Re: first appoinment over still no answers

[Guest guest]

Hi!

I am going thru almost exactly what you are right now as well! Although I've had

RA for 5 years and it used to show up on my bloodwork, I too, just saw a new

doctor last week - took half my blood, urine, ex=rays, bone density tests - you

name it. I've been called back in for more blood (as if they had not taken

enough!!) on next Tuesday. I won't see my doc to go over the results until the

23rd.  I have been thru this same routine with another doctor who claimed I

didnt' even have RA!  As long as your doc is truly listening to your issues and

is trying to find answers, I think you are on the right path. If she didn't

listen to you, the first thing I would say is find another doctor! But it does

sound like she is trying to get to the bottom of your pain. I am sorry you are

in pain as you discribed - it is very frustrating, but hang in there. We are all

here for each other - you'll love this group!

Keep us posted when you find out more!  Good luck - and as I said before, just

hang in there.

 

in SC

From: lamiefulk <klamiefulk@...>

Subject: [ ] first appoinment over still no answers

Date: Wednesday, September 2, 2009, 9:22 PM

 

Hello I am still really new to this group. and I have been reading every ones

posts and every thing sounds so familiar. any way i went to the Rhumatoligst on

Monday and well 11 vials of blood one cup of urine and 14 xrays later I am still

waiting for some kind of answer. the doctor was very nice and seemed to

understand what i was saying she is just confused as to why my blood work

doesn't show what is going on. I should hear on Thursday if they found anything.

if my tests are still normal i will have to have an ultrasound on my fingers to

see if she can see the inflammation that way. and try me on a couple of weeks of

predisone and see how i respond and if i do respond well to the prednisone then

she will see what course of treatment to follow then . I don't know if any one

else has went threw so many steps to get some kind of answer to the stiffness

and pain and loss of motion in there joints but never the less this is where i

am at. stiff sore

exhausted some times so swollen i can not close my hands or grip anything. she

did say that there is an inflammatory arthritis that starts in the back and then

moves to the fingers and toes and she does think that i may have that but needs

to check every thing else out. and RA is most likely my issue but i have no

clinical tests to prove it just symptoms. ahhh oh well just wanted to post an

update hope every one is doing better tonight or on there way to wellness thanks

for listening and the advice from Michigan.

[Guest guest]

Hi. I have had arthritis symptoms for several years. I have identical pain on

both sides -i,.e. wrists,hands, feet, etc. I have swelling and severe stiffness

in the morning for about an hour. I have all the symptoms of RA but my bloodwork

is always normal. Who knows why? My rheumi says that he can diagnose based on

symptoms. Hope this helps. Peg

 

From: lamiefulk <klamiefulk@...>

Subject: [ ] first appoinment over still no answers

Date: Wednesday, September 2, 2009, 9:22 PM

 

Hello I am still really new to this group. and I have been reading every ones

posts and every thing sounds so familiar. any way i went to the Rhumatoligst on

Monday and well 11 vials of blood one cup of urine and 14 xrays later I am still

waiting for some kind of answer. the doctor was very nice and seemed to

understand what i was saying she is just confused as to why my blood work

doesn't show what is going on. I should hear on Thursday if they found anything.

if my tests are still normal i will have to have an ultrasound on my fingers to

see if she can see the inflammation that way. and try me on a couple of weeks of

predisone and see how i respond and if i do respond well to the prednisone then

she will see what course of treatment to follow then . I don't know if any one

else has went threw so many steps to get some kind of answer to the stiffness

and pain and loss of motion in there joints but never the less this is where i

am at. stiff sore

exhausted some times so swollen i can not close my hands or grip anything. she

did say that there is an inflammatory arthritis that starts in the back and then

moves to the fingers and toes and she does think that i may have that but needs

to check every thing else out. and RA is most likely my issue but i have no

clinical tests to prove it just symptoms. ahhh oh well just wanted to post an

update hope every one is doing better tonight or on there way to wellness thanks

for listening and the advice from Michigan.

[Guest guest]

I have had symptoms for over 10 years and still not one test positive for RA. I

give up worrying about getting a postive test and work on trying to feel better

(although I know the frustration).

I got a new Rheumy and he started me on prednisone and it did help, so he said

he would treat me as I had it and I do have improvement. Most of the time, this

isn't one of those times (otherwise I would be outside throwing the ball for the

dogs instead of reading here!).

It may take several meds before you find the right one, but hang in there, I am

glad I did. I finally have some days that I actually feel almost human, didn't

ever think that would happen!

Good luck,

Dawn in MN

>

> Hello I am still really new to this group. and I have been reading every ones

posts and every thing sounds so familiar. any way i went to the Rhumatoligst on

Monday and well 11 vials of blood one cup of urine and 14 xrays later I am still

waiting for some kind of answer. the doctor was very nice and seemed to

understand what i was saying she is just confused as to why my blood work

doesn't show what is going on. I should hear on Thursday if they found anything.

if my tests are still normal i will have to have an ultrasound on my fingers to

see if she can see the inflammation that way. and try me on a couple of weeks of

predisone and see how i respond and if i do respond well to the prednisone then

she will see what course of treatment to follow then . I don't know if any one

else has went threw so many steps to get some kind of answer to the stiffness

and pain and loss of motion in there joints but never the less this is where i

am at. stiff sore exhausted some times so swollen i can not close my hands or

grip anything. she did say that there is an inflammatory arthritis that starts

in the back and then moves to the fingers and toes and she does think that i may

have that but needs to check every thing else out. and RA is most likely my

issue but i have no clinical tests to prove it just symptoms. ahhh oh well just

wanted to post an update hope every one is doing better tonight or on there way

to wellness thanks for listening and the advice from Michigan.

>