Re: Anyone heard of this pain disorder?

[Guest guest]

I've never heard of NMAD, but I understand your husbands thought process. It is

so difficult for them (anyone without RA) to understand what we feel and the

fact that it is constant. He probably hopes that it is something that can be

fixed and you'll be good as new in no time. Takes a little while until they

accept the fact that this is as good as it gets. Take care.

Meg in MO

>

> My rheumatologist just diagnosed one of my friends with NMAD. We can't find

anything on it! Anyone ever hear of this? He says she doesn't have RA because

she doesn't have any inflamation in her blood test. Neither did I but I was

given the diagnosis by his partner before she retired. My friend's knees, esp

her right knee will swell up like a melon.

> My husband is now on this kick where he doesn't think I actually have " RA " per

se, but too much uric acid in my blood causing the synoval fluid to swell.

::sigh::: Anyone hear this theory either?

>

>

[Guest guest]

Since I hurt worse some times and then I have a good day, my husband thinks it

is in my head. He thinks if I hurt I should hurt the same all the time instead

of it moving around.

Regina

From: megsbyte

Sent: Tuesday, September 07, 2010 1:24 PM

Subject: [ ] Re: Anyone heard of this pain disorder?

I've never heard of NMAD, but I understand your husbands thought process. It is

so difficult for them (anyone without RA) to understand what we feel and the

fact that it is constant. He probably hopes that it is something that can be

fixed and you'll be good as new in no time. Takes a little while until they

accept the fact that this is as good as it gets. Take care.

Meg in MO

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[Guest guest]

Hi Regina.

     Your husband does not have RA, so he can't know the ups and downs we

have each day.  We have good days and then some bad days.  RA is the boss of

our bodies.  It is a very ugly nasty disease.

     I hope you have more good days then bad ones.  That is why I just take

one day at a time as that is all I can handle.

     I have found unless a person has RA, they can't begin to know what we

are dealing with each day.  I've had the same problem with some of my friends,

they just don't get it.  No matter how I try to explain about my pain and RA,

they simply can't relate to it.  Sad to say.

 

Hugs,

 

Barbara

From: Regina Burns <regburns@...>

Subject: Re: [ ] Re: Anyone heard of this pain disorder?

Date: Tuesday, September 7, 2010, 6:48 PM

 

Since I hurt worse some times and then I have a good day, my husband thinks it

is in my head. He thinks if I hurt I should hurt the same all the time instead

of it moving around.

Regina

From: megsbyte

Sent: Tuesday, September 07, 2010 1:24 PM

Subject: [ ] Re: Anyone heard of this pain disorder?

I've never heard of NMAD, but I understand your husbands thought process. It is

so difficult for them (anyone without RA) to understand what we feel and the

fact that it is constant. He probably hopes that it is something that can be

fixed and you'll be good as new in no time. Takes a little while until they

accept the fact that this is as good as it gets. Take care.

Meg in MO

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..

[Guest guest]

Hello,

I agree, unless someone has RA (and in my case RA and Lupus) they do not

understand the ups and downs. Some days the pain is manageable but other days

you can't even sleep. It is sad to say but unless they have it they do not

know...

Hang in there. Vivian

[Guest guest]

As to family or friends not understanding what we feel, they simply can not

fully understand what we live with on a moment to moment basis. We have to

remember many times they say things which sound uncaring. Most of the time,

they care very much and simply do not have first hand knowledge of our

difficulties.

Personally, I hope none of them ever experiences what I and others have

experienced. I kind of drive my daughter nuts when she gets pains and I tell

her to go see her doctor. Early detection might save lasting damage later.

I am a mother and looking back on it. I had signs and symptoms long before I

had any diagnosis. I also had various misdiagnoses.

I would suggest your friend ask the doctor what the letters stand for. Like RA

stands for Rheumatoid Arthritis, the letters NMAD have to stand for some

condition.

If your friend's doctor can not or will not tell exactly what NMAD is, I would

suggest your friend get another opinion.

New diagnosis and treatments are being discovered. I would think, some

information might be available online once you find out exactly what condition

these letters stand for.

Deanne

[Guest guest]

I looked it up in the medical abbreviations book and all I can find is " Near

Miss Asthma Death. " If I were your friend I would ask for some information from

the dr office on what he seems to think she has, and what the next step will be

to treat this. My Rheumatologist does not get out of the office until I am

satisfied with the explaination on what he thinks I have and what is the next

step and why. My Dr visits usually last 30 - 45 mins. That is the time the dr

is in the office with me. I figure I pay his salary with the ins and all so I'm

getting my moneys worth.

in MN

[Guest guest]

" Since I hurt worse some times and then I have a good day, my husband thinks it

is in my head. He thinks if I hurt I should hurt the same all the time instead

of it moving around. "

After my second child I had severe pain in my shoulder, then my knee etc.  When

I described it to my OB-GYN he said sounds like RA and recommended a

Rheumatologist for me,  all on the basis of the pain moving around.

Joyce