Re: Still flaring up a storm....

[Guest guest]

Bonnie, it's great to have a doctor who will listen and try to make

the correct diagnosis. I hope that Remicade will do the trick for

whatever it turns out to be.

Sue

On Sep 14, 2009, at 5:21 PM, tiredtaz wrote:

> I got new information... My doc has been saying for the last couple

> of months that I'm moving from having connective tissue disease into

> a more defined diagnosis... I call it hell! Anyway, in my last

> visit he sat down and spent over a half hour just talking to me and

> reviewing my file... (It was great!) I really felt like he was

> finally listening to me and he explained his thought process

> completely through. Where as I'm still labeled Undifferentiated

> Connective Tissue Disease, he believes I'm changing into Psoriatic

> Arthritis... Yikes!

> But because of his belief, he's trying to get me approved to start

> Remicade which I hear a lot of good things about. I'm nervous as

> usual, but I'm also very hopeful that we'll find something that

> works and continues to work...

> Thanks for listening....

> Bonnie

[Guest guest]

Thanks Sue... I really need a break... I can barely move this evening... Its

about 7:30 here, but I think I'm headed for bed real soon... There will be

another day of fun tomorrow...

Bonnie

>

> > I got new information... My doc has been saying for the last couple

> > of months that I'm moving from having connective tissue disease into

> > a more defined diagnosis... I call it hell! Anyway, in my last

> > visit he sat down and spent over a half hour just talking to me and

> > reviewing my file... (It was great!) I really felt like he was

> > finally listening to me and he explained his thought process

> > completely through. Where as I'm still labeled Undifferentiated

> > Connective Tissue Disease, he believes I'm changing into Psoriatic

> > Arthritis... Yikes!

> > But because of his belief, he's trying to get me approved to start

> > Remicade which I hear a lot of good things about. I'm nervous as

> > usual, but I'm also very hopeful that we'll find something that

> > works and continues to work...

> > Thanks for listening....

> > Bonnie

>

[Guest guest]

Bonnie,

It sounds like you have a wonderful doctor. I hope you get to try

Remicade, and it gets you feeling better soon. I know its a long road,

it will get better.

Take care,

Tawny

>

> I got new information... My doc has been saying for the last couple of

months that I'm moving from having connective tissue disease into a more

defined diagnosis... I call it hell! Anyway, in my last visit he sat

down and spent over a half hour just talking to me and reviewing my

file... (It was great!) I really felt like he was finally listening to

me and he explained his thought process completely through. Where as I'm

still labeled Undifferentiated Connective Tissue Disease, he believes

I'm changing into Psoriatic Arthritis... Yikes!

> But because of his belief, he's trying to get me approved to start

Remicade which I hear a lot of good things about. I'm nervous as usual,

but I'm also very hopeful that we'll find something that works and

continues to work...

> Thanks for listening....

> Bonnie

>

[Guest guest]

Tawny,

Thanks for the support... Are you doing better? I've been thinking about you a

lot as I've seen you haven't been posting recently...

I hope seeing you on this list, means you're starting to feel a little

better.... Best wishes

Bonnie

> >

> > I got new information... My doc has been saying for the last couple of

> months that I'm moving from having connective tissue disease into a more

> defined diagnosis... I call it hell! Anyway, in my last visit he sat

> down and spent over a half hour just talking to me and reviewing my

> file... (It was great!) I really felt like he was finally listening to

> me and he explained his thought process completely through. Where as I'm

> still labeled Undifferentiated Connective Tissue Disease, he believes

> I'm changing into Psoriatic Arthritis... Yikes!

> > But because of his belief, he's trying to get me approved to start

> Remicade which I hear a lot of good things about. I'm nervous as usual,

> but I'm also very hopeful that we'll find something that works and

> continues to work...

> > Thanks for listening....

> > Bonnie

> >

>