Fibromyalgia

July 7, 2004

In a message dated 7/7/04 6:08:01 PM Central Daylight Time, ombass@...

writes:

> Wondering if anyone has had any success treating fibromyalgia with a

> cleansing routine. From what I know, it's pretty much the only way to " beat "

> it. Does anyone have experience, or any information?

>

> Thanks!

>

> _jason_

>

,

I have an autoimmune disease and one of the things that tag along

with it is fibromyalsia. I strive to have a good diet, and have done

colonics in the

past but just purchased a colema board but haven't had a chance to use it.

On the advice of a doctor I use a Far Infrared Dome and it does help with my

Fibro but when I have one of those terrible flares, the thing that helps me

most

is magnesium oratate. Many people just use magnesium citrate but I

just keep using my old stand by.

Edith

July 8, 2004

Just curious -- how many fillings do you have in your

mouth?

Pix

--- ejohns9525@... wrote:

> In a message dated 7/7/04 6:08:01 PM Central

> Daylight Time, ombass@...

> writes:

>

> > Wondering if anyone has had any success treating

> fibromyalgia with a

> > cleansing routine. From what I know, it's pretty

> much the only way to " beat "

> > it. Does anyone have experience, or any

> information?

> >

> > Thanks!

> >

> > _jason_

> >

>

> ,

>

> I have an autoimmune disease and one of the things

> that tag along

> with it is fibromyalsia. I strive to have a good

> diet, and have done

> colonics in the

> past but just purchased a colema board but haven't

> had a chance to use it.

>

> On the advice of a doctor I use a Far Infrared Dome

> and it does help with my

> Fibro but when I have one of those terrible flares,

> the thing that helps me

> most

> is magnesium oratate. Many people just use

> magnesium citrate but I

> just keep using my old stand by.

>

> Edith

>

> [Non-text portions of this message have been

> removed]

>

__________________________________________________

July 8, 2004

> Wondering if anyone has had any success treating fibromyalgia with a

> cleansing routine. From what I know, it's pretty much the only way to

> " beat " it. Does anyone have experience, or any information?

>

> Thanks!

>

> _jason_

Hi ,

What you might have missed is that in addition to the series of liver

flushes and dietary restriction of problem unsaturated oils such as

corn, canola and soy, you also increase antioxidant levels and

especially glutathione which requires precursors such as are

plentiful in cold-processed whey (with selenium). Glutathione is the

main liver and kidney support in cleansing, and it also is used by

all of the cls as a free-radical quencher.

Also, the foremost treatment for fibromyalgia is an increase of

growth hormone. Rather than taking expensive and tricky shots, HGH

secretion can be improved naturally with a specific amino acids blend

that is patented for this purpose. When you look at the various HGH

sounding products you see that Dr. Ron Klatz, the guru of HGH

research, is often referred to; he and 11,000 other doctors in the

American Academy of Anti-aging Medicine find this product to be

reliable enough to adopt out of more than 100 tested in the clinic.

I've seen a few people with FM become pain-free in just days; these

were " good responders " -- others took a few weeks to several months.

Diet improvement is potentially important; it can't hurt and it will

more likely help the performance of any wellness program.

A friend's website contains specific references to fibromyalgia and

other disorders in relationship to HGH therapy. Most of the data

pertains to HGH shots but the site also contains some data for the

amino acids approach.

http://members.shaw.ca/patriciagilbert/

If you lose my email address you can find me via my profile.

regards,

Duncan Crow

July 8, 2004

Hi , I'm sure that the cleans will help - also i just read something about

tart cherries helping relieve pain from fibromyalgia.

Here is where i read it:

http://www.mercola.com/forms/softgel_capsules.htm

good luck,

JJ

>

> From: " -<(::jason:>- " <ombass@...>

> Date: 2004/07/07 Wed PM 05:52:22 CDT

> " Dr " <Dr >,

> " bowel cleanse " <bowel cleanse >

> Subject: Fibromyalgia

>

July 8, 2004

On 7/8/04 7:52 AM, " C CG " <pixiepie2003@...> wrote:

> Just curious -- how many fillings do you have in your

> mouth?

None that are mercury. I had all those removed years ago. I have a bunch

now, but they are all the white porcelain.

_jason_

July 9, 2004

Yes, they look good too. They sell cherry juice (as does mercola.com I think)

as well as dried cherries.

thanks,

JJ

> From: mike man <mgsboediitodpc@...>

> Date: 2004/07/08 Thu PM 03:38:10 CDT

> bowel cleanse

> Subject: Re: Fibromyalgia

>

> get some tart cherry juice from here

http://www.mi-cherries.com/

--- jennifer.jackson@... wrote:

> Hi , I'm sure that the cleans will help - also

> i just read something about tart cherries helping

> relieve pain from fibromyalgia.

>

> Here is where i read it:

>

> http://www.mercola.com/forms/softgel_capsules.htm

>

> good luck,

> JJ

>

July 9, 2004

On 7/9/04 11:03 AM, " C CG " <pixiepie2003@...> wrote:

> Have you tested yourself for Candida?

I have candida as well. I haven't officially tested myself (how do you do

that?), but I react very directly to sugars (blisters/cracks on hands,

nausea). My naturopath says I have it. Any suggestions on how to beat it?

I keep asking about the raw garlic thing but no one replies (even though we

were all just discussing this a while back).

_jason_

July 9, 2004

On 7/8/04 10:35 AM, " Duncan Crow " <duncancrow@...> wrote:

>> Wondering if anyone has had any success treating fibromyalgia with a

>> cleansing routine. From what I know, it's pretty much the only way to

>> " beat " it. Does anyone have experience, or any information?

>>

>> Thanks!

>>

>> _jason_

>

> Hi ,

>

> What you might have missed is that in addition to the series of liver

> flushes and dietary restriction of problem unsaturated oils such as

> corn, canola and soy, you also increase antioxidant levels and

> especially glutathione which requires precursors such as are

> plentiful in cold-processed whey (with selenium). Glutathione is the

> main liver and kidney support in cleansing, and it also is used by

> all of the cls as a free-radical quencher.

>

> Also, the foremost treatment for fibromyalgia is an increase of

> growth hormone. Rather than taking expensive and tricky shots, HGH

> secretion can be improved naturally with a specific amino acids blend

> that is patented for this purpose. When you look at the various HGH

> sounding products you see that Dr. Ron Klatz, the guru of HGH

> research, is often referred to; he and 11,000 other doctors in the

> American Academy of Anti-aging Medicine find this product to be

> reliable enough to adopt out of more than 100 tested in the clinic.

>

> I've seen a few people with FM become pain-free in just days; these

> were " good responders " -- others took a few weeks to several months.

> Diet improvement is potentially important; it can't hurt and it will

> more likely help the performance of any wellness program.

>

> A friend's website contains specific references to fibromyalgia and

> other disorders in relationship to HGH therapy. Most of the data

> pertains to HGH shots but the site also contains some data for the

> amino acids approach.

> http://members.shaw.ca/patriciagilbert/

>

> If you lose my email address you can find me via my profile.

Hi Duncan,

Thanks a lot for all this detailed info! I wasn't aware of any of this. I

will definitely check it out.

Thanks again!

Have a good weekend...

_jason_

July 9, 2004

Hi ,

cracked hands (dry hands I guess) is related to sugar for some people? wow. Is

there anything else that relates to dry hands or feet that you know of (as far

as food goes)? Thanks,

JJ

>

> From: " -<(::jason:>- " <ombass@...>

> On 7/9/04 11:03 AM, " C CG " <pixiepie2003@...> wrote:

> Have you tested yourself for Candida?

I have candida as well. I haven't officially tested myself

(how do you do

that?), but I react very directly to sugars

(blisters/cracks on hands,

nausea). My naturopath says I have it. Any suggestions on

how to beat it?

I keep asking about the raw garlic thing but no one replies

(even though we

were all just discussing this a while back).

_jason_

July 10, 2004

Hi, me again asking a question. What are the effects of candida on our body.

You said that we all have it to some degree; what happens when we have way too

much of it? what are the symptoms of that?

Also, if possible, could you describe what it looks like?

thanks very much,

JJ

> From: C CG <pixiepie2003@...>

> One of the downsides of having mercury fillings

removed is increase in Candida. Unfortunately, one of

the few good things mercury does in the body is keep

the Candida colonies killed off enough not to cause

real problems. However, once mercury is removed,

Candida can proliferate.

Most books on Candida contain a checklist test you can

take, and that will tell you if you have Candida. But

I would say if you crave sugar or carbohydrates or

fermented products, then you probably have Candida. We

all have Candida, it's just a question of how much!

The Candida Cleanse from RenewLife is a good product.

The problem is you feel yucky while the Candida is

dying off.

Pau D'Arco tea is good, olive leaf extract is good.

However, Candida becomes resistant very quickly to

just about anything so you would have to switch off on

these. The best thing you could do would be to starve

the Candida by not eating sugar for at least six

months (I know), then you can slowly incorporate a few

items back into your diet. Garlic is great for worms,

but I don't think it would kill enough Candida to make

a difference.

Taking mega-doses of probiotics would also really help

keep the Candida in check.

Good luck!

October 7, 2004

Angie,

I too have both RA and fibro. I can't say that there is anything special my

rheumy has told me specifically helps fibro but I find it worse when it is humid

and during change of seasons. We purchased a jacuzzi and that seems to help me

feel better. When the fibro acts up all I want to do is sleep - sometimes I

just have to give in. Problem with having RA and fibro is separating the

two-joints ache from ra and muscles from fibro. I try to get enough rest and

eat right. Sorry I can't be more help but just know you are not alone!

NAncy

along302003 <along3@...> wrote:

I was wondering if anyone has fibromyalgia. I have been

diagnosed with RA and the the rheumy thinks I probably have fibro

too I was wondering what treatments you do He says that is why I

feel so bad still I hope to learn all I can about the fibro YOu

guys helped me greatly with the RA I really appreciate everything

Thanks for all information you can give me

Thanks

Angie

October 7, 2004

,

Thanks for letting me know I am not alone. I understand what you

mean about having trouble separating joint pain and muscle pain I

kept on thinking it was my joints but after my appointment yesterday

talking to the doctor and thinking about it i can recall some of it

has been muscles instead of joints Thanks again unfortuntly the

jacuzzi isn't a option for me can't afoord it

Thanks

Angie

>

> I was wondering if anyone has fibromyalgia. I have been

> diagnosed with RA and the the rheumy thinks I probably have fibro

> too I was wondering what treatments you do He says that is why

I

> feel so bad still I hope to learn all I can about the fibro YOu

> guys helped me greatly with the RA I really appreciate

everything

> Thanks for all information you can give me

>

> Thanks

> Angie

>

October 7, 2004

Hi Angie:

Sorry to hear of your diagnosis but you have come to

the right place for understanding and advise.......I

have both and I do find it hard to distinguish which

is giving me the pain..........the are so closely

related........the fatigue never seems to go

away...some days are better than others but it is

always there for me........I think exercise is good

when and if you can do it.......and I do believe the

changing of the weather is harder on me than

others....I hate to get out of the hot shower in the

morning so I too wish i could afford the hot tub......

Anyway please know others know what you are going

thru......Hang in there

Pat in So Ore.

--- " M. " <neproper@...> wrote:

> Angie,

> I too have both RA and fibro. I can't say that

> there is anything special my rheumy has told me

> specifically helps fibro but I find it worse when it

> is humid and during change of seasons. We purchased

> a jacuzzi and that seems to help me feel better.

> When the fibro acts up all I want to do is sleep -

> sometimes I just have to give in. Problem with

> having RA and fibro is separating the two-joints

> ache from ra and muscles from fibro. I try to get

> enough rest and eat right. Sorry I can't be more

> help but just know you are not alone!

> NAncy

>

> along302003 <along3@...> wrote:

>

> I was wondering if anyone has fibromyalgia. I

> have been

> diagnosed with RA and the the rheumy thinks I

> probably have fibro

> too I was wondering what treatments you do He

> says that is why I

> feel so bad still I hope to learn all I can about

> the fibro YOu

> guys helped me greatly with the RA I really

> appreciate everything

> Thanks for all information you can give me

>

> Thanks

> Angie

>

October 10, 2004

I have fibro but don't have a definite diagnosis for the RA yet. I was

diagnosed with fibromyalgia about 12 years ago. Some doctors that I've seen

since that time won't even acknowledge that it exists. It has been very

frustrating. It was sort of weird... I was almost relieved initially when

told I have arthritis because everyone knows that it is real and causes pain

I feel like I'm finally being taken seriously.

Darlene

May 6, 2005

Cailin,

There are SO MANY theories about what causes

fibromyalgia, so I really doubt that there is just one

single cause. But, there is no doubt that mercury

fillings (because they leach mercury into the body)

are BAD news, and have been blamed for MANY ailments

besides fibromyalgia.

Dr. Mercola also recommends Chlorella as one of the

best " mercury magents " . Edible seaweeds and Spirulina

also are known to remove heavy metals and toxins from

the body.

--- Caitlin Lorraine

<secretariat88@...> wrote:

> I have read that 90% of fibromyalgia is caused by

> mercury poisoning of the body, usually in the form

> of mercury amalgam fillings. Everyone that I

> personally know of that is suffering from this

> debilitating disease is indeed from mercury. My dad

> for example has 14 mercury amalgams in his mouth. I

> know of 5 others as well. The absolute best thing to

> do is remove those fillings by a dentist who knows

> the Huggins protocol and replace them with either

> plastic composite fillings or zinc oxide. Zinc oxide

> fillings do not last near as long so I would go with

> the plastic composite fillings myself. They still

> leach some toxins, but are more than 100 times safer

> than mercury fillings.

>

> Then they will want to go through a mercury detox

> after removal. The simplest thing to do is ingest

> large amounts of cilantro, it pulls mercury out of

> the body like a magnet! If it is of interest Owen

> has posted a cilantro pesto recipe and instructions

> at this url.

> http://curezone.com/blogs/m.asp?f=24 & i=17

> Three weeks of doing that and the person should be

> mercury free and on the road to feeling tons

> better!! After that I would definitely take coconut

> oil with a healthy diet, and I would also add large

> doses of Vitamin C daily. I cannot find the link on

> Vitamin C and fibromyalgia to post but I am sure

> that a google search will provide the link. He is

> the doctor that has cured many fibro patients with

> large vitamin C doses alone, he says if they are

> still suffering in pain they have not heard about

> vitamin C. Personally I think full and long lasting

> relief will never come until the amalgams are

> removed, getting to the root cause then detoxing

> would be anyone suffering from this debilitating

> disease's BEST bet. Also below is another link on

> mercury as well. Best of luck and God bless, Caitlin

> Lorraine

>

> http://www.curezone.com/blogs/f.asp?f=86 & t=39077.08

>

> [Non-text portions of this message have been

> removed]

>

__________________________________________________

May 16, 2005

understand the person and disease processes: there is no single button for a dysfunction. Please do homework, research. The timed therapies fibrositis will help.

Scenar has also been a very effective adjunct

Kelsey PhDQXCI User Manual Author, Advanced TrainerVisit www.qxcisynergy.co.uk for tech infos

Fibromyalgia

hello: I have several people with fibromyalgia and I would like to help them. I would like to know if some protocol exists with the qxci/scio that this giving good result. Thank you Santiago

............................................

May 16, 2005

Hi,

Nirvana has an excellent CFS & fibro protocol.

JMsancilia <sancilia@...> wrote:

hello: I have several people with fibromyalgia and I would like to help them. I would like to know if some protocol exists with the qxci/scio that this giving good result. Thank you Santiago

............................................

May 16, 2005

> En blancohello: I have several people with fibromyalgia and I would

> like to help them. I would like to know if some protocol exists with

> the qxci/scio that this giving good result. Thank you Santiago

More than 1/3 of people with fibromyalgia are low in human growth

hormone release. Quite a lot of the science on it, mainly about HGH

and IGF-1 injections, is posted on

http://members.shaw.ca/patriciagilbert/

All people, especially the elderly, (96%) respond to increasing their

own HGH release with an amino acids blend - the commercial blend used

by many thousand anti-aging doctors in preference to expensive and

tricky HGH shots is SomaLife gHP. It allows healing speed and other

cellular strength and function such as immune response to become more

youthful; in fact the whole body does become more youthful.

This nutritional approach would be a useful adjunct to a stimulating

and healing frequency set for the pituitary and hypothalamus area.

I'm sorry I can't be more specific on the frequencies, as I have not

operated my acquaintance's QXCI yet, but such stimulating and healing

frequency sets are listed on Bruce Stenulson's Rife website.

Duncan

May 22, 2005

please re-post just a blank page

Re: Fibromyalgia

Hi,

Nirvana has an excellent CFS & fibro protocol.

JMsancilia <sancilia@...> wrote:

hello: I have several people with fibromyalgia and I would like to help them. I would like to know if some protocol exists with the qxci/scio that this giving good result. Thank you Santiago

............................................

May 31, 2005

I am attaching the file again for anyone who needs it.

Wishing You Health and Happiness,

NirvanaJackie <naturegirl32000@...> wrote:

Hi,

Nirvana has an excellent CFS & fibro protocol.

JMsancilia <sancilia@...> wrote:

hello: I have several people with fibromyalgia and I would like to help them. I would like to know if some protocol exists with the qxci/scio that this giving good result. Thank you Santiago

............................................

May 31, 2005

Hello Santiago,

I am attaching a file for your use.

Wishing You Health And Happiness,

Nirvanasancilia <sancilia@...> wrote:

hello: I have several people with fibromyalgia and I would like to help them. I would like to know if some protocol exists with the qxci/scio that this giving good result. Thank you Santiago

............................................

July 23, 2005

Hi Jayson,

I think it is great that your Rhuemy works with both diseases, and

that your wife is so involved in Fibro. My Rhuemy believes in Fibro

and works hard to help me control the pain. He is trying to teach me

the differences in pain but sometimes I am still confused. I just

know I hurt. I also see a pain med psych Dr, he handles some of the

pain meds but also makes sure that my emotional health is good. That

plays such a big factor in the disease. The more pain the more likely

depression and frustration are to settle in which only works against

us. I have a very postive attitude and have accepted lifes changes. I

just look for ways to better myself and keep my self worth in

different ways than I use to do. I was also diagnose with moderate

COPD lately and started to really get down then. Thank goodness I

have a supportive family, who helped me through and told me I should

still go for my dreams. Whether I have 2 years or 10 years left I

plan to live them to the best of my ability and not give in to any of

these diseases. I read somewhere that your disease cannot become your

identity. I truly believe this. That is why I love this group because

of the postive attitudes everyone has, despite the pain. I agree that

it doesn't matter whether you are a male or female with this disease,

rather it is a matter of your heart and soul.

Sorry for the long post- I just thought it was so great that there

are places that are finally focusing on Fibro. Good luck to you and

your family. Have a great day

Pat

>

> Hi guys,

>

> I know it's been a long time since I've written. Someone asked me

a

> looooooooong time ago about me being male and having fibro. I'm

not

> sure I quite understand the distinction. I know it's rarer for men

to

> have it, but here I am. I don't know if it's a result of my PA or

not,

> though my rheum has said so. It seems so inseparable for me since

my

> rheum thinks that the PA is affecting my tendons (I agree, ouch!!!)

and

> then of course fibro causes muscle pain. It's all CONNECTED! Arg!

>

> On a related note, my wife just got a new job in Bellevue, WA.

She is

> the director of a new center called the Fibromyalgia and Fatigue

> Center. These centers are in a lot of different cities

apparently.

> The guy who started them is a doctor who was diagnosed with

> fibromyalgia when he was in medical school. So...the people who

work

> in these places are highly trained to UNDERSTAND. It's a whole new

> approach, sadly. I've been so put off by so many doctors about my

PA

> and fibro. Anyway.....I just think it's so cool that there is a

place

> out there focusing specifically on fibro and CFIDs. I'm lucky to

have

> a rheum whose main focus is PA, and it makes all the difference.

>

> best to everyone,

> Jayson

October 2, 2005

Hi, Pat. I'm Marina. I, too, am a nurse. Did critical care for a

while and now I work in surgery. If you don't mind, how do you like

being a Legal Nurse Consultant? What kind of education did you have

to go through to do that. I have RA (we think), Sjogren's, and

Fibro. My RA and ANA have always been negative, but my SED rate,

CRP, and a few others are elevated. I don't have the nodules,

either. My rheumy says I am an enigma to him!! Oh well, that's par

for the course. Heck, I can't even get a definate diagnosis as to

why I continue to be a kidney stone factory!! Everything came back

either inconclusive or unknown. Heck, it was recommended that I cut

back on poultry and red meat. That is a funny recommendation

considering I have been a vegetarian for the last 20 years!! So,

it's par for the course for me!! As for the FMS, I work with

doctors who don't think it's a real disorder. Even the guys,

interns and residents, say the same thing. If only they could feel

what we feel!! The fatigue just sucks. I think that is worse than

the pain, though sometimes the pain is a real kick in the butt!!

Well, take care and welcome.

Feel free to email privately anytime!!.........Marina

October 3, 2005

Hi Pat,

I'm Judi, 59 YO and was dx with fibromyalgia a few years ago, but

then found that I have Dercum's Disease, which is quite similar to FM

but add in hundreds of painful lipomas. Believe me, I am very

familiar with the " cement " legs and arms, and I drop things quite

often. Earlier this year I was dx with MS as well, but apparently in

its early stages.

After being insulted and tossed off by a number of doctors, I finally

found a wonderful group at Indiana U. Hospital, and they are working

to try to find something that actually helps. There is currently no

research being done on DD because it is so rare, so we who have it

are doing our own research and acting as our own guinea pigs.

I'm married to Ron who is in his 3rd year of dealing with

Parkinson's, and he is really putting up a good fight. He

understands what it is like to wake in the morning with less energy

than you went to bed with, and we try to support each other.

Unfortunately, once in awhile we both wake up " down " and those are

the hard days. But we do enjoy doing a few things, he plays golf and

we both bowl, and we love playing with our 4 grandkids--a 5-year old

and 2 1/2 year old triplets.

I applaud you for your activity and positive attitude!

Judi

October 8, 2005

Hi Marina,

I don't have your email address, so am just sending you a reply. Being a nurse

with fibromyalgia [and most probably post-polio syndrome, according to my

rheumy], it is difficult not feeling that all my years of nursing took its toll

on my body. My most recent downturn was in 2000 when I contacted mono and

developed a 'post-viral syndrome'. Prior to that I had fibro, but had worked

full time with it for ten years. I have done a LOT of research on all of this,

as that's what nurses do...lol. Numerous times I have asked my rheumy if I have

RA, but he says I don't fit the criteria...however, my joints become

cement-like, and I may just not test positive for it. Who knows...I do know

that stress plays a big role in my flares, too, especially money stress, since I

am single.

Perhaps all muscular/joint autoimmune diseases are connected in some way...there

has to be some faulty wiring someplace. Too many of us have the same symptoms.

I got my disability in 2001 after three tries; finally I put together all my

medical records, a log of what I could and could not do, a pain scale, and the

judge was impressed enough and granted it. It is VERY tough in this part of the

country to get SSDI, it seems, and I can't figure it out. I live in Fargo, ND

where the unemployment rate is about zero and the work ethic is unbelievable.

No one wants to believe someone can't work!

Oh well, I suppose I had better try and ride my bike as I can barely move...at

least it loosens up my knees somewhat. I had a right TKA 18 months ago and need

my left one done, too. It is wonderful to read how supportive this group is.

Oh Marina, you asked about being a Legal Nurse Consultant....I have been an

independent LNC for over ten years. I was asked to review some medical records

on a child back in 1995 and I have done this ever since. BUT with tort reform

and awards being reduced so much with this administration, there is little work

to be had. SO I am going to a rehab counselor next week to try and get

something for 2 days a week....or I will lose my house. I am sure most everyone

here has had these same problems, which just adds to all the stress related to

disability.

Have a great weekend.

Pat Maloney

[ ] Re: Fibromyalgia