Guest guest Posted August 7, 2002 Report Share Posted August 7, 2002 Hi Uncle Rusty, That's great news! Cheyannes sed rate is 45 too, it started out at 120. I hope your sed rate keeps going down! Hugs, & Chey4 Poly > Hey Uncle Rusty got back his labs from last apt at rheumy from July and > he finaly has a sed rate in the 40's! > My sed has been like a roller coster anywhere from 65 to 100 plus. But > now it's 45! must be the mtx is working. > Good things are happenin! oh wait thats Good morning America theme! > Well any way, now if can find a bone doc to put this hip back in. > hugs to all and many prayers > Uncle Rusty Limbs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2002 Report Share Posted August 7, 2002 Hooray for Uncle Rusty - Robbie will have more reason to jump - for joy! Val Rob's Mom (4,systemic) In a message dated Wed, 7 Aug 2002 8:56:36 AM Eastern Standard Time, dam755@... writes: > > > Hey Uncle Rusty got back his labs from last apt at rheumy from July and > he finaly has a sed rate in the 40's! > My sed has been like a roller coster anywhere from 65 to 100 plus. But > now it's 45! must be the mtx is working. > Good things are happenin! oh wait thats Good morning America theme! > Well any way, now if can find a bone doc to put this hip back in. > hugs to all and many prayers > Uncle Rusty Limbs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2002 Report Share Posted August 7, 2002 Congrats on the sed rate, ! That's a really good sign. Elisheva Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Well, it was really only one word this time Rusty, but I think it covered how I feel about your sed rate! Love, Ellie and Riley 4 poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 Hi , Yea!!!!!! I was so happy to read the news about your ESR. Let's hope that your score keeps going down ... and that your sense of well being keeps going up : ) I was absolutely shocked the first time Josh had a result in the 30's. For the longest time it never got lower than the 100's. So I can imagine your surprise : ) Once we switched to injectable MTX, lots of wonderful things started to happen. I'm glad the same seems to be true for you, too. Did the last orthopedic surgeon give you any good reasons about why they didn't want to do your hip? Are there some cases where it's not recommended for some reason? If it can be done, I know you'll keep pushing for this and eventually get the results you want. You know what they say about the rusty, squeaky, wheel getting oiled : ) Aloha, Georgina ----- Original Message ----- From: A Morse Hey Uncle Rusty got back his labs from last apt at rheumy from July andhe finaly has a sed rate in the 40's! My sed has been like a roller coster anywhere from 65 to 100 plus. Butnow it's 45! must be the mtx is working. Good things are happenin! oh wait thats Good morning America theme! Well any way, now if can find a bone doc to put this hip back in. hugs to all and many prayersUncle Rusty Limbs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 , it depends on your lab, but from the information I've read, 17 mm is usually in the normal range for a sed rate for a woman. Do they list the normal range? Yes, I believe you should try to make sense of your labs. Be sure to bring your results to your next appointment and ask questions of your physician. Here's an example of a site where they discuss the CBC and histogram interpretation: http://www.gomcl.com/hema/micro/ > > > Hi, > > I'm confused (not unusual)I've been trying to read my blood work. One > page says my SED rate is 17? Is there a site where it explains wbc > histograms? I went to the site that you gave for WBC but I'm > trying to understand it all, or should I? lol > > Peace > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Hi Gretchen, It is common to have elevated SED rate. It is NOT common not too! The onset of the elevation of the SED rate helps assist with diagnosis. Some children will elevate dramatically while others will elevate maybe 10-25 points. White Blood cells... MAY elevate but there are children who never elevate. Blood work is an indicator for periodic fever disorder however it is not the only factor. It is the complete clinical picture you present to the physician. God Bless Fran Fran A Bulone Mom to ph 6 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 I too have been told that my child's blood work was normal. No one ever told me specifics, and I never questioned them. Both the Ped. and ID said they did all the necessary blood work and I also had genetic tests done. I am very confused now because I have a diagnosis of and have a healthy child who gets fevers every 2- 3 weeks, but has normal blood results. What does this mean? Do I need to look into further testing? I have just tonight sat for hours scrutinizing the blood results which are so foreign to me (I really have no idea what they are saying). The Sed rate was (Westergren) and said 5 mm/hr on one blood draw and 1 mm/hr on another draw we had. Can any one tell me what this all means??? Or can any one tell me what I should be looking for or ask about??? Thank you, , very confused mother of ee 23 months old > > Hi Gretchen, > It is common to have elevated SED rate. It is NOT common not too! > The onset of the elevation of the SED rate helps assist with diagnosis. > > Some children will elevate dramatically while others will elevate maybe > 10-25 points. > > White Blood cells... MAY elevate but there are children who never elevate. > > Blood work is an indicator for periodic fever disorder however it is not the > only factor. It is the complete clinical picture you present to the > physician. > God Bless > Fran > Fran A Bulone > Mom to ph 6 yrs old > Waxhaw, NC > Owner & Moderator Group > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 Sed rate will fluctuate a few mm's even if you draw the blood within an hour. Not abnormal to see that. If it raises significantly... then there is usually an underlying cause. Kinda like taking a Blood pressure reading. May vary a few degrees. As for not haveing abnormal lab values, as I stated in a prior post yesterday, it is USUAL to see SED rates elevate with during an episode and elevates almost always in other fever disorders... HOWEVER in it is ONLY one part of a picture that MAY be present. The clinical features of Cyclic Fevers is the NUMBER one presentation along with a few other probable characteristics.... which may or MAY NOT present. If you have good doctors and they have tested your child for other disorders and ruled out the common ones that cause fevers like this.... don't worry yourself any more than you need too! God Bless Fran Fran A Bulone Mom to ph 6 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 With the sed rate rises with the onset of the fever. within 12 hrs of the fever at earliest. It reduces the same way. RAPIDLY. If you retest after the fever. by the second day it is down. Fran Fran A Bulone Mom to ph 7 yrs old Waxhaw, NC Owner & Moderator Group <> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Dear Fran, Thank you for the information. Carina has never been checked between episodes. We just met with Dr Sundel at Children's in Boston and he wants to check her sed rate and some other things between fevers. He's also suggested that if she fevers again, that we increase her dose of cimetidine. Her first fever while taking cimetidine was intense yet shorter, so he's hopeful it is helping her. Best wishes, Carmela mother of Carina 3 1/2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 > > With the sed rate rises with the onset of the fever. within 12 hrs of > the fever at earliest. It reduces the same way. RAPIDLY. If you retest > after the fever. by the second day it is down. > > Fran > > Fran A Bulone > Mom to ph 7 yrs old > Waxhaw, NC > > Owner & Moderator Group > <> > > Hi guys...real quick, I've gotta get these boys settled. But, in Nino's case, his SED rate is ALWAYS elevated. It does increse ALOT during flares. but ALWAYS stays very elevated-as well as HBG and HCG (red blood cells and lymphocytes). He is anemic and very low iron counts. In response to the MOM with GI issues...the GI issues are awful! Many kids with PFS experience/develop colitis-inflammation can and does set in anywhere. In Nino's case it's the opposite, he has horrible constipation, which is terribly worse with flares. Just my two cents.....can't wait to check in later. This is great. Hey Fran, I can/will answer your question abt diagnosis of FMF.....Nino is not diagnosed with FMF and has never been diagnosed !! It is highly suspected that he has FMF, due to our family ancestory, and symptoms....however he responded terribly to Colchicine. He actually had flares every 5-7 days while on it. He would just get out of a flare and go right back into one while on Colchicine. It was awful!! Anyway, Dr. Kastner is brillant!! We are so focused on treatment, that we really do not concern ourselves with what to call it. We KNOW it's an immuno-inflammatory disease....a PERIODIC FEVER SYNDROME...with a hyperactive immune system with inflammatory response. Bottom line-Nino's immune system doesn't " turn-off " The goal is to attack the TNF in order to settle the inflammation that is attacking his body. Enbrel worked for several months thn stopped working. Although his febrile seizures stopped during that time- could just have been age too....Infliximab has been helping him to have alot of good days, but in recent months, he's been having a rough time. So...now we are adding Methotrexate again and increasing our visits to the NIH to every 3 weeks. You just do what you have to do, right Fran??!!! Please, anyone who is reading this...just stay positive, even though sometimes it feels like you'll loose your mind! Keep INFORMED, but don't get caught up in every word, every drug, every diagnosis....just do the best you can.....Ok...enough of my little speech. Fran, you are awesome for running this site, thank you!!! I'll be back..... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Hi Lori I set up my carepages so please find me or invite me. I am glad you found us. Please keep in touch with me Sacora mom of Nicolas 12 > > > > With the sed rate rises with the onset of the fever. within > 12 hrs of > > the fever at earliest. It reduces the same way. RAPIDLY. If you > retest > > after the fever. by the second day it is down. > > > > Fran > > > > Fran A Bulone > > Mom to ph 7 yrs old > > Waxhaw, NC > > > > Owner & Moderator Group > > <> > > > > > Hi guys...real quick, I've gotta get these boys settled. But, in > Nino's case, his SED rate is ALWAYS elevated. It does increse ALOT > during flares. but ALWAYS stays very elevated-as well as HBG and HCG > (red blood cells and lymphocytes). He is anemic and very low iron > counts. In response to the MOM with GI issues...the GI issues are > awful! Many kids with PFS experience/develop colitis-inflammation can > and does set in anywhere. In Nino's case it's the opposite, he has > horrible constipation, which is terribly worse with flares. Just my > two cents.....can't wait to check in later. This is great. Hey Fran, > I can/will answer your question abt diagnosis of FMF.....Nino is not > diagnosed with FMF and has never been diagnosed !! It is highly > suspected that he has FMF, due to our family ancestory, and > symptoms....however he responded terribly to Colchicine. He actually > had flares every 5-7 days while on it. He would just get out of a > flare and go right back into one while on Colchicine. It was > awful!! Anyway, Dr. Kastner is brillant!! We are so focused on > treatment, that we really do not concern ourselves with what to call > it. We KNOW it's an immuno-inflammatory disease....a PERIODIC FEVER > SYNDROME...with a hyperactive immune system with inflammatory > response. Bottom line-Nino's immune system doesn't " turn-off " The > goal is to attack the TNF in order to settle the inflammation that is > attacking his body. Enbrel worked for several months thn stopped > working. Although his febrile seizures stopped during that time- > could just have been age too....Infliximab has been helping him to > have alot of good days, but in recent months, he's been having a > rough time. So...now we are adding Methotrexate again and increasing > our visits to the NIH to every 3 weeks. You just do what you have to > do, right Fran??!!! Please, anyone who is reading this...just stay > positive, even though sometimes it feels like you'll loose your > mind! Keep INFORMED, but don't get caught up in every word, every > drug, every diagnosis....just do the best you can.....Ok...enough of > my little speech. Fran, you are awesome for running this site, thank > you!!! I'll be back..... > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Mine has always been "elevated". I don't know how elevated it is, but it has always come back that way. Yet all the arthritis tests come back negative - go figure! Dominie Bush <dombush@...> wrote: Below is info about SED RATE sent in by a reader tonight. Does anyone have a high sed rate (determined by blood test)? Normally, people with fibro do not have high sed rates - and it is not considered an inflammatory disease. Interested in any comments. - Dom==========================================Sedimentation rate (sed rate) measures the speed at which red blood cells settle to the bottom of a test tube. The presence of certain abnormal proteins in the blood can cause red blood cells to stick together and sink to the bottom more quickly.Sed rate is a screening test for many different diseases. A high sed rate is not specific to any one disease. Possible causes include:* Infection* Inflammatory diseases, such as rheumatoid arthritis and lupus* Blood cancers, such as leukemia and lymphoma* Cancers that have spread (metastasized)An elevated sed rate may indicate an underlying problem. But further testing is needed to identify the cause of the problem.==========================================Also, I found this tonight:A SED rate is a blood test that shows if there is inflammation in the body, but it does not tell the physician where in the body the inflammation is located, making it impossible to diagnoses FM. While the SED rate test is helpful to show that a physiological problem is occurring, diagnosis of FM may be difficult. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Forgot to add, along those same lines, my doctor has always considered inflamation part of my fibro.Dominie Bush <dombush@...> wrote: Below is info about SED RATE sent in by a reader tonight. Does anyone have a high sed rate (determined by blood test)? Normally, people with fibro do not have high sed rates - and it is not considered an inflammatory disease. Interested in any comments. - Dom==========================================Sedimentation rate (sed rate) measures the speed at which red blood cells settle to the bottom of a test tube. The presence of certain abnormal proteins in the blood can cause red blood cells to stick together and sink to the bottom more quickly.Sed rate is a screening test for many different diseases. A high sed rate is not specific to any one disease. Possible causes include:* Infection* Inflammatory diseases, such as rheumatoid arthritis and lupus* Blood cancers, such as leukemia and lymphoma* Cancers that have spread (metastasized)An elevated sed rate may indicate an underlying problem. But further testing is needed to identify the cause of the problem.==========================================Also, I found this tonight:A SED rate is a blood test that shows if there is inflammation in the body, but it does not tell the physician where in the body the inflammation is located, making it impossible to diagnoses FM. While the SED rate test is helpful to show that a physiological problem is occurring, diagnosis of FM may be difficult. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 I've had a high Sed Rate for months and all the Dr. says to me is that "I'm must be fighting some sort of infection.". I had given up pushing the issue about it but maybe I should look into it more... Rae Ann In a message dated 2/19/2008 9:16:31 P.M. Eastern Standard Time, dombush@... writes: Below is info about SED RATE sent in by a reader tonight. Does anyone have a high sed rate (determined by blood test)? Normally, people with fibro do not have high sed rates - and it is not considered an inflammatory disease. Interested in any comments. - Dom==========================================Sedimentation rate (sed rate) measures the speed at which red blood cells settle to the bottom of a test tube. The presence of certain abnormal proteins in the blood can cause red blood cells to stick together and sink to the bottom more quickly.Sed rate is a screening test for many different diseases. A high sed rate is not specific to any one disease. Possible causes include:* Infection* Inflammatory diseases, such as rheumatoid arthritis and lupus* Blood cancers, such as leukemia and lymphoma* Cancers that have spread (metastasized)An elevated sed rate may indicate an underlying problem. But further testing is needed to identify the cause of the problem.==========================================Also, I found this tonight:A SED rate is a blood test that shows if there is inflammation in the body, but it does not tell the physician where in the body the inflammation is located, making it impossible to diagnoses FM. While the SED rate test is helpful to show that a physiological problem is occurring, diagnosis of FM may be difficult. Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 >Hi Rae Ann, My girlfriend went back and forth many times with her doctor trying to figure out if she had lupus or fibromyalgia. I think I just might seek a second opinion, seems like you might need some more testing done to see exactly why you have a high sed rate. Deb in Oregon > I've had a high Sed Rate for months and all the Dr. says to me is that " I'm > must be fighting some sort of infection. " . I had given up pushing the issue > about it but maybe I should look into it more... > > Rae Ann > > > In a message dated 2/19/2008 9:16:31 P.M. Eastern Standard Time, > dombush@... writes: > > > > > Below is info about SED RATE sent in by a reader tonight. Does anyone > have a high sed rate (determined by blood test)? Normally, people > with fibro do not have high sed rates - and it is not considered an > inflammatory disease. Interested in any comments. - Dom > ========================================== > > Sedimentation rate (sed rate) measures the speed at which red blood > cells settle to the bottom of a test tube. The presence of certain > abnormal proteins in the blood can cause red blood cells to stick > together and sink to the bottom more quickly. > > Sed rate is a screening test for many different diseases. A high sed > rate is not specific to any one disease. Possible causes include: > > * Infection > * Inflammatory diseases, such as rheumatoid arthritis and lupus > * Blood cancers, such as leukemia and lymphoma > * Cancers that have spread (metastasized) > > An elevated sed rate may indicate an underlying problem. But further > testing is needed to identify the cause of the problem. > > ========================================== > > Also, I found this tonight: > > A SED rate is a blood test that shows if there is inflammation in the > body, but it does not tell the physician where in the body the > inflammation is located, making it impossible to diagnoses FM. While > the SED rate test is helpful to show that a physiological problem is > occurring, diagnosis of FM may be difficult. > > > > > > > > **************Ideas to please picky eaters. Watch video on AOL Living. > (http://living.aol.com/video/how-to-please-your-picky-eater/rachel- campos-duffy/ > 2050827?NCID=aolcmp00300000002598) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 It is a non-specific indicator of inflammation and/or infection. My one son has had them up in the 50s before-they watch to be sure it comes down. If it is high, they may also do a CRP which looks at inflammation over a longer period. The CRP is to SED rate and the A1C is to blood glucose testing. I hope she feels better soon. Peace, Pattie Have courage for the great sorrows of life and patience for the small ones. And when you have finished your daily task, go to sleep in peace. God is awake. ~ Victor Hugo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 Valarie, Generally a sed rate is related to inflammation somewhere in the body. It can go along with infection or more commonly with Autoimmune such as RA, Lupus or whatever. 4 point high is not really too big of a concern. When my daughter was 7 and was running a fever for 1 wk out of the month for 18mo her sed rate was around 90 and they shipped us to Seattle to look for something serious. But fortunately she was fine. We later found out she had Pan sinusitis ( mold in our attic) as well as later still we found a duplicate renal system with 3 kidneys and 3 ureters. We have since found a bifurcated Uterus and a cardiac defect. Both things that developed at the same time prenatally with the kidney. ( her birth mother used drugs during her pregnancy.) (She is now 23 wks pregnant and having trouble with both issues). Sorry to go on and on. But sometimes it is just an indication that things are just not right in some area. BARBIE SED rate Hi guys, My daughter,10, CVID, this week had been complaining of serious abdominal pain for several days. No fever or anything else, but when it became too painful for her to walk, I took her to our family dr. We ran a urine sample at the office, and she said she had lots of leukocytes in the urine, which *might* be indicating a UTI, so she did start her on Bactrim just in case. She also ran several labs. That office just called and left the message that " her WBC was fine, but her SED rate is 5 pts higher than it should be, but its nonspecific, so we'll recheck as needed " . Im not entirely sure what this means? If this is high, would that be related to the stomach pains? Can anyone explain this to me? thanks, valarie mom to 3w/cvid __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 actually it's the other way around. CRP is the first indicator of inflammation. CRP's are being used more now with cardiac workups in ER's because they show the inflammation faster. A SED rate can tend to mean chronic inflammation but won't always go up at the first of that inflammation. An A1C is a 3 month indicator of what blood glucoses have run. A blood glucose is a first indicator of what is there. So. CRP is to SED as blood glucose is to A1C. Ursula - mom to (15) and Macey (12, CVID) http://www.primaryimmune.org http://www.jmfworld.org http://caringbridge.org/ga/macey/ s RE: SED rate It is a non-specific indicator of inflammation and/or infection. My one son has had them up in the 50s before-they watch to be sure it comes down. If it is high, they may also do a CRP which looks at inflammation over a longer period. The CRP is to SED rate and the A1C is to blood glucose testing. I hope she feels better soon. Peace, Pattie Have courage for the great sorrows of life and patience for the small ones. And when you have finished your daily task, go to sleep in peace. God is awake. ~ Victor Hugo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2009 Report Share Posted March 8, 2009 The copy of the lab results showed and so did web md Sent via BlackBerry by AT & T [ ] Sed rate According to this article on sed rate from Mayo Clinic, the normal range is 0-29 mm/hour for women. You stated that " ESR (sedimentation) test came back 28 when the normal range is 20 " . Were you told that by your doc, or did a copy of the lab results give 20 as the upper end of the reference range? Sed rate, or erythrocyte sedimentation rate (ESR), is a blood test that can reveal inflammatory activity in your body. http://www.mayoclinic.com/health/sed-rate/MY00343 It would not be surprising to have inflammation with liver disease. You do probably need to be taking an anti-inflammatory. Talk to your doc about trying budesonide instead of prednisone. Budesonide has fewer side effects and maybe it wouldn't wreak havoc with your blood sugar. I was unfamiliar with gastroparesis, so did a search. There are a number of good articles online for anyone interested. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2010 Report Share Posted August 4, 2010 After you started treatment for your RA, did your sed rate go down to normal? My husband has been treated for 2 years for his RA and his sed rate is still high. I was just curious. Thanks. Lynn in Louisiana, hubby with RA and pulmonary fibrosis caused by RA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2010 Report Share Posted August 4, 2010 Lynn, my rheumy doesn't measure my sed rate. He uses the C-reactive protein (CPR) test to monitor my progress. It stays in a normal range with Enbrel. Sue On Aug 4, 2010, at 8:40 AM, crj129 wrote: > After you started treatment for your RA, did your sed rate go down > to normal? My husband has been treated for 2 years for his RA and > his sed rate is still high. I was just curious. Thanks. > > Lynn in Louisiana, hubby with RA and pulmonary fibrosis caused by RA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2010 Report Share Posted August 4, 2010 Sue, His rheumy orders the sed rate and the CRP. We gets copies of all his lab results. His CRP is normal now with treatment but his sed rate is still real high. I wonder what the difference is. We go see the rheumy tomorrow and I am going to ask. Thanks for replying. Lynn in Louisiana, hubby with RA > > Lynn, my rheumy doesn't measure my sed rate. He uses the C-reactive > protein (CPR) test to monitor my progress. It stays in a normal range > with Enbrel. > > Sue Quote Link to comment Share on other sites More sharing options...
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