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For the last 3 weeks I have been having some issues and wondering about them and

maybe someone who has simulair symptoms can help me figure out what is going on.

First I will get increasingly hot to the point where I sweat excessively, then I

will get a major upset stomach along with this I get restless, can't stay in one

spot and then my body starts to hurt on my right side normally starting at my

hand and then moving up my arm to my shoulder then down my body all the way to

my toes. Some days they aren't very severe other days its worse like tonight.

It started about 5pm the hot flashes or heat attacks as I like to call them. I

was in my room reading a book, went upstairs to get a drink and use the ladies

room and felt extremely hot (we have AC here and it works just fine), it

wouldn't stop, around 8pm I went up to use the ladies room again and was still

hot and sweating, around 8:30 I called upstairs and asked if someone could bring

me down a cold wash cloth because I couldn't hardly move, my stomach started

hurting and I was sweating like I had ran a marathon or something. I used the

wash cloth with no relief from it. I crawled out of my bed with the help of my

almost 7 year old and crawled up the steps when I got to the kitchen my

exhusband was making something or other and helped me up to the bathroom I went

to use it again but didn't really have to go, so started filling the tub up with

cool water and was in and out in and out of it, ended up calling my exhusband's

wife to help me cool down because it was such a severe attack. The only thing

that seems to help when I get these is the cool water and tramadol. I only take

the tramadol when I really need it and don't like taking it for every little

ache and pain. After about 30 mins I was feeling much better and it hadn't come

back but this is gone from a maybe yearly experience to almost every day now in

the last 3 weeks.

If anyone has any suggestions please let me know. I will be calling my Rheumy

on Monday to see what he says about what is going on. I'm currently only on the

tramadol and Remicade.

in land

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Oh , your message sounded so desperate, and rightly so. Clearly,

something is not right with your body. I have been diagnosed with RA & Fibro

since 1990, so I hope my words will help.

Over the years I've tried every kind of pain relief imaginable, along with my

MTX, including Tramadol which I'm on now. I had a wicked, month-long withdrawal

from doctor-prescribed Oxycontin last year which left me with exactly the same

syptoms as you're describing. I find that Tramadol creates the same type of

withdrawal symptoms , in ME (maybe not everyone), as you're experiencing if I

don't take it regularly. If you check the Addictions forum on MedHelp.com, you

will see that many others have had the same trouble with this drug after taking

it exactly as prescribed.

Many people, including doctors, will tell you that " you can't consider yourself

an addict if you're taking the drug simply for the relief of legitimate pain " .

I wanted to believe that, so badly, but with some drugs, like Tramadol, we build

up a tolerance so we feel the symptoms of withdrawal occasionally if we don't

step up the dose.

I'm so glad you have an appointment with your rheumy. It would be a good idea

to discuss this with her. I could be completely out-to-lunch. It could be

partly due to the drug and partly due to an infection of some kind (we, with

compromised immune systems, tend to get infections more often than most).

Please let us know how you're faring, okay?

Roxana

>

> For the last 3 weeks I have been having some issues and wondering about them

and maybe someone who has simulair symptoms can help me figure out what is going

on. First I will get increasingly hot to the point where I sweat excessively,

then I will get a major upset stomach along with this I get restless, can't stay

in one spot and then my body starts to hurt on my right side normally starting

at my hand and then moving up my arm to my shoulder then down my body all the

way to my toes. Some days they aren't very severe other days its worse like

tonight.

>

> It started about 5pm the hot flashes or heat attacks as I like to call them.

I was in my room reading a book, went upstairs to get a drink and use the ladies

room and felt extremely hot (we have AC here and it works just fine), it

wouldn't stop, around 8pm I went up to use the ladies room again and was still

hot and sweating, around 8:30 I called upstairs and asked if someone could bring

me down a cold wash cloth because I couldn't hardly move, my stomach started

hurting and I was sweating like I had ran a marathon or something. I used the

wash cloth with no relief from it. I crawled out of my bed with the help of my

almost 7 year old and crawled up the steps when I got to the kitchen my

exhusband was making something or other and helped me up to the bathroom I went

to use it again but didn't really have to go, so started filling the tub up with

cool water and was in and out in and out of it, ended up calling my exhusband's

wife to help me cool down because it was such a severe attack. The only thing

that seems to help when I get these is the cool water and tramadol. I only take

the tramadol when I really need it and don't like taking it for every little

ache and pain. After about 30 mins I was feeling much better and it hadn't come

back but this is gone from a maybe yearly experience to almost every day now in

the last 3 weeks.

>

> If anyone has any suggestions please let me know. I will be calling my Rheumy

on Monday to see what he says about what is going on. I'm currently only on the

tramadol and Remicade.

>

> in land

>

>

>

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:

I used to feel something like this, before I started Enbrel. My legs were on

FIRE, burning, from the feet up to my hips, as if someone poured hot, molten

lead into them. I sort of recognize what you are going through. Actually, even

though I take alot of pain meds, they dont really work for the " burnies " ...

Can it be that your DMARD's stoppped working and you need to change?, can it be

that you need an emergency 4 days of prednisone? You sort of have to play with

your drugs, with your doctor, until you find the right cocktail. It took me a

full 8 months for the combo of different drugs to work.

I am now on Opana for pain, its strong, its morphine, even that sometimes doesnt

work for the " stiffies " , but its better than suffering worse without it..

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