B12 injections

[Guest guest]

This is the site you want - lots of info and videos to watch too - be sure

to watch Caitlin

_www.drneubrander.com_ (http://www.drneubrander.com)

HTH

Mandi in UK

Our DAN dr. wants to put our son on vitamin b12 injection once daily.

I cannot find a lot of info on the websites about this treatment--

anyone know anything?? Thank you, Angie(mom of Lukie, 2 years old, ASD)

[Guest guest]

I spoke on the phone with Dr. Neubrander, as he is the pioneer of

this. He is very specific in his protocol, that it be a thick, syrupy

mixture, injected in the buttocks, and no other changes be made in the

treatment program when starting. Here's his website if you want to

read more. I never tried it with Allie per his protocol, can't find a

dr in my area.

http://www.drneubrander.com/page1.html

HTH,

Debi

>

> Our DAN dr. wants to put our son on vitamin b12 injection once daily.

> I cannot find a lot of info on the websites about this treatment--

> anyone know anything?? Thank you, Angie(mom of Lukie, 2 years old, ASD)

[Guest guest]

> > Our DAN dr. wants to put our son on vitamin b12 injection once daily.

> > I cannot find a lot of info on the websites about this treatment--

> > anyone know anything?? Thank you, Angie(mom of Lukie, 2 years old, ASD)

Accurate information:

1. This does in fact help a fair number of children A LOT. The DAN!

doctors and " usual suspects " report on this accurately.

2. Some children do not respond at all, this is unusual, and left out

of the DAN! movement sales and marketing hype.

3. Also left out, and a lot more important, is that a significant

number of children experience anger, aggression, agitation and a

complete lack of motivation as a result of this and the reaction can

last for many months.

4. There is no real reason to believe that the exact protocol need be

as rigid as Dr. Neubrander suggests, however if your child is in group

1 or 2 there is also no risk or problem with doing it this way.

Thus my suggestion:

Get some M-b12 sublingual lozenges in the highest dose you can find. 1

mg is easy to find, there are some 3's and 5's arouind (remmeber 1000

mcg = 1 mg). Try one on the kid, then 2, then 3, etc. Watch for angry

agitated aggression, and if you see it, STOP IMMEDIATELY. This is

especially important if they are large and strong enough to present any

real risk to themlselves or others.

If you get up to very high doses of oral B-12, like 50-100 mg a day,

and you are seeing improvement that keep getting better as you up the

dose, and not problems, then start using injections. And keep watching

for the anger/aggression/agitation problem. If you don't nip that in

the bud it can go on for months on end.

The B-12 treatment is especially worth trying in any child with actual

signs of B-12 defiency, such as a smooth red tip of the tongue,

peripheral neuropathy (which means poor or odd sensations in the hands

and feet, but then they don't know to tell you about it since that is

how they always felt), or other signs such as these below.

Vision problems

Insomnia

Slow thinking

Abnormal smell or taste

Impaired touch or pain perception

Paresthesias

Red smooth tip of the tongue

Weakness

Fatigue

Abnormal gait

Bed wetting, pants wetting

Spasticity (parietal)

Memory loss

Disorientation

Confusion

Depression

Panic attacks

If they have one or two of these, it doens't matter. If they have half

of them, trying some B-12 is a really good idea.

Some kids need the shots, some don't. I think people (both doctors and

parents) get too involved in wanting to use needles because it is so

high tech and medical. The B-12 works just fine no matter how it gets

into the kid's system.

Note that a blood count may show elevated MCV and MCH in B-12

deficiency, but also may be perfectly normal in the face of severe

enough B-12 deficiency to be causing brain damage - this is pointed out

in most modern neurology books though apparently these are not read by

modern neurologists.

Andy . . . . . . . . . . . . . .

[Guest guest]

> 3. Also left out, and a lot more important, is that a significant

> number of children experience anger, aggression, agitation and a

> complete lack of motivation as a result of this and the reaction can

> last for many months.

My #3 had these symptoms when I gave oral B12 without folic acid. I

stopped the B12 until the problem went away [about 3 days]. Reducing

the B12 and adding folic acid worked for him.

Dana

[Guest guest]

We are going to do the B12. Is this a bad idea:?

Laurelee (Lee)

danasview <danasview@...> wrote:

> 3. Also left out, and a lot more important, is that a significant

> number of children experience anger, aggression, agitation and a

> complete lack of motivation as a result of this and the reaction can

> last for many months.

My #3 had these symptoms when I gave oral B12 without folic acid. I

stopped the B12 until the problem went away [about 3 days]. Reducing

the B12 and adding folic acid worked for him.

Dana

=======================================================

[Guest guest]

I recently talked on the phone with Dr. Neubrander..by a fluke.

Anyhow..it is another story.

But we have been doing MB-12 shots for 8 months, injecting it into his

upper leg...and hadn't seen much progress or much of anything.

Talking to Dr. Neubrander..he said that 94% of his patients respond to

the shots. 94% is a pretty big number. Also, yes the specific way

the shot is done makes a HUGE difference. We started doing it, the

way he said to in his protocal, upper/outer quadrent of butt cheek,

the shot at a 10 degree angle.. We have been doing it the CORRECT way

for about 3 weeks now. And the first thing we started to see, about a

week into it, was more toe walking, and he was pressing his face upto

the screen of the tv...he also hit his sister when she took his sock.

I asked Dr. Neubrander about these behaviors I saw, and he called them

positive/negative reactions. The fact was, that he was having a

response to the shots...although initially seems negative, it means he

is a responder. He also said that the negative behaviors, which can

also include hyperactivity, sleep disturbances etc, should only last

2-6 months (only...hahah) Anyhow..even though we has seen some

negatives, he has also started to interact with kids at school more

and verbalize more at home and school. This is doing the b-12 for 8

months prior, and now, just switching to his protocol, has made a huge

difference.

So the diffference of where and how you do it ...DOES make a

difference.. And negative resonses does NOT mean stop...it means that

it is a good thing, and that your child is one of the responders..

--Kristal in Iowa

[Guest guest]

> > 3. Also left out, and a lot more important, is that a significant

> > number of children experience anger, aggression, agitation and a

> > complete lack of motivation as a result of this and the reaction can

> > last for many months.

>

>

> My #3 had these symptoms when I gave oral B12 without folic acid. I

> stopped the B12 until the problem went away [about 3 days]. Reducing

> the B12 and adding folic acid worked for him.

>

> Dana

And my son reacted that way with oral B12 and several brands of folic

acid, but not with B 12 and folinic acid.

Nell

[Guest guest]

> We are going to do the B12. Is this a bad idea:?

> Laurelee (Lee)

B12 can be very helpful for certain children, so it is definitely

worth considering/trying. But I would give it with folic acid, not by

itself.

Dana

[Guest guest]

darcietwo wrote:

>

>

>

> Anyone else out there get B12? I have been doing so weekly for over

> 20yrs & I think this has been important to keep my ms in remission.

I'm on weekly B12 injections too. But in my case it is related to Crohn's

disease. Surgery removed my terminal ileum, where B12 is absorbed, so the only

way I can get B12 now is by injection.

Tom

[Guest guest]

B-12 can be absorbed sublingually if you don't like injections. I prefer methylcobalamin from Jarrow, but some use hydroxycobalamin. I would avoid cyanocobalamin, since it can have some degradation into cyanide.best, P.B

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[Guest guest]

Hi darcietwo and Tom,

I have Crohns. I use LDN. But I have, long before I got my diagnose in June this year

really suffered because of tiredness. I need a nap every day, there are just a few days

I can make it without. It didn't get better when I started using LDN in september.

Could you please tell me what criteria the doctor use to decide that the B 12 is low,

bloodtests, yes, but the results has to be lower than what ???...

I believe that even if your over a certain level the B 12 may be low. What is your

opinion?

Thanks in advance Ingrid

Re: [low dose naltrexone] B12 injectionsdarcietwo wrote:> > > > Anyone else out there get B12? I have been doing so weekly for over> 20yrs & I think this has been important to keep my ms in remission.I'm on weekly B12 injections too. But in my case it is related to Crohn's disease. Surgery removed my terminal ileum, where B12 is absorbed, so the only way I can get B12 now is by injection.Tom

[Guest guest]

The initial test result of serum cobalamin should be between 200-900 pg/ml. Serum level of < 350 pg/ml calls for a follow up test of serum methylmalonic acid (normal, 70-270 nM)---elevated in cobalamin defieciency; and also homocysteine (normal 5-16 micromoles---elevated in cobalamin and folate deficiency. The goal with replacement should be to keep level in mid to high normal range IMO.P.B.

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[Guest guest]

B 12 injections were for those missing what is called the 'intrinsic factor " a

protien in our digestive system that allows us to absorb B12 from meat and other

sources.  If you are a vegetarian you may be lacking in B12 but oral supplements

should work.  I would ask you physician about the entire complement of vitamin

Bs versus just one of them.  All of us react differently to supplements but you

pretty much can't over abosrb the B vitamins as they are water soluble and any

that is not absorbed is generall flushed down the toilet literaly.  Your body

will only take in so much. 

Hope your fatigue eases up.  I get that to and what is weird is that I started a

strict weight loss diet which is fairly decent on the veggies and fruits but has

a pretty high protein impact.  When I have felt fatiqued Iwas told to add a

straight protein like low sodium sliced turkey meat (bang for your calories) and

it really did work.  Just a thought.

Dale Ellen

[Guest guest]

Hi, .

Hydroxocobalamin is the correct spelling. The other is a misspelling.

Rich

>

> Hi All, what is the difference between hydroxocobalamin and hydroxycobalamin?

I thought my shots were hydroxy, but pharmacist gave me a price on hydroxo.

Want to do b12 with a bit of folic acid.

>

> Thanks,

>

>

>