Re: Re: Frustrated! Need to vent!

[Guest guest]

I get the same from my family as well sometimes. They just don't really

understand what it is like to have a disability. I once heard my own mother

comment behind my back and said if I knew she was going to have a disability in

life so difficult I would have terminated the pregnancy. She doesn't understand

why I won't talk to her now.

in land

[ ] Frustrated! Need to vent!

>

> I know you guys will all understand. My husband feels horrible for me, but

> doesn't know what its like having this crappy disease. I was pregnant and on

> steriods for the entire pregnancy. Before the pregnancy I was just on 6

> methotrexate pills. After, I was on 10 pills plus prednisone. The

methotrexate

> that I took on Friday would make me sick and tired all weekend. I would

> literally not eat and just sleep the whole weekend. That was hard w/ a 2 and

4yr

> old. So...I tried 10 pills of mtx w/ Enbrel and prednisone. Nothing. Now I'm

> supposed to try my 2nd shot of Humira on Wednesday, and I still take my

> prednisone. I swear that the only thing keeping me " going " is the

prednisone.

> It's like I have a window in the middle of the day where I can " function " . I

am

> useless first thing in the morning, and after about 7pm. It's hard when my

kids

> need me, and I can't do much w/ them, because I can't lift them, dress them

or

> bathe them well. Let alone some mornings where I can't do my hair, or I have

to

> get my husband to help me get dressed. It gets better, right?

>

>

[Guest guest]

Hi .

 

I feel awful that your mother spoke so cruely about you.  What a terrible thing

to think, let alone say.  I would not speak to her either.  You just don't

deserve any remarks like that.  I am so sorry that she hurt you.  It must be

very hard for you right now.

 

Some people need to have their tongue removed.  They must not care one bit when

they say things like that to hurt someone, especially a family member.

 

Hard enough to deal with RA, without more hurt in our lives.  I wish I could

take away your pain.

Please take comfort in knowing we all here love you and care deeply about you. 

I am sending extra hugs your way.

 

Hugs,

 

Barbara

From: Massey <renandstimpy3@...>

Subject: Re: [ ] Re: Frustrated! Need to vent!

Date: Tuesday, August 24, 2010, 10:06 AM

 

I get the same from my family as well sometimes. They just don't really

understand what it is like to have a disability. I once heard my own mother

comment behind my back and said if I knew she was going to have a disability in

life so difficult I would have terminated the pregnancy. She doesn't understand

why I won't talk to her now.

in land

[ ] Frustrated! Need to vent!

>

> I know you guys will all understand. My husband feels horrible for me, but

> doesn't know what its like having this crappy disease. I was pregnant and on

> steriods for the entire pregnancy. Before the pregnancy I was just on 6

> methotrexate pills. After, I was on 10 pills plus prednisone. The methotrexate

> that I took on Friday would make me sick and tired all weekend. I would

> literally not eat and just sleep the whole weekend. That was hard w/ a 2 and

4yr

> old. So...I tried 10 pills of mtx w/ Enbrel and prednisone. Nothing. Now I'm

> supposed to try my 2nd shot of Humira on Wednesday, and I still take my

> prednisone. I swear that the only thing keeping me " going " is the prednisone.

> It's like I have a window in the middle of the day where I can " function " . I

am

> useless first thing in the morning, and after about 7pm. It's hard when my

kids

> need me, and I can't do much w/ them, because I can't lift them, dress them or

> bathe them well. Let alone some mornings where I can't do my hair, or I have

to

> get my husband to help me get dressed. It gets better, right?

>

>

[Guest guest]

yes, she said this in front of my family at a birthday party for my son. I will

talk to my dad but will never again talk to her. She is very undiversified and

I can not change that in her and will not even try to. All I can do is move on

with my life and thank goodness for the help I do have.

in land

[ ] Frustrated! Need to vent!

> >

> > I know you guys will all understand. My husband feels horrible for me, but

> > doesn't know what its like having this crappy disease. I was pregnant and

on

> > steriods for the entire pregnancy. Before the pregnancy I was just on 6

> > methotrexate pills. After, I was on 10 pills plus prednisone. The

methotrexate

> > that I took on Friday would make me sick and tired all weekend. I would

> > literally not eat and just sleep the whole weekend. That was hard w/ a 2

and 4yr

> > old. So...I tried 10 pills of mtx w/ Enbrel and prednisone. Nothing. Now

I'm

> > supposed to try my 2nd shot of Humira on Wednesday, and I still take my

> > prednisone. I swear that the only thing keeping me " going " is the

prednisone.

> > It's like I have a window in the middle of the day where I can " function " .

I am

> > useless first thing in the morning, and after about 7pm. It's hard when my

kids

> > need me, and I can't do much w/ them, because I can't lift them, dress

them or

> > bathe them well. Let alone some mornings where I can't do my hair, or I

have to

> > get my husband to help me get dressed. It gets better, right?

> >

> >

[Guest guest]

Thank you Barbara, some people are very undiversified and don't want to

understand about any disabilities. She is a very hateful person and is not

happy with her life and wants everyone around her not to be happy. I stay away

from people like this and I have made my own little family even if they are not

blood related.

in land

[ ] Frustrated! Need to vent!

>

> I know you guys will all understand. My husband feels horrible for me, but

> doesn't know what its like having this crappy disease. I was pregnant and on

> steriods for the entire pregnancy. Before the pregnancy I was just on 6

> methotrexate pills. After, I was on 10 pills plus prednisone. The

methotrexate

> that I took on Friday would make me sick and tired all weekend. I would

> literally not eat and just sleep the whole weekend. That was hard w/ a 2 and

4yr

> old. So...I tried 10 pills of mtx w/ Enbrel and prednisone. Nothing. Now I'm

> supposed to try my 2nd shot of Humira on Wednesday, and I still take my

> prednisone. I swear that the only thing keeping me " going " is the

prednisone.

> It's like I have a window in the middle of the day where I can " function " . I

am

> useless first thing in the morning, and after about 7pm. It's hard when my

kids

> need me, and I can't do much w/ them, because I can't lift them, dress them

or

> bathe them well. Let alone some mornings where I can't do my hair, or I have

to

> get my husband to help me get dressed. It gets better, right?

>

>

[Guest guest]

Hi .

     I am glad you have your own loving family to love and support you. 

Blood does not matter at all.  Your mother lost a beautiful and caring daughter

in you.  Life for us is to be surrounded by people who care about us, love us,

and help us and support us.  You are rich in these area's.

 

     Wishing you many pain free days ahead.

 

Hugs,

 

Barbara

From: Massey <renandstimpy3@...>

Subject: Re: [ ] Re: Frustrated! Need to vent!

Date: Tuesday, August 24, 2010, 10:06 AM

I get the same from my family as well sometimes. They just don't really

understand what it is like to have a disability. I once heard my own mother

comment behind my back and said if I knew she was going to have a disability in

life so difficult I would have terminated the pregnancy. She doesn't understand

why I won't talk to her now.

in land

[ ] Frustrated! Need to vent!

>

> I know you guys will all understand. My husband feels horrible for me, but

> doesn't know what its like having this crappy disease. I was pregnant and on

> steriods for the entire pregnancy. Before the pregnancy I was just on 6

> methotrexate pills. After, I was on 10 pills plus prednisone. The methotrexate

> that I took on Friday would make me sick and tired all weekend. I would

> literally not eat and just sleep the whole weekend. That was hard w/ a 2 and

4yr

> old. So...I tried 10 pills of mtx w/ Enbrel and prednisone. Nothing. Now I'm

> supposed to try my 2nd shot of Humira on Wednesday, and I still take my

> prednisone. I swear that the only thing keeping me " going " is the prednisone.

> It's like I have a window in the middle of the day where I can " function " . I

am

> useless first thing in the morning, and after about 7pm. It's hard when my

kids

> need me, and I can't do much w/ them, because I can't lift them, dress them or

> bathe them well. Let alone some mornings where I can't do my hair, or I have

to

> get my husband to help me get dressed. It gets better, right?

>

>

[Guest guest]

i know what you are going through.my kids were 2 1/2 and 6 months when i came

down with

ra.i couldn't even change a diaper with my hands, i had to use my teeth to get

it off.

you have to get your self together, see a good doctor and get on some meds,that

what i did

or my kids would of been taken away, my husband was working all day

and his family and mine didn't care one bit.now my kids are 28 and 26 they made

it

and so did i.it can get better with correct meds,good days and bad days thats

what i have.

 

good luck, and feel better

 

ann

From: oogiejonz <bajones@...>

Subject: [ ] Re: Frustrated! Need to vent!

Date: Monday, August 30, 2010, 3:13 PM

 

>

> It's hard when my kids need me, and I can't do much w/ them, because I can't

lift them, dress them or bathe them well. Let alone some mornings where I can't

do my hair, or I have to get my husband to help me get dressed. It gets better,

right?

>

I am right there with you, I have a 4 yr old and 8 yr old. I was out of town

last week and came home to 2 grubby kids - did they not take a bath for a week?

But I was too tired to get them into the bathtub last night. So I sent two

grubby kids to school this morning (figured they went to school like that last

week, so the teachers won't be seeing anything new). My 8 yr old had not had her

hair brushed for a week (she isn't good at brushing it herself, it is long and

gets tangled), her fingernails were black with dirt. I'm wondering if social

services is going to call, but at least I got her hair brushed this morning.

EJ