restless legs

[Guest guest]

Hi , Im sure your burning sensation is because of your swelling. Have you

tried taking ebsom salt baths? Ive heard they help!! Bill

Bill Middleton <middleton.bill@...>

[Guest guest]

I too have restless legs. I notice it especially when I first get

into bed. I have always rubbed my feet together when going to sleep.

But now it's my legs. I rub my legs back and forth for about 15

minutes before going to sleep. I think it's because I'm so tired from

having PA.

My husband says I even rub my legs during my sleep. I haven't have

had Restless Leg Syndrome diagnosed yet. I'm on so much medicine

already. I hate to add one more to the bunch. I take clonazepam to

help me sleep.

My legs swell at times, due to retaining fluid. I take a blood

pressure medicine with a diuretic to keep the swelling down.

I hope things get better for you soon.

Rhonda

[Guest guest]

Thanks for your reply. I am really hopping it isn't nueropathy because I am

also diabetic. But you are right I am gonna tell my doctor, kind of scared of

the test for nerve dammage. LOL. Thanks

tracy mathess <spacytracy22265@...>

[Guest guest]

, what is it that you are hoping it isn't nueropathy, your restless leg

syndrome. someone told me zinc tablets help that love you mom

[Guest guest]

I've had it for several years at night on and off.  I have found that if I sleep

on my hip too much or drink too much caffeine or do not drink enough water it

happens.  I've never taken medication for this nor do I want to.  When it

happens I keep trying to have my attendant reposition me several times and it

does not work, but if I drink a little water it stops and I fall back asleep.  I

know this sounds weird but it works for me!

Regards,

Patti

[Guest guest]

Wow Maggie! Do you have me thinking tonight! I have many nights when I am plagued by restless leg syndrome and I deal with a chronic rash on my abdomen that drives me crazy. I never thought that it might be from salicylilates!!!

Jane

From: Maggie <maggieuig1@...>Subject: restless legssamters Date: Thursday, March 5, 2009, 6:37 PM

hi all,I've been following a low sals diet since last summer with quite a lot of success. The one BIG drawback about it is the lack of fruit and veggies. I have reached the stage where I am craving them!!I therefor started to reintroduce some veggies this week - toms, cucumber, red pepper and broccoli. I thickly peeled the toms and cucs to try to minimise their effect but for the past 3 nights I have had terrible restless legs. I had this affliction before I went on low sals and was amazed that it returned with such a vengence so quickly. So far no asthma or rash.Has anyone else noticed this connection between high/low sals diet and restless legs syndrome?Welcome to all our new members - I know you will find lots of useful info here and support when you need it.Regards, Maggie

[Guest guest]

Maggie:have you been checked for anemia?Lsat year I suffered with RLS, horribly, until the figured out that the problem was really an absurdly low blood count.ieOn Mar 5, 2009, at 8:37 PM, Maggie wrote:hi all,I've been following a low sals diet since last summer with quite a lot of success. The one BIG drawback about it is the lack of fruit and veggies. I have reached the stage where I am craving them!!I therefor started to reintroduce some veggies this week - toms, cucumber, red pepper and broccoli. I thickly peeled the toms and cucs to try to minimise their effect but for the past 3 nights I have had terrible restless legs. I had this affliction before I went on low sals and was amazed that it returned with such a vengence so quickly. So far no asthma or rash.Has anyone else noticed this connection between high/low sals diet and restless legs syndrome?Welcome to all our new members - I know you will find lots of useful info here and support when you need it.Regards, Maggie

[Guest guest]

HI Jane and ie,my rash was always on my legs starting from the ankles and working up to my knees - never went anywhere else. I believe there are quite a few of us on here who have a similar rash. It totally went when I went on the low sals diet - within a couple of days.I have not had my blood tested recently but have never been anaemic in my life and I'm 57!! Next time I see my doctor I'll ask to be tested.Thanks for responding so quickly.Regards, Maggiesamters From: scottiesinboca@...Date: Thu, 5 Mar 2009 21:53:30 -0500Subject: Re: restless legs

Maggie:have you been checked for anemia?Lsat year I suffered with RLS, horribly, until the figured out that the problem was really an absurdly low blood count.ieOn Mar 5, 2009, at 8:37 PM, Maggie wrote:hi all,I've been following a low sals diet since last summer with quite a lot of success. The one BIG drawback about it is the lack of fruit and veggies. I have reached the stage where I am craving them!!I therefor started to reintroduce some veggies this week - toms, cucumber, red pepper and broccoli. I thickly peeled the toms and cucs to try to minimise their effect but for the past 3 nights I have had terrible restless legs. I had this affliction before I went on low sals and was amazed that it returned with such a vengence so quickly. So far no asthma or rash.Has anyone else noticed this connection between high/low sals diet and restless legs syndrome?Welcome to all our new members - I know you will find lots of useful info here and support when you need it.Regards, Maggie

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[Guest guest]

I have been checked and I am not anemic. What is strange is that I don't get the restless legs every night. But when I do, it's awful.

Jane

hi all,I've been following a low sals diet since last summer with quite a lot of success. The one BIG drawback about it is the lack of fruit and veggies. I have reached the stage where I am craving them!!I therefor started to reintroduce some veggies this week - toms, cucumber, red pepper and broccoli. I thickly peeled the toms and cucs to try to minimise their effect but for the past 3 nights I have had terrible restless legs. I had this affliction before I went on low sals and was amazed that it returned with such a vengence so quickly. So far no asthma or rash.Has anyone else noticed this connection between high/low sals diet and restless legs syndrome?Welcome to all our new members - I know you will find lots of useful info here and support when you need it.Regards, Maggie

[Guest guest]

last night was bad for me-kept me awake till after 3:30am and I had to be up at 6:15!!I would fall asleep for a few minutes -max. 5 - and then jerk awake again. I was almost demented!! It is enough to make me want to give up and just cut everything out again,Maggiesamters From: janesmarino@...Date: Thu, 5 Mar 2009 19:31:15 -0800Subject: Re: restless legs

I have been checked and I am not anemic. What is strange is that I don't get the restless legs every night. But when I do, it's awful.

Jane

hi all,I've been following a low sals diet since last summer with quite a lot of success. The one BIG drawback about it is the lack of fruit and veggies. I have reached the stage where I am craving them!!I therefor started to reintroduce some veggies this week - toms, cucumber, red pepper and broccoli. I thickly peeled the toms and cucs to try to minimise their effect but for the past 3 nights I have had terrible restless legs. I had this affliction before I went on low sals and was amazed that it returned with such a vengence so quickly. So far no asthma or rash.Has anyone else noticed this connection between high/low sals diet and restless legs syndrome?Welcome to all our new members - I know you will find lots of useful info here and support when you need it.Regards, Maggie

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[Guest guest]

Yes. I have RLS--I've had it for several years, just like you. AND just like you I have recently begun to suffer from it during the day instead of just at night. I, too, take Requip, which was working just fine until this problem of RLS during the day. It's sooo annoying, isn't it? It has even happened to me while I'm riding in the car. It makes me want to open the door and get out--even while the car is driving down the street.

But my daytime problem has been solved (I hope). I'm now taking the requip 3X day instead of just at bedtime. It has made all the difference.

Pam

restless legs

Does anyone out there suffer from restless legs syndrome? I have for several years now but it usually happens at night. Lately mine hurt first thing in the morning and sometimes just about all day. Something is changing. It is just not at night anymore. Does anyone else have this problem? My dr. put me on Requip and it helped a lot until recently. I would appreciate any suggestions. Shirley Godbout

[Guest guest]

Dear Shirley

and others,

I do not know

if I have restless legs per se, but I have a tremendous amount of numbness and

tingling in my legs and feet; and when it gets real bad, lots of pain.

I do not take

medication.

The only thing

that has helped has been cranial-sacral therapy that “moves your head

bones and pelvic bones” back into alignment. The

massage therapist who specializes in this also does “massage”

therapy on the “bottom/buttocks” because under all those “layers”

of “fluff” there are nerves that go from the back down to the toes.

When the muscles tighten up, swell, etc. they put pressure on the nerve which

contributes to the symptoms mentioned above.

It is funny to

say that a “feel good massage” according to today’s standards

work…but in essence the massage is not a “feel good”

experience, but can be quite painful as the therapist works out these “kinks”

and pressure points.

Another thing

that can trigger these symptoms for me is extended “sitting” and

not being in a good sitting position.

I hope my

experience helps you in some manner. My cranial-sacral therapist/massage person

also recommended sleeping with a very flat pillow and something small to

elevate your knees. This helps me to when I can manage to stay on my back.

Otherwise I put the small pillow/cushion between my knees when I lay on my

side.

Take care,

Donna in Ohio

[Guest guest]

Yes I also get this but can't take anything for it and am glad that so many of you are finding meds that work for many of the Fibromyalgia symptoms.  I wish you all the best at finding exactly what will work for you. 

Take care and I hope that you and your family are healthy, happy and having a great day, ey Godbout <prywarr@...> wrote:

Does anyone out there suffer from restless legs syndrome?  I have for several years now but it usually happens at night.  Lately mine hurt first thing in the morning and sometimes just about all day.  Something is changing.  It is just not at night anymore.  Does anyone else have this problem?  My dr. put me on Requip and it helped a lot until recently.  I would appreciate any suggestions.

 Shirley Godbout

[Guest guest]

Too bad for myself that your massage therapist is in Ohio... haha! I have actually had the same exp. with massage and though it is painful I normally can get a couple of good weeks of relief out of it. Since moving however, I haven't found a new therapist and am wishing so much my old one was closer.

Chrissie

From: Donna <dsd907@...>Subject: Re:restless legs Date: Sunday, September 6, 2009, 5:23 PM

Dear Shirley and others,

I do not know if I have restless legs per se, but I have a tremendous amount of numbness and tingling in my legs and feet; and when it gets real bad, lots of pain.

I do not take medication.

The only thing that has helped has been cranial-sacral therapy that “moves your head bones and pelvic bones†back into alignment. The massage therapist who specializes in this also does “massage†therapy on the “bottom/buttocks†because under all those “layers†of “fluff†there are nerves that go from the back down to the toes. When the muscles tighten up, swell, etc. they put pressure on the nerve which contributes to the symptoms mentioned above.

It is funny to say that a “feel good massage†according to today’s standards work…but in essence the massage is not a “feel good†experience, but can be quite painful as the therapist works out these “kinks†and pressure points.

Another thing that can trigger these symptoms for me is extended “sitting†and not being in a good sitting position.

I hope my experience helps you in some manner. My cranial-sacral therapist/massage person also recommended sleeping with a very flat pillow and something small to elevate your knees. This helps me to when I can manage to stay on my back. Otherwise I put the small pillow/cushion between my knees when I lay on my side.

Take care,

Donna in Ohio

[Guest guest]

This info was great.I just went to the dr.yesterday regarding my restless legs.I

was put on Neurontin in the past, didnt work.Now she's putting me on

Klonopin.She said it has helped a couple patients with their sleeep.I hope so, I

haen't gotten good sleep in a long time and it's catching up to me! Next step is

a sleep study if this does not work.Has anyone had any relief with

Klonopin??Thanks.

Heidi

[Guest guest]

It saved me. I went from horrible nights to sleep to being able to sleep through

the night. I have had the restless leg since before being diagnosed with Ra but

I still take it. It really makes a difference.

Carol

[ ] restless legs

This info was great.I just went to the dr.yesterday regarding my restless legs.I

was put on Neurontin in the past, didnt work.Now she's putting me on

Klonopin.She said it has helped a couple patients with their sleeep.I hope so, I

haen't gotten good sleep in a long time and it's catching up to me! Next step is

a sleep study if this does not work.Has anyone had any relief with

Klonopin??Thanks.

Heidi