Sed Rate

[Guest guest]

So true, Christy though our knees may give out, our strength of heart, will not!

Love and Laughter, food for the soul....

Rusty Limbs

On Fri, 17 May 2002 23:07:47 EDT gazelle34@... writes:

Well put all. To spend our lives looking back instead of forward doesn't accomplish anything. But I do think that it is a part of the initial grieving process that we all have gone through, or for the families with a new diagnosis, are still going through. And unfortunately, we all will go through days, when we grieve all over again. Just know that life goes on, and goes on well, even for the really seriously ill children. As parents we can help our child laugh about the downs. In our family, we all know that Abbie has a poltergeist in her knee. Looking at it that way helps Abbie to feel more like her friends. Most of them know there is something wrong, but she doesn't talk about it to many of them. Her biggest problem is in keeping up in the hallways. So to be able to laugh when her knee gives out makes it easier. It will be a long road if there is no laughter.Christy (Abbie 12, systemic)

[Guest guest]

A little FYI on the sed rate. The doctors panic point

is 100. then they worry...otherwise just keep

monitoring.

Hope everyone is well:)

Love to all,

Casaria and Tasie

__________________________________________________

[Guest guest]

What about the bad, They are people too, (and I am not saying that you don't care so please don't get mad) even though the good does out weigh the bad, What if you were the mother or family member of someone that had a bad reaction from an immunization, or got a very serious disease from it(like Eli said her family member got cerebal pulsy? I wouldn't spend most of my concern on whether or not I contracted polio from my child because of an open wound I would be most concerned about the effects it had on my child but I would still be precautious.and I think they have corrected that now. I think they changed it to a polio vaccine that isn't live. And we do need to hear about the bad that has happened and the good. The people that had the bad side effects are just as important to me as the people that had good results. But I think it is important to know and talk about the bad and maybe it can help someone improve the immunizations. But I would still give my child their immunizations as long as the doctor says it's O.K. I guess it is just a chance we have to take on whether or not to trust doctors and on whether or not to give the immunizations. Oh also, I have a friend with polio that is a very sweet guy; He was born with polio. He also said that he use to go to shriners but he has gotten older now and don't go there anymore. He is also very active. Most of his problem is in one of his arms. He is very strong and he said that he use to feel really bad at school a lot when he was little but he said that he finally got over it. As a matter a fact I think I am gonna call my dad and ask him how Kelvin is doing. See he really my dad's coon hunting buddy but I had been around him a lot during my life.He is married now and doing great. I just feel terrible about the people that have had bad effects from vaccines. Thank You for listening and God Bless and I hope Abby and your mom and sister are all doing well. Jona mom of na 2 poly

gazelle34@... wrote: Okay, I have to put in my 2 cents in about the immunization thing. I grew up watching the devastating effects of polio on my mother and sister. I will remember forever the day our entire town lined up in the school cafeteria to receive our sugar cube vaccine. My mothers tears reinforced even at the tender age of 4 or 5(?) that this was a life altering experience. So did I hesitate to immunize any of my children? No way; even though I watched on tv news the story of a man who contracted polio by changing his recently immunized childs diaper when he had an open wound on his hand. Was I more careful? You bet! I am glad I don't have to make the decision again, but my gut feeling is that the benefits far outweigh the risks that may be incurred. All we hear is the bad. . .not about the millions of children immunized with no repercussions. Christy (Abbie, 12 systemic)

[Guest guest]

Jona, I am the family member and victim of incompetent doctors! Yes it is so aggravating. and does foster mistrust in the publics' perception of doctors, and other medical professionals but that why you ask questions and if they don't can't or won't give you a complete and honest answer!!!! then kick em to the curb and find one that will.

education, intuition and understanding.

Yes there is the risk of contracting a decease after an immunizations but there is also the risk of contracting a decease, very possibly fatal without the immunizations.

But its all still, freedom of choice.

Don't feel anyone is getting mad, thats what this group is here for, to express, vent and learn at least for me.

Rusty

On Fri, 17 May 2002 22:12:31 -0700 (PDT) jona <jaycpepsi@...> writes:

What about the bad, They are people too, (and I am not saying that you don't care so please don't get mad) even though the good does out weigh the bad, What if you were the mother or family member of someone that had a bad reaction from an immunization, or got a very serious disease from it(like Eli said her family member got cerebal pulsy? I wouldn't spend most of my concern on whether or not I contracted polio from my child because of an open wound I would be most concerned about the effects it had on my child but I would still be precautious.and I think they have corrected that now. I think they changed it to a polio vaccine that isn't live. And we do need to hear about the bad that has happened and the good. The people that had the bad side effects are just as important to me as the people that had good results. But I think it is important to know and talk about the bad and maybe it can help someone improve the immunizations. But I would still give my child their immunizations as long as the doctor says it's O.K. I guess it is just a chance we have to take on whether or not to trust doctors and on whether or not to give the immunizations. Oh also, I have a friend with polio that is a very sweet guy; He was born with polio. He also said that he use to go to shriners but he has gotten older now and don't go there anymore. He is also very active. Most of his problem is in one of his arms. He is very strong and he said that he use to feel really bad at school a lot when he was little but he said that he finally got over it. As a matter a fact I think I am gonna call my dad and ask him how Kelvin is doing. See he really my dad's coon hunting buddy but I had been around him a lot during my life.He is married now and doing great. I just feel terrible about the people that have had bad effects from vaccines. Thank You for listening and God Bless and I hope Abby and your mom and sister are all doing well. Jona mom of na 2 poly gazelle34@... wrote: Okay, I have to put in my 2 cents in about the immunization thing. I grew up watching the devastating effects of polio on my mother and sister. I will remember forever the day our entire town lined up in the school cafeteria to receive our sugar cube vaccine. My mothers tears reinforced even at the tender age of 4 or 5(?) that this was a life altering experience. So did I hesitate to immunize any of my children? No way; even though I watched on tv news the story of a man who contracted polio by changing his recently immunized childs diaper when he had an open wound on his hand. Was I more careful? You bet! I am glad I don't have to make the decision again, but my gut feeling is that the benefits far outweigh the risks that may be incurred. All we hear is the bad. . .not about the millions of children immunized with no repercussions. Christy (Abbie, 12 systemic)

[Guest guest]

Thank You Rusty, You are so nice and understanding. And thanks for making me feel better and more wanted around here. And your give great advice about kicking the docs to curb. And good advice on everything! Thanks and I hope your doing ok today Jona mom of na 2 poly

A Morse <dam755@...> wrote:

Jona, I am the family member and victim of incompetent doctors! Yes it is so aggravating. and does foster mistrust in the publics' perception of doctors, and other medical professionals but that why you ask questions and if they don't can't or won't give you a complete and honest answer!!!! then kick em to the curb and find one that will.

education, intuition and understanding.

Yes there is the risk of contracting a decease after an immunizations but there is also the risk of contracting a decease, very possibly fatal without the immunizations.

But its all still, freedom of choice.

Don't feel anyone is getting mad, thats what this group is here for, to express, vent and learn at least for me.

Rusty

On Fri, 17 May 2002 22:12:31 -0700 (PDT) jona <jaycpepsi@...> writes:

What about the bad, They are people too, (and I am not saying that you don't care so please don't get mad) even though the good does out weigh the bad, What if you were the mother or family member of someone that had a bad reaction from an immunization, or got a very serious disease from it(like Eli said her family member got cerebal pulsy? I wouldn't spend most of my concern on whether or not I contracted polio from my child because of an open wound I would be most concerned about the effects it had on my child but I would still be precautious.and I think they have corrected that now. I think they changed it to a polio vaccine that isn't live. And we do need to hear about the bad that has happened and the good. The people that had the bad side effects are just as important to me as the people that had good results. But I think it is important to know and talk about the bad and maybe it can help someone improve the immunizations. But I would still give my child their immunizations as long as the doctor says it's O.K. I guess it is just a chance we have to take on whether or not to trust doctors and on whether or not to give the immunizations. Oh also, I have a friend with polio that is a very sweet guy; He was born with polio. He also said that he use to go to shriners but he has gotten older now and don't go there anymore. He is also very active. Most of his problem is in one of his arms. He is very strong and he said that he use to feel really bad at school a lot when he was little but he said that he finally got over it. As a matter a fact I think I am gonna call my dad and ask him how Kelvin is doing. See he really my dad's coon hunting buddy but I had been around him a lot during my life.He is married now and doing great. I just feel terrible about the people that have had bad effects from vaccines. Thank You for listening and God Bless and I hope Abby and your mom and sister are all doing well. Jona mom of na 2 poly gazelle34@... wrote: Okay, I have to put in my 2 cents in about the immunization thing. I grew up watching the devastating effects of polio on my mother and sister. I will remember forever the day our entire town lined up in the school cafeteria to receive our sugar cube vaccine. My mothers tears reinforced even at the tender age of 4 or 5(?) that this was a life altering experience. So did I hesitate to immunize any of my children? No way; even though I watched on tv news the story of a man who contracted polio by changing his recently immunized childs diaper when he had an open wound on his hand. Was I more careful? You bet! I am glad I don't have to make the decision again, but my gut feeling is that the benefits far outweigh the risks that may be incurred. All we hear is the bad. . .not about the millions of children immunized with no repercussions. Christy (Abbie, 12 systemic)

[Guest guest]

Rusty,

You sound so much like our daughter. She had chronic ear infections

up to 18 months then has never been sick. Her brother even had the

flu and pneumonia twice this year and she didn't get it even wih all

the meds. My biological grandfather (dad's dad that he only met once)

had terrible JRA and of cousr he had it long befor they even thought

of vaccinations.

e

> Thank you Michele, Out of 9 children I am the only one to have full

> blown childhood onset jra!

> The thing about it was as I've wrote in other posts is, that from

the age

> of 3yrs. to 13yrs. I didn't have even a cold, much less all of the

other

> childhood deceases. No I believe I got them all prior to 3yrs of

age.

> Even still today, I can be around people with this flu and colds

and not

> get them myself. Service.

[Guest guest]

Dear Georgina, Riley and I will be praying for Josh to feel better soon. Hugs to you both.

Eli

[Guest guest]

Hi,

The echocardiogram looked good. No fluid around the heart. They just wanted to be sure about that. And there's also no bacterial infection. It's hard to know with certainty if it's related to a virus or just the systemic JRA or possibly some kind of virus that re-activated the JRA? The pain and breathing difficulties are now basically gone : ) Josh is taking 20mg prednisone a day for two weeks. At that point, I call the doctor ... if all is well we'll begin to taper then. Josh has had this same type of thing before. The first was before he was taking MTX, when his JRA first appeared. Pericarditis and pleurisy. About two years into it, it happened again. Shortness of breath, pain in his chest area, very similar types of symptoms. At that time, the xrays showed that Josh had mild pneumonia. On another occasion, the pain came on very suddenly. After hours, so of course I brought Josh to the ER. They called it chostochondritis then and said it was inflammation between his ribs. They gave us some codeine syrup and at least that helped Josh to sleep. So this is the third or 4th time, then?

Jona mentioned an AF article called, My Husband's Hands. I will have to look for that online and if I find it, I'll post it here. That may help describe/explain the MTX-related lung issues ... which I've heard mentioned, in passing, but have never had a full explanation of. All the descriptions I've read have been extremely brief. The doctor didn't think it was MTX related, more a flare of the systemic symptoms. So he had his MTX Friday afternoon as scheduled. Weird, though, that Josh didn't have the rash everyday with this ... yet he did have the fevers. It's so hard, sometimes, to be able to pin point what exactly is going on. His SED rate is up, his WBC is up .... something, for sure, and hopefully now it'll be under control and things will get back to normal. Whatever that is : )

Aloha, Georgina

----- Original Message -----

From: dbornscheu@...

Georgina- I'm so sorry to hear Josh is having problems. Are the lung issues related to mtx? He's had them before? I'll pray you'll be able to get this under control quickly. Diane (, 3, pauci)

[Guest guest]

Hi ,

You're so right about that : ) Josh just needed a little extra help ... but already he seems to be feeling lots better. He was ready to go back to school this morning. This weekend he worked on some of his missed assignments. Has a bunch to bring in and expects to get a lot more to bring home with him today, which will keep him busy this week. He's staying after school for tutoring, too. Doesn't want to go out to play yet, is learning how important rest can be sometimes, I guess. He was disappointed that he might have to miss a class field trip to the Haleakala Volcano Summit and Crater planned for this Thursday but now he thinks he'll be fine and able to make it. Hmm ... I've signed the consent, paid for the trip, and written in my comments on the health concerns section. One of the things they'll be studying is changes in heart rate, blood pressure, and lung volume at different elevations. I guess I'll call the doctor on Wednesday, just to be sure, but it looks like he very well may be able to go along .... so I think prednisone has once again saved the day : )

Thanks for your kind thoughts,

Georgina

----- Original Message -----

From: A Morse

Chin up old man, this old arthritis is a real @@# of #%$@$% but it can't put good man like you down for long. I'm certain you'll bite that bug right in butt!!!

Good thoughts and many Prayers comin your way!

Big warm Hugs!

ye ole michiman.

Rusty Limbs

[Guest guest]

Hi Eli,

Thanks. I didn't go online earlier today, read more posts instead, wondering whether or not I'd get phone call from the school nurse. Well, it looks like he made it. Just two more hours now and I'll be picking Josh up from school. I can't wait to see how it went.

Thanks Again, Georgina

----- Original Message -----

From: skyley8@...

Dear Georgina, Riley and I will be praying for Josh to feel better soon. Hugs to you both. Eli

[Guest guest]

Hi Georgina,

I'm glad to hear Josh is getting a little better but I hope he gets a lot better too. And thanks for trying to find that story; it is such a sad story. I will try and find that magazine and see which month it was and maybe that will help you find it cause I don't have a scanner printer. Thank You so much, I'll be praying for Josh to get well and feeling better Jona mom of na 2 poly

Georgina <gmckin@...> wrote:

Hi,

The echocardiogram looked good. No fluid around the heart. They just wanted to be sure about that. And there's also no bacterial infection. It's hard to know with certainty if it's related to a virus or just the systemic JRA or possibly some kind of virus that re-activated the JRA? The pain and breathing difficulties are now basically gone : ) Josh is taking 20mg prednisone a day for two weeks. At that point, I call the doctor ... if all is well we'll begin to taper then. Josh has had this same type of thing before. The first was before he was taking MTX, when his JRA first appeared. Pericarditis and pleurisy. About two years into it, it happened again. Shortness of breath, pain in his chest area, very similar types of symptoms. At that time, the xrays showed that Josh had mild pneumonia. On another occasion, the pain came on very suddenly. After hours, so of course I brought Josh to the ER. They called it chostochondritis then and said it was inflammation between his ribs. They gave us some codeine syrup and at least that helped Josh to sleep. So this is the third or 4th time, then?

Jona mentioned an AF article called, My Husband's Hands. I will have to look for that online and if I find it, I'll post it here. That may help describe/explain the MTX-related lung issues ... which I've heard mentioned, in passing, but have never had a full explanation of. All the descriptions I've read have been extremely brief. The doctor didn't think it was MTX related, more a flare of the systemic symptoms. So he had his MTX Friday afternoon as scheduled. Weird, though, that Josh didn't have the rash everyday with this ... yet he did have the fevers. It's so hard, sometimes, to be able to pin point what exactly is going on. His SED rate is up, his WBC is up .... something, for sure, and hopefully now it'll be under control and things will get back to normal. Whatever that is : )

Aloha, Georgina

----- Original Message -----

From: dbornscheu@...

Georgina- I'm so sorry to hear Josh is having problems. Are the lung issues related to mtx? He's had them before? I'll pray you'll be able to get this under control quickly. Diane (, 3, pauci)

[Guest guest]

Georgina,

I will keep Josh in my prayers. I sure hope he starts feeling better soon.

Amy

Re: sed rate

Hi,

The echocardiogram looked good. No fluid around the heart. They just wanted to be sure about that. And there's also no bacterial infection. It's hard to know with certainty if it's related to a virus or just the systemic JRA or possibly some kind of virus that re-activated the JRA? The pain and breathing difficulties are now basically gone : ) Josh is taking 20mg prednisone a day for two weeks. At that point, I call the doctor ... if all is well we'll begin to taper then. Josh has had this same type of thing before. The first was before he was taking MTX, when his JRA first appeared. Pericarditis and pleurisy. About two years into it, it happened again. Shortness of breath, pain in his chest area, very similar types of symptoms. At that time, the xrays showed that Josh had mild pneumonia. On another occasion, the pain came on very suddenly. After hours, so of course I brought Josh to the ER. They called it chostochondritis then and said it was inflammation between his ribs. They gave us some codeine syrup and at least that helped Josh to sleep. So this is the third or 4th time, then?

Jona mentioned an AF article called, My Husband's Hands. I will have to look for that online and if I find it, I'll post it here. That may help describe/explain the MTX-related lung issues ... which I've heard mentioned, in passing, but have never had a full explanation of. All the descriptions I've read have been extremely brief. The doctor didn't think it was MTX related, more a flare of the systemic symptoms. So he had his MTX Friday afternoon as scheduled. Weird, though, that Josh didn't have the rash everyday with this ... yet he did have the fevers. It's so hard, sometimes, to be able to pin point what exactly is going on. His SED rate is up, his WBC is up .... something, for sure, and hopefully now it'll be under control and things will get back to normal. Whatever that is : )

Aloha, Georgina

----- Original Message -----

From: dbornscheu@...

Georgina- I'm so sorry to hear Josh is having problems. Are the lung issues related to mtx? He's had them before? I'll pray you'll be able to get this under control quickly. Diane (, 3, pauci)

[Guest guest]

Well said Christy, glad to hear that Abbie has been doing so well. Wishing

continued success!

Val

Rob's Mom (4,systemic)

In a message dated Fri, 17 May 2002 11:08:45 PM Eastern Daylight Time,

gazelle34@... writes:

>Well put all. To spend our lives looking back instead of forward doesn't

>accomplish anything. But I do think that it is a part of the initial grieving

>process that we all have gone through, or for the families with a new

>diagnosis, are still going through. And unfortunately, we all will go through

>days, when we grieve all over again. Just know that life goes on, and goes on

>well, even for the really seriously ill children. As parents we can help our

>child laugh about the downs. In our family, we all know that Abbie has a

>poltergeist in her knee. Looking at it that way helps Abbie to feel more like

>her friends. Most of them know there is something wrong, but she doesn't talk

>about it to many of them. Her biggest problem is in keeping up in the

>hallways. So to be able to laugh when her knee gives out makes it easier. It

>will be a long road if there is no laughter.

>

>Christy (Abbie 12, systemic)

>

[Guest guest]

Hi Georgina,

Glad to hear that Josh is doing better - he has been on my mind with all he has

been going through here lately. Take Care,

Val

Rob's Mom (4,systemic)

In a message dated Mon, 20 May 2002  6:35:49 PM Eastern Daylight Time,

" Georgina " <gmckin@...> writes:

>Hi ,

>

>You're so right about that : ) Josh just needed a little extra help ... but

already he seems to be feeling lots better. He was ready to go back to school

this morning. This weekend he worked on some of his missed assignments. Has a

bunch to bring in and expects to get a lot more to bring home with him today,

which will keep him busy this week. He's staying after school for tutoring, too.

Doesn't want to go out to play yet, is learning how important rest can be

sometimes, I guess. He was disappointed that he might have to miss a class field

trip to the Haleakala Volcano Summit and Crater planned for this Thursday but

now he thinks he'll be fine and able to make it. Hmm ... I've signed the

consent, paid for the trip, and written in my comments on the health concerns

section. One of the things they'll be studying is changes in heart rate, blood

pressure, and lung volume at different elevations. I guess I'll call the doctor

on Wednesday, just to be sure, but it looks like he very well may be able to go

along .... so I think prednisone has once again saved the day : )

>

>Thanks for your kind thoughts,

>Georgina

>----- Original Message -----

>  From: A Morse

>  Chin up old man, this old arthritis is a real @@# of #%$@$% but it can't put

good man like you down for long.  I'm certain you'll bite that bug right in

butt!!!

>  Good thoughts and many Prayers comin your way!

>  Big warm Hugs!

>  ye ole michiman.

>  Rusty Limbs

>

[Guest guest]

Glad to hear Josh is doing better again. Hopefully, since it has been so quick, he can come back down quickly. Do you go to school year round, or is vacation coming up?

Christy

[Guest guest]

Hi Christy,

I'm happy to say that both of the kids will be on a traditional school calendar again, beginning in August. My daughter has been on a year round schedule for the past 2 years. They'll both be starting their vacation on June 9th. Hopefully it'll give Josh plenty time to decrease his steroids and get back to where he was before this last episode began.

Thanks,

Georgina

----- Original Message -----

From: gazelle34@...

Glad to hear Josh is doing better again. Hopefully, since it has been so quick, he can come back down quickly. Do you go to school year round, or is vacation coming up?Christy

[Guest guest]

Jo--

Thanks for your reply! } I did know that it had something to do

with inflammation. I just didn't want to know that I had inflammation

in my body! } I had just convinced myself that those labs would be

perfect, that when I saw something out of range I paniced. It's just

a reminder that something is still not right! { I have been a nurse

(LPN) for 11 yrs, and I must say it was much easier to look at

someone elses abnormal labs! LOL! I am not a good " sick person " ! I

make a lousy patient! }

Hugs-

[Guest guest]

Becki

i think your thoughts are right bites and all are inflammation and it would

raise the rates just keep everything going good

its hard to know exactly other than you keeping a close eye on it

s was a LOW sed rate and she was having problems sometimes i wonder

if the sed rate is really the right test to determine whats going on the RBC

and the WBC is one i look at all the time one up and one down is scary

Robbin

[Guest guest]

Logan always has high SED rates,,,48 has been the lowest,We just can't seem

to get it any lower. What should the WBC and RBC be?

Kim and Logan 4 & 1/2

[Guest guest]

Hi Robbin,

Ichecked out JRA Worlds labs section and it said there is 1000 reasons for

increased SED,s WBC was 38.0 in Dec and his Sed was 34.His WBC is now 12.6

with a ratio of 4.0-11.0.His RBC is normal,usually is,but looks like hes

slightly

iron deficiant,gots some chicken livers in the freezer ready to fry but dont

know

if he will eat them.On his labs 7 things have gotten better 10 things have

stayed

normal and 4 things have gotten worse including Sed but minimally.He finally has

two normal things about his CBC test,RBC andMCHC.I still cant imagine how he can

run on that ankle all day but hes fealing great.

Becki and 3systemic

Robbin40@... wrote:

> Becki

> i think your thoughts are right bites and all are inflammation and it would

> raise the rates just keep everything going good

> its hard to know exactly other than you keeping a close eye on it

> s was a LOW sed rate and she was having problems sometimes i wonder

> if the sed rate is really the right test to determine whats going on the RBC

> and the WBC is one i look at all the time one up and one down is scary

> Robbin

>

>

[Guest guest]

Teri,

I have never even asked what Logan's WBC and RBC are, I guess if they were

high they would tell me? Or is that expecting too much? " Queen " ? I

have a " King Ethan " ,if she is available !! LOL

Kim & Logan 4 & 1/2 (and Meaghan,Katelyn & Ethan)

[Guest guest]

Kim,

Normal RBC count for females is 4.3-5.2/cubic millimeterr

males 5.1-5.8

WBC 4000-11000 /per cubic millilmeter

These ranges are for adults so I'm not sure if thet would be lower

for children.

Teri(mom of Queen ,pauci)

> Logan always has high SED rates,,,48 has been the lowest,We just

can't seem

> to get it any lower. What should the WBC and RBC be?

> Kim and Logan 4 & 1/2

>

>

>

[Guest guest]

Hey Becki, Val here. Yes sweetie, look at the big picture. Any inflammation

can affect the Sed Rate. That is the first thing that the Radiation Oncologist

I work for told me when I was losing my mind over Robbie's labs a year ago. (I

keep thinking that his Sed Rate was in the 80 to 110 range at the time) Now, of

course - we know what we are looking at with Robbie - but even so I have kept

that in mind. Robbie's last sed rate was way low.

I managed to get through the month of June without looking the date all this

started!!! This time last year he was in the hospital though, that is hard to

put out of my mind - but I am working on it. He complained of knee pain at 3:00

am this morning, came limping in my room. No redness, swelling or warmth to the

touch - but I gave him a warm bath, some Motrin and sat with him til he went

back to sleep. Then actually thought I could go back to bed at 4:30 and wake up

at 5:30 in time to get ready for work. Had to call in that I would be late. Oh

well. Robbie felt fine when I got him to school - and ran down the hall to his

room - so I think he is better - but he runs funny - different. Enough rambling

- gotta get back to work. Have a good day! Hugs!

Val

Rob's Mom (4,systemic)

In a message dated Fri, 28 Jun 2002 3:35:55 PM Eastern Standard Time,

alarson1@... writes:

>

>

> Hi gang,

> I just got s labs faxed to me from Wed.His labs are his best yet we

> gained another normal and his WBC is down to 12.8 but his sed went from

> 20 to 32,his last flair with the belly creaping all the time it was a 34

> when he flaired from mid nov-mid dec it was a 38,but his WBC was in the

> 30s also. got a bad tummy ache before bed the night they took

> labs,it was swollen and hard and I had to rub it until he fell

> asleep.Thank god he wears a good night pants because he let loose some

> time duiring the night and again when he woke up,alot of green watery

> stuff.Is this one of those times when I should look at his labs as a

> whole and not so much the sed rate?His ankle was swollen that day like

> it has been but nothing major and it was the only joint that was

> affected.He also had several bug bites with a few having a welt the size

> of a quarter,and an ant bite that left a blister.Thats inflimation too

> isnt it?Ive just seen him worse and his sed be a 20.Anyone know how this

> works?I know its been asked before .Thanks a bunch

> Becki and 3systemic

>

>

>

>

>

>

[Guest guest]

On Friday, 28 June 2002 at 21:59:09 EDT, Robbin

(Robbin40@...) wrote:

" Sometimes I wonder if the sed rate is really the

right test to determine what’s going on. "

I agree whole-heartedly. I have Lupus as well as JRA

and my sed rate is almost always within normal limits,

yet the RBC & WBC, especially the differential, are

always quite a mess.

Is mise le meas,

Do chara,

Roisín

__________________________________________________

[Guest guest]

Hi ,

way to go!Those numbers are alot lower than before.The MTX must be

working.How much do you take and how?Do you feal better then you did with

the much higher sed rate.Just curious because s last sed was a 32 up

from 20 and he felt better at the 32 then at the 20.Anyway that is such good

news,thanks for posting something personal about how you are doing.You are

always giving us support and making us smile,always there for us,so thanks

for giving us the oppurtunity to cheer you on.GO RUSTY GO!!!!Mayby you can

get rid of the oil can or atleast put it in the shed for a while.

Love Becki and 4systemic

Sed rate

>Hey Uncle Rusty got back his labs from last apt at rheumy from July and

>he finaly has a sed rate in the 40's!

>My sed has been like a roller coster anywhere from 65 to 100 plus. But

>now it's 45! must be the mtx is working.

>Good things are happenin! oh wait thats Good morning America theme!

>Well any way, now if can find a bone doc to put this hip back in.

>hugs to all and many prayers

>Uncle Rusty Limbs

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