INFO - A protocol for weaning off prednisone

[Guest guest]

HealingYou.org

" Weaning off prednisone ... " :

http://www.healingyou.org/prednisone.html

Not an MD

[Guest guest]

Thanks for that! I bookmarked it. I'm on a MUCH higher dose than I'd like to be

and found that site interesting!!!

One thing... " If you find that you are fatigued a half hour or so after eating

any food, restrict that as well. Contrary to the popular myth that you need a

‘nap & ’ after a meal, food that causes you to need a ‘nap’ is food that

is taking energy away from you. It is not good for you, even if it is “good

for people.†Food that makes you tired is food you are allergic too. Food that

makes you feel ‘energized’ is food that is good for you. "

Not necessarily true. I need a nap EVERY time I eat. Fruit. Veggies. Soup.

ANYTHING! If your body is ill this happens. Good foods take LESS energy to

digest but it requires energy no matter what u put in your mouth!!

Candace

No shadows to depress you

Only joys to surround you

Many friends to love you

God himself to bless you

These are my wishes for you,

For today, tomorrow & everyday.

Sent from my iPhone

On Aug 4, 2010, at 8:53 PM, <Rheumatoid.Arthritis.Support@...>

wrote:

> HealingYou.org

>

> " Weaning off prednisone ... " :

>

> http://www.healingyou.org/prednisone.html

>

>

> Not an MD

>

[Guest guest]

Hi, Candace. Just to clarify: I'm not really endorsing that site or

everything that is being said on the page I linked to, but provided it

as an example of how to wean off prednisone. Such illustrations are

hard to come by.

Since you have a lupus diagnosis, please don't lower your dose or

discontinue your prednisone without discussing it with your

rheumatologist.

Not an MD

On Thu, Aug 5, 2010 at 2:51 AM, Candace Podratz

<candaceandbrock@...> wrote:

> Thanks for that! I bookmarked it. I'm on a MUCH higher dose than I'd like to

be and found that site interesting!!!

>

> One thing... " If you find that you are fatigued a half hour or so after eating

any food, restrict that as well. Contrary to the popular myth that you need a

‘nap & ’ after a meal, food that causes you to need a ‘nap’ is food that is taking

energy away from you. It is not good for you, even if it is “good for people.”

Food that makes you tired is food you are allergic too. Food that makes you feel

‘energized’ is food that is good for you. "

>

> Not necessarily true. I need a nap EVERY time I eat. Fruit. Veggies. Soup.

ANYTHING! If your body is ill this happens. Good foods take LESS energy to

digest but it requires energy no matter what u put in your mouth!!

>

> Candace

[Guest guest]

: )

I know, just sayin... If I avoided everything that made me tired I'd die of

starvation in a big hurry! Found that statement odd since I'd assume they wrote

it for people who are sick to very sick!!!!

I still haven't found a new rheumy. Missed my last apptmt that took 2 months to

schedule because my car broke down and I couldn't find a ride.

: (

That was the saddest day I've had since I can't remember when.

My regular Dr said I could lower my dose (by HALF!) every week until my joints

swell back up then stop. That'd be a 20mg jump! Needless to say I tried it and

it was a no go!!!!!

Reading that article made me a lil annoyed that he didn't give me more detail on

possible effects of doing so. Maybe he's not very familiar with Prednisone.

Candace

No shadows to depress you

Only joys to surround you

Many friends to love you

God himself to bless you

These are my wishes for you,

For today, tomorrow & everyday.

Sent from my iPhone

On Aug 5, 2010, at 7:05 AM, <Rheumatoid.Arthritis.Support@...>

wrote:

> Hi, Candace. Just to clarify: I'm not really endorsing that site or

> everything that is being said on the page I linked to, but provided it

> as an example of how to wean off prednisone. Such illustrations are

> hard to come by.

>

> Since you have a lupus diagnosis, please don't lower your dose or

> discontinue your prednisone without discussing it with your

> rheumatologist.

>

>

>

> Not an MD

>

>

[Guest guest]

I hope you find a new rheumatologist soon, Candace.

It does seem to be the case that many rheumatologists and physicians

are very good at prescribing prednisone, but not very skilled at

helping their patients taper off prednisone.

Not an MD

On Thu, Aug 5, 2010 at 7:34 AM, Candace Podratz

<candaceandbrock@...> wrote:

> : )

> I know, just sayin... If I avoided everything that made me tired I'd die of

starvation in a big hurry! Found that statement odd since I'd assume they wrote

it for people who are sick to very sick!!!!

>

> I still haven't found a new rheumy. Missed my last apptmt that took 2 months

to schedule because my car broke down and I couldn't find a ride.

> : (

> That was the saddest day I've had since I can't remember when.

>

> My regular Dr said I could lower my dose (by HALF!) every week until my joints

swell back up then stop. That'd be a 20mg jump! Needless to say I tried it and

it was a no go!!!!!

>

> Reading that article made me a lil annoyed that he didn't give me more detail

on possible effects of doing so. Maybe he's not very familiar with Prednisone.

>

> Candace

[Guest guest]

When I made the leap in cutting my dosage my joints went nuts and the biggest

annoyance-- my lungs started filling back up with fluid.

Those were the two side effects I blamed on the steroids...

I also had a fever, felt really sick to my stomach, and my joints hurt real bad.

I blamed the lupus for that but after reading it was probably the jump in

dosage.

Grrrrr thanks for tryin to kill me Dr!!!

Candace

No shadows to depress you

Only joys to surround you

Many friends to love you

God himself to bless you

These are my wishes for you,

For today, tomorrow & everyday.

Sent from my iPhone

On Aug 5, 2010, at 8:47 AM, <Rheumatoid.Arthritis.Support@...>

wrote:

> I hope you find a new rheumatologist soon, Candace.

>

> It does seem to be the case that many rheumatologists and physicians

> are very good at prescribing prednisone, but not very skilled at

> helping their patients taper off prednisone.

>

>

> Not an MD

>

>

>

>

>

[Guest guest]

This is another reason we have to be proactive. Doctors can really cause

troubles for us simply by making a small statement, right or wrong, but I

don't know how to fix it. We just have to be careful. Just remember to not

do that again! lol

Dennis in eastexas

On Thu, Aug 5, 2010 at 2:33 PM, Candace Podratz

<candaceandbrock@...>wrote:

>

>

> When I made the leap in cutting my dosage my joints went nuts and the

> biggest annoyance-- my lungs started filling back up with fluid.

> Those were the two side effects I blamed on the steroids...

>

> I also had a fever, felt really sick to my stomach, and my joints hurt real

> bad. I blamed the lupus for that but after reading it was probably the jump

> in dosage.

>

> Grrrrr thanks for tryin to kill me Dr!!!

>

> Candace

>

> No shadows to depress you

> Only joys to surround you

> Many friends to love you

> God himself to bless you

> These are my wishes for you,

> For today, tomorrow & everyday.

>

> Sent from my iPhone

>

> On Aug 5, 2010, at 8:47 AM, <

>

Rheumatoid.Arthritis.Support@...<Rheumatoid.Arthritis.Support%40gmail.com>\

>

> wrote:

>

> > I hope you find a new rheumatologist soon, Candace.

> >

> > It does seem to be the case that many rheumatologists and physicians

> > are very good at prescribing prednisone, but not very skilled at

> > helping their patients taper off prednisone.

> >

> >

> > Not an MD

>