Fibromyalgia

[Guest guest]

Marsha, after reading all this, even tho I hate to disagree with a

doc when I'm not " on scene " so to speak, I really think you have

this damn disorder called FM. And no, it can't be diagnosed with an

EMG. Read on with the books. Dr Pelligrino's latest book has

something about a new test that MIGHT be a possibility, but it's

still not there. As to the Cymbalta, yes some anti-D's help with Fm

pain. I'm not one of them but there are lots of people they do help.

I hope you are one of them. Since you plan on doing the guai

protocol, email me and I'll give you a link to the guai support

group I'm in. Getting the FM under control with the guai helps me

deal with my back pain and arther pain better. Maybe it will bring

you some relief too. Good Luck, Darz

>

> MARK, the reason i ask is that i truly believe that i have

fibromyalgia. as

> a result of the surgery i had on may 22nd for L3-L4 stenosis and

> spondylothesis,

> with cage,rods, screws and the whole nine yards. someone in this

group

> suggested it was trauma induced fibromyalgia. and i went to my

primary care

> doctor last week and he is like no, no. you don't have it. so

they are treating

> it with

> antidepressants. particularly the one that they are now treating

diabetic

> pain with. i can't think of the name of it right now. but i

feel like i have

> the worse case of flu ever. every joint and limb in my body

pulsates pain.

> and i am having a terrible time sleeping, and i am fatigued all

the time.

> just so not a good combination. i am seeing a nerve doctor next

week. but,

> really, they were able to diagnose your fibro from an emg? that

is very

> curious. i think i am definitely going to ask the nerve doctor

about it next

> week. my neurosurgeon was great. but he is the type that does

the surgery.

> the surgery was successful (and it was). he is done with me

now. next!!! i

> am truly sorry for everything you are going through, mark. i

read your

> posts all the time. i have been on this website for several

years also. thanks,

> marsha any more information you can give me about the fibro

would be so

> appreciated.

>

> My fibro is from the onset of the spinal stenosis and the

mylopothy. The

> neurosurgeon was the one who explained it to me with a number of

different

> tests

> that where done for everything else the EMG shows the more

sensitive areas.

> You'll know if you have fibro it's constant all over not just in

one

> particular area!! They keep mine in check with the

> baclofen,lycira,particular area!

>

>

>

>

>

>

[Guest guest]

Minimally invasive is what I was talking about! Thanks for the good

wishes. I sent you an email so you can join the guai group and get

more info. Email me if you need more. Darz

>

> darlene, even tho my primary care said it is not fibromyalgia, i

still think

> it is.

> my PC is very negative about the fibro to begin with. also he

pressed key

> points on my body but i am full of narcotics for the pain. uh,

duh. i am

> sorry to hear that you too are joining our painful back group.

this stuff is no

> fun. oh well.

> welcome aboard anyway. i had laser surgery years and years ago

with nothing.

> i think you want to find out about minimally invasive surgery. i

know a man

> that had that done for stenosis and he is doing just great.

> marsha

>

>

>

[Guest guest]

darlene, did you already send me the email for the support group? because i

can't find the email. what is the address of the support group?

thanks, marsha

[Guest guest]

Yes I tried to send it and thot it went thru. The name of the support

group is Guaifenesin and it's on . I'm sure you can find

it that way but I'll try to send you a link again. Darlene

>

> darlene, did you already send me the email for the support group?

because i

> can't find the email. what is the address of the support group?

> thanks, marsha

>

>

>

[Guest guest]

hello everyone,

i just got diagnosed today for fibromyalgia...as best they can diagnose

this. i am in chronic pain, big time, from the fibro, mornings when i get up

are especially bad. plus the fatigue, mental confusion, and cannot sleep at

night. at all. these are my symptoms. There are other symptoms, such as

aversion to smells. but i don't have that. What i want to say is that i

believe

that my fibromyalgia was trauma induced and is a result of the spinal fusion

i had on may 22nd. i just want you all to know that because i believe that

this might be a common result of spine surgery and it sucks. not that i had

a choice about the spine surgery, L3-L4 with cage, pins, rods and screws. i

did not have a choice about the surgery.

but i wish i had known i was not going to be all right after the surgery.

marsha

[Guest guest]

Dear Marsha

Please don't always believe the first doctor kinda thing when he says

fibromyalgia that may not be the case. Examine all avenues heck I was told

fibromyalgia myself at one point yeah right. I have as I have stated before

Arnold Chiari I, tethered cord, EDS and an acoustic neuroma DDD and DJD along

with other things so much for fibromyalgia. I am up to my third spinal cord

operation and still going have two more to go that they are sure about. So

fibromyalgia is getting a bad name for things they don't understand or are not

going to look for because it is unusual and rare.

Get a second even a third opinion.

BLEECKERST10012@... wrote:

hello everyone,

i just got diagnosed today for fibromyalgia...as best they can diagnose

this. i am in chronic pain, big time, from the fibro, mornings when i get up

are especially bad. plus the fatigue, mental confusion, and cannot sleep at

night. at all. these are my symptoms. There are other symptoms, such as

aversion to smells. but i don't have that. What i want to say is that i believe

that my fibromyalgia was trauma induced and is a result of the spinal fusion

i had on may 22nd. i just want you all to know that because i believe that

this might be a common result of spine surgery and it sucks. not that i had

a choice about the spine surgery, L3-L4 with cage, pins, rods and screws. i

did not have a choice about the surgery.

but i wish i had known i was not going to be all right after the surgery.

marsha

[Guest guest]

LINDA, thanks and i am sorry you are going through all of this. but my

symptoms are very much fibromyalgia and i have already been to a number of

doctors. my problem was getting the doctors to take me seriously and to stop

telling me i am depressed. that was their solution. i am not depressed but i

am

in chronic pain. and i do believe it is fibromyalgia. i am finished with my

back stuff (i hope). good luck to you. marsha

[Guest guest]

Thank you Marsha I am glad they figured out what is was on you smiling

Hugs

BLEECKERST10012@... wrote:

LINDA, thanks and i am sorry you are going through all of this. but my

symptoms are very much fibromyalgia and i have already been to a number of

doctors. my problem was getting the doctors to take me seriously and to stop

telling me i am depressed. that was their solution. i am not depressed but i am

in chronic pain. and i do believe it is fibromyalgia. i am finished with my

back stuff (i hope). good luck to you. marsha

[Guest guest]

Hi Beth,

As mentioned, I was diagnosed with Fibro in 1997. As you know, it can

make life very miserable.

After the MGB, I had a rough start with the Fibro for a few days but soon

realized that I was not getting enough salt and protein. By increasing

both, I have been feeling really good and have lots of energy. I judge my

salt by pressing on my thighs. If there's a whiteness left on the skin for

a second, the salt is OK. Without this much salt, my legs and ankles ache

more than any other part of my body.

Also, getting enough sleep is important. I have sleep apnea, per testing in

a sleep study, so I have a CPAP machine that helps me breath better at

night. This might be something else you could check into. Without my

sleep, I'm also more achy and miserable. The combination of getting more

sleep and having enough salt & protein make all the difference to me. Since

the MGB, I've also added B-12 (liquid under the toung) with my daily

vitamins.

Joyce

5/2/06 Dr. Walsh, High Point NC

218/152/130

MGB/now/goal

A. wrote:

> Beth,

>

> I have Fibromyalgia and have had the MGB for six months. I have not

noticed a change one way or the other with the Fibromyalgia. I still lay

awake at night with my muscles aching, wondering why I can't get a decent

night's sleep. I still have no energy during the day even though I have

lost 76.5 pounds. I was hoping that as I lost weight, I would get the much

talked about burst of energy, but that has not happened. However, my

littermate, Joyce, also has Fibromyalgia, and she is doing much better.

Maybe she'll also answer your email.

>

> in NC

>

>

> BWiesler <bwiesler@...> wrote:

> Has anyone with Fibromyalgia had the MGB? If so, I'd like to

know if

> the Fibromyalgia has been relieved to some degree or gotten worse?

> For those of you who don't know what Fibromyalgia is it's a connective

> tissue syndrome. (I would call it a disease but my rheumatologist

> told me I'm never allowed to call it that...) Every day we injure our

> muscle tissue just by our daily activities. These tissues get

> repaired nightly when we get good, recouperative sleep. If our sleep

> is not good, our muscle tissue cannot repair itself and Fibromyalgia

> develops. It feels like Arthritis. The Arthritis Foundation agrees

> that Fibromyalgia exists but they don't it's cause. They speculate it

> can be caused by any number of things including injury to the body. I

> used to exercise daily. My exercise routine consisted of 200 sit-ups,

> a one hour step bench tape and a 4 mile walk. I was diagnosed with

> Fibromyalgia 4 years ago and I can barely get through my day. It's

> definitely a " syndrome " you don't want to develop. Any help from an

> FM'r would be wonderful.

> God bless all,

> Beth Wiesler-Blair

> Not yet had the MGB (220 #)

_________________________________________________________________

Find a local pizza place, music store, museum and more…then map the best

route! http://local.live.com?FORM=MGA001

[Guest guest]

Nannette -- my fibromyalgia of 25 years turned out to be Lyme disease. I was bit on my foot in 1981 by a tick, had it taken out at the time, had no symptoms. Symptoms started slowly three months later, with sore shoulder muscles, then a stiff neck, and then full-blown muscle pain that was declared to be fibromyalgia, an unknown condition. I went 25 years before a nurse from the East coast alerted me to what she thought my symptoms really were -- Lyme disease. I tested positive for it and had a huge clinical response to clindamycin antibiotic(150 mg 4x/day) -- the fibro pain went to zero in one week. So I suggest you find a Lyme--testing/treating doctor. The folks at www.lymenet/org can help you do that. -- RobinSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Nanette,

I think that LDN makes me feel that way too. I was extra tired before I began to take LDN so it is hard to tell if I'd feel that way anyway or if is a side effect of LDN. I think what is working for me is taking DLPA in the morning when I first get up. I began taking it this summer and could sure feel a difference. My stamina over the course of a day really improved. Recently, I had run out of DLPA and the fatigue returned again so I think that it was the DLPA making a difference. I can tell you that I had a totally "normal" summer these past few months with my kids. The memories we made going to the beach, pool with friends, etc. are memories I will cherish for a lifetime. I know that I couldn't have done half the things that I did before beginning DLPA. It's been really great for me!

Recently there has been quite a bit of discussion on DLPA on this board so I'll refer you to those discussions for further information. But I highly recommend you give it a try and see what happens. I think it took a week or two for me to feel a difference when I first started taking it.

Hope that helps! Good luck with your education! I'm sure in a few years I'll be in your shoes going back to school after my kids are a bit older. Right now I still have little ones (4 and 6) but I also have big kids (my oldest is 16) so I'm sure I'll be rejoining the workforce in a few years. I have a part-time tutoring business right now but I might have to get a "real job" some day -- YUCK!

Chrisie Lim

not diagnosed with anything, but many MS-type symptoms

LDN has been nothing short of a miracle for me!!

[low dose naltrexone] Fibromyalgia

Hi there,I've been taking 1.5 mg for a month and will start on 3 mg this evening. I have fibromyalgia and was able to convince my doctor to let me give it a try. Is anyone else out there using LDN for fibromyalgia? Any testimonials on it in that great booklet I was reading about on the list?I noticed that I was very sleepy during the day after I began taking the 1.5 mg. I almost quit because I just felt so doped up during the day. I'm dreading taking the larger dose tonight because I just started back to college after 20 years of raising my kids. It really makes me sleepy. Anyone else have this side effect?Mainly, I just wanted to see if anyone else is using it for fibromyalgia. I haven't noticed any relief at all, but I'm just on the starting dose. Thanks,Nannette

[Guest guest]

Hi, Chrisie,

I am wondering what DLPA is?

Are you also taking LDN? If so, are you taking tablets or teh powder?

Thanks!

Aimee

>

> Nanette,

>

> I think that LDN makes me feel that way too. I was extra tired

before I began to take LDN so it is hard to tell if I'd feel that

way anyway or if is a side effect of LDN. I think what is working

for me is taking DLPA in the morning when I first get up. I began

taking it this summer and could sure feel a difference. My stamina

over the course of a day really improved. Recently, I had run out

of DLPA and the fatigue returned again so I think that it was the

DLPA making a difference. I can tell you that I had a

totally " normal " summer these past few months with my kids. The

memories we made going to the beach, pool with friends, etc. are

memories I will cherish for a lifetime. I know that I couldn't have

done half the things that I did before beginning DLPA. It's been

really great for me!

>

> Recently there has been quite a bit of discussion on DLPA on this

board so I'll refer you to those discussions for further

information. But I highly recommend you give it a try and see what

happens. I think it took a week or two for me to feel a difference

when I first started taking it.

>

> Hope that helps! Good luck with your education! I'm sure in a

few years I'll be in your shoes going back to school after my kids

are a bit older. Right now I still have little ones (4 and 6) but I

also have big kids (my oldest is 16) so I'm sure I'll be rejoining

the workforce in a few years. I have a part-time tutoring business

right now but I might have to get a " real job " some day -- YUCK!

>

> Chrisie Lim

> not diagnosed with anything, but many MS-type symptoms

> LDN has been nothing short of a miracle for me!!

>

>

>

> [low dose naltrexone] Fibromyalgia

>

> Hi there,

>

> I've been taking 1.5 mg for a month and will start on 3 mg this

> evening. I have fibromyalgia and was able to convince my doctor to

> let me give it a try. Is anyone else out there using LDN for

> fibromyalgia? Any testimonials on it in that great booklet I was

> reading about on the list?

>

> I noticed that I was very sleepy during the day after I began

taking

> the 1.5 mg. I almost quit because I just felt so doped up during

the

> day. I'm dreading taking the larger dose tonight because I just

> started back to college after 20 years of raising my kids. It

really

> makes me sleepy. Anyone else have this side effect?

>

> Mainly, I just wanted to see if anyone else is using it for

> fibromyalgia. I haven't noticed any relief at all, but I'm just on

> the starting dose.

>

> Thanks,

>

> Nannette

>

[Guest guest]

It could be you're sleepy during the day because LDN may be

disturbing your sleep at night leaving you groggy upon awakening.

This is a common side-effect that should subside over time.

Art

--

>

> Hi there,

>

> I've been taking 1.5 mg for a month and will start on 3 mg this

> evening. I have fibromyalgia and was able to convince my doctor to

> let me give it a try. Is anyone else out there using LDN for

> fibromyalgia? Any testimonials on it in that great booklet I was

> reading about on the list?

>

> I noticed that I was very sleepy during the day after I began

taking

> the 1.5 mg. I almost quit because I just felt so doped up during

the

> day. I'm dreading taking the larger dose tonight because I just

> started back to college after 20 years of raising my kids. It

really

> makes me sleepy. Anyone else have this side effect?

>

> Mainly, I just wanted to see if anyone else is using it for

> fibromyalgia. I haven't noticed any relief at all, but I'm just on

> the starting dose.

>

> Thanks,

>

> Nannette

>

[Guest guest]

Hi Aimee,

DLPA stands for DL-Phenylalanine and the recommended brand is Solaray (this is the brand recommended by Dr. Bihari). I had a hard time finding the Solaray brand so I had ordered it over the Internet but then had a hard time getting it that way too (it was backordered at the vitaminshop.com). So I went to my local health food store and they had 750mg of DLPA in the KAL brand. The guy at the store said it was the sister company to Solaray so it should be similarily manufactured. I'm hoping he is correct.

In the past 24 hours there has been a discussion on the benefits of DLPA so hopefully you can go back and read those over. Also do a google search on it and you can come up with some good info. I know I researched it thouroughly before I bought it. I wanted to make sure it was worthwhile to try and I really now believe that it is!

Hope that helps!

Chrisie

[low dose naltrexone] Fibromyalgia> > Hi there,> > I've been taking 1.5 mg for a month and will start on 3 mg this > evening. I have fibromyalgia and was able to convince my doctor to > let me give it a try. Is anyone else out there using LDN for > fibromyalgia? Any testimonials on it in that great booklet I was > reading about on the list?> > I noticed that I was

very sleepy during the day after I began taking > the 1.5 mg. I almost quit because I just felt so doped up during the > day. I'm dreading taking the larger dose tonight because I just > started back to college after 20 years of raising my kids. It really > makes me sleepy. Anyone else have this side effect?> > Mainly, I just wanted to see if anyone else is using it for > fibromyalgia. I haven't noticed any relief at all, but I'm just on > the starting dose. > > Thanks,> > Nannette>

[Guest guest]

Aimee.

I almost forgot to answer you -- I'm taking LDN in the capsule form from Skip's Pharmacy. Right now I'm at 5.0 mg, which seems to be perfect for me. I took an increased dose (up to 6.0 mg) to get over an exacerbation this summer and have settled on 5.0 mg, which seems to work well for me. What about yourself?? Chrisie

[low dose naltrexone] Fibromyalgia> > Hi there,> > I've been taking 1.5 mg for a month and will start on 3 mg this > evening. I have fibromyalgia and was able to convince my doctor to > let me give it a try. Is anyone else out there using LDN for > fibromyalgia? Any testimonials on it in that great booklet I was > reading about on the list?> > I noticed that I was

very sleepy during the day after I began taking > the 1.5 mg. I almost quit because I just felt so doped up during the > day. I'm dreading taking the larger dose tonight because I just > started back to college after 20 years of raising my kids. It really > makes me sleepy. Anyone else have this side effect?> > Mainly, I just wanted to see if anyone else is using it for > fibromyalgia. I haven't noticed any relief at all, but I'm just on > the starting dose. > > Thanks,> > Nannette>

[Guest guest]

Nannette,

I've been taking LDN since June and my FM is history. I started on 3mg and now take 4.5mg. DLPA may help you stay alert better. Our sleep is messed up with FM.

MS '95, FM '05, Lymphedema '03

>> Hi there,> > I've been taking 1.5 mg for a month and will start on 3 mg this > evening. I have fibromyalgia and was able to convince my doctor to > let me give it a try. Is anyone else out there using LDN for > fibromyalgia? Any testimonials on it in that great booklet I was > reading about on the list?> > I noticed that I was very sleepy during the day after I began taking > the 1.5 mg. I almost quit because I just felt so doped up during the > day. I'm dreading taking the larger dose tonight because I just > started back to college after 20 years of raising my kids. It really > makes me sleepy. Anyone else have this side effect?> > Mainly, I just wanted to see if anyone else is using it for > fibromyalgia. I haven't noticed any relief at all, but I'm just on > the starting dose. > > Thanks,> > Nannette>

[Guest guest]

, your response re LDN helping with your fibro is interesting. How long were you on the 3.0 LDN, and how long on the 4.5? When did you start to see results and what were they? By the way, I believe my fibro is Lyme disease. -- RobinSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Robin,

I did 12 wks. on 3mg then went to 4.5mg. My FM pain was gone after the first night

>> , your response re LDN helping with your fibro is interesting. How long > were you on the 3.0 LDN, and how long on the 4.5? When did you start to see > results and what were they? By the way, I believe my fibro is Lyme disease. -- > Robin> > > > ************************************** See what's new at http://www.aol.com>

[Guest guest]

Sorry I dont have fibromyaliga.. so I cant help you at all..

Hugs, Babs

[Guest guest]

Hi Phyllis,

This site is a good source of information about using LDN and other promising

options to treat MS:

http://tinyurl.com/grpm9

All the best,

Dudley

[low dose naltrexone] Fibromyalgia

Hi Groups,

I have a dear friend that has Fibromalygia and would like

to hear from anyone who has this illness and is on LDN Naltrexone.

I have told her about what LDN is doing with so many illnesses.

I would greatly appreciate hearing from all who have this and is

on Naltrexone and what it has done for them.

I have MS and will be going on LDN next month.

Happy Holidays,

Phyllis

[Guest guest]

Introduction to Fibromyalgia

Fibromyalgia<http://search.medscape.com/all-search?queryText=chronic+fatigue+fib\

romyalgia> is a chronic syndrome that occurs predominantly in women and is

marked by generalized pain, multiple defined tender points, fatigue, disturbed

and nonrestorative sleep, and numerous other somatic complaints. Fibromyalgia is

not a discrete disease; rather, it lies at the far end of a continuum of

psychological distress and chronic pain in the general population. Fibromyalgia

largely overlaps with other syndromes, such as chronic fatigue

syndrome<http://search.medscape.com/all-search?queryText=chronic+fatigue+syndrom\

e>, irritable bowel syndrome<http://www.medscape.com/resource/ibs>,

temporomandibular joint

pain<http://search.medscape.com/all-search?queryText=temporomandibular+joint+pai\

n>, and multiple other regional pain syndromes, all of which feature symptoms

that remain unexplained after usual clinical and laboratory assessment and all

of which are related to, but not fully dependent on,

depression<http://www.medscape.com/resource/depression> and

anxiety<http://search.medscape.com/all-search?queryText=anxiety>. Fibromyalgia

frequently coexists with diseases of structurally defined pathology, such as

systemic lupus erythematosus (SLE) or rheumatoid

arthritis<http://www.medscape.com/resource/rheumarthritis>.

Reference

Winfield JB: XIII Fibromyalgia. 15 Rheumatology. ACP Medicine Online. Dale DC,

Federman DD, Eds. WebMD Inc., New York, 2006.

http://www.acpmedicine.com/<http://www.acpmedicine.com/>. July 20, 2006

The cause of fibromyalgia is unknown. Despite extensive research, no structural

pathology has been identified in muscles or other tissues. Although

psychological factors associated with chronic distress appear to be important

for the development of fibromyalgia in many patients, abundant evidence now

indicates that pain in fibromyalgia reflects abnormal pain processing in the

central nervous system (i.e., central sensitivity). Clinically, fibromyalgia

syndrome is best viewed from a biopsychosocial perspective encompassing multiple

variables that contribute to chronic pain and fatigue.

Fibromyalgia has been classified as one of a group of disorders that are

variously termed symptom-based conditions, functional somatic syndromes, and

affective spectrum disorders. Common somatic symptoms in these illnesses are

chronic musculoskeletal or abdominal pain, persistent fatigue, disturbed sleep,

and cognitive difficulty. Advances in the understanding of the psychophysiologic

and neurophysiologic dysregulation in such illnesses is impelling researchers to

develop a unifying reclassification of these illnesses as central sensitivity

syndromes.

Reference

Winfield JB: XIII Fibromyalgia. 15 Rheumatology. ACP Medicine Online. Dale DC,

Federman DD, Eds. WebMD Inc., New York, 2006.

http://www.acpmedicine.com/<http://www.acpmedicine.com/>. July 20, 2006

Otherwise unexplained widespread pain occurs in about 10% of the general adult

population in Western countries, with approximately half of those

affected-mostly women-meeting American College of Rheumatology (ACR)

classification criteria for fibromyalgia. It becomes more common after 60 years

of age but occurs not infrequently in children. On a typical day, primary care

physicians should expect to interact with several patients with fibromyalgia,

many of whom will be seeking care for illness other than fibromyalgia. For

example, more than 25% of patients with SLE exhibit painful tender points and

other clinical and psychological features of fibromyalgia.

Reference

Winfield JB: XIII Fibromyalgia. 15 Rheumatology. ACP Medicine Online. Dale DC,

Federman DD, Eds. WebMD Inc., New York, 2006.

http://www.acpmedicine.com/<http://www.acpmedicine.com/>. July 20, 2006

Clinical Manifestations of Fibromyalgia

Pain is the hallmark of fibromyalgia. The pain radiates diffusely from the

axial skeleton and is localized to muscles and muscle-tendon junctions of the

neck, shoulders, hips, and extremities. Fibromyalgia patients describe the pain

with such terms as exhausting, miserable, or unbearable. Generalized

hyperalgesia is a cardinal feature. Patients frequently complain that even

gentle touch is unpleasant, a manifestation of allodynia.

Fibromyalgia patients also experience severe fatigue, insomnia, and low mood

or depression. In fibromyalgia, fatigue occurring most times of the day on most

days, together with subjective weakness and nonrestorative sleep, is almost

universal. Cognitive complaints, such as difficulties with concentration and

memory, may be prominent. Depression, anxiety disorders, and personality

disorders contribute to ongoing psychological distress. Other complaints result

from somatization, which can be defined as translating psychological distress

into somatic symptoms (which are considered more socially acceptable) and

seeking care for those symptoms.

Functional impairment is usually present, at least in patients with

fibromyalgia who seek care. Patients report difficulty doing usual activities of

daily living and lack of exercise-indeed, they actually fear and avoid exercise.

Regional pain syndromes, such as headache, temporomandibular joint disorder,

or irritable bowel syndrome, are often present in fibromyalgia patients. It is

essential that the physician not automatically attribute all such symptoms to

fibromyalgia, however, because fibromyalgia frequently coexists with other

disorders of defined structural pathology, such as SLE and rheumatoid arthritis.

Optimum therapy requires recognition of both fibromyalgia and comorbid disease.

Reference

Winfield JB: XIII Fibromyalgia. 15 Rheumatology. ACP Medicine Online. Dale DC,

Federman DD, Eds. WebMD Inc., New York, 2006.

http://www.acpmedicine.com/<http://www.acpmedicine.com/>. July 20, 2006

[Guest guest]

Hi ,Fibroymalgia is one of the many conditions for which LDN is often an effective treatment.To learn more about LDN, visithttp://tinyurl.com/2boot2Another promising treatment option you may consider is presented here:http://tinyurl.com/39b3svAll the best,Dudley Delany

dudley_delanyFrom:

Sent: Saturday, February 9, 2008 10:58 PM

low dose naltrexone

Subject: [low dose naltrexone] Fibromyalgia

Does any with Fibromyalgia use LDN if so can you please tell me how its

going and what effects good or bad it has had on you. I am in the

process of gathering info for my own neuro so I can convinve him to

write me a script, I have MS and in the process of seen that LDN can be

helpful for Fibromyalgia which my Mother in law was just diagnosed

with. Just searching out for more info for my loved ones. thanks for

any help.

[Guest guest]

LDN is currently under study at Stanford Medical Center for Fibromyalgia (FMS).

Many people have found LDN helpful over the years for FMS. More rheumatologists are prescribing it.

mjh

Posted by: "" mommyangel96@... mommyangel96

Sat Feb 9, 2008 7:58 pm (PST)

Does any with Fibromyalgia use LDN if so can you please tell me how its going and what effects good or bad it has had on you. I am in the process of gathering info for my own neuro so I can convinve him to write me a script, I have MS and in the process of seen that LDN can be helpful for Fibromyalgia which my Mother in law was just diagnosed with. Just searching out for more info for my loved ones. thanks for any help.Who's never won? Biggest Grammy Award surprises of all time on AOL Music.

[Guest guest]

I have fibromyalgia, sjrogren’s and the base illness

of scleroderma. I have been on ldn since Sept of 06. Within days of taking

it, I started to feel so much better. My son started taking it for MS at the

same time. Both he and I said the same thing—we felt like our bodies

were working correctly for the first time.

My pain level, energy level, circulation, bodily functions,

mood, everything worked better and as I have told others, many of those things

you don’t think of when everything is working well so you have to stop

and think and evaluate the little changes. People around me, as I work in the

public, could see how much better I was doing. I was also dealing with a back

injury that had me in a lot of pain at the time. Yesterday, I taught riding

lessons in the cold in Cleveland

all day and had a party here after that. I was on my feet in the cold for 9

hours straight and my legs were sore a little but I did it, and I got up this

morning and can function well. When I do something like that, I know that

before ldn, I could not have done it. And the next day, I would have not been able

to do much. I don’t even feel tired today.

I advise everyone to do what it takes to get the medication—even

if it means a phone consult with one of the good doctors this site recommends.

In my opinion, any doctor that withholds this medicine from

a patient is negligent.

Conni

[Guest guest]

>

> Does any with Fibromyalgia use LDN if so can you please tell me how its

> going and what effects good or bad it has had on you. I am in the

> process of gathering info for my own neuro so I can convinve him to

> write me a script, I have MS and in the process of seen that LDN can be

> helpful for Fibromyalgia which my Mother in law was just diagnosed

> with. Just searching out for more info for my loved ones. thanks for

> any help.

>

Hi there- I have had only good results since starting LDN a week ago

for fibro.I went to a holistic M.D. and he had me look at the LDN web

site. To me it was a no- brainer and I had him call in the

prescription.My pain has reduced dramatically! I have hope.

Good luck- Cheri