Guest guest Posted September 15, 2005 Report Share Posted September 15, 2005 Wow Carole - good for you! After being on the patch for one year, my doctors told me under no circumstances could I just stop cold turkey. They had me use oxycontin to wean off of it. I always thought it sounded pretty fishy! When I asked what would happen if I just quit, I was told "well, you could have a heart attack or respiratory problems". Give me a break!!! ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2005 Report Share Posted September 15, 2005 , Thank you for your response! I've been on the patch for a long time. I will say I am fairly "dragged out", but nothing untoward. And, my PCP is VERY up on drugs, etc. I'm sorry that your doc saw it differently! I was frightened starting out, but feeling pretty good about it right now. Again, thank you! Carole M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 Dawn, I would like to comment on you note and provide some feed back about the Fentanyl patch. I am currently wearing 2 (100 mcg patches) and have been for about 1 year now. I also take numerous other drugs: 60 mg percocet/day, 120 mg oxycontin/day, 12-16 mg zanaflex (muscle relaxer), 3600 mg Neurontin (nerve pain) and 400 mg Provigil (helps with sedative effects of the narcotics). Anyway you mention the chills and sweats associated with the patch. If you are changing the patch every 3 days (72 hours) as recommended you are running out of medication early. I have had to start changing the patch after every 48 hours just for this reason. It is a very common problem and is exaggerated as you dose increases. Other problems I had with the generic patches is that they seemed to release the medication inconsistently and also caused more medication to be absorbed into my body at elevated temps (~101-102 degrees), like a bath or hot tub with the temp turned down. The pamphlet allows exposure to temps up to 104. Anyway, consider getting your prescription changed to have your patch switched every 48 hours. This will help eliminated the sweats and chills. Regarding the covering, Duragesic will provide the " Bioclusive " covering free of charge if you are prescribed their brand name drug. I now have my prescription written for brand name so I get a supply every three months. The size is 4in x 5 in so it covers one patch fine. I have to put 2 of these covering on when I need them, mostly during the summer months. You will however notice that if you switch to changing the patch every 48 hours, you won't need to use these coverings as often. I also have found that using the 3 inch self sticking cloth bandaging material works well. One of the problems I have with the " Bioclusive " covering is that it sometimes pulls of skin making in painful. Using the bandage wrap, this doesn't occur. In fact, I bought some colored stuff at the pet store in the horse section for a fraction of the price. Lastly, the panic attack and other side effects (nightmares for me) are common the first few weeks. I also had anxiety/panic attacks for a period of time but it might have been from the terrible side effects I was having from Methadose (generic methadone). I actually ended up in the hospital overnight for observations because I had an inverted T-wave on my EKG and elevated cardiac chemistry. Scary at 37 years old. That was 2 years ago. I hope this information helps you some. Fentanyl Patch I have been on the 25 mcg's of Fentanyl, now for over three months. The only reaction I get is when it wears off I get the sweats and chills. Until I put a NEW one on, as I guess it is not getting the " DRUG " through my system. You can get more information, as I have called Mylan (Pharmaceutical Co.) as I forgot I did have panic attack, the first time I had it on. But, as any Narcotic, anxiety is always heightened. But, if you have any questions, call Mylan, call for information at the toll free number and they will get you to the area of the Company. They now, call and send me papers, to see how things are going, as other than the normal side affects (Skin irritation, but my Doc said to use rubbing alcohol to get the patch off and to put on, so the skins oils are off the area of putting on, as I had some that would fall off in certain areas, as I have soft skin, that anything sticky, like the patch, falls off, and the rubbing alcohol, is doing great, as the first aide tape, paper of plain, does not stick on my skin, either, as they say to use it as a window arond the patch!) But, with the pain I am dealing with (L5, S1 Herniation, Radiculapthy, and Back Spasms from getting hit by a car, last December, as I am STILL waiting for surgery is approved by MY car insurance, PIP) it helps have the Fentanyl, and I use either Hydrocodone or Percocet, as a back up. according to the pain, that day! As, of yesterday, I was on the patch, and percocet (5/325) as I was feeling so sick, either from the pain or the weather. I feel like I am in my 80's with all my meds and Visiting Nurses, but I hope, soon, my surgery can be done (Laminectomy and Discetomy) ASAP! But, call the company, as they have all the info and MORE, as my Panic Attack wasn't really a side affect, so they are keeping tract of others, to see if they need to add it on the side affects! As you should call any Drug Co., if you feel any other side affects, not listed, as they will ask you the other meds, as mixing can make it worse! Well, this is my two or ten cents of my thoughts and what I went through, but you have to, as with any meds or life, weigh the pros and cons of the medicine. I wish you luck and let us know how you feel, soon! Hugs~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 hi, thanks for your response. i hope for you that you get to have your surgery soon. marsha In a message dated 10/2/2006 7:49:19 AM Eastern Standard Time, JerseyAngelGirl@... writes: I have been on the 25 mcg's of Fentanyl, now for over three months. The only reaction I get is when it wears off I get the sweats and chills. Until I put a NEW one on, as I guess it is not getting the " DRUG " through my system. You can get more information, as I have called Mylan (Pharmaceutical Co.) as I forgot I did have panic attack, the first time I had it on. But, as any Narcotic, anxiety is always heightened. But, if you have any questions, call Mylan, call for information at the toll free number and they will get you to the area of the Company. They now, call and send me papers, to see how things are going, as other than the normal side affects (Skin irritation, but my Doc said to use rubbing alcohol to get the patch off and to put on, so the skins oils are off the area of putting on, as I had some that would fall off in certain areas, as I have soft skin, that anything sticky, like the patch, falls off, and the rubbing alcohol, is doing great, as the first aide tape, paper of plain, does not stick on my skin, either, as they say to use it as a window arond the patch!) But, with the pain I am dealing with (L5, S1 Herniation, Radiculapthy, and Back Spasms from getting hit by a car, last December, as I am STILL waiting for surgery is approved by MY car insurance, PIP) it helps have the Fentanyl, and I use either Hydrocodone or Percocet, as a back up. according to the pain, that day! As, of yesterday, I was on the patch, and percocet (5/325) as I was feeling so sick, either from the pain or the weather. I feel like I am in my 80's with all my meds and Visiting Nurses, but I hope, soon, my surgery can be done (Laminectomy and Discetomy) ASAP! But, call the company, as they have all the info and MORE, as my Panic Attack wasn't really a side affect, so they are keeping tract of others, to see if they need to add it on the side affects! As you should call any Drug Co., if you feel any other side affects, not listed, as they will ask you the other meds, as mixing can make it worse! Well, this is my two or ten cents of my thoughts and what I went through, but you have to, as with any meds or life, weigh the pros and cons of the medicine. I wish you luck and let us know how you feel, soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Since I have been given 50mcg/hr of Fentanyl after my fusion, I really don't like them. I feel it is the primary cause of my sweating which was one of the worst things that I hated about withdrawing from narcotics. I would say to use the least strenght possible of whatever you decide to take. Previously, I took Elavil and now neurontin, which I also don't believe in. Only making worse. Most likely, I will not continue to take. What you are taking now seems fine! Basically, that is what I am taking. For me the hydrocodone 10/500 and zanaflex 4mg combinations has been the best ever!!! Yes, I could always use a shorter timeframe like yours, but the doc is skeptical. Anyhow, the Fentanyl hasn't done anything to impain any of my functions. Not sure if b/c of the dose or what. Although it touts itself as a strong narcotic, I do not believe any of this. To me, it's weaker than the Percocet and one does not have to take time to become accustomed. Again, this is only my opinion! dave ________________________________ From: ellijaygal <ellijaygal@...> spinal problems Sent: Sunday, August 23, 2009 10:34:51 PM Subject: Fentanyl Patch  My neuro wants to switch me to this patch. IF I choose to use this am I going to be totally debilitated from driving and stuff until I become accustomed to them? I am currently on 1-2 5mg Percocet every 4, Zanaflex, and they tried me on elavil, lyrica, and neurontin... which didn't work. Any info would be appreciated. Thanks, Barb __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Everyone's different, but I didn't notice a difference when I switched, and I had been taking about the same number of Percocet as you. Congrats on finding a doc to treat your pain! I pray these patches will help you as they did me! They removed 100% of my WORST pain.  --- Babbitt ________________________________ From: ellijaygal <ellijaygal@...> spinal problems Sent: Sunday, August 23, 2009 11:34:51 PM Subject: Fentanyl Patch  My neuro wants to switch me to this patch. IF I choose to use this am I going to be totally debilitated from driving and stuff until I become accustomed to them? I am currently on 1-2 5mg Percocet every 4, Zanaflex, and they tried me on elavil, lyrica, and neurontin... which didn't work. Any info would be appreciated. Thanks, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 What I am taking right now is not working on my nerve pain. After my spinal cord surgery on June 2nd it was a success in that I can continue to walk and my bowels/bladder are working, BUT it has damaged some major nerve(s) in my left leg. It's bearable with the medication I am on until about 3 or 4 p.m. and then it is excruciating. The 10 mg of ocxycodone and the 4mg of zanaflex do not even reduce the pain in the late afternoo and night! I was up until 3 a.m. the other night pacing, pinching, icing, heating, everything trying to get some relief. I have bruised the heck out of my leg by pinching behind my knee to try to make it stop. All of the neuropathy drugs have really bad side effects on me so that's why they are talking about the Fentanyl or Methadone. Neither one sounds like something I really want to take, but I don't know of a medication that will dull this pain without taking away my ability to think clearly and be able to drive. I'm sure the neuro will start me on the lowest dose possible, but if it doesn't seem as strong as 10 mg of the other now I am worried that my pain will increase instead of decrease. Barb > > Since I have been given 50mcg/hr of Fentanyl after my fusion, I really don't like them. I feel it is the primary cause of my sweating which was one of the worst things that I hated about withdrawing from narcotics. I would say to use the least strenght possible of whatever you decide to take. Previously, I took Elavil and now neurontin, which I also don't believe in. Only making worse. Most likely, I will not continue to take. What you are taking now seems fine! Basically, that is what I am taking. For me the hydrocodone 10/500 and zanaflex 4mg combinations has been the best ever!!! Yes, I could always use a shorter timeframe like yours, but the doc is skeptical. Anyhow, the Fentanyl hasn't done anything to impain any of my functions. Not sure if b/c of the dose or what. Although it touts itself as a strong narcotic, I do not believe any of this. To me, it's weaker than the Percocet and one does not have to take time to become > accustomed. Again, this is only my opinion! > > dave > > > > > ________________________________ > From: ellijaygal <ellijaygal@...> > spinal problems > Sent: Sunday, August 23, 2009 10:34:51 PM > Subject: Fentanyl Patch > >  > My neuro wants to switch me to this patch. IF I choose to use this am I going to be totally debilitated from driving and stuff until I become accustomed to them? I am currently on 1-2 5mg Percocet every 4, Zanaflex, and they tried me on elavil, lyrica, and neurontin... which didn't work. > > Any info would be appreciated. > Thanks, > Barb > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Barb I have been on the fentanyl patch for going on 9 years.....i love them....every time i switched to try something else I switched back cause i was unhappy... Deb RN  Debra in St. Louis ________________________________ From: Babbitt <tpowell1977@...> spinal problems Sent: Monday, August 24, 2009 8:10:00 AM Subject: Re: Fentanyl Patch  Everyone's different, but I didn't notice a difference when I switched, and I had been taking about the same number of Percocet as you. Congrats on finding a doc to treat your pain! I pray these patches will help you as they did me! They removed 100% of my WORST pain.  --- Babbitt ____________ _________ _________ __ From: ellijaygal <ellijaygal (DOT) com> spinedisorderssuppo rtgroup@gro ups.com Sent: Sunday, August 23, 2009 11:34:51 PM Subject: Fentanyl Patch  My neuro wants to switch me to this patch. IF I choose to use this am I going to be totally debilitated from driving and stuff until I become accustomed to them? I am currently on 1-2 5mg Percocet every 4, Zanaflex, and they tried me on elavil, lyrica, and neurontin... which didn't work. Any info would be appreciated. Thanks, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Fentanyl is much stronger then percocet....the problem people get into...especially those who are or were " drug addicted " and when i say that listen to what i am saying...people become accustomed to popping a pill....feeling good...and when on fentanyl this cycle is gone...therefore people think the drug doesnt work......sweating is a main side effect of any narcotic.... Deb RN  Debra in St. Louis ________________________________ From: ellijaygal <ellijaygal@...> spinal problems Sent: Monday, August 24, 2009 8:57:29 AM Subject: Re: Fentanyl Patch  What I am taking right now is not working on my nerve pain. After my spinal cord surgery on June 2nd it was a success in that I can continue to walk and my bowels/bladder are working, BUT it has damaged some major nerve(s) in my left leg. It's bearable with the medication I am on until about 3 or 4 p.m. and then it is excruciating. The 10 mg of ocxycodone and the 4mg of zanaflex do not even reduce the pain in the late afternoo and night! I was up until 3 a.m. the other night pacing, pinching, icing, heating, everything trying to get some relief. I have bruised the heck out of my leg by pinching behind my knee to try to make it stop. All of the neuropathy drugs have really bad side effects on me so that's why they are talking about the Fentanyl or Methadone. Neither one sounds like something I really want to take, but I don't know of a medication that will dull this pain without taking away my ability to think clearly and be able to drive. I'm sure the neuro will start me on the lowest dose possible, but if it doesn't seem as strong as 10 mg of the other now I am worried that my pain will increase instead of decrease. Barb > > Since I have been given 50mcg/hr of Fentanyl after my fusion, I really don't like them. I feel it is the primary cause of my sweating which was one of the worst things that I hated about withdrawing from narcotics. I would say to use the least strenght possible of whatever you decide to take. Previously, I took Elavil and now neurontin, which I also don't believe in. Only making worse. Most likely, I will not continue to take. What you are taking now seems fine! Basically, that is what I am taking. For me the hydrocodone 10/500 and zanaflex 4mg combinations has been the best ever!!! Yes, I could always use a shorter timeframe like yours, but the doc is skeptical. Anyhow, the Fentanyl hasn't done anything to impain any of my functions. Not sure if b/c of the dose or what. Although it touts itself as a strong narcotic, I do not believe any of this. To me, it's weaker than the Percocet and one does not have to take time to become > accustomed. Again, this is only my opinion! > > dave > > > > > ____________ _________ _________ __ > From: ellijaygal <ellijaygal@ ...> > spinedisorderssuppo rtgroup@gro ups.com > Sent: Sunday, August 23, 2009 10:34:51 PM > Subject: Fentanyl Patch > >  > My neuro wants to switch me to this patch. IF I choose to use this am I going to be totally debilitated from driving and stuff until I become accustomed to them? I am currently on 1-2 5mg Percocet every 4, Zanaflex, and they tried me on elavil, lyrica, and neurontin... which didn't work. > > Any info would be appreciated. > Thanks, > Barb > > > > > ____________ _________ _________ _________ _________ __ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 You have every right to worry and hope that a combination of meds is found to help with the relief. I am sure that soon something will pop up. I know we are are different, but I don't think narcotics play such a negative role on the head with not thinking clearly or properly and other such instances. Hang in there! dave ________________________________ From: ellijaygal <ellijaygal@...> spinal problems Sent: Monday, August 24, 2009 8:57:29 AM Subject: Re: Fentanyl Patch  What I am taking right now is not working on my nerve pain. After my spinal cord surgery on June 2nd it was a success in that I can continue to walk and my bowels/bladder are working, BUT it has damaged some major nerve(s) in my left leg. It's bearable with the medication I am on until about 3 or 4 p.m. and then it is excruciating. The 10 mg of ocxycodone and the 4mg of zanaflex do not even reduce the pain in the late afternoo and night! I was up until 3 a.m. the other night pacing, pinching, icing, heating, everything trying to get some relief. I have bruised the heck out of my leg by pinching behind my knee to try to make it stop. All of the neuropathy drugs have really bad side effects on me so that's why they are talking about the Fentanyl or Methadone. Neither one sounds like something I really want to take, but I don't know of a medication that will dull this pain without taking away my ability to think clearly and be able to drive. I'm sure the neuro will start me on the lowest dose possible, but if it doesn't seem as strong as 10 mg of the other now I am worried that my pain will increase instead of decrease. Barb > > Since I have been given 50mcg/hr of Fentanyl after my fusion, I really don't like them. I feel it is the primary cause of my sweating which was one of the worst things that I hated about withdrawing from narcotics. I would say to use the least strenght possible of whatever you decide to take. Previously, I took Elavil and now neurontin, which I also don't believe in. Only making worse. Most likely, I will not continue to take. What you are taking now seems fine! Basically, that is what I am taking. For me the hydrocodone 10/500 and zanaflex 4mg combinations has been the best ever!!! Yes, I could always use a shorter timeframe like yours, but the doc is skeptical.. Anyhow, the Fentanyl hasn't done anything to impain any of my functions. Not sure if b/c of the dose or what. Although it touts itself as a strong narcotic, I do not believe any of this. To me, it's weaker than the Percocet and one does not have to take time to become > accustomed. Again, this is only my opinion! > > dave > > > > > ____________ _________ _________ __ > From: ellijaygal <ellijaygal@ ...> > spinedisorderssuppo rtgroup@gro ups.com > Sent: Sunday, August 23, 2009 10:34:51 PM > Subject: Fentanyl Patch > >  > My neuro wants to switch me to this patch. IF I choose to use this am I going to be totally debilitated from driving and stuff until I become accustomed to them? I am currently on 1-2 5mg Percocet every 4, Zanaflex, and they tried me on elavil, lyrica, and neurontin... which didn't work. > > Any info would be appreciated. > Thanks, > Barb > > > > > ____________ _________ _________ _________ _________ __ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 Thank you all for your responses to my question about the patches. It was terrifying to me since I live alone when I typed " fentanyl patches " into my web browser what instantly comes up are all the lawsuits from a few years ago where people involuntarily overdosed because they released too much medication. That is my fear...that I will be alone, overdose, and not be able to do anything! I'm such a chicken. I have a bad habit of not necessarily eating correctly (or at all haha) when nobody is around and sometimes the percocets do a number on me and I have to quickly eat and go lie down until the sweats/nausea pass. Maybe I should worry more about eating correctly and less about the patches and hopefully I will be okay on them. Thanks again for the responses. It has somewhat relieved my mind about them. Barb > > Barb > I have been on the fentanyl patch for going on 9 years.....i love them....every time i switched to try something else I switched back cause i was unhappy... > Deb RN >  Debra in St. Louis > > > > > ________________________________ > From: Babbitt <tpowell1977@...> > spinal problems > Sent: Monday, August 24, 2009 8:10:00 AM > Subject: Re: Fentanyl Patch > >  > Everyone's different, but I didn't notice a difference when I switched, and I had been taking about the same number of Percocet as you. Congrats on finding a doc to treat your pain! I pray these patches will help you as they did me! They removed 100% of my WORST pain. >  --- Babbitt > > ____________ _________ _________ __ > From: ellijaygal <ellijaygal (DOT) com> > spinedisorderssuppo rtgroup@gro ups.com > Sent: Sunday, August 23, 2009 11:34:51 PM > Subject: Fentanyl Patch > >  > My neuro wants to switch me to this patch. IF I choose to use this am I going to be totally debilitated from driving and stuff until I become accustomed to them? I am currently on 1-2 5mg Percocet every 4, Zanaflex, and they tried me on elavil, lyrica, and neurontin... which didn't work. > > Any info would be appreciated. > Thanks, > Barb > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 Barb, With the patches you do not get the ups and the downs that you do with percocet....they dont make you tired and in fact....you dont even know that you are on meds with the exception that you have no pain.... Deb RN  Debra in St. Louis ________________________________ From: ellijaygal <ellijaygal@...> spinal problems Sent: Wednesday, August 26, 2009 9:53:09 AM Subject: Re: Fentanyl Patch  Thank you all for your responses to my question about the patches. It was terrifying to me since I live alone when I typed " fentanyl patches " into my web browser what instantly comes up are all the lawsuits from a few years ago where people involuntarily overdosed because they released too much medication. That is my fear...that I will be alone, overdose, and not be able to do anything! I'm such a chicken. I have a bad habit of not necessarily eating correctly (or at all haha) when nobody is around and sometimes the percocets do a number on me and I have to quickly eat and go lie down until the sweats/nausea pass. Maybe I should worry more about eating correctly and less about the patches and hopefully I will be okay on them. Thanks again for the responses. It has somewhat relieved my mind about them. Barb > > Barb > I have been on the fentanyl patch for going on 9 years.....i love them....every time i switched to try something else I switched back cause i was unhappy... > Deb RN >  Debra in St. Louis > > > > > ____________ _________ _________ __ > From: Babbitt <tpowell1977@ ...> > spinedisorderssuppo rtgroup@gro ups.com > Sent: Monday, August 24, 2009 8:10:00 AM > Subject: Re: Fentanyl Patch > >  > Everyone's different, but I didn't notice a difference when I switched, and I had been taking about the same number of Percocet as you. Congrats on finding a doc to treat your pain! I pray these patches will help you as they did me! They removed 100% of my WORST pain. >  --- Babbitt > > ____________ _________ _________ __ > From: ellijaygal <ellijaygal@ . com> > spinedisorderssuppo rtgroup@gro ups.com > Sent: Sunday, August 23, 2009 11:34:51 PM > Subject: Fentanyl Patch > >  > My neuro wants to switch me to this patch. IF I choose to use this am I going to be totally debilitated from driving and stuff until I become accustomed to them? I am currently on 1-2 5mg Percocet every 4, Zanaflex, and they tried me on elavil, lyrica, and neurontin... which didn't work. > > Any info would be appreciated. > Thanks, > Barb > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2009 Report Share Posted August 27, 2009 I thought I would write about my experience with the fentanyl patches. I like the Mylan brand as they stay on the best for me. They do not take away all of my pain but no doubt they must help. I have severe neuropathy pain in my feet and back pain after surgery with fusion and plates and screws in '99. I will be having a trial for the spinal cord stimulator on Sept. 14t. I also am on narcotic pills and lyrica. I do drive and often pick up my granddaughters from school. I have been on the patches starting at 50mcg and now at 100mcg. every two days instead of three days. That in itself shows they must help but just not enough in my case. Lois On 8/26/09, Debra <i_ownaberner@...> wrote: > Barb, > With the patches you do not get the ups and the downs that you do with > percocet....they dont make you tired and in fact....you dont even know that > you are on meds with the exception that you have no pain.... > Deb RN >  Debra in St. Louis > > > > > ________________________________ > From: ellijaygal <ellijaygal@...> > spinal problems > Sent: Wednesday, August 26, 2009 9:53:09 AM > Subject: Re: Fentanyl Patch > > > Thank you all for your responses to my question about the patches. It was > terrifying to me since I live alone when I typed " fentanyl patches " into my > web browser what instantly comes up are all the lawsuits from a few years > ago where people involuntarily overdosed because they released too much > medication. That is my fear...that I will be alone, overdose, and not be > able to do anything! I'm such a chicken. I have a bad habit of not > necessarily eating correctly (or at all haha) when nobody is around and > sometimes the percocets do a number on me and I have to quickly eat and go > lie down until the sweats/nausea pass. Maybe I should worry more about > eating correctly and less about the patches and hopefully I will be okay on > them. Thanks again for the responses. It has somewhat relieved my mind about > them. > > Barb > > >> >> Barb >> I have been on the fentanyl patch for going on 9 years.....i love >> them....every time i switched to try something else I switched back cause >> i was unhappy... >> Deb RN >>  Debra in St. Louis >> >> >> >> >> ____________ _________ _________ __ >> From: Babbitt <tpowell1977@ ...> >> spinedisorderssuppo rtgroup@gro ups.com >> Sent: Monday, August 24, 2009 8:10:00 AM >> Subject: Re: Fentanyl Patch >> >> >> Everyone's different, but I didn't notice a difference when I switched, >> and I had been taking about the same number of Percocet as you. Congrats >> on finding a doc to treat your pain! I pray these patches will help you as >> they did me! They removed 100% of my WORST pain. >>  --- Babbitt >> >> ____________ _________ _________ __ >> From: ellijaygal <ellijaygal@ . com> >> spinedisorderssuppo rtgroup@gro ups.com >> Sent: Sunday, August 23, 2009 11:34:51 PM >> Subject: Fentanyl Patch >> >> >> My neuro wants to switch me to this patch. IF I choose to use this am I >> going to be totally debilitated from driving and stuff until I become >> accustomed to them? I am currently on 1-2 5mg Percocet every 4, Zanaflex, >> and they tried me on elavil, lyrica, and neurontin... which didn't work. >> >> Any info would be appreciated. >> Thanks, >> Barb >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Someone just wrote this message and I have been wondering for some time about Fentanyl. I tried it twice at night to " help me make it through the night " (sorry Kris Kristofferson!), and had breathing issues. The first night I awoke and felt I could not get a good, deep breath but it finally broke through. The second night, I had to wake my husband at 3AM and go to the ER. I have asthma (and no real issues till this time) and had been working with my hubby clearing out his very dirty step-fathers house (he lost his eye sight) and thought it was just the dust. But, I also was concerned that the Fentanyl might have contributed to this. Anyone ever had a breathing problem while using a Fentanyl patch? Thanks so much. in Poulsbo, WA << " so much painacross my body that they had to put me on a Fentanyl patch (narcotic) just so that I could make it through the day. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 Narcotics can suppress the respiratory drive. Gareeth lbschroeder@... wrote: > > Anyone ever had a breathing problem while using a Fentanyl patch? > Thanks so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 Yes that happened to me. It can be very dangerous. It meant the dose was too high. Check with doctor to get a lower dose. -Eileen <<Anyone ever had a breathing problem while using a Fentanyl patch? Thanks so much. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2010 Report Share Posted January 20, 2010 You're right about not giving fentanyl to just anyone because it should be used with discretion. It's about the strongest pain reliever you can get (much stronger than morphine) and is normally used on end-stage cancer patients, from what I understand. But the patches do work wonders. Even lidocaine patches work for some things; they helped a friend of mine greatly while she had to postpone knee replacement surgery for about 8 months and that's how I first heard about them. I've not used them myself but suggested them for my Mom who has osteoporosis which has resulted in fractures of the spine which - I guess at her age (early 90s) - just won't completely heal. When the back pain gets bad, they give her a great deal of relief. Her doc approved their use but I don't think would have thought of it herself. In my opinion, not enough docs prescribe them; and I'm surprised because they work so well and, as you've said, go directly to where they're needed - whether they be fentanyl or just plain old lidocaine. Thanks for bringing up the issue. Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2010 Report Share Posted January 22, 2010 <<Even lidocaine patches work for some things.>> Joanna has hit the nail on the head on this one. I suffer terribly from sciatica at times, partly due to sacroiliitis flares and partly due to worsening limping due to left hip joint deterioration. Plastering on the Lidocaine patches, along with 500 mg Naproxen three times daily, really helps me get through a full day at work. I rarely if ever use the Ultracet my rheumatologist has prescribed, although he has encouraged me to use it as needed......I may take one or two at night if the pain is causing me difficulty sleeping and that's all. The last bottle of 30 tablets that was issued me lasted an entire year. The Lidocaine patches also help with my tarsal tunnel syndrome when it acts up. Of course, having the left hip replaced to match my previously replaced right hip would help even more; I see the ortho again next Friday to discuss scheduling this Drei Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Hi Betty.     I have never used the pain patch, but a good friend of mine uses it all the time. It works wonderfully for her, and has been for 3 years now. She tried everything before, but this does the trick for her.     I hope it works well for you too. Sorry to read you are in so mcuh pain all the time.  Hugs,  Barbara From: bettygates tds.net <bettygates@...> Subject: [ ] FENTANYL PATCH " " < > Date: Thursday, September 9, 2010, 8:25 AM  my dr. has mentioned me using the fentanyl patch for pain. has anyone here ever used this, and how did it work for you ? i understand that after awhile the meds you are taking, quits working good, so you have to change around . i get so tired of taking so much medicine but, when you start hurting so bad, you are looking for anything to help stop the pain. betty -- NUMBERS 6: 24-26 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Hi Betty...I have used the fentanyl patch. It provided great pain relief. However, it also caused the very worst constipation I have ever, ever had. If I used it again, I would really have to address that issue better. Cheryle, in Oregon (aka Tess) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 For bad days I have used the patch and it has helped. However, the glue was hard to get off and sometimes stained clothing. Good luck Don in KY From: mercycove@... <mercycove@...> Subject: Re: [ ] FENTANYL PATCH Date: Thursday, September 9, 2010, 10:24 AM  Hi Betty...I have used the fentanyl patch. It provided great pain relief. However, it also caused the very worst constipation I have ever, ever had. If I used it again, I would really have to address that issue better. Cheryle, in Oregon (aka Tess) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 thanks Barbara for the answer back..... when i hear the word " patch " , i think of the morphine patches my sister had before she passed away. she died with her head in my lap, four years ago. surely this is nothing like the morphine patch tho...... i go back to the dr. tomorrow, i'll see then what he recomends next for me. he said he had run out of options on my treatment, just trying to manage my pain. hugs to everyone today, betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Hi Betty, I have been using the fentanyl pain patches for a couple years now and I love them. They have helped my pain tremendously. I hope they do as good for you. Big Hugs, Shay in Michigan -- [ ] FENTANYL PATCH my dr. has mentioned me using the fentanyl patch for pain. has anyone here ever used this, and how did it work for you ? i understand that after awhile the meds you are taking, quits working good, so you have to change around . i get so tired of taking so much medicine but, when you start hurting so bad, you are looking for anything to help stop the pain. betty -- NUMBERS 6: 24-26 ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Good luck at your Dr. appt. No fun to suffer with the RA pain. Hope the Dr. has some suggestions for you.  Hugs,  Barbara From: bettygates tds.net <bettygates@...> Subject: Re: [ ] FENTANYL PATCH Date: Thursday, September 9, 2010, 5:19 PM  thanks Barbara for the answer back..... when i hear the word " patch " , i think of the morphine patches my sister had before she passed away. she died with her head in my lap, four years ago. surely this is nothing like the morphine patch tho...... i go back to the dr. tomorrow, i'll see then what he recomends next for me. he said he had run out of options on my treatment, just trying to manage my pain. hugs to everyone today, betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2010 Report Share Posted September 10, 2010 I used the Fentanyl patch for quite awhile, it works pretty good. I switched where I put the patch constantly (inner shoulder, stomach, outer shoulder, etc) because the glue leaves residue and its hard to scrub off sometimes. I did and still do deal with the constipation, so I started on a stool softener and I find that a teaspoon of olive oil everyday helps too and so does incorporating a few prunes into your diet. Eventually, I got off the patch and found that Opana (morphine) works better for me, via pills. So far so good. I hope you find pain relief. OKD Quote Link to comment Share on other sites More sharing options...
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