Remission

[Guest guest]

In a message dated 6/27/01 6:33:32 PM Central Daylight Time, mhorten@... writes:

Subj: RE: remission

Date: 6/27/01 6:33:32 PM Central Daylight Time

From: mhorten@... (Horten, Mona)

Reply-to: hyperthyroidism

hyperthyroidism ('hyperthyroidism ')

Hi Kim,

I was on PTU. Five years ago I was placed on TAP but had a nasty allergic

reaction. No problems with PTU. I've been off meds since January. Mona

Mona, that's great.. Let me know how it goes..Kim

[Guest guest]

I was diagnosed in 1996 and went off meds in January and still off meds.

Mona

" Remission "

> << Has there been anyone

> who's gone into remission who had the desease for a year before

> treatment? >>

>

> Well, I don't know if this will help or not -- but -- I have achieved

> something like " remission " more than five years after diagnosis and

> treatment. I was not properly diagnosed for more than ten (possibly

twenty)

> years. I am not all that rare, as I've heard from MANY other women who

were

> not diagnosed or treated for thyroid conditions for many years.

>

> By " remission " I mean relative comfort and a dosage of thyroid replacement

> which is stable. I will never again be at Square One, so those of you

> fortunate enough to have been diagnosed in a timely manner, count your

> blessings!

>

>

>

>

[Guest guest]

I was diagnosed 3 years ago, after knowing for years that what I had was an erratic thyroid (every time i was tested, it showed normal levels... but then my symptoms would return again), then i was put on meds, they overdosed me and I was starting to get hyper-t, was taken off all thyroid meds, and now my levels are normal again......I only use supplements!

Chris

[Guest guest]

Oh, my gosh, Chris! You just sung my entire life. What kind of supplements do you use?

Donna

http://trak.to/lifewww.reliv.comTake control of your health!

Re: "Remission"

I was diagnosed 3 years ago, after knowing for years that what I had was an erratic thyroid (every time i was tested, it showed normal levels... but then my symptoms would return again), then i was put on meds, they overdosed me and I was starting to get hyper-t, was taken off all thyroid meds, and now my levels are normal again......I only use supplements!

[Guest guest]

I should add that on my previous post I was talking

about the ribavarin/intron combo. I believe that the

new peg combo is posting better results. -dz-

__________________________________________________

[Guest guest]

Pam, so glad to hear she is doing so much better ! I'll be the first to tell you that remission is so wonderful and yet can be so fleeting . Embrel got me to remission sed rate of 16 and it only lasted for 6 weeks I almost wish now I hadn't had it to compare myself and activites too But I 've deal with all this along time so I'm just back to the norm and those 6 weeks were just like a well well deserved vacation My sed rate today is 90 least it was the last visit and things aren't much better So be glad you are getting a vacation and enjoy it :):)Tree:):):) Remission Question: Has anyone here experienced some sort of Remission????? I have to hold my breath at how well has been for the past month or so. I am scared to type it here and jinx her. Her bad times are not every other day, they are getting farther apart. I know its not completely gone or anything, but how she has been feeling is amazing compared to 1 year ago. Please let me know if it really could be a possibility. And then tell me that it probably won't last and I should keep a perspective on it. Pat (who has major high hopes) & (1 year Systemic) For links to websites about arthritis and JRA, visit: http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

yes there is hope for remissionmy son brandon has been in for 3 plus yrs

now

[Guest guest]

Pat

hi Remission i am not sure of BUT i have high hopes with each passing day of

the good days there will be remission i have high hopes for to

succeed in life and overcome the obstacles of life but no matter what lays

ahead she will always be my baby and she will succeed great in life

the obstacles make her stronger than another child like a child who never

has had to experience what she has gone through or is going through right

now remission in my thoughts are days where is having a good day and

i count those days and cherish those days with her i am so thankful that i

have her to help me learn more about life and the strength of a child

i went through the guilty stage when they told me about what her diagnoses

was

the list went on and on of what she couldnt do she has came along way from

that day she CAN ride a bike and skate and walk again her pain days are less

right now but if those bad days come back we know we can get through them

shes still fatigued at times and she swells and her joints hurt from time to

time and her muscles still give her problems but she is doing good

remission darling i dont know about yet but the future looks good

God does things for a reason we just have to figure out what it is

i am just glad i can hold her hug her watch her do things and watch her

smile every day and to hear those 3 special words i love you and gives me a

hug

Robbin

[Guest guest]

Pat-

has now been in remission for almost a year. It's great to hear

's doing so well. We'll hope for a remission.

Diane

[Guest guest]

Pat,

Emmy is in remission. She was at first under medicated control.

After being symptom free for awhile the rheumy tapered her off the

naprosyn. Emmy has been off meds and smptom free since June 9.

Teri

> Question: Has anyone here experienced some sort of Remission?????

> I have to hold my breath at how well has been for the past

month or

> so. I am scared to type it here and jinx her. Her bad times are

not every

> other day, they are getting farther apart.

> I know its not completely gone or anything, but how she has been

feeling is

> amazing compared to 1 year ago.

> Please let me know if it really could be a possibility. And then

tell me

> that it probably won't last and I should keep a perspective on it.

>

> Pat (who has major high hopes) & (1 year Systemic)

[Guest guest]

Hi Pat:

I'm not sure if medicated remission " counts " as something to hope for, but with Mickey, (7 yr old daughter, systemic) the first year (before and!) after diagnosis were really rough, it was very hard to get the symptoms under control. Even with lots of drugs... and she flares somewhat, but for the most part the last few years the overt symptoms have been well controlled. She has some stiff mornings, but few bad days. It is a relief, and I am amazed to say, after a bit, we even take her generally good quality of life for granted! That's a weird thing, considering all the drugs she is still on, but it is still a blessing that for the most part she can run and play like a 'normal' kid. Appreciate the good days and don't think about what may come... what's that saying? " Yesterday is a memory, tomorrow a dream, today a blessing " ? Don't know, something like that, but it sounds good. Live in the now - " I love the now " as Jimmy Buffett would say.

Lynn

From: sdbpab@...

Reply-

Date: Thu, 11 Oct 2001 19:34:20 EDT

dani127@..., aaron@..., Angel87cat@..., , seffera@... (Myra)

Subject: Remission

Question: Has anyone here experienced some sort of Remission?????

I have to hold my breath at how well has been for the past month or so. I am scared to type it here and jinx her. Her bad times are not every other day, they are getting farther apart.

I know its not completely gone or anything, but how she has been feeling is amazing compared to 1 year ago.

Please let me know if it really could be a possibility. And then tell me that it probably won't last and I should keep a perspective on it.

Pat (who has major high hopes) & (1 year Systemic)

[Guest guest]

Hell all, Just a note on remission.. My son (age 10 systemic) has been in a

medicated remission for 2 yrs ( he is on 1 mg prednisone) no fevers at all,

just a couple episodes of a little pain in leg...nothing that would stop him

from functioning, nothing like the old days when he was so stiff he could

hardly walk...He was on mtx for a 9 months and I think this triggered the

remission ( just a guess ) we stopped it when he started the remission, also

have to mention we did take him to a healing service ( always have to give

the big guy in the sky credit too !!) Jane

[Guest guest]

I hope keeps this up. It is absolute heaven!!

Pat & (1 year Systemic)

[Guest guest]

Hi

Or perhaps, just a virus or something..........that's normal..........in

fact I'm healthy than most of my students and fellow teachers

lately.........everyone is so sick, stomach virus, bad colds, sinus

infections....you name it...............Its out there.

You probably are in 100% remission, like myself and just experiencing normal

sickness......

Its hard to tell the difference.

I don't know what else to call it either..........how about currently cured.

Sounds a little more positive.

Connie nwnj

Leave no stone unturned.......and ask questions!

[Guest guest]

Dear Friends,

The term " remission " basically means an " absence of symptoms. " Cancer patients

are not deemed cured, usually, until they have been in remission for a period of

5 years. Even then, the cancer CAN come back, though it is much less likely.

The dictionary defines " remission " as 1. a. the act of remitting b. The

condition of being remitted. 2. Release, as from a debt or obligation. 3. A

lessening of intensity or degree; abatement.

If you go to the definition of " remitted " it is defined as: 2. To diminish;

abate. 3. To restore to an original condition; put back. 5. To relax; slacken.

I had my first wonderful remission last year, Dec. 1, 2000. It lasted for 3

months, and was wonderful after 5 years. My doctors called it a " spontaneous

remission " meaning they had no explanation for it. I simply woke up one Monday

morning and nearly tripped on my face when I got out of bed because I was

walking normally! DIdn't need my cane! And...that previous weekend I was

probably at my worst ever! Severe pain, terrible balance, needed the cane for

full support. I was completely free of pain, had perfect balance (could do a

perfect model's runway turn, stand on one foot). I pranced into my LLMDs office,

and I thought they were going to lock me up! Everyone who knows me was amazed! I

could dance, jump up and down, run! Hey, I didn't know how long it would last,

but I didn't care!

I knew enough about this disease to know that it was an " up " cycle...but it was

my FIRST in five years and I blessed every day that it lasted. I know there will

be another one, and perhaps the next one will last longer! I was afraid it might

upset , given his condition, but it gave him hope, too, for him!

Since I was diagnosed in late-stage 3, and having had the disease since

childhood, I am one who can not be cured, but can look forward to many more

remissions...and I live for that! That is my hope and something I can look

forward to and give thanks for. It is hopeFULL, not hopeLESS.

But, it takes dedication and compliance with treatment...both on my part and on

my LLMDs wonderful guidance and direction in treating me as my condition

dictates.

Love ya,

Rose

T.O.I.L. for Lyme!

T=Teach tolerance; O=Overcome ignorance; I=Initiate insurance reform; L=Labor

for Lyme literacy

*Websites*

http://www.angelfire.com/tx3/RoseWriter or

http://www.angelfire.com/biz/romarkaraoke/james.html

---------------------------------

[Guest guest]

Hi -- I am more or less pharmaceutical free, but I'm not sure I can take any

credit for it. I have been a regular walker, skier and snowshoer for many

years and when I quit my very stressful job (newspaper reporter), everything

sort of went into remission on its own. I still have mild joint aches and

pains -- mostly when the weather is turning to wet or when I've been sitting

too long -- but I usually don't have to take anything but a mild muscle

relaxer (Benadryl antihistimine tablets) and Aleve. But I never suffered as

much as many of the folks in this group. I also never took as much

medication as many of them. Don't know if that helps any. -- Jan O', Alaska

[ ] remission

>

> I've noticed that many folks in this group take a lot of prescription

medicine. Considering the pain involved with this condition, that is

certainly understandable. But I'd like to know if anybody has been able to

beat his or her psoriatic arthritis into remission and is now

pharmaceutical-free. If so ...

>

> How did you put it into remission?

>

> What combination of drugs did you use?

>

> What proactive steps do you take now to prevent the psoriatic arthritis

from coming back?

> Mike Pope

> Tallahassee, Florida

>

>

>

> ---------------------------------

>

>

>

> ---------------------------------

>

[Guest guest]

Hi Mike...I've posted this before so I hope I don't annoy the rest of the group.

I guess the problem is the definition of remission. I have had PA for about 3

years. At one point it affected 9 joints in my hands. I had multiple Cortisone

injections. I tried Sulfasalasine and MTX. I even did 10 months of Voodoo

Medicine with Minocine and Nystantin. Nothing worked. I just got progressively

worse. I was also taking Viox after Celebrex messed up my stomach and other

pain killers and muscle relaxers. Finally, I went on Enbrel last June. The

pain was gone with the first injection. Three weeks later I was nearly normal.

I am currently taking no other meds but Klonopin to offset the agitating side

effect of the Enbrel. I am only using one injection per week because of the

shortage. My RD says I may be in remission. He wants me to stay on Enbrel

until the shortage is over so I can get back on it in the event of a

reoccurrence.

My only problem is I have some joint damage sustained before I started Enbrel.

Even if I am in total remission this will never change. I have a frozen first

joint on my right index finger and the second joint is unstable. Nothing will

change this structural damage but maybe surgery. I think the lesson is that

with PA, in some cases, you should hit it hard with a TNF inhibitor immediately

before you have joint damage. My RD says my PA may have been precipitated by

the over use of multiple big gun antibiotics when I had a serious upper

respiratory infection throwing my immune system into overdrive. He says that my

immune system may finally be settling down. He says he has seen it before. So

I'll know if I am in total remission in a few months. RGDS R.E.

[ ] remission

I've noticed that many folks in this group take a lot of prescription

medicine. Considering the pain involved with this condition, that is certainly

understandable. But I'd like to know if anybody has been able to beat his or her

psoriatic arthritis into remission and is now pharmaceutical-free. If so ...

How did you put it into remission?

What combination of drugs did you use?

What proactive steps do you take now to prevent the psoriatic arthritis from

coming back?

Mike Pope

Tallahassee, Florida

---------------------------------

---------------------------------

[Guest guest]

It's interesting to me that you credit a stressful job

(newspaper reporting) with creating the psoriatic

arthritis. I'm a newspaper editor, and, yes, it's a

very stressful job. But I love it. Do you think I

should consider taking a less stressful job — book

editor or freelance writer? How long after you quit

the newspaper did you notice your symptoms fading?

--- Jan O'Meara <wizard@...> wrote:

> Hi -- I am more or less pharmaceutical free, but I'm

> not sure I can take any

> credit for it. I have been a regular walker, skier

> and snowshoer for many

> years and when I quit my very stressful job

> (newspaper reporter), everything

> sort of went into remission on its own. I still have

> mild joint aches and

> pains -- mostly when the weather is turning to wet

> or when I've been sitting

> too long -- but I usually don't have to take

> anything but a mild muscle

> relaxer (Benadryl antihistimine tablets) and Aleve.

> But I never suffered as

> much as many of the folks in this group. I also

> never took as much

> medication as many of them. Don't know if that helps

> any. -- Jan O', Alaska

> [ ] remission

>

>

> >

> > I've noticed that many folks in this group take a

> lot of prescription

> medicine. Considering the pain involved with this

> condition, that is

> certainly understandable. But I'd like to know if

> anybody has been able to

> beat his or her psoriatic arthritis into remission

> and is now

> pharmaceutical-free. If so ...

> >

> > How did you put it into remission?

> >

> > What combination of drugs did you use?

> >

> > What proactive steps do you take now to prevent

> the psoriatic arthritis

> from coming back?

> > Mike Pope

> > Tallahassee, Florida

> >

> >

> >

> > ---------------------------------

> >

> >

> >

> > ---------------------------------

> >

[Guest guest]

Hi Mike,

I have been on disability (not working) for over a year now. I would

say I'm only marginally better than when I was working. Good days,

bad days. Although with increased MTX and Vioxx on occasion, I've

been having more good days. I'm really hopeful the Remicade will work

for me, because I would like to work a little bit, at least part-time.

I do believe stress is a factor. But keeping active and enjoying your

life is also really important. I did have a semi-remission right

around the time of my wedding about 3 years ago. But I took a

stressful job (cuz I was feeling better) and about 6 months later

started deteriorating. Since then I've been on a lot of meds and

having a hard time.

This disease is really awful sometimes. While it is good to be

hopeful that you'll have a remission without meds, keep in mind that

it may not happen. More importantly, if you start losing joint

function or find you have tendonitis or swelling that never goes away

(ie after about 3 months), then it may be time to get more serious

about medications.

Best wishes!

-Meghan

> It's interesting to me that you credit a stressful job

> (newspaper reporting) with creating the psoriatic

> arthritis. I'm a newspaper editor, and, yes, it's a

> very stressful job. But I love it. Do you think I

> should consider taking a less stressful job — book

> editor or freelance writer? How long after you quit

> the newspaper did you notice your symptoms fading?

>

[Guest guest]

Hi Mike -- I don't credit the newspaper job with creating my psoriatic

arthritis, merely with keeping it hot. I think stress has a lot to do with

how we feel overall. In my case, once I quit that job both the psoriasis and

the psoriatic arthritis dwindled to what I would term " remission. " For me,

that means it's not totally gone, but doesn't give me any real problem. I

think whatever you can to do reduce the stress in your life can only help

with this disease. If you love your job and don't find the stress taxing,

that's good. But if the stress gets to you, you might think of something

less stressful. For me, that meant working for myself. I am a small

publisher and book distributor. There's some stress in that, but it's all

self-imposed, so it's not quite the same for me. Anyway -- I hope all goes

well with you and that you find a way to enjoy a remission sooner rather

than later. -- Jan O'

[ ] remission

> >

> >

> > >

> > > I've noticed that many folks in this group take a

> > lot of prescription

> > medicine. Considering the pain involved with this

> > condition, that is

> > certainly understandable. But I'd like to know if

> > anybody has been able to

> > beat his or her psoriatic arthritis into remission

> > and is now

> > pharmaceutical-free. If so ...

> > >

> > > How did you put it into remission?

> > >

> > > What combination of drugs did you use?

> > >

> > > What proactive steps do you take now to prevent

> > the psoriatic arthritis

> > from coming back?

> > > Mike Pope

> > > Tallahassee, Florida

> > >

> > >

> > >

> > > ---------------------------------

> > >

> > >

> > >

> > > ---------------------------------

> > >

[Guest guest]

This is an interesting subject.. I also noticed an almost complete

remission when i stopped working also.. (i now work at home for

myself..almost 0 stress now..) I think that the slightest amount of stress

aggravates our condition so much.. I wish doctors would be better informed

about these things.. I bet alot of us would be in remission if we just

simply didnt work.. And i dont mean just the physical aspect... Just

sitting in your office chair all day and worrying about stuff can affect

this disease tremendously. There's definately a mind/body connection here..

mike

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Message: 7

Date: Wed, 12 Jun 2002 06:58:42 -0700 (PDT)

From: Mike Pope <popeatlarge2000@...>

Subject: Re: remission

It's interesting to me that you credit a stressful job

(newspaper reporting) with creating the psoriatic

arthritis. I'm a newspaper editor, and, yes, it's a

very stressful job. But I love it. Do you think I

should consider taking a less stressful job - book

editor or freelance writer? How long after you quit

the newspaper did you notice your symptoms fading?

<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<

[Guest guest]

I really agree, Mike. When I was still working at the local newspaper, I cut

back to one day a week and just covered arts. My psoriasis went away almost

entirely and my PA was better too. After about a year, I went back to a

regular schedule of reporting and deadlines, and everything came back full

bore. Now that I am my own boss again and set my own time limits, everything

is managable. Stress -- at home or at work -- is a real killer and a

definite and real " pain. " -- Jan O', Alaska

Re: remission

>

> It's interesting to me that you credit a stressful job

> (newspaper reporting) with creating the psoriatic

> arthritis. I'm a newspaper editor, and, yes, it's a

> very stressful job. But I love it. Do you think I

> should consider taking a less stressful job - book

> editor or freelance writer? How long after you quit

> the newspaper did you notice your symptoms fading?

> <<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<

>

>

>

>

[Guest guest]

Mike in NJ - What is it you do and how are you able to do it at home? I would

love to be able to do at least part of my job at home, but I'm not sure how to

bring this up to my employer. Did you do that? Or did you switch jobs to be

able to work at home?

[Guest guest]

,

From my understanding, there are a couple of definitions of remission.

" Remission " is when symptoms disappear for a period of time. " Clinical

remission " is when you are symptom free with medications. There is no

certain length of time for remission. It might be a week or many years.

I hope that I am telling you this the right way. Best wishes.

[Guest guest]

, remission would be, to the best of my under standing.

When all signs and symptoms of the decease are not visible for a

prolonged period of time after taken off the meds. Correct me if I'm

wrong anyone out!

Uncle Rusty Limbs

On Thu, 18 Jul 2002 16:07:52 -0400 " Velinsky " <karen@...>

writes:

Can anyone tell me the definition of remission. Is remission when you are

pain free without any medication for a certain amount of time.

V

Adam 9