Re: long and rambling, Med not avalaible OT

[Guest guest]

oops, I forgot the name of the med. I went back on prednisone. See I cannot even

type the name. How can a drug be so positive and negative at the same time.

[Guest guest]

Hi Vicki,

Don't be so quiet, your posted info could just be what someone else needs to

read.

You sound as though you've gone through a lot on your own and keeping a job

going!!! How do you manage? Well done you.

 

 

Glad you're getting your meds sorted and starting to feel better. I think quite

a few of us know that feeling about going to bed thin and waking up not so thin.

I have 3 sets of clothes all different sizes, just in case.

 

Don't leave it so long before posting again as I couldn't be without this group,

they are just as effective as the meds. In my next rheumy appointment, I am

going to tell him all about you all and suggest he puts up a notice in the

clinic, informing his patients.

 

Hoping to hear from you soon

 

Keep on getting better

x

From: Vicki <gramvick@...>

Subject: [ ] long and rambling, Med not avalaible OT

Date: Thursday, 2 April, 2009, 2:12 AM

Hi I am Vicki, one of the quiet members here who just reads and reads. You all

give me so much hope when I am at my lowest, however I do forget to email and

thank you.

Anyway I went to my MD yesterday for med refills as my Rheumy prescribes

everything except the Oxy, that way I am only getting the hard scripts from one

doctor. I dropped them off at Walgreen's and left for awhile to do some more

running. When I returned I was told only one was filled, the Oxycontin, 40

Miligrams, extended relief. The other, which was the 10 milligram immediate

release, has been pulled Nation Wide and no one knows when it will be available.

Hmmmmmm, do I continue to take the ones I still have left, or do I flush them.

Makes me wonder.

They were able to get my doctor to prescribe another med, which is oxycontin

mixed with acetaminophen. Stronger dosage, which is nice, however it really

knocked me on my butt first time I took it. Good thing it was my day off work

and I was home.

Between the meds and the cortisone shots I am actually feeling a little better.

I am on both of those meds I just mentioned, Humira, MTX injectable, Lyrica,

Ambien and Cymbalta. I have RA, Fibromalgia and osteoporosis.

I think the scariest part is never knowing when I flare is going to hit and how

long it will last. My last flare was Christmas time. I was literally knocked

down to walking with a cane and then a walker. I hurt so bad I did not even want

to get out of bed. Depression hit hard and fast.

I went back on 80 milligrams, 40 in the am and 40 in the pm. I am not saying it

is a bad med, but it made me swell up like a balloon. I went to bed one night

thin and woke up fat. I could not even get into my clothes. My vision got really

bad, eyes were slanted from how swollen my face was. Not a good med for me at

all, however it did make the swelling of my feet and ankles go away and the pain

diminished to a tolerable level.

Anyway I am just rambling on here, with no real purpose, so I will close now. I

wish you all pain free days ahead. God knows we need them.

In Friendship

Vicki

, Iowa

[Guest guest]

I just had the same issues with Prednisone. Glad to hear I'm not alone. It

made me feel great, but made me ballooon up also. Thing is the Prednisone is

now gone, but the weight didn't go off with it. Sorry to hear about your

troubles getting medicines. Take care.

Texas

>

> oops, I forgot the name of the med. I went back on prednisone. See I cannot

even type the name. How can a drug be so positive and negative at the same time.

>

>

[Guest guest]

Hi Vicki - Ramble away, honey - that's what we're here for. Sometimes everything

is so overwhelming and it feels like no one really understands. But, you know we

do as we live this with you each and every day.

Interesting about the Oxy IR being pulled. I've not heard anything about a

recall (I subscribe to the FDA site) - perhaps it just has to do with the way

the government is wanting to put tighter controls and accountability on pain

meds. Just a guess - I don't really know.

Anyway, I know how much you hate the prednisone. I do too. I've boycotted it for

over a month now and I am afraid when I go back to my Rheumy at the end of the

month, he is going to want me back on it. The dosage you are on is very high.

Check with your doctor about weening to a smaller, maintenance dosage - perhaps

the swelling and weight gain won't be so bad. My prayers are for better/pain

free days ahead for you.

Don't be a stranger. We all care.....Doreen

Hi I am Vicki, one of the quiet members here who just reads and reads. You all

give me so much hope when I am at my lowest, however I do forget to email and

thank you.

Anyway I went to my MD yesterday for med refills as my Rheumy prescribes

everything except the Oxy, that way I am only getting the hard scripts from one

doctor. I dropped them off at Walgreen's and left for awhile to do some more

running. When I returned I was told only one was filled, the Oxycontin, 40

Miligrams, extended relief. The other, which was the 10 milligram immediate

release, has been pulled Nation Wide and no one knows when it will be available.

Hmmmmmm, do I continue to take the ones I still have left, or do I flush them.

Makes me wonder.

They were able to get my doctor to prescribe another med, which is oxycontin

mixed with acetaminophen. Stronger dosage, which is nice, however it really

knocked me on my butt first time I took it. Good thing it was my day off work

and I was home.

Between the meds and the cortisone shots I am actually feeling a little better.

I am on both of those meds I just mentioned, Humira, MTX injectable, Lyrica,

Ambien and Cymbalta. I have RA, Fibromalgia and osteoporosis.

I think the scariest part is never knowing when I flare is going to hit and how

long it will last. My last flare was Christmas time. I was literally knocked

down to walking with a cane and then a walker. I hurt so bad I did not even want

to get out of bed. Depression hit hard and fast.

I went back on 80 milligrams, 40 in the am and 40 in the pm. I am not saying it

is a bad med, but it made me swell up like a balloon. I went to bed one night

thin and woke up fat. I could not even get into my clothes. My vision got really

bad, eyes were slanted from how swollen my face was. Not a good med for me at

all, however it did make the swelling of my feet and ankles go away and the pain

diminished to a tolerable level.

Anyway I am just rambling on here, with no real purpose, so I will close now. I

wish you all pain free days ahead. God knows we need them.

In Friendship

Vicki

, Iowa