Hi New to group

[Guest guest]

Dear Louise,

Sorry to hear that your family is afflicted with these insiduous diseases,

but, since this seems to be the case - welcome to . It's a GREAT

place to be! VBG! I cannot tell you how much I've learned here & how much

support we've gotten in every way imaginable!

I'm not a doc or nurse, but have you been tested for co-infections (babesia &

ehrylichia)? Night sweats, fevers / chills sound like babesia, from our

experiences... (Igenex.com is a great lab & will answer emails & has 800

phone number...)

Welcome again - you're sure in the right place to find support!

Blessings,

Chris

[Guest guest]

Thanks for your welcome, and to answer your question as to whether I

have been tested for other tick dieases, So far I have not even been

tested for Lyme, as I explained I came looking for info for husband

and found much more then I wanted too my main concern is him right

now and my kids, I do have an app with my family Dr next week I know

they are going to think I am just being parnoid!! but going any way,

sometimes I even wonder if that is all it is

Louise

[Guest guest]

<< I do have an app with my family Dr next week I know

they are going to think I am just being parnoid!! but going any way,

sometimes I even wonder if that is all it is >>>

Louise,

you know your husband, and you know your kids, better than any doctor

could. Don't second guess yourself before you even get into the doctors

office. But you should know that many run of the mill family practitioners

are not going to be familiar with the concept of chronic lyme disease. just

like so many others, they've been trained to simply do a couple tests and

move on if/when they come out negative. But you should know that if your MD

is even willing to do the lyme testing, it's only 68% accurate - and that's

only if it gets sent to a really good lab expereinced in identifying lyme.

LYme disease is based on clinical presenation, and your doc may not know

what that presenation really means. Many people with lyme often get

diagnosed with other diseases that have similar presenations to lyme -

chronic fatigue syndrome, multiple sclerosis, fibromyalgia, etc. The best

thing you can do for you and your family is to do some research about this

disease BEFORE you see your doc, so that YOU are armed with the info you

need, so that you can discuss this with your doc and mabye get a referral

to an LLMD (lyme-literate doc) who has more experience in treating chronic

lyme. Good luck with all of this, and trust yourself.

best wishes,

beth

[Guest guest]

Kate, I had/have same problem.weight gain well i since lost some pounds.

Kate <dharma1968@...> wrote:Hi I'm new to the group and have been having

trouble with my energy

level - I have none! I put on 60 pounds when my thyroid started

messing up and then I lost 45% of my muscle mass - the doctor said I

could build it back if I exercise - but I have no energy to really

keep it up - has anyone had this problem or similar -- and does any

take anything to help increase their energy - my doc tried me on

provigil - it helped for a couple months and now even at increased

doses does nothing for me. Thanks

[Guest guest]

you just need proper thyroid treatment. Hard to find!

http://www.geocities.com/thyroide

Gracia

> Hi I'm new to the group and have been having trouble with my energy

> level - I have none! I put on 60 pounds when my thyroid started

> messing up and then I lost 45% of my muscle mass - the doctor said I

> could build it back if I exercise - but I have no energy to really

> keep it up - has anyone had this problem or similar -- and does any

> take anything to help increase their energy - my doc tried me on

> provigil - it helped for a couple months and now even at increased

> doses does nothing for me. Thanks

>

>

>

>

>

>

>

>

[Guest guest]

I sleep all the time, and I feel so depressed. We are

in the same boat! Who wants to work out when they feel

this way? I want to feel better first then I'll try to

get off my fat butt and do something. I have no will.

I went from 127-130 to 155!

--- Sutherland <scorpiomks@...> wrote:

> Kate, I had/have same problem.weight gain well i

> since lost some pounds.

>

> Kate <dharma1968@...> wrote:Hi I'm new to the

> group and have been having trouble with my energy

> level - I have none! I put on 60 pounds when my

> thyroid started

> messing up and then I lost 45% of my muscle mass -

> the doctor said I

> could build it back if I exercise - but I have no

> energy to really

> keep it up - has anyone had this problem or similar

> -- and does any

> take anything to help increase their energy - my doc

> tried me on

> provigil - it helped for a couple months and now

> even at increased

> doses does nothing for me. Thanks

>

>

>

>

>

>

>

[Guest guest]

kelp wont help u lose weight..Have u tried T3 supplement?

nataliemck25 <nataliemck25@...> wrote: does anyone take kelp for

thyroid support? Do you think it works? I

have tried everything and I still cannot lose weight. I am currently

on atkins but that only takes off a couple pounds at best. I don't

know what to do

---------------------------------

Bring words and photos together (easily) with

PhotoMail - it's free and works with .

[Guest guest]

I use iodine and Armour, works great.

http://www.optimox.com

http://www.geocities.com/thyroide

Gracia

> does anyone take kelp for thyroid support? Do you think it works? I

> have tried everything and I still cannot lose weight. I am currently

> on atkins but that only takes off a couple pounds at best. I don't

> know what to do

>

>

>

>

>

>

>

>

>

[Guest guest]

Personally (just my opinion!) I wouldn't recommend a doctor if the

condition has been around for 5 years. What have you tried? What do

you eat on a regular basis? There are several possibilities that

create gas. Usually not chewing properly, not eating enzyme rich

foods (take enzymes with each meal for a while...Udo's are good and

available in most health food stores), and mixing proteins and

starches together can cause this. With time a bad diet will

completely imbalance your bacteria in the bowels (see my previous

posts regarding this and also a couple simple cleanses to get you

started).

I really like the Fit For Life way of eating as a start to get

healthy. Whether you are eating meat or are vegetarian it can show

you the best way to combine your foods to avoid your problem. I still

use these principles and am now able to eat anything (not that I do

but it's nice to be able to!).

I always carry enzymes in my purse for emergencies when I'm out and

have to eat restaurant food or eat at someone's house. I hate to be

fanatical about diet so the enzymes help to be flexible.

Enzymes will digest your food. Depending on your bowel speed you

might need a chewable one.

Sharon

>

> have been having a lot of smelly gas and stomach and lower sromach

> aches and even spasms at one point for the psat five years. which

> doctors should I see?

>

[Guest guest]

hello i am alll so new to this group my son has speech delays as well but he

came a long way he 4 years old and in his 2nd year in preschool

april / mark jr

tell ya latter <cnaostrowski@...> wrote:

hi my name is Leann iam married and i have a son with special needs

and cp hypotonia, speech delays,g tube and other things as well.he

was a 25 week preemie iam very blessed in alot of ways.he says some

words like bob,mama,nana,huh,yeah.one worded only but he has come

along way he gets speech and ot pt eye therapy as well.does anyone

have any ideas how to help with the language iam trying but not sure

if its helping.iam in southern calif.just wanted to introduce myself

to the groud take care.Leann

img scr=*http://i2.photobucket.com

__________________________________________________

[Guest guest]

hello i am alll so new to this group my son has speech delays as well but he

came a long way he 4 years old and in his 2nd year in preschool

april / mark jr

tell ya latter <cnaostrowski@...> wrote:

hi my name is Leann iam married and i have a son with special needs

and cp hypotonia, speech delays,g tube and other things as well.he

was a 25 week preemie iam very blessed in alot of ways.he says some

words like bob,mama,nana,huh,yeah.one worded only but he has come

along way he gets speech and ot pt eye therapy as well.does anyone

have any ideas how to help with the language iam trying but not sure

if its helping.iam in southern calif.just wanted to introduce myself

to the groud take care.Leann

img scr=*http://i2.photobucket.com

__________________________________________________

[Guest guest]

Hi Bev,

Good luck on your journey with treatment of your L5-S1. I have had this

problem for some time now and also a lot with my thoracic spine. If you want

any information, let me know. I have been through the gamut of tests,

procedures, etc.

God bless,

Annie

bbnfld <no_reply > wrote:

Hello all,

Just wanted to introduce myself as a new member. I have a herniated

disk at L5-S1 with thecal sac impingement and a buldge at L4. I have

had this for a yr with no surgery, many symptoms, terrible pain. The

doc thinks now it's sequestered disk and stenosis (and god knows what

else). I will know more after next week's MRI (my first). I can

barely walk and have been literally crippled by this herniation all

year. I am from Canada, so if there is anyone here from Canada, pls

speak up now or forever hold you peace lol. Still got some sense of

humour left some days too! I just came across your group and am

delighted. Seems like a nice group with helpful info. Look forward to

corresponding with some of you.

Tnx, Bev

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.

[Guest guest]

Keep a good attitude like you have and everything will

be better! I have had surgery at L4/L5/S1 screws and

rods. Mostly a successful surgery, took away what I

called the " Oh God moments " Like you are very unstable

down there. Hence the praying LOL

Bill

--- bbnfld <no_reply > wrote:

> Hello all,

> Just wanted to introduce myself as a new member. I

> have a herniated

> disk at L5-S1 with thecal sac impingement and a

> buldge at L4. I have

> had this for a yr with no surgery, many symptoms,

> terrible pain. The

> doc thinks now it's sequestered disk and stenosis

> (and god knows what

> else). I will know more after next week's MRI (my

> first). I can

> barely walk and have been literally crippled by this

> herniation all

> year. I am from Canada, so if there is anyone here

> from Canada, pls

> speak up now or forever hold you peace lol. Still

> got some sense of

> humour left some days too! I just came across your

> group and am

> delighted. Seems like a nice group with helpful

> info. Look forward to

> corresponding with some of you.

> Tnx, Bev

>

>

>

>

>

__________________________________________________

[Guest guest]

Thank you Annie

Appreciate that.

Bev

> Hello all,

> Just wanted to introduce myself as a new member. I have a herniated

> disk at L5-S1 with thecal sac impingement and a buldge at L4. I have

> had this for a yr with no surgery, many symptoms, terrible pain. The

> doc thinks now it's sequestered disk and stenosis (and god knows what

> else). I will know more after next week's MRI (my first). I can

> barely walk and have been literally crippled by this herniation all

> year. I am from Canada, so if there is anyone here from Canada, pls

> speak up now or forever hold you peace lol. Still got some sense of

> humour left some days too! I just came across your group and am

> delighted. Seems like a nice group with helpful info. Look forward to

> corresponding with some of you.

> Tnx, Bev

>

>

>

>

>

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Autos.

>

>

[Guest guest]

Thank you Bill. I've waited way too long on doctors to help tho (over

a year and in terrible shape). I think I'm having problems with upper

spine now. Painful this last few weeks.

Bev

>

> > Hello all,

> > Just wanted to introduce myself as a new member. I

> > have a herniated

> > disk at L5-S1 with thecal sac impingement and a

> > buldge at L4. I have

> > had this for a yr with no surgery, many symptoms,

> > terrible pain. The

> > doc thinks now it's sequestered disk and stenosis

> > (and god knows what

> > else). I will know more after next week's MRI (my

> > first). I can

> > barely walk and have been literally crippled by this

> > herniation all

> > year. I am from Canada, so if there is anyone here

> > from Canada, pls

> > speak up now or forever hold you peace lol. Still

> > got some sense of

> > humour left some days too! I just came across your

> > group and am

> > delighted. Seems like a nice group with helpful

> > info. Look forward to

> > corresponding with some of you.

> > Tnx, Bev

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Bev, there is a wealth of experience here. Between all

of us, we have literally seen it all. The good and the

bad! I had a L4-L5-S1 fusion screws and rods. I know

where you are right now. Hang in as best you can, hope

you have support network?

Bill

--- bbnfld <no_reply > wrote:

> Thank you Annie

> Appreciate that.

> Bev

>

>

>

> > Hello all,

> > Just wanted to introduce myself as a new member. I

> have a herniated

> > disk at L5-S1 with thecal sac impingement and a

> buldge at L4. I have

> > had this for a yr with no surgery, many symptoms,

> terrible pain. The

> > doc thinks now it's sequestered disk and stenosis

> (and god knows what

> > else). I will know more after next week's MRI (my

> first). I can

> > barely walk and have been literally crippled by

> this herniation all

> > year. I am from Canada, so if there is anyone here

> from Canada, pls

> > speak up now or forever hold you peace lol. Still

> got some sense of

> > humour left some days too! I just came across your

> group and am

> > delighted. Seems like a nice group with helpful

> info. Look forward to

> > corresponding with some of you.

> > Tnx, Bev

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Ahhh...imagining that irresistible " new car "

> smell?

> > Check outnew cars at Autos.

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

________________________________________________________________________________\

____

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[Guest guest]

Hi Jen,

You might want to join the mscured group too. Is your nephew with

Aspergers the daughter of your sister with MS?

Sharon Hoehner (from Canada)

www.sharethecause.com/detoxqueen

>

> hi all

>

> I am very new to the group. I had another group recommend that I

pop in as I had questions about MS (sister just diagnosed). Any info

would be appreciate - will try to get around to reading the archives also.

>

> Where is everyone based - Aus US etc? I also have a nephew in qld

diagnosed with aspergers (I think - 3rd hand info) so I might be able

to help them also.

>

> cheers

> jen

> [ ] Re:Hello Group..

>

>

> Hi

>

> I agree wholeheartedly with when you say that it is not Autism or any

> other disease that we can be affected by, but it is actually the

> environmental toxins, vaccines etc. The labels are merely words and

> what we need to concentrate on is regaining our health.

>

> Best wishes to you and everyone who is trying to heal either

themselves

> or loved ones.

>

> Loretta

>

>

>

>

>

>

>

------------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG.

> Version: 7.5.524 / Virus Database: 270.5.6/1575 - Release Date:

26/07/2008 4:18 PM

>

>

>

[Guest guest]

MY wife has sle, and Fm , and osteoarthritus , hypetension, diabetic, COPD, and

Show-gruns disorder ( dry muccus membranes,eyes, mouth , vaginal etc.) and

diverticoulitus, And she was diagnosed about 12 years ago ,and we have run the

gambit with doctors, specialist, and drug therapy, nothing seems to stop the

flares, antidepressants make her more depressed, what helps with the depression

and insomnia besides lyrica, it worked for a short while but it only made her

sleep 18-20 hrs a day after maxing the dosage and didnt help with the flares or

depression, does valium help some she has considerable pain but large doses of

oxycodone just make her itch and only make the pain tolerable ?? We have been to

over 15 specialist , but they all sound about the same , they offer to try and

make her comfortable as possible but we are no where near comfortable , I had to

quit my job to take over all aspects of house work and her care and its

difficult at best in these hard times so if anyone has any ideas or suggestions

we would love to hear them . The doctors have said that her case is

overwhelming and then its on to try and find a new specialist .

Thanks , Chis and Sue

[Guest guest]

Welcome and Sue!!!

She is very lucky to have you Chris. I'm so glad she has you, because

she is going though so very much. I'm very sorry Sue, all this has been

dumped in your lap.

So glad you all found this group. Its an amazing place for info and

support. I've been here quite awhile, and I tell you it saved me. I

have found wonderful caring friends, that have become a part of my life

in so many ways.

Everyone is different when it comes to meds. I've had problems with

depression for a very long time. I've tried most of them. I'm on

cymbalta right now. It helps with depression and anxiety. It also helps

with fibro and neuropathy pain. It has helped me so much. I tell you,

its a wonder drug for me right now. I was in pain 24/7 it was the fibro

causing that. I still have pain, but nothing like I did.

Right now I'm in RA flare, which sucks. So, I'm just hoping it goes

away, like it come. Its really hard to deal daily, but there is not a

cure, so we just do the best we can.

I have insomnia really bad. I have ambien to help, and it works well

for me. I try not to take it all the time, but when I can't deal with

the insomnia anymore, I do take it. So, if you haven't tried it yet,

you might talk to your doctor.

I look forward to getting to know you both. Try talking to your doctor,

I know its not easy. Especially when they don't listen. Try the Ambien

though, I hope it helps.

You all take care, and hope to hear from you soon,

Tawny

>

> MY wife has sle, and Fm , and osteoarthritus , hypetension, diabetic,

COPD, and Show-gruns disorder ( dry muccus membranes,eyes, mouth ,

vaginal etc.) and diverticoulitus, And she was diagnosed about 12 years

ago ,and we have run the gambit with doctors, specialist, and drug

therapy, nothing seems to stop the flares, antidepressants make her more

depressed, what helps with the depression and insomnia besides lyrica,

it worked for a short while but it only made her sleep 18-20 hrs a day

after maxing the dosage and didnt help with the flares or depression,

does valium help some she has considerable pain but large doses of

oxycodone just make her itch and only make the pain tolerable ?? We have

been to over 15 specialist , but they all sound about the same , they

offer to try and make her comfortable as possible but we are no where

near comfortable , I had to quit my job to take over all aspects of

house work and her care and its difficult at best in these hard times so

if anyone has any ideas or suggestions we would love to hear them . The

doctors have said that her case is overwhelming and then its on to try

and find a new specialist .

> Thanks , Chis and Sue

>