Guest guest Posted August 9, 2010 Report Share Posted August 9, 2010 I tried ambien once, I had worse nightmares then I do now. So rather have the creepy nightmares about nasty bugs then the once the really scare the living death out of me. As for people not getting it, I can relate, told my friend that I could not help him lift a mower up and he was like its simple you can do it, I said no, not anymore. I could do it 6 months ago with out an issue, now my hands hurt too much to pick up anything. from maryland [ ] irritating people! Hi, ya'll - I'm beginning to see what you mean about the people who " just don't get it " - and it's infuriating! Last week I had lunch with a friend, and told them I'm letting my real estate license go inactive, as there's simply too much as a Realtor that I can't do anymore. He was surprised, and asked why - when I told him it's because of my RA, he said " well, yeah - but what's that got to do with your JOB?? " Creep. And this morning: another friend, upon being told that I have RA, said " oh, I have arthritis too - but so what, you just have to keep on goin' " . It's ridiculous. Sort of like " I have cancer. Oh, I have a cold too - well, comparable, huh, they both start with a C? " Sheesh !! I say we should just change the name of the whole disease! Let's make up a NEW one. And here's my take on those sleepless nights: try AMBIEN on occasion; It's great. Marsha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2010 Report Share Posted August 9, 2010 Ugh! I really hate to admit it but before I got it I thought " RA big whoop who doesn't have a swollen joint or two? " I try to remember that but I still get irritated too!!! Seems every time I'm not feeling well people ask " oh did you catch a cold? " Nope! Same reason I feel like crud every single day! Maybe in another year they'll get it? Probably not. Candace No shadows to depress you Only joys to surround you Many friends to love you God himself to bless you These are my wishes for you, For today, tomorrow & everyday. Sent from my iPhone On Aug 9, 2010, at 3:53 PM, " ladymarsden " <mardar@...> wrote: > Hi, ya'll - I'm beginning to see what you mean about the people who " just don't get it " - and it's infuriating! Last week I had lunch with a friend, and told them I'm letting my real estate license go inactive, as there's simply too much as a Realtor that I can't do anymore. He was surprised, and asked why - when I told him it's because of my RA, he said " well, yeah - but what's that got to do with your JOB?? " Creep. And this morning: another friend, upon being told that I have RA, said " oh, I have arthritis too - but so what, you just have to keep on goin' " . It's ridiculous. Sort of like " I have cancer. Oh, I have a cold too - well, comparable, huh, they both start with a C? " Sheesh !! I say we should just change the name of the whole disease! Let's make up a NEW one. > > And here's my take on those sleepless nights: try AMBIEN on occasion; It's great. > Marsha > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2010 Report Share Posted August 9, 2010 Ambien makes me hallucinate. I stay up all night talking and yelling jibberish. The first 2 nights I took it I couldn't believe how horrible I felt in the morning. Third night I had my friend Jess stay over and she informed me I'd locked myself in my bedroom and was having a nonsensical yelling match with.... No one. Yikes! Candace No shadows to depress you Only joys to surround you Many friends to love you God himself to bless you These are my wishes for you, For today, tomorrow & everyday. Sent from my iPhone On Aug 9, 2010, at 9:57 PM, " Massey " <renandstimpy3@...> wrote: > I tried ambien once, I had worse nightmares then I do now. So rather have the creepy nightmares about nasty bugs then the once the really scare the living death out of me. As for people not getting it, I can relate, told my friend that I could not help him lift a mower up and he was like its simple you can do it, I said no, not anymore. I could do it 6 months ago with out an issue, now my hands hurt too much to pick up anything. > > from maryland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2010 Report Share Posted August 10, 2010 my daughter and s-i-l were over for dinner a couple weeks ago. He has a friend who was recently diagnosed with Crohn's disease and was asking what we knew about it. I tried to explain it without really alarming him. To my surprise, my daughter went into a detailed explanation about autoimmune disorders and how your body attacks itself, etc, then explained my RA and fibro to him. She's 23 and has lived with me being sick since she was 3. I don't know why I was surprised that she had done so much research and was so knowledgeable, because she's that kind of person. Then I got to thinking about how many of my friends had done the same thing. Although I do meet a lot of clueless people, the ones who DO care enough to educate themselves have been a real blessing in my life. I am a lucky girl. > > > Hi, ya'll - I'm beginning to see what you mean about the people who " just don't get it " - and it's infuriating! Last week I had lunch with a friend, and told them I'm letting my real estate license go inactive, as there's simply too much as a Realtor that I can't do anymore. He was surprised, and asked why - when I told him it's because of my RA, he said " well, yeah - but what's that got to do with your JOB?? " Creep. And this morning: another friend, upon being told that I have RA, said " oh, I have arthritis too - but so what, you just have to keep on goin' " . It's ridiculous. Sort of like " I have cancer. Oh, I have a cold too - well, comparable, huh, they both start with a C? " Sheesh !! I say we should just change the name of the whole disease! Let's make up a NEW one. > > > > And here's my take on those sleepless nights: try AMBIEN on occasion; It's great. > > Marsha > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2010 Report Share Posted August 10, 2010 So many do not realize that RA and what people call arthritis..they are two different things..btw I have crohns as well Deb RN From: [mailto: ] On Behalf Of jane Sent: Tuesday, August 10, 2010 12:25 PM Subject: [ ] Re: irritating people! my daughter and s-i-l were over for dinner a couple weeks ago. He has a friend who was recently diagnosed with Crohn's disease and was asking what we knew about it. I tried to explain it without really alarming him. To my surprise, my daughter went into a detailed explanation about autoimmune disorders and how your body attacks itself, etc, then explained my RA and fibro to him. She's 23 and has lived with me being sick since she was 3. I don't know why I was surprised that she had done so much research and was so knowledgeable, because she's that kind of person. Then I got to thinking about how many of my friends had done the same thing. Although I do meet a lot of clueless people, the ones who DO care enough to educate themselves have been a real blessing in my life. I am a lucky girl. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2010 Report Share Posted August 10, 2010 Yes, it's unfortunate how ignorant some people can be. I lost a few so called friends because I couldn't keep plans. I am lucky to have some friends & family who try to understand best they can & are very caring. joey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Luckily, I do have 2 sons who are very supportive and understanding. I said to one yesterday that it felt like someone had smacked my hands with hammers, and he said " Who the hell did that? Point me to him, I'll put him 6 ft. under for you! " Would that it were so easy! Marsha [ ] Re: irritating people! Yes, it's unfortunate how ignorant some people can be. I lost a few so called friends because I couldn't keep plans. I am lucky to have some friends & family who try to understand best they can & are very caring. joey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Wow, Deb. that's a lot to deal with at the same time. Is Remicade the biologic that they use for Crohn's? I hope they're able to keep the symptoms in control for you. best wishes. Jane > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 In a message dated 8/11/2010 11:27:09 A.M. Central Daylight Time, janeatregis@... writes: Wow, Deb. that's a lot to deal with at the same time. Is Remicade the biologic that they use for Crohn's? I hope they're able to keep the symptoms in control for you. best wishes. Jane > > So many do not realize that RA and what people call arthritis..they are two > different things..btw I have crohns as well > > Deb RN > > I've had Crohn's for about 40 years -- much of it in remission -- and developed RA at 64. We did choose Remicade because it's helpful for both Crohn's and RA. dd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Jane, That's just the beginning of the list, I have adhesive arachnoiditis as well..and my newest, and the one that has got me at the lowest point I have ever been at..drummm rollll,,,,(there is a method to my madness) I had a lovely case of shingles and now have PHN (post herpetic neuralgia) this is the only pain that I have experienced in my life that is not ameniable to pain medicine. PLEASE PLEASE PLEASE anyone who is on biologics PLEASE take the necessary precautions to get the shingles vaccine.I would warn my worst enemy to get this.... YES, I was on remicade for 5 plus years before it finally failed, then went on to orencia.which was excellent. Unfortunatly I was forced to go off of all biologics due to the copay cost of 1800.00 a month.,.. Its all good. MTX has been the best med that I have ever found, and the cheapest by far. Deb RN From: [mailto: ] On Behalf Of dgd301@... Sent: Wednesday, August 11, 2010 3:04 PM Subject: Re: [ ] Re: irritating people! In a message dated 8/11/2010 11:27:09 A.M. Central Daylight Time, janeatregis@... <mailto:janeatregis%40> writes: Wow, Deb. that's a lot to deal with at the same time. Is Remicade the biologic that they use for Crohn's? I hope they're able to keep the symptoms in control for you. best wishes. Jane --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Deb, I am on biologics and will take your advice, my grandmother also had shingles down south where you don't even want to imagine! It was very painful and she was in the hospital for a week with it. I hope you get better and I am thinking of you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 When my RA symptoms got worse, I was in my last 20 hours of an internship for my LPN. My feet, wrist, and hands were so bad I could not walk my 8 hour shifts or give medications to patients. This was over a year ago, and I am still sad about it, and 10,000 in debt for nothing. But, the nurse in charge was the same way, and told me if I wanted my nursing degree bad enough, I would go through anything to get it. Talk about an irritating person! I wanted to tell her to walk in my shoes for an hour! I have still not completed my LPN, I still can't walk even 2 hours and I have alot of fatigue and flu symptoms. Oh well, I try to take it day by day, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 > > And here's my take on those sleepless nights: try AMBIEN on occasion; It's great. Does ambien make it difficult to wake up? For instance, if your smoke detector alarm was going off, would you hear it? I'm a single parent with two small kids and I've been afraid to take anything for fear that I wouldn't notice something happening and my kids would somehow get hurt. J. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 h'mmm...new name...let's see. how about HAD IT... " Horrible Autoimmune Disorder, Inflammatory Type " . cuz a lot of days we have just HAD IT. had it with the disease, had it with dense people, had it with the pain and fatigue. yep, today I have definitely had it. 14th day of over 100 degree weather, been on antibiotics for 5 weeks, been constantly sick for the last three months. At this point I would cheerfully say " screw it " and go be a beach bum somewhere. If it weren't for the photosensitivity. ) hang in there. Like Rich Mullins said, " my friends ain't the way I wish they would be...they are just the way they are. " > > Hi, ya'll - I'm beginning to see what you mean about the people who " just don't get it " - and it's infuriating! Last week I had lunch with a friend, and told them I'm letting my real estate license go inactive, as there's simply too much as a Realtor that I can't do anymore. He was surprised, and asked why - when I told him it's because of my RA, he said " well, yeah - but what's that got to do with your JOB?? " Creep. And this morning: another friend, upon being told that I have RA, said " oh, I have arthritis too - but so what, you just have to keep on goin' " . It's ridiculous. Sort of like " I have cancer. Oh, I have a cold too - well, comparable, huh, they both start with a C? " Sheesh !! I say we should just change the name of the whole disease! Let's make up a NEW one. > > And here's my take on those sleepless nights: try AMBIEN on occasion; It's great. > Marsha > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Deb, My rheumy told me that they're not recommending the shingles vaccine for those of us on immunosuppressant drugs, so I have not pursued it. I've had shingles once, and my PCP attacked it aggressively so that I had very little pain, only two or three days. I am thankful that she knew what meds to give me. My sister had it, and her doctor had her go back 4 or 5 times. She didn't get in soon after it started, though, because it was over the Christmas holidays. My advice is that if you think there's the possibility that you have shingles, get to a doctor as fast as you can and make sure it's treated aggressively. I think she gave me a steroid shot, plus an anti- viral pill, an ointment, and some pain pills. I didn't need very many of the pain pills. Sue On Aug 11, 2010, at 4:46 PM, Deb wrote: > Jane, > > That's just the beginning of the list, I have adhesive arachnoiditis > as > well..and my newest, and the one that has got me at the lowest point > I have > ever been at..drummm rollll,,,,(there is a method to my madness) I > had a > lovely case of shingles and now have PHN (post herpetic neuralgia) > this is > the only pain that I have experienced in my life that is not > ameniable to > pain medicine. > > PLEASE PLEASE PLEASE anyone who is on biologics PLEASE take the > necessary > precautions to get the shingles vaccine.I would warn my worst enemy > to get > this.... > > YES, I was on remicade for 5 plus years before it finally failed, > then went > on to orencia.which was excellent. Unfortunatly I was forced to go > off of > all biologics due to the copay cost of 1800.00 a month.,.. > > Its all good. > > MTX has been the best med that I have ever found, and the cheapest > by far. > > Deb RN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 > > Just like everything some people have trouble with Ambien and other > similar medications. I find Lunesta, which is similar to Ambien to be > helpful, but only if used in conjunction with pain medications. I've > taken Lunesta or similar many nights for years. I don't think I have > ever slept through my alarm or my phone ringing. I've been a bit out > of it, woke up, turned my alarm off and went back to sleep, only later > in the morning when I wake up realizing that I had planed to get up > early for a reason. Just thinking about getting a really good sleep makes me remember several years ago when I had to be put to sleep for a medical procedure. My sister brought me home after I woke up and I got home, went straight to bed, and slept the best sleep I've slept in many a year. Too bad I can't sleep off anesthesia every night, that would be wonderful. J. Quote Link to comment Share on other sites More sharing options...
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