Re: Kate Question (one last time)

[Guest guest]

Hi Kate,

I was on Enbrel for 3 years and it worked so wonderful for me but my husband

changed jobs and the insurance covers everything EXCEPT enbrel. The

insurance company covers no injectable med as they say it's too expensive so

I'm having to go to Remicade, Humira, or Orencia and to be honest I'm scared

to death to try them. I have terrible side effects and it has been a battle

this past 7 years finding something that will work without those side

effects.

I have learned a lot from this group but don't seem to be finding what I'm

searching for which is people who are on these particular drugs and how it

has affected them.

Thank you for getting back to me.

Wishing you pain free days

Shay, Michigan

-- [ ] Question (one last time)

Please, if anyone in this group is on Humira or Orencia, could you please

tell me if you have had problems with it/them or any bad side effects? I

have asked and asked and no one will answer me. I don't know if I'm not

getting any answer because no one knows me because I'm new to the group but

I am unfamiliar with these drugs and although all drugs work differently

with everyone, I would just like to know how it has affected anyone here.

I see everyone else asking questions and getting their answers, yet no one

will answer mine. (Maybe I should join a different group?)

Shay in Michigan

[Guest guest]

Hi Shay, many consider Enbrel and Humira to be on the same tier.  What kind of

side effects did you have from Enbrel?  If you did ok on Enbrel, I would imagine

they would put you on an injectable like Humira before doing an infusion drug.

________________________________

From: Shay <sweetnsassy55@...>

Sent: Friday, April 10, 2009 10:39:47 AM

Subject: Re: [ ] Kate Question (one last time)

Hi Kate,

I was on Enbrel for 3 years and it worked so wonderful for me but my husband

changed jobs and the insurance covers everything EXCEPT enbrel. The

insurance company covers no injectable med as they say it's too expensive so

I'm having to go to Remicade, Humira, or Orencia and to be honest I'm scared

to death to try them. I have terrible side effects and it has been a battle

this past 7 years finding something that will work without those side

effects.

I have learned a lot from this group but don't seem to be finding what I'm

searching for which is people who are on these particular drugs and how it

has affected them.

Thank you for getting back to me.

Wishing you pain free days

Shay, Michigan

-- [ ] Question (one last time)

Please, if anyone in this group is on Humira or Orencia, could you please

tell me if you have had problems with it/them or any bad side effects? I

have asked and asked and no one will answer me. I don't know if I'm not

getting any answer because no one knows me because I'm new to the group but

I am unfamiliar with these drugs and although all drugs work differently

with everyone, I would just like to know how it has affected anyone here.

I see everyone else asking questions and getting their answers, yet no one

will answer mine. (Maybe I should join a different group?)

Shay in Michigan

[Guest guest]

Hi Kate,

That's the problem, though, I can't have injectables because the insurance

won't cover them. Oh how I wish it would because I could stay on my enbrel.

I had no side effects with the enbrel and was so happy with it. It's good to

hear that many consider enbrel and Humira to be close. I am dreading the

infusions because that means driving so much and I don't do well driving

long distances. That is painful.

Shay

-- [ ] Question (one last time)

Please, if anyone in this group is on Humira or Orencia, could you please

tell me if you have had problems with it/them or any bad side effects? I

have asked and asked and no one will answer me. I don't know if I'm not

getting any answer because no one knows me because I'm new to the group but

I am unfamiliar with these drugs and although all drugs work differently

with everyone, I would just like to know how it has affected anyone here.

I see everyone else asking questions and getting their answers, yet no one

will answer mine. (Maybe I should join a different group?)

Shay in Michigan

[Guest guest]

But Humira is an injectable, isn't it?

________________________________

From: Shay <sweetnsassy55@...>

Sent: Friday, April 10, 2009 11:01:47 AM

Subject: Re: [ ] Kate Question (one last time)

Hi Kate,

That's the problem, though, I can't have injectables because the insurance

won't cover them. Oh how I wish it would because I could stay on my enbrel.

I had no side effects with the enbrel and was so happy with it. It's good to

hear that many consider enbrel and Humira to be close. I am dreading the

infusions because that means driving so much and I don't do well driving

long distances. That is painful.

Shay

-- [ ] Question (one last time)

Please, if anyone in this group is on Humira or Orencia, could you please

tell me if you have had problems with it/them or any bad side effects? I

have asked and asked and no one will answer me. I don't know if I'm not

getting any answer because no one knows me because I'm new to the group but

I am unfamiliar with these drugs and although all drugs work differently

with everyone, I would just like to know how it has affected anyone here.

I see everyone else asking questions and getting their answers, yet no one

will answer mine. (Maybe I should join a different group?)

Shay in Michigan

[Guest guest]

I honestly don't know. All I was told was that I would have to go to

infusions and maybe they make Humira as an infusion?

-- [ ] Question (one last time)

Please, if anyone in this group is on Humira or Orencia, could you please

tell me if you have had problems with it/them or any bad side effects? I

have asked and asked and no one will answer me. I don't know if I'm not

getting any answer because no one knows me because I'm new to the group but

I am unfamiliar with these drugs and although all drugs work differently

with everyone, I would just like to know how it has affected anyone here.

I see everyone else asking questions and getting their answers, yet no one

will answer mine. (Maybe I should join a different group?)

Shay in Michigan

[Guest guest]

Nah, I doubt it.  Sounds like you might be in good shape after all!

________________________________

From: Shay <sweetnsassy55@...>

Sent: Friday, April 10, 2009 12:14:48 PM

Subject: Re: [ ] Kate Question (one last time)

I honestly don't know. All I was told was that I would have to go to

infusions and maybe they make Humira as an infusion?

-- [ ] Question (one last time)

Please, if anyone in this group is on Humira or Orencia, could you please

tell me if you have had problems with it/them or any bad side effects? I

have asked and asked and no one will answer me. I don't know if I'm not

getting any answer because no one knows me because I'm new to the group but

I am unfamiliar with these drugs and although all drugs work differently

with everyone, I would just like to know how it has affected anyone here.

I see everyone else asking questions and getting their answers, yet no one

will answer mine. (Maybe I should join a different group?)

Shay in Michigan

[Guest guest]

Shay, it's too bad that you can't stay on Enbrel. It must be

frustrating to have your insurance company, rather than your doctor,

deciding your medical care. It seems that maybe your doctor has

figured a way to get around the insurance by giving Humira as an

infusion, which they will pay for.

I agree that Enbrel and Humira are similar. Both of them are tumor

necrosis antagonists. Hopefully, the Humira will help you as much as

the Enbrel did. It's too bad that you'll have to drive so much. How

often do you have to have infusions of Humira? Maybe it won't be very

often.

I wish you luck, and please keep us informed.

Sue

On Apr 10, 2009, at 12:01 PM, Shay wrote:

> Hi Kate,

> That's the problem, though, I can't have injectables because the

> insurance

> won't cover them. Oh how I wish it would because I could stay on my

> enbrel.

> I had no side effects with the enbrel and was so happy with it. It's

> good to

> hear that many consider enbrel and Humira to be close. I am dreading

> the

> infusions because that means driving so much and I don't do well

> driving

> long distances. That is painful.

> Shay

[Guest guest]

I hope so!!

-- [ ] Question (one last time)

Please, if anyone in this group is on Humira or Orencia, could you please

tell me if you have had problems with it/them or any bad side effects? I

have asked and asked and no one will answer me. I don't know if I'm not

getting any answer because no one knows me because I'm new to the group but

I am unfamiliar with these drugs and although all drugs work differently

with everyone, I would just like to know how it has affected anyone here.

I see everyone else asking questions and getting their answers, yet no one

will answer mine. (Maybe I should join a different group?)

Shay in Michigan

[Guest guest]

i am confused humira is an injectable like enbrel. if they will give you

humira why not enbrel. can't your rheumy intervene? or you could get

enliven to talk to your ins co. sometimes they can intervene.

monique

[Guest guest]

I am as confused as you are Hun. I just know that at first we were told that

our insurance would no longer cover the Enbrel due to the cost and that

enbrel was the ONLY drug it would not cover. Then talking with Express

Scripts, we were told that NO injectables were covered due to the cost. My

Rheumy is the one who called me and told me that we had to get me on

something else right away and she mentioned Humira and Orencia. Could she

have misspoken when she said Humira? She very well could have. I go to see

her on the 22nd of this month so I will find out more then. I'm with you, it

makes no sense to me.

Shay

-- [ ] Re: Kate Question (one last time)

i am confused humira is an injectable like enbrel. if they will give you

humira why not enbrel. can't your rheumy intervene? or you could get

enliven to talk to your ins co. sometimes they can intervene.

monique

------------------------------------