er visit

[Guest guest]

HI ,

Sorry to say, the thyroid thing sounds all too familiar. My I humbly suggest

that you see a top endocrine specialist, not your gp. Those of us with

mycoplasma have major endocrine problems, or at least a third of us do. It can

be very tricky to treat and mistreated it will make you really sick! I have

autoimmune thyroid disease which really went whacko when I got Chronic Fatigue

Syndrome on top of it. I now also have pituitary damage from the mycoplasma,

but was fortunate to have a really good endocrinologist who tested for it and

put me on shots of human growth hormone. You will not get this kind of care

from a GP even though he may be a wonderful doctor. This is a VERY specialized

and complex area.

Best wishes to you,

a Carnes

rheumatic ER visit

Well i was in the ER tonight for high blood pressure & a rapid heart rate

(165) which eventually came down,they took an ekg & it was fine just a fast

heart rate,which is something new,they drew blood & it came back as my white

blood cell count was high & overactive thyroid,also had a low grade temp. He

reccommended me to see my GP about doing a thyroid panel, i think thats

right,anyhow does any of this sound familiar? i guess i'll give an update as

soon as i hear more. Also instead of thanking everyone individually i'll get it

done at once,thanks for all the replies i got to my problem,i've read several

great suggestions & different types treatments,i guess i'll be making another

appt with my rheumatologist to see what he thinks,if all else fails i'll goto

birmingham al, once again thanks

[Guest guest]

Tests for adrenals to diagnose 's Disease:

History of symptoms, darker skin than normal, blood pressure falls esp upon

standing or when standing, lightheadedness, dizziness, crave salty foods, weak

muscles that sometimes spasm, nausea, vomiting, diarrhea, emotional changes.

Blood tests: elevated potassium level, lower sodium level, shift in ratio of

certain white blood cells,

Definitive tests: amount of cortisol and aldosterone in the blood and urine

Tests for thyroid:

TSH

T4

free T3

The free T3 level is the important missing test for those with fibromyalgia.

Often the thyroid is making enough T4 but for some reason the body is then not

changing enough of that to useable T3. The test must be FREE T3 not total T3.

Pituitary:

This test is for human growth hormone and must be done as a blood test after you

exercise briskly for 30 minutes.

I am sorry I don't know how you will find an endocrinologist who really knows

his/her stuff. I have learned all this from my doctor here who is wonderful.

But even he says, " Oh, don't ask me about your Chronic Fatigue Syndrome. I know

nothing about that! "

Hope this helps.

a Carnes

rheumatic ER visit

Well i was in the ER tonight for high blood pressure & a rapid heart rate

(165) which eventually came down,they took an ekg & it was fine just a fast

heart rate,which is something new,they drew blood & it came back as my white

blood cell count was high & overactive thyroid,also had a low grade temp. He

reccommended me to see my GP about doing a thyroid panel, i think thats

right,anyhow does any of this sound familiar? i guess i'll give an update as

soon as i hear more. Also instead of thanking everyone individually i'll get it

done at once,thanks for all the replies i got to my problem,i've read several

great suggestions & different types treatments,i guess i'll be making another

appt with my rheumatologist to see what he thinks,if all else fails i'll goto

birmingham al, once again thanks

[Guest guest]

Aw poor baby. I will be praying extra hard for her.

Lots of Love

[Guest guest]

I was so glad not to be woken up at 6:30 for my daily blood draw, EKG and

breathing treatment.. I finally got to sleep in.

[Guest guest]

Alia,

Poor Caroline she has been through so much lately.

Many hugs and prayers that she starts feeling better soon.

Have you called her rheumy yet?Cincy wants 48 hours fever free or if no

fever 48 hours on the antibiotic before giving Enbrel.Dehydration can also

cause the MTX to become more toxic so I would ask about that also.I would also

ask if it's ok to give the Enbrel and MTX at the same time.Cincy wanted us to

spread the 2 apart atleast a day in case of any side effects.Not a lecture

just some questions to think about.

Lots of love and gentel hugs to Miss C.

Becki and 6systemic

[Guest guest]

Alia...just sending soft hugs and prayers for your precious angel Caroline!

Donna

[Guest guest]

Poor baby! I am hoping she is feeling better soon. Michele ( 17,

pauci & spondy)

ER Visit

Hey everyone.... We took Caroline into the ER last night with a 104.5

degree temperature. She also was vomiting for 3 hours prior to that and

continued to vomit once more once we got to the ER. They hooked her up

to an IV, gave her some drugs, (anti nausea and antibiotic) and then

sent us home at 6:00am this morning since she wasn't vomiting anymore.

They told us if she starts vomiting again we have to bring her back in

and have her admitted.

Please pray for little Caroline. She's had a rough road lately and could

really use some good news!

Alia and Caroline, age 2, poly and uveitis

[Guest guest]

Thanks . I am glad to hear that you are home. What a nice relief that

is. Home is always so much better than the hospital!

Alia and Caroline, age 2, poly and uveitis

Re: ER Visit

Aw poor baby. I will be praying extra hard for her.

Lots of Love

[Guest guest]

Thanks !

Alia

ER Visit

Hey everyone.... We took Caroline into the ER last night with a 104.5

degree temperature. She also was vomiting for 3 hours prior to that and

continued to vomit once more once we got to the ER. They hooked her up

to an IV, gave her some drugs, (anti nausea and antibiotic) and then

sent us home at 6:00am this morning since she wasn't vomiting anymore.

They told us if she starts vomiting again we have to bring her back in

and have her admitted.

Please pray for little Caroline. She's had a rough road lately and could

really use some good news!

Alia and Caroline, age 2, poly and uveitis

[Guest guest]

Alia, you and Caroline are in my thoughts and prayers. I hope she is feeling

better soon. Hang in there.

xoxo,

Ellie and Riley 7 tomorrow, poly

[Guest guest]

Thanks Becki. Don't worry. I don't feel like you are lecturing me! I rely on

you guys. We see Dr. Akin on Monday so I am going to grill her then. I just

spoke to her nurse and she said to call the on call rheumy the day we are

giving the shot (Saturday) to check if it's ok. She told us Dr. Vehe is on

call Saturday. We spoke to him last night and he seemed unconcerned about

her so I am kind of dreading calling him Saturday. I hope it ok.

Thanks for you prayers and advice!

Alia and Caroline, age 2, poly and uveitis

Re: ER Visit

Alia,

Poor Caroline she has been through so much lately.

Many hugs and prayers that she starts feeling better soon.

Have you called her rheumy yet?Cincy wants 48 hours fever free or if

no

fever 48 hours on the antibiotic before giving Enbrel.Dehydration can also

cause the MTX to become more toxic so I would ask about that also.I would

also

ask if it's ok to give the Enbrel and MTX at the same time.Cincy wanted us

to

spread the 2 apart atleast a day in case of any side effects.Not a lecture

just some questions to think about.

Lots of love and gentel hugs to Miss C.

Becki and 6systemic

[Guest guest]

Alia-

and I will keep Caroline in our thoughts and prayers. Hopefully the

girls will play together at next years conference since they are the same age.

Tara and 2 (poly)

ER Visit

Hey everyone.... We took Caroline into the ER last night with a 104.5 degree

temperature. She also was vomiting for 3 hours prior to that and continued

to vomit once more once we got to the ER. They hooked her up to an IV, gave

her some drugs, (anti nausea and antibiotic) and then sent us home at 6:00am

this morning since she wasn't vomiting anymore. They told us if she starts

vomiting again we have to bring her back in and have her admitted.

Please pray for little Caroline. She's had a rough road lately and could

really use some good news!

Alia and Caroline, age 2, poly and uveitis

[Guest guest]

Thanks Tara. Me too. I bet the girls will have lots of fun together!

Alia and Caroline, age 2, poly and uveitis

Re: ER Visit

Alia-

and I will keep Caroline in our thoughts and prayers. Hopefully

the girls will play together at next years conference since they are the

same age.

Tara and 2 (poly)

ER Visit

Hey everyone.... We took Caroline into the ER last night with a 104.5

degree

temperature. She also was vomiting for 3 hours prior to that and continued

to vomit once more once we got to the ER. They hooked her up to an IV,

gave

her some drugs, (anti nausea and antibiotic) and then sent us home at

6:00am

this morning since she wasn't vomiting anymore. They told us if she starts

vomiting again we have to bring her back in and have her admitted.

Please pray for little Caroline. She's had a rough road lately and could

really use some good news!

Alia and Caroline, age 2, poly and uveitis

[Guest guest]

Thanks so much! We both appreciate it!

Alia and Caroline, age 2, poly and uveitis

Re: ER Visit

Alia, you and Caroline are in my thoughts and prayers. I hope she is

feeling

better soon. Hang in there.

xoxo,

Ellie and Riley 7 tomorrow, poly

[Guest guest]

Hi Alia:

Sorry to hear of Caroline's ER visit and feeling so bad:( Poor little baby.

How is Miss Caroline doing now?

Take care.

Patty

[Guest guest]

hi dennis,

oh, that blood sugar going so low is very dangerous.... hope betty is better by

now. any time she acts confused, it can be too high, or too low.

i want to tell you my story about my diabetis. i was a diabetic for many yrs, on

insulin. when first diagnosed , blood sugar was in the 400's.... had a long

time getting it under control. finally did, then insulin shots every day. this

went on for yrs. my last husband , who is deceased now, was bed ridden. i

tended to him for three yrs. , feeding , bathing, every thing for him, as i

watched him slowly die. every night i prayed for god to give me the strength to

do this, as it was hard on my own. during all this, i had run out of the insulin

i had, and didn't get to the dr. to get some for a few days. when i did get

there, she put me on a different kind.....well, it made me real sick...she

decided to try me on nothing, as i seemed to be doing alright. i was scared,

....to be without anything.... i went back to her, my blood sugar was still

normal. she couldn't believe it....a diabetic just doesn't get well over night.

this was supposed to be with me all my life....dennis, that was 15 yrs. ago, i

am still not taking anything. when the dr. asks me about it, i tell them all,

very boldly, that god took it away from me.they all look at me strangely....

but, i know he did. i didn't ask him to, all i asked for was strength to do

what i had to do.god, in his wonderfull wisdom, knew i couldn't do it with the

diabetis.... i praise him, and thank him every day.

just keep on having faith, and god will see you thru anything.

i do pray for you and betty, and for all the ones on here.

BETTY

PRAY FOR OUR TROOPS

MAY NO SOLDIER GO UNLOVED, MAY NO SOLDIER WALK ALONE, MAY NO SOLDIER BE

FORGOTTEN, UNTIL THEY ALL COME HOME.

SOLDIER'S ANGELS

[Guest guest]

, 88 and 100 are very good numbers! I'm diabetic and am

thrilled when my numbers are that low 2-3 hours after a meal. Anything

below 70 is considered a low. Of course eating will cause your numbers

to rise, but you want them to come back down in a couple of hours.

Sue

On Apr 3, 2009, at 12:27 PM, Massey wrote:

> I understand completely, because some times my numbers jump. Today

> I've tested twice on my own. The first time was 100 and the second

> time was 88. So I am getting ready to go find something to eat to

> try to bring it up a bit.

> I'm what they call borderline diabetic and use diet to adjust my

> levels.

[Guest guest]

That is very scary, Dennis. I hardly ever have a low, but I don't like

the way I feel when I do. Mine has never been lower than somewhere in

the 50's. Recently, when I did a routine test three hours after a

meal, I was at 59. I had not had any symptoms of a low. I think the

higher your normal readings are, the higher you have symptoms of a

low, if that makes any sense. But if your body is used to readings in

the 200's, then a reading of 90 could feel low.

I hope Betty doesn't have to go through that again.

Sue

On Apr 3, 2009, at 11:38 AM, Dennis W wrote:

> A couple of months ago, my wife, Betty, was sitting in her chair and

> seeming

> to be out of it. What I first noticed was the glass of tea I got for

> her a

> few minutes before. She was having trouble putting it on her

> coaster. Our

> daughter, Liz, came over and we checked her blood sugar. She is

> diabetic,

> BTW, and it checked very high. By that time, the ambulance had

> arrived and

> they checked her sugar a few times. The magic number was 70, a

> little low

> but no reason for concern, or so the medics decided. I told them to

> take her

> to the hospital anyhow. By the time I arrived at the ER, she was

> sitting up

> and talking. During transport, about 40 minutes, her sugar went to

> 20! She

> had been almost comatose.That was scary for both of us. Anyhow, the

> moral of

> that story is, Don't just accept the numbers, they could be deceptive!

[Guest guest]

>

> I understand completely, because some times my numbers jump. Today I've

tested twice on my own. The first time was 100 and the second time was 88. So

I am getting ready to go find something to eat to try to bring it up a bit.

> I'm what they call borderline diabetic and use diet to adjust my levels.

>

>

I dropped down from 4mg to 3mg of prednisone on Wednesday, and today I'm feeling

it in my blood sugar. I'm a Type II diabetic, but have been insulin dependent

since I started on the pred. I was on the border for it anyway, and that put me

over.

I have to watch that I don't use too much insulin, or I go low. It's not a nice

feeling. Fortunately, my kids know what to look for. It's not fun when they're

at school though.

Tomorrow I'm going to monitor all day, and see how it is.

Then there's my muscle pain, which is not liking the drop in pred either

Leanne

PS I took my puppy for a bit of a walk on the beach today, and it was

wonderful! The sun warmed my bones, and I could actually get over some of the

logs. Going to have to do that every day

[Guest guest]

My son, now 30, got encephalitis in 1981 following the DPT vaccine.(age 13 months) He has autism. Although they are claiming the newer DPT is more pure than the earlier versian, I personally would never even consider getting it. My mother in the early 1940's actually did get the whooping cough. Many of that generation did. All she remembers is that she would have to carry a container around in case she got these 'coughing episodes'. Whooping cough can be difficult on people with compromised immune systems. Infants, especially if not breast fed or low immunity can get very ill and may even die. This is rare compared to the children who are made ill from any immunization.

Debbie

PS Later when questioned at hospitals or dr offices, I always said my children are 'up to date with their shots', Otherwise I would have heard a lecture. When registering for school, I would write on form that "I object to further immunizations based on a moral conviction , similar to a religious held belief ".Having had a history of adverse reactions to immunizations. Physicians cannot guarantee that no further reactions would occur . Therefore, we are opting out of immunizations in the future. My children are grown now and received no further vaccines after their brother's reaction in 1981.

Occasionally when a suspected 'outbreak" of a childhood illness ,I would get courtesy calls from local health dept letting me know that if I choose, I can keep my child home.This was for the safety of my child since he/she was not immunized. Not vise versa, It's funny how people think you are placing other children at risk if you choose not to have your child immunized.

ER visit

I had my 18 month old in the ER last week for an injured arm. He's ok. We just need the doc to put it back in place. I haven't had my kids in to see any dr. for quite a while.

The inevidable vaccine question came up and I said that we don't do vaccines. The PA didn't say too much about the regular vaccines but went on and on about the whooping cough. I just sat there and let her talk.

I was wondering peoples thoughts on the whooping cough and the vaccine. "They" say whooping cough is coming back hard.

How do I deal with the drs. who hassle me about vaccines? I have been avoiding going to doctors, but in this case, I had too. My mom says I should have said we were current on vaccines. As far as I am concerned, we are as current as we are going to get.

Pederson

712-540-9154

www.myubam.com/V2941

Fun, educational books for kids of all ages!

[Guest guest]

My son, now 30, got encephalitis in 1981 following the DPT vaccine.(age 13 months) He has autism. Although they are claiming the newer DPT is more pure than the earlier versian, I personally would never even consider getting it. My mother in the early 1940's actually did get the whooping cough. Many of that generation did. All she remembers is that she would have to carry a container around in case she got these 'coughing episodes'. Whooping cough can be difficult on people with compromised immune systems. Infants, especially if not breast fed or low immunity can get very ill and may even die. This is rare compared to the children who are made ill from any immunization.

Debbie

PS Later when questioned at hospitals or dr offices, I always said my children are 'up to date with their shots', Otherwise I would have heard a lecture. When registering for school, I would write on form that "I object to further immunizations based on a moral conviction , similar to a religious held belief ".Having had a history of adverse reactions to immunizations. Physicians cannot guarantee that no further reactions would occur . Therefore, we are opting out of immunizations in the future. My children are grown now and received no further vaccines after their brother's reaction in 1981.

Occasionally when a suspected 'outbreak" of a childhood illness ,I would get courtesy calls from local health dept letting me know that if I choose, I can keep my child home.This was for the safety of my child since he/she was not immunized. Not vise versa, It's funny how people think you are placing other children at risk if you choose not to have your child immunized.

ER visit

I had my 18 month old in the ER last week for an injured arm. He's ok. We just need the doc to put it back in place. I haven't had my kids in to see any dr. for quite a while.

The inevidable vaccine question came up and I said that we don't do vaccines. The PA didn't say too much about the regular vaccines but went on and on about the whooping cough. I just sat there and let her talk.

I was wondering peoples thoughts on the whooping cough and the vaccine. "They" say whooping cough is coming back hard.

How do I deal with the drs. who hassle me about vaccines? I have been avoiding going to doctors, but in this case, I had too. My mom says I should have said we were current on vaccines. As far as I am concerned, we are as current as we are going to get.

Pederson

712-540-9154

www.myubam.com/V2941

Fun, educational books for kids of all ages!