevated rheumatoid factor, lowered complements, and antibodies to your thyroid. If you have had normal blood tests in the past, they either may need to look deeper, or you will be lucky and still have normal results! One area that I believe is HUGELY neglected is the hormones...adrenal, thyroid, sex hormones. I've heard of women testing low on these over and over again. Doctors are notoriously clueless about proper hormone balance. This is a new area of medicine right now that I believe is key for us. Bio-identical hormone replacement! > > I haven't had a mammagram for a few years, should I have that before > explant surgery?No, not unless you suspect ruptures if you have silicone gel, and then you need a special MRI.> > Are there certain "do" and "don't do" items? Don't walk more than > necessary because the poison moves...or... detox because it gets some > poison out... or don't lift weights, or do lift weights? Are there > things I can do now that can make me healthy enough to work and save > up money to get the surgery?Most women who are very ill cannot exercise--it puts them into severe flares. Gentle exercise, such as yoga or walking if you have the energy is okay, but if you do not, don't attempt it. You can attempt detoxing, gently, and just be aware that there is a healing reaction to very ill people, called a Herxheimer reaction, that can occur. It means that if you are moving stuff out of your body that is toxic, until it is gone, you can actually feel worse because it has been mobilized. The things you can do now would be to eat healthy--cut out all sugar, unhealthy fats, processed foods, any foods that you are allergic to, (and we find that many of us have developed food allergies) and drink lots of water. Cut out caffeine, fake sugars, sodas, and concentrate on healthy, fresh foods and healthy protein, as well as probiotics, such as kefir or yogurt.> > I used to run and felt great during the run and after the run but the > next day would get deathly weak and exhausted. It seems to me by > blood doesn't flow properly but I don't get swelling, a cough, any > blueness, etc.. Does anyone know what this is about?My guess is because it is adrenal-related, or due to exhausted hormones, which can include testosterone in females.> > Do I have time to save up or do I need to get the implants out > yesterday?I think in your case the faster you can get them out, the better.> > I'm sorry if I am asking questions that have been answered-I have a > hard time tracking information...processing it, etc.. > > Do I need to be worried that I am going to compromise my pending long > term disability claim that is currently being reviewed? This is an area I know little about, and I would ask a professional how this will be affected. > > Should I be applying for social security?Is that separate from your long term disability? I would apply for any disability you can get, because healing is going to take awhile...it can take up to several years. If you were going to apply anyway, do it and get the ball rolling, using a good lawyer can get it for you faster.> > After explant, how soon are you typically able to return to desk > jobs? What about more physical jobs?This is entirely an individual matter, depending on how severely you have suffered illness, how well you detox and your lifestyle. Some women are able to do more quite soon, while others take longer. There is a honeymoon period that can last about 6 weeks, and then the symptoms can return--it's frightening, but it is a sign that your body is going to start healing, and you have to be ready for the long haul. It can take about a year or more just to get to a point of STARTING to feel better. The immune system requires a couple of years to fully heal. It took me a total of 4 years to get better. I did both desk and physical jobs, and of course, the goal is to keep your stress level manageable.> > If implants are leaking, can't you tell because the size or shape- > doesn't it change?Yes, there may be a burst followed by a quick deflation, or there can be a very slow leak that is nearly imperceptable.> > How do they become so murky on the inside if they are sealed?Because, as Dr. Pierre Blais points out in his discussions, the valve actually acts like a pump, and there is a transfer of bodily fluids in and out of the implant. Fungal colonies, or bacterial colonies can get established in the implant because as the organisms grow, they become too large to flow back and forth. The implant becomes a stagnant cesspool.> > Would it help to lose as much weight as possible to make them looser > on my chest wall (they are under the muscle)? I was 20 lbs. lighter > and much more muscular at the time...now I feel like a big roll of > flab. Should I benchpress or not because that would make them tighter > to the chest? What does one do...not do? I would not worry at all about weight loss right now, or weight lifting, or anything else except getting that surgery scheduled and paid for.> > Anything about moving arms around?? I feel like something happens on > the side of my chest and in my armpits "sometimes" if I do alot of > overhead motion or even arm swinging (maybe especially arm > swinging?)... does inflammation get set off? Do you have swollen lymph nodes? Some women have had silicone in their lymph system, and this can cause discomfort.> > Ugh...so many questions... and so used to denial and therefore lack > of answers and information. That must be why I'm having trouble...not > used to actually getting answers.It's a good thing Paddy! God bless you.> > Paddy> > Thank you my lady angels. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 My rheumy mentioned when I first saw him and explained my symptoms that it sounded like there was nervous system dysfunction. I wasn't sure, but it sounded like he said central nervous system instead of autonomous nervous system. When I mentioned breast implants, his demeanor changed, and he didn't want to deal with THAT. He became very cautious with me, not wanting to commit to anything but taking my money and wasting my time. That's when I fired him and went the natural route. Patty > > hi there, > sorry i haven't emailed in a very long time - i have been quite ill. > i was wondering if anyone has Dysautonomia (dysregulation of the autonomic nervous system)? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 wow! sounds exactly like what i'm going through. doctors brushing me off all the time! the same story over and over again! wouldn't it be great to have doctors take us seriously for once?! antonija > > > > hi there, > > sorry i haven't emailed in a very long time - i have been quite ill. > > i was wondering if anyone has Dysautonomia (dysregulation of the autonomic nervous system)? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 Yes, I'm hoping for that day when doctors will actually believe what is written in the inserts for all implants! That these symptoms can have an association and we need help! I've sent a post that lists several doctors who DO believe us....and who can explant you correctly. Let us know what progress you make with this! Hugs, Patty > > wow! sounds exactly like what i'm going through. doctors brushing me off all the time! the same story over and over again! wouldn't it be great to have doctors take us seriously for once?! > > antonija > > > --- In , " glory2glory1401 " <glory2glory1401@> wrote: > > > > My rheumy mentioned when I first saw him and explained my symptoms that it sounded like there was nervous system dysfunction. I wasn't sure, but it sounded like he said central nervous system instead of autonomous nervous system. When I mentioned breast implants, his demeanor changed, and he didn't want to deal with THAT. He became very cautious with me, not wanting to commit to anything but taking my money and wasting my time. That's when I fired him and went the natural route. > > Patty > > > > --- In , " antonijabrcic " <antonijabrcic@> wrote: > > > > > > hi there, > > > sorry i haven't emailed in a very long time - i have been quite ill. > > > i was wondering if anyone has Dysautonomia (dysregulation of the autonomic nervous system)? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2010 Report Share Posted July 27, 2010 I know there are a lot of people in the group. I am curious if any of you have had a disgnosis of RA after having an IUD Mirena inserted?  Kate Fontaine  " Don't cry because it's over. Smile because it happened. " -Dr. Seuss Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2010 Report Share Posted July 27, 2010 I did. Why do you ask? Janine Raab On Jul 27, 2010, at 10:02 AM, Katey Fontaine <fuzzyfontaine@...> wrote: I know there are a lot of people in the group. I am curious if any of you have had a disgnosis of RA after having an IUD Mirena inserted? Kate Fontaine " Don't cry because it's over. Smile because it happened. " -Dr. Seuss Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 Interesting question! I know one of the theories on inflammation disorders - especially lupus- is that it's brought on by a hormone imbalance. One of the things that was going on when I first got REALLY sick was I'd just started on the pill. Will be interesting to see feedback on this. Candace Sent from my iPhone On Jul 27, 2010, at 10:02 AM, Katey Fontaine <fuzzyfontaine@...> wrote: > I know there are a lot of people in the group. I am curious if any of you have > had a disgnosis of RA after having an IUD Mirena inserted? > > Kate Fontaine > > " Don't cry because it's over. Smile because it happened. " > -Dr. Seuss > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 Thank you candice for your input. I have been trying to decide if I need to have my IUD pulled. I have been to a gyno (the best surgen even in this area) and he says there is no way it's related but at the same time there seems to be a lot of people online who have had issues similar to this both with an IUD and birth control as well.  Kate Fontaine  " Don't cry because it's over. Smile because it happened. " -Dr. Seuss   ________________________________ From: Candace Podratz <candaceandbrock@...> " " < > Sent: Wed, July 28, 2010 5:22:39 AM Subject: Re: [ ] Questions  Interesting question! I know one of the theories on inflammation disorders - especially lupus- is that it's brought on by a hormone imbalance. One of the things that was going on when I first got REALLY sick was I'd just started on the pill. Will be interesting to see feedback on this. Candace Sent from my iPhone Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 Janine I am trying to see if there is a coorolation stong enough to have it removed hopeing this will get better or at least go into remission.  Kate Fontaine  " Don't cry because it's over. Smile because it happened. " -Dr. Seuss   ________________________________ From: Janine <Raabster@...> " " < > Sent: Tue, July 27, 2010 10:18:12 PM Subject: Re: [ ] Questions  I did. Why do you ask? Janine Raab Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (35) Recent Activity: * New Members 6 Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 Candace wrote: I know one of the theories on inflammation disorders - especially lupus- is that it's brought on by a hormone imbalance. Candace, I would love to see actual studies on the relationship with hormone imbalance. The body produces so many different hormones, not just reproductive, it would be really interesting to see which area relates. Any suggestions where we might find such information on-line? Abundant Blessings, in Fla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 I've read this theory in books my mom purchased on Lupus - although when I googled " auto immune hormone imbalance " there was plenty said about the topic. Seems a too-high level of estrogen can cause anything from hyperthyroidism to lupus. Even most men with auto immune disorders were found to have too much estrogen! Candace No shadows to depress you Only joys to surround you Many friends to love you God himself to bless you These are my wishes for you, For today, tomorrow & everyday. Sent from my iPhone On Jul 28, 2010, at 9:47 AM, " " <cynsayre@...> wrote: > > Candace, > I would love to see actual studies on the relationship with hormone imbalance. The body produces so many different hormones, not just reproductive, it would be really interesting to see which area relates. Any suggestions where we might find such information on-line? > > Abundant Blessings, > in Fla > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 Thanks Candace, I'm on it! I use Copernic so let's see what it pulls up. in Fla. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 But then I didn't get RA until I was over 60, with probably very little estrogen left, LOL. Sue On Jul 28, 2010, at 12:00 PM, Candace Podratz wrote: > I've read this theory in books my mom purchased on Lupus - although > when I googled " auto immune hormone imbalance " there was plenty said > about the topic. > Seems a too-high level of estrogen can cause anything from > hyperthyroidism to lupus. > Even most men with auto immune disorders were found to have too much > estrogen! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 I had the old school IUD with no hormones for 4+ years with no problems other than heavy periods for the first 8 mos or so. I already had RA at this point though. My RA started right after I started on the Yasmin birthcontrol pills at age 43. I hadn't been on the pill for about 2 years and never on Yasmin. Yasmin is supposed to be a bit harder on your kidneys(?) beacause it has a built in diuretic I believe.  All Best, Fiona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 I took Yaz for about 6 months. Hmm...  Kate Fontaine  " Don't cry because it's over. Smile because it happened. " -Dr. Seuss   ________________________________ From: Fiona Vallejo <fionavallejo@...> Sent: Thu, July 29, 2010 11:53:41 AM Subject: Re: [ ] Questions  I had the old school IUD with no hormones for 4+ years with no problems other than heavy periods for the first 8 mos or so. I already had RA at this point though. My RA started right after I started on the Yasmin birthcontrol pills at age 43. I hadn't been on the pill for about 2 years and never on Yasmin. Yasmin is supposed to be a bit harder on your kidneys(?) beacause it has a built in diuretic I believe.  All Best, Fiona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 ________________________________ From: Fiona Vallejo <fionavallejo@...> Sent: Thu, July 29, 2010 10:53:41 AM Subject: Re: [ ] Questions  I had the old school IUD with no hormones for 4+ years with no problems other than heavy periods for the first 8 mos or so. I already had RA at this point though. My RA started right after I started on the Yasmin birthcontrol pills at age 43. I hadn't been on the pill for about 2 years and never on Yasmin. Yasmin is supposed to be a bit harder on your kidneys(?) beacause it has a built in diuretic I believe.  All Best, Fiona Quote Link to comment Share on other sites More sharing options...
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