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Great analogy, Martha!

Sally in Little Rock here and that really cleared up why you could be

allergic to penicillin and not the mino-thank-you!

Hugs & Good Health!

Sally

Re: rheumatic Questions

> .... Penicillin was origionally made from a mold found on bread.

> Tetricycline (from which Minocin is a third generation product) is a

> different

> structure and attacks different bacteria. Sort of like some people are

> allergic to ragweed and others may be allergic to hay. Both are plants

> yet people

> who are allergic to one may not be allergic to the other. I realize this

> is

> very simplistic, but I am not a scientist and this is the best I can come

> up

> with!!! Martha

>

>

>

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  • 2 months later...
  • 2 months later...

Hi Susie;

Could he be sensitive to gluten and or other things that he has

eaten.Check out www.celiac.com as this is very frequent in people

with any disease..I had absolutely no idea that I had a gluten

intolorance until my very good AP doc had me tested .What a shock when I

also found out that I can't have anything " cow " ,i.e. beef,yogurt ice

cream etc.No citrus,grapes,asperigus,legumes of any kind and anything

sweetened from sugar cane.It took over a year to get better and I

suspect that my SD was caused by the celiac.You can do your own testing

so check out www.enterolab.com They send a kit,you send back a stool

sample and they send you the results by e-mail. Lynne G / SD

wrote:

> Hi, Susie from Oklahoma here. I have two questions and hopefully

> some of you men can help me.

>

> My husband is 53 and very stubborn. Yes, I mean STUBBORN. He has

> always been such a mellow man and now he seems full of anxiety, and

> he is not fun to be around. We went to New Mexico for a 4 day trip

> and I noticed that after 2 to 3 hours after eating, he would get

> anxious and gripey. I told him I thought maybe his blood suger was

> off and that he should eat some crackers when he felt like that. It

> did help him and he would calm down. Could he be going through

> midlife crisis? Anway, I made a list for him to take to the doc and

> he didn't even talk to him about it. The list was: blood test for

> diabetes, thyroid, and anxiety. What should I do? I asked him if I

> could go along with him and he said " no " . Please men....help me

> with this.

>

> Also, now to me. I take 2 pills daily of mino. I know I am getting

> better every day...trying to walk and watch what I eat. I'm 54, dx

> with sd and I'm gaining weight through my middle. I often wonder if

> it is caused by some of the meds I'm on. I take Lyrica, ultram,

> percocet and synthroid (Graves disease years ago....now

> hypothyroid). Plus....I'm really depressed. I try really hard to

> smile and put on a " happy " face, however, I have a problem taking

> antidepressants....they make me feel weird and numb. I started back

> on estrogen due to having a total hysterectomy 2 years ago....it

> helps the hot flashes. To say it all very simply.....I don't really

> like myself right now. I often wonder if it is the state of the

> world, since I am so hypersensitive to everything.

>

> I really hate to whine....because that isn't me. And Maritza...my

> sweet friend....thank you for all of your support. I really don't

> know what I would do without you.

>

> I would appreciate any advice. Thanks for listening.

>

> Susie

>

>

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  • 1 year later...
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I dont know if Dr. Feng can fix scarring !!

My explant surgery was $7,700.00 for capsulectomy

My surgery was 6 hours long.

My insurance did not pay for anything at this time.

Yes, Dr. Feng does admit to implant illness and proper removal.

But she is unsure how to treat the illness of implant illness.

Love

In a message dated 6/4/2008 2:36:41 A.M. Eastern Daylight Time, dusty.com@... writes:

My dear friend needs medical attention ASAP

Please tell me your experience with Dr. Feng

My friend is BIG TIME SHY

I want to help her through this nightmare

Can Dr. Feng fix past scarring from original explant ?

Approximate cost of surgery ?

How long was your surgery ?

Afraid insurance will find out it's implant related

Anyone have a problem ?

Does Dr. Feng admit to implant illness ?

Please list any information that will be of help

Much Appreciation,

Sandy~

Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

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Sandy ~

Reguarding insurance and surgeries .....

Right now, the FDA, drug companies, and most doctors

say that there is NO relationship between implants and

any kind of problems or illness.

Her diagnoses is PAIN.......and she will have an exploratory

and removal of what ever found that is causing the pain

in her chest .It cant be implant related, as

the people in control of all this mess say that implants

are completely safe. It must be a coincedence that she

has pain near where she had safe implants, cuz it couldnt

be from implants !

Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

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My doctor used pain for my medical reason and still

my insurance did not pay for it.

In a message dated 6/4/2008 10:23:42 A.M. Eastern Daylight Time, DGRAHAMA@... writes:

Sandy ~

Reguarding insurance and surgeries .....

Right now, the FDA, drug companies, and most doctors

say that there is NO relationship between implants and

any kind of problems or illness.

Her diagnoses is PAIN.......and she will have an exploratory

and removal of what ever found that is causing the pain

in her chest .It cant be implant related, as

the people in control of all this mess say that implants

are completely safe. It must be a coincedence that she

has pain near where she had safe implants, cuz it couldnt

be from implants !

Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

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I would fight it ! Did your doctor send to the lab

for pathology what she took out of your chest ? ?

If so, what exactly did the pathology say ?

Many times there are exploratory surgeries

for chronic pain ! and you had chronic pain for

a few years in your chest.........

apeal, apeal, apeal ! ! ! Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

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I have been appealing for the last 3 months....

I dont know what else to do.....the doctor Dr. Feng

put on there surgery due to pain and size of capsules

I sent everything into the insurance co. well my husband did

and keeps coming back doctor out of range !!! Another words

doctor not in the network of doing the surgery.

I wanted the drains and she was the only one in my area to

do this surgery.

In a message dated 6/4/2008 11:53:14 A.M. Eastern Daylight Time, DGRAHAMA@... writes:

I would fight it ! Did your doctor send to the lab

for pathology what she took out of your chest ? ?

If so, what exactly did the pathology say ?

Many times there are exploratory surgeries

for chronic pain ! and you had chronic pain for

a few years in your chest.........

apeal, apeal, apeal ! ! !

Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

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Guest guest

Look at your ins policy, see if it has an area

that talks about seeing a doctor out of network,

and see if they cover partial for doc out of network

Also, appeal with a letter stating that none of the

doctors in network use drains to get the fluid off

to keep you from infection and chance of getting

a seroma. Seroma is very common with breast

surgery. Which would cost them more in the long

run.....

Did she send what she removed to the lab to check

the pathology and all ? ? If so, do you have a

scanner where you can scan it and email me a copy ?

I will see what I can find in that report that may

be of help. I worked in the med field 26 years

and have an eye for those things.....

Hugs ~ DedeGet trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

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  • 5 months later...

Hi Paddy! You have lots of questions and that is a GOOD thing!I will try to answer them below, in the body of your letter: >> How long do you typically have to wait until the surgery can be > done...how far out are the doctor's schedules?It all depends on the doctor...some are booked, but others can get you in right away. I'm thinking that in this economy, you should be able to get in soon!> > Does everyone seem to have the same general type illness or are there > a wide variety? We have the same general symptoms --the ones listed on our home page--but there are a wide variety of degrees of disability. Some women have a strong reaction like I did, and are down for the count in a matter of days or weeks, while other women seem to have small, little problems crop up over a period of years that they tend to shove off as aging, or stress, or working too hard, etc, and then it develops into a full blown autoimmune condition that leaves them unable to function well. Many can't continue working and become bedridden. Are there names for the most common illnesses amongst > women with implants?All the autoimmune diseases: rheumatoid arthritis, Multiple Sclerosis, Lupus, sjogren's syndrome, fibromyalgia, chronic fatigue syndrome, Multiple chemical sensitivity, Hashimoto's thyroid disease, and then there are the fungal infections such as candida and bacterial infections that can be secondary.> > Did anyone have surgery in MN...explant surgery? Mayo hasn't been of > any help? I mean they weren't for me, after I spent a week with them > (actually very, very rude), but hoped maybe someone had a better > experience?We've heard nothing but horrible stuff from Mayo. They do not acknowledge that implants are making women ill.> > Are there specific tests I should be having at this time...blood > tests? Any thing specific to look for?You can look for signs of autoimmunity, such as elevated rheumatoid factor, lowered complements, and antibodies to your thyroid. If you have had normal blood tests in the past, they either may need to look deeper, or you will be lucky and still have normal results! One area that I believe is HUGELY neglected is the hormones...adrenal, thyroid, sex hormones. I've heard of women testing low on these over and over again. Doctors are notoriously clueless about proper hormone balance. This is a new area of medicine right now that I believe is key for us. Bio-identical hormone replacement! > > I haven't had a mammagram for a few years, should I have that before > explant surgery?No, not unless you suspect ruptures if you have silicone gel, and then you need a special MRI.> > Are there certain "do" and "don't do" items? Don't walk more than > necessary because the poison moves...or... detox because it gets some > poison out... or don't lift weights, or do lift weights? Are there > things I can do now that can make me healthy enough to work and save > up money to get the surgery?Most women who are very ill cannot exercise--it puts them into severe flares. Gentle exercise, such as yoga or walking if you have the energy is okay, but if you do not, don't attempt it. You can attempt detoxing, gently, and just be aware that there is a healing reaction to very ill people, called a Herxheimer reaction, that can occur. It means that if you are moving stuff out of your body that is toxic, until it is gone, you can actually feel worse because it has been mobilized. The things you can do now would be to eat healthy--cut out all sugar, unhealthy fats, processed foods, any foods that you are allergic to, (and we find that many of us have developed food allergies) and drink lots of water. Cut out caffeine, fake sugars, sodas, and concentrate on healthy, fresh foods and healthy protein, as well as probiotics, such as kefir or yogurt.> > I used to run and felt great during the run and after the run but the > next day would get deathly weak and exhausted. It seems to me by > blood doesn't flow properly but I don't get swelling, a cough, any > blueness, etc.. Does anyone know what this is about?My guess is because it is adrenal-related, or due to exhausted hormones, which can include testosterone in females.> > Do I have time to save up or do I need to get the implants out > yesterday?I think in your case the faster you can get them out, the better.> > I'm sorry if I am asking questions that have been answered-I have a > hard time tracking information...processing it, etc.. > > Do I need to be worried that I am going to compromise my pending long > term disability claim that is currently being reviewed? This is an area I know little about, and I would ask a professional how this will be affected. > > Should I be applying for social security?Is that separate from your long term disability? I would apply for any disability you can get, because healing is going to take awhile...it can take up to several years. If you were going to apply anyway, do it and get the ball rolling, using a good lawyer can get it for you faster.> > After explant, how soon are you typically able to return to desk > jobs? What about more physical jobs?This is entirely an individual matter, depending on how severely you have suffered illness, how well you detox and your lifestyle. Some women are able to do more quite soon, while others take longer. There is a honeymoon period that can last about 6 weeks, and then the symptoms can return--it's frightening, but it is a sign that your body is going to start healing, and you have to be ready for the long haul. It can take about a year or more just to get to a point of STARTING to feel better. The immune system requires a couple of years to fully heal. It took me a total of 4 years to get better. I did both desk and physical jobs, and of course, the goal is to keep your stress level manageable.> > If implants are leaking, can't you tell because the size or shape- > doesn't it change?Yes, there may be a burst followed by a quick deflation, or there can be a very slow leak that is nearly imperceptable.> > How do they become so murky on the inside if they are sealed?Because, as Dr. Pierre Blais points out in his discussions, the valve actually acts like a pump, and there is a transfer of bodily fluids in and out of the implant. Fungal colonies, or bacterial colonies can get established in the implant because as the organisms grow, they become too large to flow back and forth. The implant becomes a stagnant cesspool.> > Would it help to lose as much weight as possible to make them looser > on my chest wall (they are under the muscle)? I was 20 lbs. lighter > and much more muscular at the time...now I feel like a big roll of > flab. Should I benchpress or not because that would make them tighter > to the chest? What does one do...not do? I would not worry at all about weight loss right now, or weight lifting, or anything else except getting that surgery scheduled and paid for.> > Anything about moving arms around?? I feel like something happens on > the side of my chest and in my armpits "sometimes" if I do alot of > overhead motion or even arm swinging (maybe especially arm > swinging?)... does inflammation get set off? Do you have swollen lymph nodes? Some women have had silicone in their lymph system, and this can cause discomfort.> > Ugh...so many questions... and so used to denial and therefore lack > of answers and information. That must be why I'm having trouble...not > used to actually getting answers.It's a good thing Paddy! God bless you.> > Paddy> > Thank you my lady angels. :)>

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  • 4 months later...
Guest guest

My rheumy mentioned when I first saw him and explained my symptoms that it

sounded like there was nervous system dysfunction. I wasn't sure, but it sounded

like he said central nervous system instead of autonomous nervous system. When

I mentioned breast implants, his demeanor changed, and he didn't want to deal

with THAT. He became very cautious with me, not wanting to commit to anything

but taking my money and wasting my time. That's when I fired him and went the

natural route.

Patty

>

> hi there,

> sorry i haven't emailed in a very long time - i have been quite ill.

> i was wondering if anyone has Dysautonomia (dysregulation of the autonomic

nervous system)?

>

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wow! sounds exactly like what i'm going through. doctors brushing me off all the

time! the same story over and over again! wouldn't it be great to have doctors

take us seriously for once?!

antonija

> >

> > hi there,

> > sorry i haven't emailed in a very long time - i have been quite ill.

> > i was wondering if anyone has Dysautonomia (dysregulation of the autonomic

nervous system)?

> >

>

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Guest guest

Yes, I'm hoping for that day when doctors will actually believe what is written

in the inserts for all implants! That these symptoms can have an association

and we need help!

I've sent a post that lists several doctors who DO believe us....and who can

explant you correctly.

Let us know what progress you make with this!

Hugs,

Patty

>

> wow! sounds exactly like what i'm going through. doctors brushing me off all

the time! the same story over and over again! wouldn't it be great to have

doctors take us seriously for once?!

>

> antonija

>

>

> --- In , " glory2glory1401 " <glory2glory1401@>

wrote:

> >

> > My rheumy mentioned when I first saw him and explained my symptoms that it

sounded like there was nervous system dysfunction. I wasn't sure, but it sounded

like he said central nervous system instead of autonomous nervous system. When

I mentioned breast implants, his demeanor changed, and he didn't want to deal

with THAT. He became very cautious with me, not wanting to commit to anything

but taking my money and wasting my time. That's when I fired him and went the

natural route.

> > Patty

> >

> > --- In , " antonijabrcic " <antonijabrcic@>

wrote:

> > >

> > > hi there,

> > > sorry i haven't emailed in a very long time - i have been quite ill.

> > > i was wondering if anyone has Dysautonomia (dysregulation of the autonomic

nervous system)?

> > >

> >

>

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  • 1 year later...
Guest guest

I know there are a lot of people in the group. I am curious if any of you have

had a disgnosis of RA after having an IUD Mirena inserted?

 

Kate Fontaine

 

" Don't cry because it's over. Smile because it happened. "

-Dr. Seuss

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I did. Why do you ask?

Janine Raab

On Jul 27, 2010, at 10:02 AM, Katey Fontaine <fuzzyfontaine@...> wrote:

I know there are a lot of people in the group. I am curious if any of you have

had a disgnosis of RA after having an IUD Mirena inserted?

Kate Fontaine

" Don't cry because it's over. Smile because it happened. "

-Dr. Seuss

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Guest guest

Interesting question! I know one of the theories on inflammation disorders -

especially lupus- is that it's brought on by a hormone imbalance.

One of the things that was going on when I first got REALLY sick was I'd just

started on the pill. Will be interesting to see feedback on this.

Candace

Sent from my iPhone

On Jul 27, 2010, at 10:02 AM, Katey Fontaine <fuzzyfontaine@...> wrote:

> I know there are a lot of people in the group. I am curious if any of you have

> had a disgnosis of RA after having an IUD Mirena inserted?

>

> Kate Fontaine

>

> " Don't cry because it's over. Smile because it happened. "

> -Dr. Seuss

>

>

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Guest guest

Thank you candice for your input. I have been trying to decide if I need to have

my IUD pulled. I have been to a gyno (the best surgen even in this area) and he

says there is no way it's related but at the same time there seems to be a lot

of people online who have had issues similar to this both with an IUD and birth

control as well.

 

Kate Fontaine

 

" Don't cry because it's over. Smile because it happened. "

-Dr. Seuss

 

 

________________________________

From: Candace Podratz <candaceandbrock@...>

" " < >

Sent: Wed, July 28, 2010 5:22:39 AM

Subject: Re: [ ] Questions

 

Interesting question! I know one of the theories on inflammation disorders -

especially lupus- is that it's brought on by a hormone imbalance.

One of the things that was going on when I first got REALLY sick was I'd just

started on the pill. Will be interesting to see feedback on this.

Candace

Sent from my iPhone

Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

..

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Janine I am trying to see if there is a coorolation stong enough to have it

removed hopeing this will get better or at least go into remission.

 

Kate Fontaine

 

" Don't cry because it's over. Smile because it happened. "

-Dr. Seuss

 

 

________________________________

From: Janine <Raabster@...>

" " < >

Sent: Tue, July 27, 2010 10:18:12 PM

Subject: Re: [ ] Questions

 

I did. Why do you ask?

Janine Raab

Reply to sender | Reply to group | Reply via web post | Start a New Topic

Messages in this topic (35)

Recent Activity: * New Members 6

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Guest guest

Candace wrote: I know one of the theories on inflammation disorders - especially

lupus- is that it's brought on by a hormone imbalance.

Candace,

I would love to see actual studies on the relationship with hormone imbalance.

The body produces so many different hormones, not just reproductive, it would be

really interesting to see which area relates. Any suggestions where we might

find such information on-line?

Abundant Blessings,

in Fla

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Guest guest

I've read this theory in books my mom purchased on Lupus - although when I

googled " auto immune hormone imbalance " there was plenty said about the topic.

Seems a too-high level of estrogen can cause anything from hyperthyroidism to

lupus.

Even most men with auto immune disorders were found to have too much estrogen!

Candace

No shadows to depress you

Only joys to surround you

Many friends to love you

God himself to bless you

These are my wishes for you,

For today, tomorrow & everyday.

Sent from my iPhone

On Jul 28, 2010, at 9:47 AM, " " <cynsayre@...> wrote:

>

> Candace,

> I would love to see actual studies on the relationship with hormone imbalance.

The body produces so many different hormones, not just reproductive, it would be

really interesting to see which area relates. Any suggestions where we might

find such information on-line?

>

> Abundant Blessings,

> in Fla

>

>

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Guest guest

But then I didn't get RA until I was over 60, with probably very

little estrogen left, LOL.

Sue

On Jul 28, 2010, at 12:00 PM, Candace Podratz wrote:

> I've read this theory in books my mom purchased on Lupus - although

> when I googled " auto immune hormone imbalance " there was plenty said

> about the topic.

> Seems a too-high level of estrogen can cause anything from

> hyperthyroidism to lupus.

> Even most men with auto immune disorders were found to have too much

> estrogen!

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Guest guest

I had the old school IUD with no hormones for 4+ years with no problems other

than

heavy periods for the first 8 mos or so. I already had RA at this point though.

My RA

started right after I started on the Yasmin birthcontrol pills at age 43. I

hadn't been on the

pill for about 2 years and never on Yasmin.  Yasmin is supposed to be a bit

harder on

your kidneys(?) beacause it has a built in diuretic I believe.

  All Best, Fiona

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I took Yaz for about 6 months. Hmm...

 

Kate Fontaine

 

" Don't cry because it's over. Smile because it happened. "

-Dr. Seuss

 

 

________________________________

From: Fiona Vallejo <fionavallejo@...>

Sent: Thu, July 29, 2010 11:53:41 AM

Subject: Re: [ ] Questions

 

I had the old school IUD with no hormones for 4+ years with no problems other

than

heavy periods for the first 8 mos or so. I already had RA at this point though.

My RA

started right after I started on the Yasmin birthcontrol pills at age 43. I

hadn't been on the

pill for about 2 years and never on Yasmin.  Yasmin is supposed to be a bit

harder on

your kidneys(?) beacause it has a built in diuretic I believe.

  All Best, Fiona

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Guest guest

________________________________

From: Fiona Vallejo <fionavallejo@...>

Sent: Thu, July 29, 2010 10:53:41 AM

Subject: Re: [ ] Questions

 

I had the old school IUD with no hormones for 4+ years with no problems other

than

heavy periods for the first 8 mos or so. I already had RA at this point though.

My RA

started right after I started on the Yasmin birthcontrol pills at age 43. I

hadn't been on the

pill for about 2 years and never on Yasmin.  Yasmin is supposed to be a bit

harder on

your kidneys(?) beacause it has a built in diuretic I believe.

  All Best, Fiona

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