restless legs

[Guest guest]

Dear ,

I have this also- it is worse at night. It goes by a few names: Periodic Leg

Movements and

Restless Legs and Nocturnal Myoclonus.

My doc gave me a small dose (.5) of Klonopin at bedtime and that took care of

it. I know what you mean about the feeling driving you nuts. Good Luck at the

docs

..>Subject: restless legs

Sending healing thoughts your way-

and God Bless You,

aka CTNATIVE

Vaya Con Dios

[Guest guest]

In a message dated 08/06/1999 5:09:42 PM Eastern Daylight Time,

SAWalter@... writes:

<< Does any one experience restless legs? >>

LeeAnn..I have Restless Legs also, but only several times a month so far. My

mama had them also and got relief from it with Quinine. I am told that

quinine water also does the trick.

I tell my girls that Restless Legs is when your legs feel so " nervous " they

are about to jump out of their skin. Very uncomfortable, but not actually

pain.

Annette

[Guest guest]

Lee Ann,

I get restless legs when I'm sitting too long. I notice it most on long car

rides. I've had problems with this since high school.

Amy

[Guest guest]

Yes Lee Ann, often times I have them while we're watching TV and sometimes I

just get up at nite amd walk for a while.. I've heard many older people

describe it as " my legs are fidgity " Don't know the cure. Betty in Va

[Guest guest]

Sometimes I get restless legs but it helps if I sleep on my stomach. I'm

not sure why but it does. I just wish it would go away.

Dez

[Guest guest]

That is exactly what happens to me! It is frustrating. We have a TV in our

bedroom so I can still watch if I am not sleepy. It is horrible feeling like

your legs are going to take off!

Lee Ann

[ ] Restless legs

Hi Leann,

Yes, I have restless legs too, although not all the times. Actually it is

quite infrequent, but when it does happen, it is quite uncomfortable and

frustrating. It's kind of a joke arounsd here now. When this happenes, I

simply say " My legs are telling me it's time for bed " and off I go. I don't

even try to stay up anymore. When I get to bed and lay down, it usually

subsides. I read or watch TV in my room, sometimes with the kids, until I'm

tired.

[Guest guest]

Lee Ann - I have that - part of my panic attacks - and my husband who has PA

has that exact feeling in his ankles. I'm wondering about this symptom...

>From: " Lee Ann Walter " <SAWalter@...>

>Reply- onelist

>< onelist>

>Subject: [ ] restless legs

>Date: Fri, 6 Aug 1999 15:29:00 -0500

>

>From: " Lee Ann Walter " <SAWalter@...>

>

>Does any one experience restless legs? Mine are ok until about 8

>in the evening. I start getting tired and my legs drive me nuts!

>Sometimes I just give up and go to bed because it is so

>uncomfortable. They feel like they are going to get up and walk

>away.

>Lee Ann

>

>

>---------------------------

[Guest guest]

In a message dated 6/3/2001 10:15:58 AM Eastern Daylight Time,

emdube@... writes:

>

> I have restless legs all the time....it's awful. Hardly getting any sleep

> at

> all. I'm on Doxepin, which did help for a while( small dose 20 mg) now I am

> taking 40 mg and it's not helping. I'm going to start taking it earlier(5-6

> pm) see if that helps

Dear Eleanor,

I used to have Restless Legs all the time, but the IV antibiotics gave me

reprieve from it. Now that I'm off IV, it has started coming back, but not

nearly as badly as before.

Klonopin has helped relieve my Restless Legs more than any of the other meds

I've tried, but one of my friends gets better relief from Mirapex.

In any case, be sure to take Vitamin E, either 400 or 800 IU per day. That

will give you some relief.

Wishing you restful sleep,

Hugs,

a Aida

[Guest guest]

At the risk of sounding stupid, " what is restless legs? "

Re: [ ] Restless legs

In a message dated 6/3/2001 10:15:58 AM Eastern Daylight Time,

emdube@... writes:

>

> I have restless legs all the time....it's awful. Hardly getting any sleep

> at

> all. I'm on Doxepin, which did help for a while( small dose 20 mg) now I am

> taking 40 mg and it's not helping. I'm going to start taking it earlier(5-6

> pm) see if that helps

Dear Eleanor,

I used to have Restless Legs all the time, but the IV antibiotics gave me

reprieve from it. Now that I'm off IV, it has started coming back, but not

nearly as badly as before.

Klonopin has helped relieve my Restless Legs more than any of the other meds

I've tried, but one of my friends gets better relief from Mirapex.

In any case, be sure to take Vitamin E, either 400 or 800 IU per day. That

will give you some relief.

Wishing you restful sleep,

Hugs,

a Aida

[Guest guest]

That is truly Restless leg............different than Period Limb Movement

Disorder...........Restless leg is usually treated with Parkinson's Disease

Medications.........check out this site.........It might help you with

this.......

Connie nwnj

http://www.mlists.net/judson/Elaty.html

Leave no stone unturned.......and ask questions!

[Guest guest]

Eleanor,

What is your dose and what do you feel like the next morning concerning how your

brain feels-I have so much brain fog the next morning taking most

medications, I have some, need to take it but also need full brain(or what's

left) the next morning.

Coleen

Eleanor Dube wrote:

> connie---great site--thank you so much. Have suffered with restless legs for

> years. I am currently taking Klonopin, but nice to know there are so many

> other options. ---Eleanor

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

[Guest guest]

Klonopin stays in the body a long time..........so take it

earlier..........Learned that the hard way.........or talk to your doctor

about switching to something similar.........which stays in the body for a

shorter time............I think Klonopin is like 12 hours.......extremely

long............giving you that hang-over feeling.............epam is

similar to Klonopin........but doesn't stay as long in the body, I think

half the time..........and you awake without feeling hung over............it

too is a benzoid........talk to your Dr. about it!!!!!

Connie nwnj

Leave no stone unturned.......and ask questions!

[Guest guest]

Then there are two different syndromes with the same name, but the

literature I've read is as I described below.

Foxx

Restless legs syndrome

I'd be interested in this too. Actually tho, what you are describing is

not restless legs syndrome, which is a creepy crawly feeling in the legs

that is only relieved by moving them and therefore keeps you awake.

(This is what I'd like info on.) It is present during the day too, but

is either less or less noticeable.

Moving the legs when you are asleep has another name, I don't recall how

mucht the two syndromes are correlated.

Foxx

-

[Guest guest]

Overview

Periodic limb movement disorder (PLMD) and restless leg syndrome (RLS) are distinct disorders, but often occur simultaneously. Both PLMD and RLS are also called (nocturnal) myoclonus, which describes frequent or involuntary muscle spasms. Periodic limb movement was formally described first in the 1950s, and, by the 1970s, it was listed as a potential cause of insomnia. In addition to producing similar symptoms, PLMD and RLS are treated similarly. Periodic Limb Movement Disorder Periodic limb movement disorder affects people only during sleep. The condition is characterized by behavior ranging from shallow, continual movement of the ankle or toes, to wild and strenuous kicking and flailing of the legs and arms. Furthermore, abdominal, oral, and nasal movement sometimes accompanies PLMD. Movement of the legs is more typical than movement of the arms in cases of PLMD. Movements typically occur for 0.5 to 10 seconds, in intervals separated by five to 90 seconds. In 1979, the Association of Sleep Disorder Centers (ASDC) set the parameters for determining the presence of PLMD:

A formal diagnosis of nocturnal myoclonus requires three periods during the night, lasting from a few minutes to an hour or more, each containing at least 30 movements followed by partial arousal or awakening. (ASDC 1979) Today, these parameters are a bit more relaxed, and PLMD usually includes any repetitive, involuntary movement during the night. These limb movements usually occur in deep stage two sleep, but often cause arousal. Thus, PLMD can cause poor sleep, which may lead to sleep maintenance insomnia and/or excessive daytime sleepiness. The incidence of PLMD increases with age. It is estimated to occur in 5% of people age 30 to 50 and in 44% of people over the age of 65. As many as 12.2% of patients suffering from insomnia and 3.5% of patients suffering from excessive daytime sleepiness may experience PLMD. Back to Top Restless Leg Syndrome Restless leg syndrome was described as early as the 16th century but was not studied until the 1940s. People with RLS complain of an irresistible urge to move their legs while at rest. A person with RLS will experience a vague, uncomfortable feeling while at rest that is only relieved by moving the legs. The symptoms of RLS may be present all day long, making it difficult for an individual to sit motionless. Or they may be present only in the late evening. Late evening symptoms can lead to sleep onset insomnia, which tends to compound the effects of RLS. Pregnancy, uremia, and post-surgery conditions have also been known to increase the incidence of RLS. And, surprisingly, fever seems to decrease it. Although one study found RLS to be most prevalent in middle-aged females, its incidence increases with age. Restless leg syndrome is estimated to affect 5% of the population. Approximately 80% of people with RLS have PLMD, though most people with PLMD do not experience RLS.

Restless legs syndromeI'd be interested in this too. Actually tho, what you are describing isnot restless legs syndrome, which is a creepy crawly feeling in the legsthat is only relieved by moving them and therefore keeps you awake.(This is what I'd like info on.) It is present during the day too, butis either less or less noticeable.Moving the legs when you are asleep has another name, I don't recall howmucht the two syndromes are correlated.Foxx-

[Guest guest]

Thanks Rosemary for all this info.

Foxx

-----Original Message-----From: Rosemary Herron [mailto:reherron@...] Sent: Saturday, July 19, 2003 1:18 PM Subject: Re: Restless legs

Overview

Periodic limb movement disorder (PLMD) and restless leg syndrome (RLS) are distinct disorders, but often occur simultaneously. Both PLMD and RLS are also called (nocturnal) myoclonus, which describes frequent or involuntary muscle spasms. Periodic limb movement was formally described first in the 1950s, and, by the 1970s, it was listed as a potential cause of insomnia. In addition to producing similar symptoms, PLMD and RLS are treated similarly. Periodic Limb Movement Disorder Periodic limb movement disorder affects people only during sleep. The condition is characterized by behavior ranging from shallow, continual movement of the ankle or toes, to wild and strenuous kicking and flailing of the legs and arms. Furthermore, abdominal, oral, and nasal movement sometimes accompanies PLMD. Movement of the legs is more typical than movement of the arms in cases of PLMD. Movements typically occur for 0.5 to 10 seconds, in intervals separated by five to 90 seconds. In 1979, the Association of Sleep Disorder Centers (ASDC) set the parameters for determining the presence of PLMD:

A formal diagnosis of nocturnal myoclonus requires three periods during the night, lasting from a few minutes to an hour or more, each containing at least 30 movements followed by partial arousal or awakening. (ASDC 1979) Today, these parameters are a bit more relaxed, and PLMD usually includes any repetitive, involuntary movement during the night. These limb movements usually occur in deep stage two sleep, but often cause arousal. Thus, PLMD can cause poor sleep, which may lead to sleep maintenance insomnia and/or excessive daytime sleepiness. The incidence of PLMD increases with age. It is estimated to occur in 5% of people age 30 to 50 and in 44% of people over the age of 65. As many as 12.2% of patients suffering from insomnia and 3.5% of patients suffering from excessive daytime sleepiness may experience PLMD. Back to Top Restless Leg Syndrome Restless leg syndrome was described as early as the 16th century but was not studied until the 1940s. People with RLS complain of an irresistible urge to move their legs while at rest. A person with RLS will experience a vague, uncomfortable feeling while at rest that is only relieved by moving the legs. The symptoms of RLS may be present all day long, making it difficult for an individual to sit motionless. Or they may be present only in the late evening. Late evening symptoms can lead to sleep onset insomnia, which tends to compound the effects of RLS. Pregnancy, uremia, and post-surgery conditions have also been known to increase the incidence of RLS. And, surprisingly, fever seems to decrease it. Although one study found RLS to be most prevalent in middle-aged females, its incidence increases with age. Restless leg syndrome is estimated to affect 5% of the population. Approximately 80% of people with RLS have PLMD, though most people with PLMD do not experience RLS.

[Guest guest]

Potassium. Have her eat a banana and see if that helps. If she is

low blood volume, that *might* mean that she is low in minerals,

just like an athlete who only rehydrates with water. It worked for

me. After getting dehydrated, I had RLS, ate a took some potassium,

and then started back on bananas and the RLS went away. At least

it can't hurt her.

Mike C.

>

>

> My friend who has ME has been diagnosed with RLS,she suffers with

it rather

> badly.

> Her doctor gave her neurontin to try.

> It has helped a lot.The problem is she is getting some unwanted

side effects,

> dizziness and cognitive impairment.

>

> She would rather not be taking this medication.

> Has anyone found successful treatments for RLS that does not

include anti

> seizure

> medication?

>

> Cheers

[Guest guest]

I definately suggest giving quinine a try. Besides treating RLS it is a

unique antibiotic and is also a muscle relaxer. It was one of my miracle

drugs years ago.

>

>

> My friend who has ME has been diagnosed with RLS,she suffers with it

rather

> badly.

> Her doctor gave her neurontin to try.

> It has helped a lot.The problem is she is getting some unwanted side

effects,

> dizziness and cognitive impairment.

>

> She would rather not be taking this medication.

> Has anyone found successful treatments for RLS that does not include anti

> seizure

> medication?

>

> Cheers

>

>

[Guest guest]

We believe that Restless Leg is directly connected to ME, CFS and

Fibroylalgia.

RLS seems to be directly related to lack of deep restorative sleep.

Tell your pal to try an Eye Mask and Ear Plugs to get good, deep sleep all

night.

It doesn't sound like it would make much of a difference, but remember, we're

dealing with bodies that are working differently.

Don't know about the Neurontin, but I use Paxil to keep signals working

properly. When I took it in the a.m., it make me dull.

Taking it at night it seems to work better, and without the daytime cognition

problems.

You might discuss this with your doctor or pharmacist.

--

Can't go to sleep or back to sleep? Tired, stiff, in terrible pain?

Can't think clearly? Weight gain? Acid reflux? Tingling? Fatigue?

Read about Fibromyalgia and the first ever completely effective

treatment. All info is free.

http://

www.

fibrofix.

com

[Guest guest]

You might consider trying the homeopathic remedy zincum metallicum. I used

to have RLS years ago, and went to a homeopathic doctor, who treated me with

1 dose of zincum metallicum at the 1M potency. It wasn't specifically for

the RLS, but never the less, it cured it. (He wasn't able to help me with

any of my other symptoms) But lower doses of zincum metallicum are often

used to treat RLS.

Another thing that comes to mind is that I have a friend who had RLS, and it

turned out she had sleep apnea. The lack of oxygen would trigger kind of a

panic response, and she would wake enough to breath, and would kick in

response, and feel restless because of the lack of oxygen. Her RLS

disappeared when she was put on a CPAP machine to improve her sleep apnea.

When I took antidepressants, they triggered terrible sleep apnea problems in

me, and I was literally being woken hundreds of times at night, many times

gasping and feeling like I was suffocating. (Not to mention that

antidepressants triggered a panic attack problem in me that didn't go away

once the antidepressants were stopped) But the interruptions in my sleep

made me more exhausted than the insomnia problems. I find it ironic that

they are now prescribing the same antidepressants that caused sleep apnea in

me for people with sleep apnea. And those same antidepressants that caused a

panic attack problem in me are now being prescribed specifically to treat

panic attack problems. Unfortunately, doctors could run tests to determine

ahead of time what a person's reactions to them would be, but no doctors do

so. In my case, even more than a year and a half later, I still occasionally

have panic attacks, and I did not have them before I took antidepressants.

The fact that antidepressants can cause permanent damage to the brain should

warrant a lot more care in prescribing them than doctors are using.

My bioneurofeedback therapist says that antidepressants (especially SSRI's,

like Paxil) are used to keep children who have bed wetting problems from

sleeping so deeply. So they may help some, but may make sleep problems worse

in others. I ended up being someone who had terrible reactions to all the

antidepressants that I tried. (Including Paxil) And finally, my

bioneurofeedback therapist convinced me that I wouldn't benefit from any

antidepressants because of the particular brain wave patterns that I have.

Which brings up the option that you might consider bioneurofeedback therapy.

They do use it to help some people with RLS, and it is also very beneficial

for people with insomnia and can help in pain management in Fibromyalgia,

among other problems.

lindaj@...

Restless Legs

>

>

> My friend who has ME has been diagnosed with RLS,she suffers with it

rather

> badly.

> Her doctor gave her neurontin to try.

> It has helped a lot.The problem is she is getting some unwanted side

effects,

> dizziness and cognitive impairment.

>

> She would rather not be taking this medication.

> Has anyone found successful treatments for RLS that does not include anti

> seizure

> medication?

>

> Cheers

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

Hello and group,

Regarding the Neurontin, make sure that your friend is taking it with some

protein each time she takes it and also that she takes it every six hours. By

doing these two things, side effects for most people are alleviated.

Du Pre

Website: http://www.angelfire.com/jazz/isaiah40soaringeagle/index.html

" By words the mind is winged. " Aristophanes

[Guest guest]

Hi ,

Magnesium injections worked a treat for me.

Kindest regards,

Annette

________________________________________________________________________

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[Guest guest]

Annette,

Magnesium is an NMDA receptor blocker and it works for me too. There are

other NMDA receptor blockers but magnesium has so many other benefits for

PWC that its the obvious first choice.

Rob

----- Original Message -----

From: " Annette Barclay " <annette_barclayuk@...>

Hi ,

Magnesium injections worked a treat for me.

[Guest guest]

If you go and buy magnesium at your local store it will probably be a

laxative.

I made this page to sort out the different mags.

http://www.geocities.com/GuaiWhey/Mg1.htm

> Annette,

>

> Magnesium is an NMDA receptor blocker and it works for me too. There are

> other NMDA receptor blockers but magnesium has so many other benefits for

> PWC that its the obvious first choice.

>

> Rob

>>

> Hi ,

>

> Magnesium injections worked a treat for me.

>

>

[Guest guest]

I do believe that restless legs has been known and been around for some time

now. It is a very uncomfortable condition that not only disturbs your sleep but

will leave you with pains in your legs the following day to the point where you

cannot walk. I have had this condition for quite a number of years and was told

by my GP that I inherited it from my mother who I know did have this condition.

I also have sleep apnea but attribute the waking in the early mornings to the

hum of the emf. From these assaults I've also developed tinnitus, inflamation

of the gall bladder and liver, irritable bowel syndrome, indigestion, pseudo

porphyria with itchy skin, short term memory loss, pseudo hypoglycemia, blurred

vision and an over-run of candidas. I'm sure there are more but can't quite

remember all of the illnesses. I've been taking vitamins which help every so

slightly but I appreciate any amount of help. I don't have the funds to buy any

of the items advertised to divert stray emf's.

---------------------------------

Post your free ad now! Canada Personals

[Guest guest]

>From these assaults I've also developed tinnitus, inflamation of the

>gall >bladder and liver, irritable bowel syndrome, indigestion, pseudo

>porphyria with >itchy skin, short term memory loss, pseudo hypoglycemia,

>blurred vision and an >over-run of candidas. I'm sure there are more but

>can't quite remember all of >the illnesses.

If you went into an alternative health practitioner with this list of

symptoms, you would most likely be diagnosed as having heavy metal

poisoning, and told to have your metal dental work removed and start taking

things to pull the heavy metals out of your body (sea vegetables,

chlorella, cilantro, DMSA, EDTA). They would view the irritable legs as a

SYMPTOM of heavy metal poisoning, not the cause of these other problems.

ES is also viewed by some as symptom of heavy metal poisoning.

Marc