Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 I am in a flare right now. Or maybe this is just my new normal, which isn't pretty. I've started the Remicade back in October. I had been on Enbrel for a year, but it wasn't working well for me. With the last infusion of remicade I went from 3 to 4 vials. I was already in a nasty flare, it is now two weeks after that infusion. The flare has gotten worse, I was hoping that the remicade was just going to take a while and I would feel better. If I walk, my feet and knees are in pain for days after. I walked up and down the stairs in the house last night. It took two vicodin, and a few hours with ice packs to make my hips stop hurting enough to sleep. My hands, elbows, shoulders, and jaws aren't any better. I take all my meds exactly the way I am supposed to. MTX 25 mg once a week. Sulindac, Prednisone, daily are some of the major parts of my 'cocktail'. If I miss anything, I am in more pain, so I am very careful not to miss anything. I suppose, I will have to up my remicade and move the infusions closer together, maybe that will work better. Right now I feel like I am living on vicodin. Yes, I would like some cheese and crackers with this whine, please. Quote Link to comment Share on other sites More sharing options...
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