Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 YOU GO JACOB! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 Ginger, It is really great to hear of the sucesses of JRA kids...it gives hope! God Bless Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 Hello everyone! Kelsey has improved a great deal since she was diagnosed with poly jra last month. She is still going to physical therapy, only twice a week now. She has been taking Naprosyn since April 14th and it seems to be helping. She still has some pain and swelling, though not nearly as bad. How much of an improvement should I expect? She goes for another visit with her rheumatologist on the 26th and I am wondering what she will look for as far as progress and/or improvement. Will her doctor change her medicine if she's still a little swollen and a little sore? I am very content and pleased with her progress so far... just curious. Also, she had her first eye exam and it went well! Her eyes are healthy so far. I hope everyone has a nice mother's day!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 Hi Ginger, Go ahead and brag! That's terrific news! I'm glad you shared it with us. I'm so happy that was able to enjoy his birthday. I'm glad he liked the messages and electronic cards. Some of them (our personal favorite is blue mountain cards at http://www.bluemountain.com/index.html ) are sooo cute. Josh and Kayla love getting them, too. And they can printed out, most times. So it's just like a real card, even though it comes through email. We love sending & receiving them Well, I sure hope things stay stable. Sounds like it's working out pretty well. When Josh had to stop taking his NSAID temporarily a while back, he had increased pain and tender joints, very soon. I guess was just more ready at this point. And that's terrific Take care, Georgina Ginger DuBois wrote: > > First let me say thanks to all who wished a happy birthday. He > enjoyed getting to see all the cards and I read him the notes off the jra > list. He was grinning from ear to ear! > > I am WAY behind in my reading and I saw the post about plaquinel. I had to > respond. has been on plaquinel for probably 5 years. He has done > quite well with it. We have his eyes checked every 6 months and have had no > problems. As far as side effects, we have not experienced any. takes > 200mg a day. He was taking 250mg of naproxen as well. As of our last Dr > visit a few months ago, he has been taken off of the naproxen and has had > any problems...thank the Lord! > > is currently playing baseball and his team is undefeated 7-0! He hit a > three run homerun the other night and the coaches say he is probably one of > the faster kids on the team. They played last night on his birthday and he > got 2 singles and knocked in 2 runs. He got the game ball! What a happy > day. Sorry for bragging. I am so proud of him. Along with having JRA > is also autistic, so I have to brag when he has accomplished so much. > My heart is just so full of joy for him. Thanks for letting me ramble! > > Ginger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 Hi , I'm glad to hear that your daughter has been having some improvements in the past month and that her eye appt went well. Did the doctor order blood tests to be done before the next visit? If so, the results will probably be a good indicator of which steps, if any, will be taken next. For many children, Naprocyn doesn't hardly even touch the symptoms and they still have lots of pain and swelling. Then, there's that percentage of children who respond well to treatment with NSAIDs alone. Maybe Kelsey fits into this pattern and Naprocyn will be enough to control the inflammation. I think that usually within two weeks you'll be able to tell if a particular NSAID is working. If her SED rate is within normal ranges and she has good range of motion in her affected joints upon physical exam, maybe the doctor won't make any changes at all. Sometimes they start on a very low dose to see how the child tolerates it and then they make small increases. Other times they'll try a combination therapy, adding a second line agent. It's still very early in the ballgame. Really do have to take it one day at a time. But it sounds like things are moving in the right direction. And I hope it continues like this Take care, Georgina imshellrenee@... wrote: > > Hello everyone! > > Kelsey has improved a great deal since she was diagnosed with poly jra last > month. She is still going to physical therapy, only twice a week now. She > has been taking Naprosyn since April 14th and it seems to be helping. She > still has some pain and swelling, though not nearly as bad. How much of an > improvement should I expect? She goes for another visit with her > rheumatologist on the 26th and I am wondering what she will look for as far > as progress and/or improvement. Will her doctor change her medicine if she's > still a little swollen and a little sore? I am very content and pleased with > her progress so far... just curious. Also, she had her first eye exam and > it went well! Her eyes are healthy so far. I hope everyone has a nice > mother's day!!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 I just finished 5 months of Biaxin & Plaquinel (hydroxychloroquine). It certainly did help. I herxed the day after starting it and I had been on 400 mg of doxycycline for two months prior to it (and for 6 months prior to that with a 3-month break in between). My doctor switched me to Biaxin & hydroxychloroquine because he thought I'd plateaued (he nailed that one!). I'm back on doxy but with hydroxychloroquine added to it for 3 months. I hope the Biaxin & Plaquinel work well for you, but do beware of yeast infections. Biaxin hit me a whole lot harder than doxycycline ever did. Jessie > anybody ever use a combo of plaquinel and biaxin? > did it help? > my doctor says my strain of lyme is autoimmune. > eric Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2010 Report Share Posted October 13, 2010 I took plaquinel quite a few years ago..back in the 90's I'm thinking, with no problems. Then my rheumy put me back on it. I broke out in a rash (little pink dots) from neck to toe. One of its side effects is fever/rash. So...I was taken off of it. Its weird how your body accepts med at one time and then rejects it another time. I am also allergic to sulfa.....always trial and error with me. Hugs..a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2010 Report Share Posted October 14, 2010 I am also allergic to sulfa drugs, and took Plaquenil with no bad effects. Well, untill I developed severe anemia, and they don't know if it was caused by the Plaquenil or the RA itself. Catch 22! So I was changed to Methotrexate, and it's gradually getting a tiny bit better. Still so bad that next monthy they'll probably be giving me iron by IV injection. Anyone have experience with this? How bad is it? and how long does the improvement last? Marsha Quote Link to comment Share on other sites More sharing options...
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