Sleepless nights

August 31, 2000

Diane,

Kelsey is also on Naprosyn and she also doesn't sleep well. She was always a

good sleeper too, until she got sick and started on Naprosyn. We don't have

any trouble getting her to bed, but she wakes up at least 2-4 times per

night, and when she is asleep she tosses and turns alot. This has gotten

better with time, and lately she has been sleeping a little better. Some

people have said their child had nightmares while on Naprosyn. I've talked

to Kelsey's doctor about this, and she said we could give her a dose of

Benadryl at bedtime, which we can't do every night as it starts to make

Kelsey hyper. The doctor also told me if Kelsey's sleeplessness seemed to be

due to discomfort to try a dose of Tylenol at bedtime. (I've never given

both Benadryl & Tylenol together since she's been on Naprosyn, and I wait at

least 4 hours between Naprosyn and Tylenol) You may want to talk to the

doctor about this, it couldn't hurt to let him/her know of your concerns.

As for the rude comment... I have had one person use the word " deformed " and

my quick comeback was " We prefer not to use that word, instead we choose to

say her joint is flared " . I think the person knew I was offended and she

apologized. Sometimes I just have to smile and know that ignorance is bliss!

lol

August 31, 2000

-

Thanks for the info about Naprosyn. Are Naprosyn and Naproxen the same thing?

Good comeback re: the rude comments.

Diane

August 31, 2000

Diane,

Yes, Naprosyn/Naproxen are the same thing, just a matter of brand I think.

August 31, 2000

Diane

naprosen and naproxen are the same one is a generic.

charlene

August 31, 2000

Well of course your first instinct is to go for the jugular and maybe

a quick kick you know where. I had a similiar incident when we were

having dinner at my best friends house. My friends daughter, who is

10, grabbed a fork off the table and announced to everyone that my

daughter could not touch it, cause " she did not want to get her

disease " . I was angry and frustrated. I took a deep breath, took

her aside and explained quickly the ins and outs of JRA, after that

she was fine and now actually looks out for her.

When it happens from an adult, what can you say? You can be

sarcastic or informative. Obviously this person must be some clone

of Brat Pitt to be able to critize others......

> Hi all-

>

> has always been a great sleeper. No problems getting her

to bed or

> to sleep through the night. Not lately. She doesn't want to go to

bed. She

> gets up in the middle of the night and is wide awake. Wants to

come into bed

> with me, and then just tosses and turns and " talks " all night. I

don't know

> if she's in pain or if this could be a side effect of Naproxen.

(She doesn't

> talk yet). The bottle says " may cause drowsiness. " Not for her.

What do

> you think? Any suggestions about what to do to help her sleep

better?

>

> One more thing -- yesterday, my mother-in-law's boyfriend told

me 's

> leg looks " deformed. " I have been waiting for someone to make such

a

> comment, but was appalled at his tactlessness. How do you handle

those

> situations?

>

> Diane

August 31, 2000

Diane

hi melissa does not take nap medication but i do know about the sleepless

nights

this could mean the child is in discomfort and just cant sleep

or the child feels better laying next to you

if this is how the child is dont worry about it just enjoy it

comfort the child

but if this is troublesome please let the doctor know

melissa feels better with me next to her so i do sleep in the bed with her

it has been a comfort instead of her hollering for me to get to her some

nights shes restless but thats when i put my arm around her

then she calms down but we have to do what feels right

and will help

i myself am ok with it i been married 24 years lolol the hubby says shes

the most important now so he sleeps alone in our bedroom

lolololol

but do talk to the doctor

maybe a warm bath before bed and reading a book before bed to the child

story telling as you massage the joints

let me know if it helps

Robbin

August 31, 2000

Diane,

Tally's doctor put him on Enbrel on Tuesday. I checked on him later after

I tucked him in bed for the night and became concerned. He was so quiet and

calm. I then woke him up and asked him if he was sore and he said no. I

realized that the shot must be helping him sleep soundly. Up until then, I

never realized how use I became to him being a little sore at night. I cried

when I realized that for the first time in a long time, he was sleeping and

dreaming rather than just drifting off because he's exhausted. This is his

third night and I haven't heard a peep from him since tucking him in.

kathy

September 1, 2000

Kathy-

That's great news about Tally.

Diane

September 1, 2000

Kathy, The sleeping is great! Hopefully the Enbrel will also

work for Tally. It did for my son, it took about 6 weeks for

me to fuuly understand we had marked improvement. Jana

September 3, 2000

akally@... wrote:

> Diane,

> Tally's doctor put him on Enbrel on Tuesday. I checked on him later after

> I tucked him in bed for the night and became concerned. He was so quiet and

> calm. I then woke him up and asked him if he was sore and he said no. I

> realized that the shot must be helping him sleep soundly. Up until then, I

> never realized how use I became to him being a little sore at night. I cried

> when I realized that for the first time in a long time, he was sleeping and

> dreaming rather than just drifting off because he's exhausted. This is his

> third night and I haven't heard a peep from him since tucking him in.

>

> kathy

Kathy,

Thank you for sharing this bit of good news about Tally, with us. That

is truly wonderful. Maybe he will respond really well to the Enbrel

injections. I hope so

Aloha,

Georgina

June 28, 2001

Hi :

I am so sorry to read of your horrible day. I hope you can get some

quality me time even if it is brief. It seems impossible to do this when

things are not going well, but it is sooooo necessary. Sleep deprivation

is one of the very worst problems when coping with OCD that is really waxing.

Good for you stopping the reassurance and sleeping in the room to help your

son sleep. I also did this a bit, at least until Steve fell asleep and was

ridiculed by his first p-doc for doing this. Although the ridicule was

painful it did help me stop this which also helped Steve to develop skills

to fall asleep and self-soothe without my " help " . It may make things

rockier at first but in a while you will see this change pay dividends.

Good luck, take care, aloha, Kathy (h)

kathyh@...

At 06:05 PM 7/3/01 -0500, you wrote:

>Hi, and thanks for the feedback. I have had a horrible day with my son.

He quit his violin lessons today which I am very disappointed in (he plays

so well!). I'm tired! The foot he broke in May is still causing him

problems (and he constantly obsesses about it!). I reached my limit and

told him , in tears, that I didn't give a damn about his foot anymore. I

told him he had to stretch it and walk on it. He still limps around as if

he is still casted. I think I just need time to myself (and more sleep!)

I'm going to tell him tonight that if he wakes up tonight to just read for

a while and not to wake me up! I will not go in and lay with him tonight.

It's just so hard when he is so scared and having " thoughts " or thinks he

sees something scary. But what happens is I end up in this forever ending

reassuring

>cylcle about: Are they real? Am I going to die tonight? I have a pain

in my chest, am i going to die? I can't be alone! Why do I see eyes

coming at me when the lights are out? This goes on endlessly. Anyway, I'm

rambling on, thanks for listening. I've had two days of sucess with TV (1

show) and 1 hr. of games in the morning. It has not been easy. Happy 4th

of July!

July 2, 2001

Video games are very visually stimulating, and if your child has

sensory issues, I think they can aggravate it. Our psychologist has

said flatly no video games for --ever. I know if I'm on the

computer at night it revs me up and I have trouble sleeping, as I

have a low sensory tolerance as well. My neice had seizures from

video games. I think it would make a lot of sense to limit using

them, especially at night. I think they are neurologically

stimulating from what I've heard and can tell. Doctors also advise

people with sleep problems not to watch television after a certain

time at night. I've limited my daughter's television after a certain

hour before bed time and it has helped her sleep tremendously. I

hope you get some sleep. It is so hard trying to operate on no

sleep. It is interesting your son had issues with the lights after

playing video games. There probably is a connection.

Stephany

July 3, 2001

Hi, and thanks for the feedback. I have had a horrible day with my son. He

quit his violin lessons today which I am very disappointed in (he plays so

well!). I'm tired! The foot he broke in May is still causing him problems (and

he constantly obsesses about it!). I reached my limit and told him , in tears,

that I didn't give a damn about his foot anymore. I told him he had to stretch

it and walk on it. He still limps around as if he is still casted. I think I

just need time to myself (and more sleep!) I'm going to tell him tonight that

if he wakes up tonight to just read for a while and not to wake me up! I will

not go in and lay with him tonight. It's just so hard when he is so scared and

having " thoughts " or thinks he sees something scary. But what happens is I end

up in this forever ending reassuring

cylcle about: Are they real? Am I going to die tonight? I have a pain in my

chest, am i going to die? I can't be alone! Why do I see eyes coming at me

when the lights are out? This goes on endlessly. Anyway, I'm rambling on,

thanks for listening. I've had two days of sucess with TV (1 show) and 1 hr. of

games in the morning. It has not been easy. Happy 4th of July!

stephanyfisher@... wrote:

> Video games are very visually stimulating, and if your child has

> sensory issues, I think they can aggravate it. Our psychologist has

> said flatly no video games for --ever. I know if I'm on the

> computer at night it revs me up and I have trouble sleeping, as I

> have a low sensory tolerance as well. My neice had seizures from

> video games. I think it would make a lot of sense to limit using

> them, especially at night. I think they are neurologically

> stimulating from what I've heard and can tell. Doctors also advise

> people with sleep problems not to watch television after a certain

> time at night. I've limited my daughter's television after a certain

> hour before bed time and it has helped her sleep tremendously. I

> hope you get some sleep. It is so hard trying to operate on no

> sleep. It is interesting your son had issues with the lights after

> playing video games. There probably is a connection.

>

> Stephany

>

> You may subscribe to the OCD-L by emailing listserv@... . In the

body of your message write: subscribe OCD-L your name. You may subscribe to

the Parents of Adults with OCD List at

parentsofadultswithOCD-subscribe . You may subscribe to the

OCD and Homeschooling List at ocdandhomeschooling-subscribe .

You may change your subscription format or access the files, bookmarks, and

archives for our list at . Our

list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan

Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule

Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or

suggestions may be addressed to Louis Harkins, list owner, at

lharkins@... .

>

July 4, 2001

Hi , I'm sorry to read of the tough time you and your son are having.

How did last night go? Things do tend to get worse before they get better

when we begin to pull out of our kids' OCD rituals.

My daughter surprised me by acclimating fairly quickly when I stopped

participating in her rituals. We had a rough week or so but came out the

other side in a much better place. In the midst of this week though I

confess to having ugly thoughts about those on this list who had advised me

to do this!! LOL OCD was not going to go down without a fight!

((Hugs)) , this is a good thing you are doing and will go a long way

toward minimizing OCD's impact on your son and you.

Kathy R. in Indiana

----- Original Message -----

From: " Craig Drevecky " <cdrevecky@...>

> Hi, and thanks for the feedback. I have had a horrible day with my son.

He quit his violin lessons today which I am very disappointed in (he plays

so well!). I'm tired! The foot he broke in May is still causing him

problems (and he constantly obsesses about it!). I reached my limit and

told him , in tears, that I didn't give a damn about his foot anymore. I

told him he had to stretch it and walk on it. He still limps around as if

he is still casted. I think I just need time to myself (and more sleep!)

I'm going to tell him tonight that if he wakes up tonight to just read for a

while and not to wake me up! I will not go in and lay with him tonight.

It's just so hard when he is so scared and having " thoughts " or thinks he

sees something scary. But what happens is I end up in this forever ending

reassuring

> cylcle about: Are they real? Am I going to die tonight? I have a pain

in my chest, am i going to die? I can't be alone! Why do I see eyes coming

at me when the lights are out? This goes on endlessly. Anyway, I'm

rambling on, thanks for listening. I've had two days of sucess with TV (1

show) and 1 hr. of games in the morning. It has not been easy. Happy 4th

of July!

July 4, 2001

Hi, my name is Joy & I am new to this group.

I am a single Mom and I have a son with OCD and can

really relate to what I have already read about

sleepless nights.

He has a lot of fears that seem to get much worse at

night & although he doesnt wake me up, he doesnt get

much sleep. (Medication for sleep doesnt help him)

Well, just thought I would say hi & introduce myself.

Joy

__________________________________________________

July 4, 2001

Hi, Joy! Welcome to the group! My son (15 yo) doesn't have problems

once he gets to sleep, but getting him there...!!!! What a pain! He

suffers from scrupulosity, so homework, showers, and other bedtime

stuff (oh, let's not forget the push-ups in bed!), etc. make for

late nights. Last school year, he was averaging 5-6 hrs/night.

Adolescence should get around 9 hours of sleep!!! And what was

worse, I was staying up with him to " keep him on task " . This was

really tough on me (and, therefore, the rest of the family!) I

expect next year to be better for two reasons: 1.)I WILL NOT stay up

late with him and 2.) now that he has his driving permit, he must get

at least 7 hours of sleep to drive. (I wish I had made it 8!) Sleep

medication did not help him either...he just spaced out and it made

him even less efficient!

Just wanted to say " Welcome " and I hope this list will help you as

much as it has helped me.

Melinda S.

Dallas

> Hi, my name is Joy & I am new to this group.

>

> I am a single Mom and I have a son with OCD and can

> really relate to what I have already read about

> sleepless nights.

>

> He has a lot of fears that seem to get much worse at

> night & although he doesnt wake me up, he doesnt get

> much sleep. (Medication for sleep doesnt help him)

>

> Well, just thought I would say hi & introduce myself.

>

> Joy

>

> __________________________________________________

>

July 4, 2001

I hope today was better. Hang in there--it's harder on him than it is on you. Have you thought about having a few physical therapy sessions for your son's foot? I had foot surgery in October and never did physical therapy and it still bothers me--I plan to make an appointment with the physical therapist tomorrow. Sometimes these things heal a lot better when the therapist prescribes precise exercises for the problem. My son kept spraining his ankle, and we finally found a good physical therapist who prescribed specific exercises to strengthen the area.

Judy

-----Original Message-----From: Craig Drevecky [mailto:cdrevecky@...]Sent: Tuesday, July 03, 2001 7:05 PM Subject: Re: Re: Sleepless nightsHi, and thanks for the feedback. I have had a horrible day with my son. He quit his violin lessons today which I am very disappointed in (he plays so well!). I'm tired! The foot he broke in May is still causing him problems (and he constantly obsesses about it!). I reached my limit and told him , in tears, that I didn't give a damn about his foot anymore. I told him he had to stretch it and walk on it. He still limps around as if he is still casted. I think I just need time to myself (and more sleep!) I'm going to tell him tonight that if he wakes up tonight to just read for a while and not to wake me up! I will not go in and lay with him tonight. It's just so hard when he is so scared and having "thoughts" or thinks he sees something scary. But what happens is I end up in this forever ending reassuringcylcle about: Are they real? Am I going to die tonight? I have a pain in my chest, am i going to die? I can't be alone! Why do I see eyes coming at me when the lights are out? This goes on endlessly. Anyway, I'm rambling on, thanks for listening. I've had two days of sucess with TV (1 show) and 1 hr. of games in the morning. It has not been easy. Happy 4th of July!

July 5, 2001

Hi Kathy! I can't believe I just erased my wonderful email to you!!!

Unfortunately, I don't have more than a couple of minutes left. Everybody's

suggestions worked! We are using 1/2 hour extra game time as a reward for NOT

getting us up in the night. We had a sucess last night! Craig did NOT stay

with until he slept. We just did our usual bedtime routine. This morning

when I asked Dave how his night went he said, " Good, it really wasn't that

hard " . HOLY SHIT!!! (in just seems appropriate). Most importantly he also

said, " IT KIND OF MAKES ME FEEL BETTER ABOUT MYSELF " . Thank you one and all in

this group for your immediate and loving concern and feedback. I've been around

long enough to know this is just the beginning but I'll take this great start!

He still was mad at me this morning for ending his

video session (even with the extra 1/2 hour) but I don't care. Love

Kathy wrote:

> Hi , I'm sorry to read of the tough time you and your son are having.

> How did last night go? Things do tend to get worse before they get better

> when we begin to pull out of our kids' OCD rituals.

>

> My daughter surprised me by acclimating fairly quickly when I stopped

> participating in her rituals. We had a rough week or so but came out the

> other side in a much better place. In the midst of this week though I

> confess to having ugly thoughts about those on this list who had advised me

> to do this!! LOL OCD was not going to go down without a fight!

>

> ((Hugs)) , this is a good thing you are doing and will go a long way

> toward minimizing OCD's impact on your son and you.

>

> Kathy R. in Indiana

>

> ----- Original Message -----

> From: " Craig Drevecky " <cdrevecky@...>

>

> > Hi, and thanks for the feedback. I have had a horrible day with my son.

> He quit his violin lessons today which I am very disappointed in (he plays

> so well!). I'm tired! The foot he broke in May is still causing him

> problems (and he constantly obsesses about it!). I reached my limit and

> told him , in tears, that I didn't give a damn about his foot anymore. I

> told him he had to stretch it and walk on it. He still limps around as if

> he is still casted. I think I just need time to myself (and more sleep!)

> I'm going to tell him tonight that if he wakes up tonight to just read for a

> while and not to wake me up! I will not go in and lay with him tonight.

> It's just so hard when he is so scared and having " thoughts " or thinks he

> sees something scary. But what happens is I end up in this forever ending

> reassuring

> > cylcle about: Are they real? Am I going to die tonight? I have a pain

> in my chest, am i going to die? I can't be alone! Why do I see eyes coming

> at me when the lights are out? This goes on endlessly. Anyway, I'm

> rambling on, thanks for listening. I've had two days of sucess with TV (1

> show) and 1 hr. of games in the morning. It has not been easy. Happy 4th

> of July!

>

> You may subscribe to the OCD-L by emailing listserv@... . In the

body of your message write: subscribe OCD-L your name. You may subscribe to

the Parents of Adults with OCD List at

parentsofadultswithOCD-subscribe . You may subscribe to the

OCD and Homeschooling List at ocdandhomeschooling-subscribe .

You may change your subscription format or access the files, bookmarks, and

archives for our list at . Our

list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan

Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule

Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or

suggestions may be addressed to Louis Harkins, list owner, at

lharkins@... .

>

July 5, 2001

I just found my original email when I went to exit out of here! I'm still

learning about the computer and all but I thought I'd send this out anyway if

anyone is interested. Thanks, .

Hi, Hi, Kathy R! Thank you so much for responding so quickly. I didn't realize

how lonely I had become and how good it feels to talk to other adults. I have

been on strike since May 31st (Yes, I'm one of those pesky RN's demanding safe

staffing at the hospital!) and we just settled last week. It's been very

stressful for my (and the family) as I was trying to pick up work elsewhere,

worrying about money, walking the picket line and tomorrow I go back to the

hospital! Anyway, I can't remember who said what but we tried the " reward "

system last night with , 10. The deal we struck was, we read, Craig plays

a game of solitaire, we both say goodnight and DAVID gets himself to sleep and

DOESN'T wake us during the night when he awakens. The reward? An extra 1/2 an

hour in the morning of video games. As another

incentive we told him if he did this all through the work week, his father would

take him to the big, fancy arcade at the Mall of America. Well, last night was

the first night. I was up letting the dog out in the middle of the night and

looked in on . He was awake (because he was twirling his 4th of July

florescent thing around) and I just said, " , go to sleep " . He has no

recollection of that this morning. Well, I asked him how the night went and he

said, " Okay, it really wasn't that hard!!! " and " I FEEL BETTER ABOUT MYSELF!!! "

HOLY SHIT!!! (excuse the language but it seems appropriate!!) At this very

moment he has picked up his violin and is playing the exercise he days ago was

in tears over and despised. Is this to good to be true? Probably, and I don't

want to have unrealistic expections but

I'll sure take it for today. Everybody's suggestions have proven to me that 1.

there is help through this support group, 2. Sometimes the very opposite of

what I think is good is not, and 3. Craig and I have always joked about being

Mr. and Mrs. neurotic (about parenting) and oftentimes it's US that is getting

in the way of progressing with . THANK YOU! THE DAY IS LOOKING UP