Re: Re: irritating people!

[Guest guest]

Sue

I know.just read up on the vaccine.I have a friend who said she had

shingles, took the vaccine and has never had another outbreak..huh? That

didn't make sense. The funny thing is that we are the ones getting the

shingles. I didn't seek treatment till a month later.I thought that it was

poison ivy..I went to the ER because my eye swelled up (I had cellulitis)

and at that point I thought oh no, I have this thing in my eye...

If its TREATED aggressively (with in 3 days) most people have no residual

pain left..So the motto is.ANY PAINFUL RASH IS SHINGLES TILL PROVEN

OTHERWISE...

I am surprised that they treated the shingles with steroids.

Deb Rn

From: [mailto: ] On

Behalf Of marysue

Sent: Thursday, August 12, 2010 3:30 PM

Subject: Re: [ ] Re: irritating people!

Deb,

My rheumy told me that they're not recommending the shingles vaccine

for those of us on immunosuppressant drugs, so I have not pursued it.

I've had shingles once, and my PCP attacked it aggressively so that I

had very little pain, only two or three days. I am thankful that she

knew what meds to give me. My sister had it, and her doctor had her go

back 4 or 5 times. She didn't get in soon after it started, though,

because it was over the Christmas holidays.

My advice is that if you think there's the possibility that you have

shingles, get to a doctor as fast as you can and make sure it's

treated aggressively. I think she gave me a steroid shot, plus an anti-

viral pill, an ointment, and some pain pills. I didn't need very many

of the pain pills.

Sue

[Guest guest]

,

Thanks for the well wishes….I never understood when the patients I cared for

complained of pain…it looks just like a little blistery rash..one would think

sure it’s a little uncomfortable…it is pain like I never imagines

possible….

Deb Rn

From: [mailto: ] On Behalf

Of Symens

Sent: Thursday, August 12, 2010 11:54 AM

Subject: Re: [ ] Re: irritating people!

Deb,

I am on biologics and will take your advice, my grandmother also had shingles

down south where you don't even want to imagine! It was very painful and she

was in the hospital for a week with it. I hope you get better and I am thinking

of you.

[Guest guest]

Love the new name - 'bout says it all !!

Marsha

---- jane <janeatregis@...> wrote:

>

> h'mmm...new name...let's see. how about HAD IT... " Horrible Autoimmune

Disorder, Inflammatory Type " . cuz a lot of days we have just HAD IT. had it with

the disease, had it with dense people, had it with the pain and fatigue.

> yep, today I have definitely had it. 14th day of over 100 degree weather, been

on antibiotics for 5 weeks, been constantly sick for the last three months. At

this point I would cheerfully say " screw it " and go be a beach bum somewhere. If

it weren't for the photosensitivity. )

> hang in there. Like Rich Mullins said, " my friends ain't the way I wish they

would be...they are just the way they are. "

[Guest guest]

Oh, , what a shame to have to give up a potential career! But, even if

you'd " toughed it out " somehow and gotten your degree, you would not have been

able to then do the work involved!

I guess we just have to make accomodations for this disease as we have to, and

know inside ourselves that we're doing the best we can. My new watchwords to

try to live by every day: Power and Grace. Do everything I can under my own

power, and when I can't, give it up to God's power. And the grace to accept

what I have to, with......well, grace - again, my own as far as it goes, and

then God's when mine fails. It's a good goal for me - just pretty hard to live

up to!

Marsha

---- Symens <denisesymens@...> wrote:

> When my RA symptoms got worse, I was in my last 20 hours of an internship for

my

> LPN.  My feet, wrist, and hands were so bad I could not walk my 8 hour shifts

or

> give medications to patients.  This was over a year ago, and I am still sad

> about it, and 10,000 in debt for nothing.  But, the nurse in charge was the

same

> way, and told me if I wanted my nursing degree bad enough, I would go through

> anything to get it.  Talk about an irritating person! I wanted to tell her to

> walk in my shoes for an hour!  I have still not completed my LPN, I still

can't

> walk even 2 hours and I have alot of fatigue and flu symptoms. 

>

> Oh well, I try to take it day by day,

>

[Guest guest]

> Does ambien make it difficult to wake up? For instance, if your smoke

detector alarm was going off, would you hear it? I'm a single parent with two

small kids and I've been afraid to take anything for fear that I wouldn't notice

something happening and my kids would somehow get hurt.

> J.

Just like everything some people have trouble with Ambien and other

similar medications. I find Lunesta, which is similar to Ambien to be

helpful, but only if used in conjunction with pain medications. I've

taken Lunesta or similar many nights for years. I don't think I have

ever slept through my alarm or my phone ringing. I've been a bit out

of it, woke up, turned my alarm off and went back to sleep, only later

in the morning when I wake up realizing that I had planed to get up

early for a reason.

I would try it when you have someone around if possible, otherwise,

ask your MD if you can start with a small dose and work your way up.