FLARES

[Guest guest]

In a message dated 3/11/2003 10:02:28 PM Eastern Standard Time,

Dandcmayer@... writes:

> My emotions are right

> at the edge. I have lost 7 pounds and not getting much sleep due to pain

> for

> the last 2 weeks. Hope something happens that stops this

Dear Carol,

Hang in there. Hoopefully your rheumy will be able to help you.

good luck.

Janet

[Guest guest]

Carol,

One thing that works well for my sore throat is honey. It coats your throat and

is very soothing. Sometimes I will eat a spoonful by itself. Of course, I love

sweets so if it is too much for you that way you can mix it in hot tea with

lemon rind (I like decaffeinated Celestial Seasonings Sleepytime tea) or mixed

in warm milk.

good luck,

Re: [ ] flares

Hi Carol,

You mentioned you have a very sore throat...I know has written about

that too...I am in the midst of a horrendous flare, and have had a sore

throat the whole time...does anyone know if there is any kind of connection?

I went to the rheum and she thought maybe something is up with my thyroid,

but its not swollen. ???

But I can tell you Carol, I did fine working part time, but as soon as I got

back to full time (50 hours for me), I started to flare again. My rheumy is

convinced that I will be in remission for a longer stretch of time if I drop

back to working p/t. She is somewhat unconventional, but her theory is that

the flares are somewhat controllable through adequate rest (which for us

means extra rest, even when in remission) and daily exercise. So far, for

me, that's been true. Hang in there!

[Guest guest]

Carol

So glad that you had someone to brighten your day. Kids are the best for

that, especially

the little ones.

I have an 11 and 14 year old and though they brighten my day, they have a

lot

of problems understanding why I always hurt so and don't want to do a lot of

things the other Mom's do. It does get frustrating and depressing.

I am just glad this hit when they were a little older and more independant.

Joy

> Joy,

> My 3 years old grandson came to visit and take care of me today. He is

very

> good medicine, and he thinks that his kisses cure everything.

[Guest guest]

Carole, my first real " flare " occured when I was visiting my sister in FL.

Although I love the beach along the Emerald Coast, I didn't touch my toes to the

sand. They were too red and painful. I came back by air via wheelchair [well,

actually, an airplane was involved, too] and went directly to the emergency

room. After many tests, it turned out to be PA. I've never had one like tht,

but it took forever to get better. I also quit the work I was doing from home,

and not having to " get things done " I can tolerate " sleepless nights " even with

pain meds much better than before. I am so thankful that my PA didn't really

hit until after I'd officially retired [it was probably responsible for the

incredible tiredness that I'd been " living with " .] So I hope this epidsode

resolves itself for you. But regardless, we'll be thinking of you & best

wishes. Sylvia

Dandcmayer@... wrote:Joy,

My 3 years old grandson came to visit and take care of me today. He is very

good medicine, and he thinks that his kisses cure everything.

[Guest guest]

> Hello,

>

> I have been on antibiotic therapy for about 6 months now....

>

> - is dizziness a common symptom of SLE?

>

> A. Chen

Hi

The dizziness you are experiencing can be a side effect of the

Minocin.

Lindy.

[Guest guest]

<< If on Minocin, check about lowering the dose. With Lupus (I have

lupus) sometimes you need to lower the dose for a bit. We seem to be

more sensitive to meds than others. Also, the brand has less fillers

and the fillers sometimes cause the side effects. >>

Marge and all,

This brings up something I was wondering about. I have RA, Sjogren's (in

remission on it's own) and FM. I take the minocin for RA.

When on the generic minocycline a while back, I increased my dose from 3

times a week to 5 times a week. It was then that I noticed pain in the

joints of my little fingers, but none in my feet. After back on minocin again

went back to daily, 3 x a week. The pain pattern continued until recently,

when I stopped minocin for a couple weeks because I thought I could be

pregnant. Now the pain is back in my feet, but gone in my little fingers.

I'm thinking maybe I was too high on the minocycline and flaring, but was so

afraid of losing ground on the generic that I wanted to be safe rather than

sorry!

But now, am I too low? Foot pain was the symptom that took me to the Dr. for

the RA diagnosis. He put me on minocin 100 mg twice a day, 7 days a week.

It was too much, so went from that dose to 5 days a week and kept lowering

until I seemed ok on 3 days a week, one dose a day. Until I increased on the

generic and seemed to flare---or go backwards! LOL

Any ideas? Should I try increasing, or am I better off decreasing a bit? I

started on minocin 6 months after RA symptoms started and have been on it

since Jan. '00.

M.

[Guest guest]

Hi

If on Minocin, check about lowering the dose. With Lupus( I have

lupus) sometimes you need to lower the dose for a bit. We seem to be

more sensitive to meds than others.Also, the brand has less fillers

and the fillers sometimes cause the side effects.

Just a thought. Check with your doc

Love

Marge

> > Hello,

> >

> > I have been on antibiotic therapy for about 6 months now....

> >

> > - is dizziness a common symptom of SLE?

> >

> > A. Chen

>

> Hi

> The dizziness you are experiencing can be a side effect of the

> Minocin.

>

> Lindy.

[Guest guest]

i get flare ups every now and then when I don't take my medication or whenever i

get my period. Having flare ups is just all about the arthritis and yeah it

sucks but we people who have it must deal with it every day. I've had it since I

was 13 months old so I know now that I should be taking ALL of my meds. The

first flare I had was when I was just a baby which thank GOD I don't remember

lol.

along302003 <along3@...> wrote:I was wondering when anyone had there

first flare. My doctor has

said that my knee ankle and hand are like they are because i am

having a flare I feel it may be my medicine is just not enough or

working right but he didn't want to hear that. Said it was just

fine just work through it Did your doctors give you anything or

just tell you to work through it THis was not the answer i needed

as I need to go to another doctor anyways i told him that i would be

sending for my records he just gave me more of a reason just don't

feel like he cares acts like i am just being a baby thanks for

letting me grip thanks for everything you guys have done

Thanks

Angie

[Guest guest]

Angie, When I started out withRA, before I even knew what was going

on, it was my hip, then my wrist, then maybe a knee. Never all at

once. My ortho guy figured out what was going on and sent me to a

rheumy. She was pretty worthless once I did some research and

realized she was treating me like a child saying that I have no pain

tolerence and other such nonsence. I felt as if the meds she put me

on were not doing the job and that I was getting worse. I got

myself a second opinion. That made all the difference in the

world. NOW I know what the meds are doing because the RA has

progressed and I get flares. Once I was actually at a tolerable

level of pain, the flairs felt debilitating. I feel like I am

coming down with the flu, and get REALLY tired, and then the pain

comes crashing in. Sometimes I wake up that way. It took changing

the meds around and getting more agressive with them. I still have

flares (having one now) but with this new rheumy, I don't feel like

I am being a crybaby about it. He made all the difference. He gave

me pain meds to help me get through them. He also gave me extra

prednisone to take when I need too. Sometimes doctors who work with

people who have some form of chronic pain can harden to their

needs. That's how my first rheumy was. Don't take it!! It is

NEVER wrong to get second opinions or change docs if you don't feel

like they are helping. Take care and feel better.....Marina in Ohio

> I was wondering when anyone had there first flare. My doctor has

> said that my knee ankle and hand are like they are because i am

> having a flare I feel it may be my medicine is just not enough

or

> working right but he didn't want to hear that. Said it was just

> fine just work through it Did your doctors give you anything or

> just tell you to work through it THis was not the answer i

needed

> as I need to go to another doctor anyways i told him that i would

be

> sending for my records he just gave me more of a reason just

don't

> feel like he cares acts like i am just being a baby thanks for

> letting me grip thanks for everything you guys have done

> Thanks

> Angie

[Guest guest]

originally I thought my first flare was when my wrist was tender and sore and my

doc said it was work related tendinitis. He splinted it and told me to stop

crying. not long after my knee began to swell one day while I was driving home

and before I got home it swelled up so badly I could not drive (I had a stick

shift car and a 2 hour commute) I pulled off and hobbled in for cofee and

thought it might back down WRONG. I actually passed out from the pain a few

hours after my husband managed to get me home and he called an ambulance. They

kept insisting I MUST have injured my knee- thye tried to drain it, got nothing

and sent me home telling me it was in my head. For many months different parts

of me would just begin to swell and turn bright red and cause me intense pain,

so I was screaming just from the air current in the room, but within 24 hours

that spot would back down and another spot would start to swell. Fingers, toes,

wrists, knees, hip, shoulder. I am now wondering of some severe shoulder

problems I had that did not respond to the orthopod for over 2 years might have

also been RA.

I wound up unable to work, and uninsured. On a very few occasions I did wind up

in critical care or clinic but they never really bothered to pay me any mind.

Actually I am starting to think maybe I was drug seeking? I began to research

on my own------and then I called my primary and begged him to refer me to a

rheumy. By then I could no longer walk or use my hands at all, and I was

suicidal at times. I still had no insurance, tho and I have 3 kids , 2 of whom

are also disabled and a disabled husband. The rheumy thought I had some sort of

arthritis, but- I could not afford lab work. SO he began me on samples of

arthrotec, sulindec - nothing helped. He did let me take prednisone for 2

weeks, and thta was like Heaven. then he let me try mtx, but I could not afford

the labs after my first samples ran out and I went 2 years without being able to

go back to the doc. I declined terribly. I literally was bedbound and unable

to hold a glass in my swollen fingers or have any weight on my wrists, my toes

and feet and knees were so swollen, I begged for months to just die.

I finally got my social security disability and my Medicare. The doc then gave

me more samples of mtx and Medicare covered my lab work and finally I was

formally diagnosed.

The mtx made life SO much better. I walk again, slowly, carefully, but I

walk!!! I can again comb my own hair and brush my own teeth and dress daily.

Oh I have to walk carefully and some days I can only comb my hair and not do

much else. On a rare occasion my pain might be severe. I am finding the more

stress I have the worse it is....and yes at that time of the month- it does get

worse. I think it also gets worse in spring and fall (I live in northern IL)

But the good news is my flares now are nothing like how I lived for awhile there

every single day.

[Guest guest]

This stinkin' disorder DOES make you feel like a drug seeker,

doesn't it!!!

> originally I thought my first flare was when my wrist was tender

and sore and my doc said it was work related tendinitis. He splinted

it and told me to stop crying. not long after my knee began to

swell one day while I was driving home and before I got home it

swelled up so badly I could not drive (I had a stick shift car and a

2 hour commute) I pulled off and hobbled in for cofee and thought it

might back down WRONG. I actually passed out from the pain a few

hours after my husband managed to get me home and he called an

ambulance. They kept insisting I MUST have injured my knee- thye

tried to drain it, got nothing and sent me home telling me it was in

my head. For many months different parts of me would just begin to

swell and turn bright red and cause me intense pain, so I was

screaming just from the air current in the room, but within 24 hours

that spot would back down and another spot would start to swell.

Fingers, toes, wrists, knees, hip, shoulder. I am now wondering of

some severe shoulder problems I had that did not respond to the

orthopod for over 2 years might have also been RA.

>

> I wound up unable to work, and uninsured. On a very few occasions

I did wind up in critical care or clinic but they never really

bothered to pay me any mind. Actually I am starting to think maybe

I was drug seeking? I began to research on my own------and then I

called my primary and begged him to refer me to a rheumy. By then I

could no longer walk or use my hands at all, and I was suicidal at

times. I still had no insurance, tho and I have 3 kids , 2 of whom

are also disabled and a disabled husband. The rheumy thought I had

some sort of arthritis, but- I could not afford lab work. SO he

began me on samples of arthrotec, sulindec - nothing helped. He did

let me take prednisone for 2 weeks, and thta was like Heaven. then

he let me try mtx, but I could not afford the labs after my first

samples ran out and I went 2 years without being able to go back to

the doc. I declined terribly. I literally was bedbound and unable

to hold a glass in my swollen fingers or have any weight on my

wrists, my toes and feet and knees were so swollen, I begged for

months to just die.

> I finally got my social security disability and my Medicare. The

doc then gave me more samples of mtx and Medicare covered my lab

work and finally I was formally diagnosed.

> The mtx made life SO much better. I walk again, slowly,

carefully, but I walk!!! I can again comb my own hair and brush my

own teeth and dress daily.

> Oh I have to walk carefully and some days I can only comb my hair

and not do much else. On a rare occasion my pain might be severe.

I am finding the more stress I have the worse it is....and yes at

that time of the month- it does get worse. I think it also gets

worse in spring and fall (I live in northern IL)

> But the good news is my flares now are nothing like how I lived

for awhile there every single day.

[Guest guest]

I upset my poor much younger minister brother one day. I was hurting like sooo

bad and crying, and he said something and I was kinda testy, and I said hey

look, you know that STephan King movie, Needful Things? I would sell my

immortal soul for relief from this pain NOW. Sadly I meant it. It was such a

horrible time. I am SO SO grateful to my God to not be in that place anymore.

Yes, I would have used all kinds of drugs, but- the ER did once give me morphine

for it, and it did not help and they did not believe me.......and after that

they never ever gave me pain relief meds again....only ibuprofen. I used to

gobble them like M & Ms and people would panic and I would look at them and say

well, gosh, this kind of pain, I might be happier dead, gosh what a horrible

thing to think. No, I am not in that place anymore. YAY! NO WAY will I stop

my mtx. NO WAY

- In , " marina_troi " <nefertiti@i...> wrote:

> This stinkin' disorder DOES make you feel like a drug seeker,

> doesn't it!!!

>

>

> > originally I thought my first flare was when my wrist was tender

> and sore and my doc said it was work related tendinitis. He splinted

> it and told me to stop crying. not long after my knee began to

> swell one day while I was driving home and before I got home it

> swelled up so badly I could not drive (I had a stick shift car and a

> 2 hour commute) I pulled off and hobbled in for cofee and thought it

> might back down WRONG. I actually passed out from the pain a few

> hours after my husband managed to get me home and he called an

> ambulance. They kept insisting I MUST have injured my knee- thye

> tried to drain it, got nothing and sent me home telling me it was in

> my head. For many months different parts of me would just begin to

> swell and turn bright red and cause me intense pain, so I was

> screaming just from the air current in the room, but within 24 hours

> that spot would back down and another spot would start to swell.

> Fingers, toes, wrists, knees, hip, shoulder. I am now wondering of

> some severe shoulder problems I had that did not respond to the

> orthopod for over 2 years might have also been RA.

> >

> > I wound up unable to work, and uninsured. On a very few occasions

> I did wind up in critical care or clinic but they never really

> bothered to pay me any mind. Actually I am starting to think maybe

> I was drug seeking? I began to research on my own------and then I

> called my primary and begged him to refer me to a rheumy. By then I

> could no longer walk or use my hands at all, and I was suicidal at

> times. I still had no insurance, tho and I have 3 kids , 2 of whom

> are also disabled and a disabled husband. The rheumy thought I had

> some sort of arthritis, but- I could not afford lab work. SO he

> began me on samples of arthrotec, sulindec - nothing helped. He did

> let me take prednisone for 2 weeks, and thta was like Heaven. then

> he let me try mtx, but I could not afford the labs after my first

> samples ran out and I went 2 years without being able to go back to

> the doc. I declined terribly. I literally was bedbound and unable

> to hold a glass in my swollen fingers or have any weight on my

> wrists, my toes and feet and knees were so swollen, I begged for

> months to just die.

> > I finally got my social security disability and my Medicare. The

> doc then gave me more samples of mtx and Medicare covered my lab

> work and finally I was formally diagnosed.

> > The mtx made life SO much better. I walk again, slowly,

> carefully, but I walk!!! I can again comb my own hair and brush my

> own teeth and dress daily.

> > Oh I have to walk carefully and some days I can only comb my hair

> and not do much else. On a rare occasion my pain might be severe.

> I am finding the more stress I have the worse it is....and yes at

> that time of the month- it does get worse. I think it also gets

> worse in spring and fall (I live in northern IL)

> > But the good news is my flares now are nothing like how I lived

> for awhile there every single day.

[Guest guest]

Sorry to hear you are not feeling well. Hope you are feeling better

soon. Stay warm!! Michele

Flares

Hello to all and geez I hope you are warm. We are freezing in KY! I am

not

sure if it is weather related, age related or what but I am having what

seems

to be the flare that won't go away. I am wondering if anyone has

experienced

what I am and can clue me in.....I feel the main problem may be the

knees but I

feel the pain from my hip to my achilles heel. If I am up walking I am

good

for 20-30 minutes and then its time to be painfully seated and again I

am good

for 20-30 minutes and I painfully must move again. Sleep is becoming

increasingly rare and awakening and attempting to hop out of the bed is

not reality as I

have known it. Trying to straighten my legs upon awakening can be

paralled to

being shot in the back of knee.LOL. I do have both hips replaced but

feel

this is not hip related. The pain radiates.The pain in my legs seems to

be

muscular as well as in the bone/joint and I am wondering if anyone has

experinced

this and what they did about it. It is so rare to hear me speak of pain

but dang

it, this hurts! I am calling th doc tomorrow and the bad thing is I am

not

even sure what the problem is (lol...dont ya hate when that happens?)

Any

ideas???

Stay warm and wel!

Hugs and smiles!

Donna

[Guest guest]

I have not replied to anyone lately regarding the candida question being

discussed lately but want to share with you what I am taking which I really

takes care of my problem. I know some take the pure oregano oil. I am taking

a

complex from METAGENICS which is called CANDIBACTIN-AR. This contains

oregano oil, thyme, sage and lemon balm. At first, I had a difficult time

taking

it as I had experienced problems with just the oregano oil giving me terrific

indigestion. I persevered with this and wow, has it helped the yeast. The

problem is that I cannot purchase it at any local health food store but have

to get it over the internet or doctor. As far as dosage, I began with one a

day for a couple of weeks and then upped to two capsules per day. Once I

thought I had the yeast under control, I went back to one a day and am doing

very well.

************************************** Get a sneak peek of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

[Guest guest]

Hi lind, thank you, I have taken Minocin 100mg twice a day every day for

20 months. Once in a while, I'm late taking a pill or fall asleep. But the

minute I wake up I remember to take it again. I take no days off from the

therapy. Yes, I get a bit overwhelmed sometimes. I have S/D and it is a serious

disease with lots of twists and turns. But A/P is definitely saving my life. I

believe I would be dead today if I had not started when I did. Just keep on

taking it come hell or high water. Even if you are late on a dose, try to get

those two babies in there everyday. You're not supposed to eat two hours prior

or after taking the pills. Sometimes, it is not possible to space it so I have

cheated on ocassion and eaten after an hour. I am diabetic, so I have to also

take that into consideration. I think my immune system is up and running well

because I don't or haven't had any problems with fungal infections and I can't

recall a herx. Some days I feel better

than others, but that's life in general. Keep on and good luck! Dolores

lind Gittings <rosalig@...> wrote: Hi everyone

I am currently undergoing a flare and would like to know how others deal with

them.

Someone recently said she upped the dose of mino during flares and then went

back to

her ordinary dose. I'm on 100mg a day Monday to Friday. When I first started on

the mino I

was taking it M-W-F but after about six months the twinges started getting worse

so I

increased to daily, but for about six weeks have had fairly bad pain in some

joints, and

brain fog and fatigue and anxiety. I'm scared it will become worse if I take

more mino and

maybe herx. How will I know if it's a herx or if it's the disease worsening?

I've been on

mino for 9 months.

Also, I've struggled for 20 years with candida from cortisone for asthma, and am

keeping

it under control with nystatin and probiotics, but having more antibiotics may

make that

more difficult too. Oh dear, it's such a complex situation. I wish my doctor

knew more

about it and could just say to do this, do that, etc. but he hasn't a clue.

How much oil of oregano do people take, and when?

I'd like to hear especially from long-term users about their management

procedures and

whether they still have pain regularly, whether they still get fatigue,

depression, etc. As

you can probably tell I'm a bit discouraged at the moment but this too will

pass!

Dolores, I know you have had great results taking 200mg a day and that

encourages me to

try it and see. Do you have 2 days off a week? I have never naturally had the

boundless

energy and optimism that you seem to have (even when I was in remission for 10

years)

which I think would be a great help in dealing with all this, but you're a good

motivator for

me.

Thanks to anyone who answers.

Ros

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

[Guest guest]

My old Rheumy use to say that it is important to use a joint because it

could lock in place and  you'd have a bigger problem.

He also use to say: use it, but don't abuse it.

Don't know if this is any help or not.

Joyce

[Guest guest]

when i have my flares,( oh lord help me ) every joint in my body

hurts. it is never just one.....

the more you work hurting, the more damage you are doing to yourself,

hon. by all means work as long as you can tho, i'm 68 yrs. old, and

up untill 3 yrs. ago i worked like a man. always did all my life.

guess i'm paying for it now, with every joint gone.....lol...

betty

On 10/9/10, philtymom <philtymom@...> wrote:

> Ok I have a couple questions I would like yalls input and experience with.

> 1) Have you noticed is it repetitive movement of a joint that causes your

> flares or do they just happen in whatever joint they decide?

> 2) When you have a flare such as in your shoulder or knee, do you minimize

> activity until the flare passes or do you continue with your normal

> activities? I have had RA for 5 years and I am so confused on what to do or

> not do. I am on meds and do see a rheumy regularly but, it is the day to

> day activities I am confused about. I do believe a strong positive outlook

> does help but, what about other times. I do work 2 part time jobs, one I do

> a lot of lifting and I have not been able to go the last 2 days, but was

> wondering if I should just go on and work with the pain. Thank you so much

> for any advice or experiences you have had.

> Kathy

>

>

--

NUMBERS 6: 24-26

[Guest guest]

Shae I hate you are going through this. I hope you get out of the flair quickly

and the Rheumy has some ideas.

________________________________

From: Shea Reasoner <sheareasoner1@...>

" " < >

Sent: Sat, November 13, 2010 6:56:15 AM

Subject: Flares

Hey everyone,

Last week I was in the E.R but this week I had to call my rhuemy. I was on 5

days of prednisone, as soon as the 5days were up I was miserable. We keep taking

all of these shots (I have 3 every week) thinking that once I take them I will

feel better. But it's been two weeks and we are having a tough time getting out

of this one. I have lots of school work that I have to do but my fingers usually

won't let me go as fast as my brain is. With English, Science, and History I can

type but with pre algebra there is no way around it. I have been very very

tired. I am in bed at 7:30 p.m and still sleeping in till about noon. I am not

being lazy, I am just exhausted from just being awake. We have a rheumy appt. On

December 3rd And I have no clue what she will say. I am back on prednisone and I

am really scared as to what will happen when these tiny pills are gone. This is

still, my first flare on Enbrel, I am not sure if this one flare means it's not

working

or what. This is our first biologic and we really hope that it's not going to

let us down. Its times like these that make me wonder why no one can find a

cure. If they really did discover arthritis in remains of someone who lived over

500,000 years ago than we have dumbs scientists or arthritis is planning to take

over the world.

Thank you for your support

Shea

( polyarticular JIA and pain disorder)

[Guest guest]

Rading your story reminds me of my son's. He was hard to control, and still is

at times. I do know that you guys are really tough and push through the pain.

This Mom understands the fatigue. It is not being lazy. Just think that your

body is also growing rapidly and changing, at the same time you are dealing with

an arthtis flare. Your body needs the rest!

One thing we added was a good vitamin, just to make sure he was getting enough

of everything he needed. Sometimes you teens skip your veggies.

I read where exercise helps, but it is hard to even walk when you are falling

asleep. Maybe a bike ride would be helpful.

We found out that was gluten intolerant, and is being tested for Celiac.

He was having such bad fatigue, stomach pain, and random diarrhea. We took him

off wheat, rye, barley, and oats. He is a different child. Now he only has

fatigue with the arthritis.

Sometimes one autoimmune disease and bring on another, so I thought I would

mention this.

Also, the Enbrel only worked for about 6 months with . Then we had to go

to Humira. Peyton went into remission with Enbrel. So it is just different

with different kids.

I'll keep you in my prayers.

Audra

14, poly 07

Peyton 12, poly 08

>

> Hey everyone,

> Last week I was in the E.R but this week I had to call my rhuemy. I was on

5 days of prednisone, as soon as the 5days were up I

[Guest guest]

Thank you for all of your replies!

They make me smile Shea Reasoner

________________________________

From: audra <wynhama@...>

Sent: Sun, November 14, 2010 9:56:02 AM

Subject: Re: Flares

Rading your story reminds me of my son's. He was hard to control, and still is

at times. I do know that you guys are really tough and push through the pain.

This Mom understands the fatigue. It is not being lazy. Just think that your

body is also growing rapidly and changing, at the same time you are dealing with

an arthtis flare. Your body needs the rest!

One thing we added was a good vitamin, just to make sure he was getting enough

of everything he needed. Sometimes you teens skip your veggies.

I read where exercise helps, but it is hard to even walk when you are falling

asleep. Maybe a bike ride would be helpful.

We found out that was gluten intolerant, and is being tested for Celiac.

He was having such bad fatigue, stomach pain, and random diarrhea. We took him

off wheat, rye, barley, and oats. He is a different child. Now he only has

fatigue with the arthritis.

Sometimes one autoimmune disease and bring on another, so I thought I would

mention this.

Also, the Enbrel only worked for about 6 months with . Then we had to go

to Humira. Peyton went into remission with Enbrel. So it is just different

with different kids.

I'll keep you in my prayers.

Audra

14, poly 07

Peyton 12, poly 08

>

> Hey everyone,

> Last week I was in the E.R but this week I had to call my rhuemy. I was on

>5 days of prednisone, as soon as the 5days were up I

>