Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 That's horrible, . Are you feeling any better today? Not an MD On Mon, Apr 6, 2009 at 3:30 PM, cynthiadew1 <cynthiadew1@...> wrote: > I am in a flare right now. Or maybe this is just my new normal, which isn't > pretty. > > I've started the Remicade back in October. I had been on Enbrel for a year, > but it wasn't working well for me. With the last infusion of remicade I went > from 3 to 4 vials. I was already in a nasty flare, it is now two weeks after > that infusion. The flare has gotten worse, I was hoping that the remicade > was just going to take a while and I would feel better. If I walk, my feet > and knees are in pain for days after. I walked up and down the stairs in the > house last night. It took two vicodin, and a few hours with ice packs to > make my hips stop hurting enough to sleep. My hands, elbows, shoulders, and > jaws aren't any better. I take all my meds exactly the way I am supposed to. > MTX 25 mg once a week. Sulindac, Prednisone, daily are some of the major > parts of my 'cocktail'. If I miss anything, I am in more pain, so I am very > careful not to miss anything. I suppose, I will have to up my remicade and > move the infusions closer together, maybe that will work better. Right now I > feel like I am living on vicodin. > > Yes, I would like some cheese and crackers with this whine, please. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 , I am so sorry you are struggling just now. I posted my good news before I had read your last post. You are describing what I have been for such a long time. I hope you feel better real soon. very best wishes x From: cynthiadew1 <cynthiadew1@...> Subject: [ ] Flare and remicade Date: Monday, 6 April, 2009, 9:30 PM I am in a flare right now. Or maybe this is just my new normal, which isn't pretty. I've started the Remicade back in October. I had been on Enbrel for a year, but it wasn't working well for me. With the last infusion of remicade I went from 3 to 4 vials. I was already in a nasty flare, it is now two weeks after that infusion. The flare has gotten worse, I was hoping that the remicade was just going to take a while and I would feel better. If I walk, my feet and knees are in pain for days after. I walked up and down the stairs in the house last night. It took two vicodin, and a few hours with ice packs to make my hips stop hurting enough to sleep. My hands, elbows, shoulders, and jaws aren't any better. I take all my meds exactly the way I am supposed to. MTX 25 mg once a week. Sulindac, Prednisone, daily are some of the major parts of my 'cocktail'. If I miss anything, I am in more pain, so I am very careful not to miss anything. I suppose, I will have to up my remicade and move the infusions closer together, maybe that will work better. Right now I feel like I am living on vicodin. Yes, I would like some cheese and crackers with this whine, please. Quote Link to comment Share on other sites More sharing options...
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