Re: Rheumatic Diseases Study

[Guest guest]

Thanks for participating in multiple studies, Scientist Sue!

Not an MD

On Fri, Oct 15, 2010 at 7:23 PM, marysue <marysue@...> wrote:

> When I went to the rheumy on Wednesday, I was asked to join a

> Rheumatic Diseases Study. Of course I said yes. All I have to do, if I

> understand correctly, is to fill out a short questionnaire each time I

> go for a visit. For the first time, though, it was 5 pages long. I

> told the nurse that she should have given it to me while I was in the

> waiting room. (I had been waiting for 45 minutes, longer than usual.)

>

> I had time to fill in the questionnaire while waiting for the rheumy

> to come in, though. I signed the consent form and took the papers

> explaining the study home with me. It was 18 pages of explanation, and

> of course I didn't understand some of it.

>

> I don't know how many of my rheumy's patients will be participating.

> The Corrona Consortium of Rheumatology Researchers of North America is

> sponsoring the study.

>

> Some of the findings of the study may be used to develop new drugs

> that will profit somebody, but the participants will not receive any

> compensation.

>

> I think they will do a few blood tests initially at least. They will

> use a blood sample for DNA to study. So now my DNA will be in three

> studies, RA, Fuchs' Corneal Dystrophy, and diabetes. I must have

> interesting DNA, LOL.

>

> I still participate in the National Data Bank for Rheumatic Diseases.

> All I have to do for that is fill out a questionnaire twice a year. I

> could do it pretty quickly online if it were not for the financial

> questions. I wound up putting " Don't know " this year because I just

> didn't have time to figure how much I had spent on medical care.

>

> Oh, I almost forgot, I am also participating in a Lung Cancer study.

> For that, participants were randomized to get a chest ex-ray or a CT

> scan of our lungs. I got the CT scan. The study is supposed to

> determine if CT scans can detect lung cancer better than ex-rays.

> After the initial visit, all I have to do for that is to fill out a

> short questionnaire twice a year. They want to see who gets lung

> cancer, I suppose.

>

> Sue, part-time scientist, LOL

[Guest guest]

I don't mind it at all, . I kind of enjoy it. But I haven't been

in any in which I had to take a medication. I would have to think a

long time before doing that. I guess if I was desperate, I would.

Sue

On Oct 18, 2010, at 7:21 PM, wrote:

> Thanks for participating in multiple studies, Scientist Sue!

>

>

> Not an MD