Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 I was on Orencia for a little over a year. It gave me my life back, at first. I would be wiped the day after the infusion, but the next day I was full of energy. However, it started working less and less after about 8 months. My doctor took me off it and we tried Rituximab--big mistake. I am hoping since I have been off Orencia for several months, that I can go back on it and it will work like it first did. in TN [ ] Orencia Help Haven't commented here much, but lurk in the sidelines a lot. I have been on Humira and Enbrel, with no success. Had appointment today, after 18 months, My RA is still considered severe and uncontrolled. Today, doc said she wants me to start Orencia Infusions. Is anyone else on Orencia? I would really like personal views. I am really concerned about this drug. ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG - www.avg.com Version: 9.0.851 / Virus Database: 271.1.1/3081 - Release Date: 08/19/10 01:35:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 good luck on orencia. I took it for 6 months. The first 3 months was the best but at the 4th month it would work for only 3 weeks then the last week would have a flare, the 5th month it lasted for 2 weeks then I would flare for 2 weeks, then the 6 month I flared and was changed to remicade. I hope you have better luck then I did with it. in land [ ] Orencia Help Haven't commented here much, but lurk in the sidelines a lot. I have been on Humira and Enbrel, with no success. Had appointment today, after 18 months, My RA is still considered severe and uncontrolled. Today, doc said she wants me to start Orencia Infusions. Is anyone else on Orencia? I would really like personal views. I am really concerned about this drug. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 I have been receiving orencia infusions for over one year now. I have no side effects. darlene Darlene Felder darlene.felder2@... [ ] Orencia Help Haven't commented here much, but lurk in the sidelines a lot. I have been on Humira and Enbrel, with no success. Had appointment today, after 18 months, My RA is still considered severe and uncontrolled. Today, doc said she wants me to start Orencia Infusions. Is anyone else on Orencia? I would really like personal views. I am really concerned about this drug. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 , Does the Remicade work for you? I don't remember why we chose to go from Orencia to Rituxan instead of Remicade. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 yes the remicade is working nicely for me. I had to increase the dosage because i had some break through flare at the end from 200mg iv to 500mg iv. I like the fact that I don't feel like a pin cushion every month and can go every 2 months instead. from land Re: [ ] Orencia Help , Does the Remicade work for you? I don't remember why we chose to go from Orencia to Rituxan instead of Remicade. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 I have been on Orencia for a few years and totally LOVE it. I haven't had any side effects that have noticed. Joyce Quote Link to comment Share on other sites More sharing options...
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