tendonitis

[Guest guest]

hi everyone,

sorry if this is off topic, but does anyone deal with this? i just started

plantar fascitis and tendoitis, along with 4 autoimmunes and cfids/fibro, but

this tendonitis pain is worse than anything. it feels like i broke bones in my

feet.

darvocet,low dose, helps some,not much. cold packs help more than warm foot

soaks with epsom salts. i will google it, but if anyone else has something that

works, otc or rx,etc,please let me know, or email me directly if not appropriate

here.

my pcp is probably going to start me on enbrel soon, so the uncontrolled

inflammation is causing it, eventho i am taking a little pred.

thanks,take care,

margaret

[Guest guest]

my friend had planter fascitis without any autoimmune disease..his docter told

him take a tennis ball, roll your bottom of your foot with it..it helped him...

diane in ohio

[Guest guest]

My friend's doctor told her to freeze a bottle of water and roll the

bottom of her foot over it. It helped her.

Sue

On Apr 8, 2009, at 2:59 PM, diane crawford wrote:

> my friend had planter fascitis without any autoimmune disease..his

> docter told him take a tennis ball, roll your bottom of your foot

> with it..it helped him...

[Guest guest]

Hi Margaret:

I had an awful time with that Plantar Fascitis. I went to the foot dr.

and had over a few weeks, shots into my foot 3 times. Not a pleasant

experience. I also got from him 2 kinds of shoe inserts. They are

truly wonderful. One pair is like memory foam, which cushions the feet,

and really helped with the Plantar F. I also have a large node on the

outside of my right foot and it helps that also. My feet and ankles

have been hit the hardest with my RA.

But I tell you, that Plantar Fascitis is so damn painful, and it took me

a long time to get rid of all that pain. Between the RA and that, I

could hardly walk.

I bought one of those elec. foot baths which is very soothing. I use it

a lot and add Epsom Salts to the water. I highly recommend this.

I hope you get some relief for your foot. I know that pain is terrible.

Wishing you pain free days ahead.

Hugs,

Barbara

>

> hi everyone,

> sorry if this is off topic, but does anyone deal with this? i just

started plantar fascitis and tendoitis, along with 4 autoimmunes and

cfids/fibro, but this tendonitis pain is worse than anything. it feels

like i broke bones in my feet.

>

> darvocet,low dose, helps some,not much. cold packs help more than warm

foot soaks with epsom salts. i will google it, but if anyone else has

something that works, otc or rx,etc,please let me know, or email me

directly if not appropriate here.

>

> my pcp is probably going to start me on enbrel soon, so the

uncontrolled inflammation is causing it, eventho i am taking a little

pred.

> thanks,take care,

> margaret

>

[Guest guest]

Terri, I definitely have fibro and I am on Cymbalta that helps a lot but not

entirely. Fibro was never helped by Minocin or any other antibiotic. Thanks for

your help. Hope you are good to those kids! They sound wonderful.

cooky

From: rheumatic [mailto:rheumatic ] On Behalf Of

Theresa Downey

Sent: Saturday, December 12, 2009 10:29 PM

rheumatic

Subject: Re: rheumatic tendonitis

Hi, Cooky!

I don't think I'm quite ready for the holidays, yet, but I am really glad I have

enthusiastic kids who are willing to jump in and help decorate, wrap, or bake

when I run out of steam! : )

I was wondering if you have compared your symptoms to those of fibromyalgia? I

have fibro with my RA, and I didn't realize I had two different issues until a

rheumatologist pointed out that many of my pains weren't in my actual joints.

Any fibro website can probably show an anatomical map of the sore points typical

of fibro. I think the first time the doc tested those sore points, I scored a

100%. I had never even heard of fibro!

Best wishes! I know one of the hardest parts of medical issues is just figuring

what the problem actually is!

Blessings!

Terri

From: Cooky Stonkey <cookee1@... <mailto:cookee1%40comcast.net> >

Subject: rheumatic tendonitis

" rheumatic " <rheumatic <mailto:rheumatic%40>

>

Date: Saturday, December 12, 2009, 7:40 PM

Hi Everyone,

I hope everyone is doing really good. I know I am really ready for Santa!

I have been on antibiotics (mostly Minocin) for 11 years with IV's to start.

So I slacked off this spring and started having problems this fall. After

restarting antibiotics I realized the pain is not like rheumatoid. It is

tendonitis in different areas depending on the day. They don't travel like

rheumatoid does. To give you an idea, My left ankle tendon feels like it is

" going out " or wants to break. I splint it for a few days and its better.

Both rotator cuffs behaved the same way but I just din't use them as much as

I was able to not. Knees both.the same. Knees only hurt when going

downstairs. I also have osteo in my fingers.

So do any of you ,that do a lot of looking on the medical sites know

anything about such a disease as compared to RA? I have been using curcumin

because OTC and script meds really upset my stomach. Anybody have any other

ideas of meds specifically for tendonitis? Supplements? ? Ideas?? Hepl!

Hugs

cooky

[Guest guest]

Hi Cooky,

My RA is affecting my tendons, not my joints. It has from the beginning. My

rheumy said this is unusual as it normally affects joints before it affects the

tendons. I have had 4 surgeries over the last 6 years on my wrists. Two to

replace broken tendons, one to remove inflammation, and one 5 weeks ago to

remove inflammation and repair a torn tendon. I get synovial tendonitis and the

inflammation sits in there and causes the tendons to rupture. I have had flare

ups in both my achilles tendons and milder flair ups in other places. The

minocin seems to help me, but I am also on Plaquenil. Ginger is supposed to be

good for inflammation and ginger helps settle the stomach. I sometimes use

ginger capsules during flare.. Although I don't like taking Prednisone, I do

take it for a few days when I get a flare. Otherwise, I seem to be doing very

well.

rheumatic tendonitis

Hi Everyone,

I hope everyone is doing really good. I know I am really ready for Santa!

I have been on antibiotics (mostly Minocin) for 11 years with IV's to start.

So I slacked off this spring and started having problems this fall. After

restarting antibiotics I realized the pain is not like rheumatoid. It is

tendonitis in different areas depending on the day. They don't travel like

rheumatoid does. To give you an idea, My left ankle tendon feels like it is

" going out " or wants to break. I splint it for a few days and its better.

Both rotator cuffs behaved the same way but I just din't use them as much as

I was able to not. Knees both.the same. Knees only hurt when going

downstairs. I also have osteo in my fingers.

So do any of you ,that do a lot of looking on the medical sites know

anything about such a disease as compared to RA? I have been using curcumin

because OTC and script meds really upset my stomach. Anybody have any other

ideas of meds specifically for tendonitis? Supplements?? Ideas?? Hepl!

Hugs

cooky

[Guest guest]

I have the same story. All pain went away with natural thyroid. TSH

test did not show the problem. Had to look at free t3.

Kathy, are you totally off RA meds now? Also, if you wouldn't mind, do

you have any other hormone probs? Are you thru meno? Thanks.

Amy

Kathy wrote:

>

>

> It could be related to thyroid problems. I had terrible tendonitis

> along with the attack of RA. I got on natural thyroid (not the

> synthoid stuff!) it took awhile to get stabalized gradually working up

> from 1 to 3 a day.. the tendonitis went away, the RA has been great

> (along with the mino) also added 5000 vit d3 and iodoral tabs, a few

> other supplements. anyway, I ran out of my thyroid meds.. not

> available in the USA right now.. and didnt get a shipment from canada

> yet.. as of today I am out.. I cut down to try and save them.. and

> yes.. my shoulders are hurting again, last nite my leg was hurting, my

> back hurts.. so I think the thyroid meds really did help with pain

> that is tendon or muscle. check out the " stop the thyroid madness " web

> site for more info. If you DR only orders a TSH then you will never

> find out.. I had that test for YEARS and they kept saying " normal "

> when i was actually hypothyroid.. the web site can tell you what to

> ask fo! r, but especially get FREE T3 and FREE t4.... Kathy

>

>

[Guest guest]

Hi ,

Your post is perfect timing for me as my rheumy wants me to have surgery

(extensor tenosynovitis) on my wrist. I have RA, I have had a synovial cyst on

my left wrist for 3 years, now he wants it removed ASAP because he says the

tendons will rupture. I have no pain and it causes me no problems other than a

limited range of motion due to it's size. My question is, did you have pain or

any warning signs that you needed surgery? I am reluctant to do this because

I'm afraid I will open a new can of worms.

Thanks,

Sue

---- Katz <mpkatz@...> wrote:

> Hi Cooky,

>

> My RA is affecting my tendons, not my joints. It has from the beginning. My

rheumy said this is unusual as it normally affects joints before it affects the

tendons. I have had 4 surgeries over the last 6 years on my wrists. Two to

replace broken tendons, one to remove inflammation, and one 5 weeks ago to

remove inflammation and repair a torn tendon. I get synovial tendonitis and the

inflammation sits in there and causes the tendons to rupture. I have had flare

ups in both my achilles tendons and milder flair ups in other places. The

minocin seems to help me, but I am also on Plaquenil. Ginger is supposed to be

good for inflammation and ginger helps settle the stomach. I sometimes use

ginger capsules during flare.. Although I don't like taking Prednisone, I do

take it for a few days when I get a flare. Otherwise, I seem to be doing very

well.

>

>

>

> rheumatic tendonitis

>

>

>

> Hi Everyone,

>

> I hope everyone is doing really good. I know I am really ready for Santa!

>

> I have been on antibiotics (mostly Minocin) for 11 years with IV's to start.

> So I slacked off this spring and started having problems this fall. After

> restarting antibiotics I realized the pain is not like rheumatoid. It is

> tendonitis in different areas depending on the day. They don't travel like

> rheumatoid does. To give you an idea, My left ankle tendon feels like it is

> " going out " or wants to break. I splint it for a few days and its better.

> Both rotator cuffs behaved the same way but I just din't use them as much as

> I was able to not. Knees both.the same. Knees only hurt when going

> downstairs. I also have osteo in my fingers.

>

> So do any of you ,that do a lot of looking on the medical sites know

> anything about such a disease as compared to RA? I have been using curcumin

> because OTC and script meds really upset my stomach. Anybody have any other

> ideas of meds specifically for tendonitis? Supplements?? Ideas?? Hepl!

>

> Hugs

>

> cooky

>

>

[Guest guest]

Hi, Cooky!

 

Sorry to hear you have fibro, too, and that the antibiotic never helped.  I

actually did pretty well on mino for my RA, fibro, and psoriatic arthritis, but

now, I'm limited to a dose of azithromycin every other day until I wean my

newborn.  Needless to say, it is going to be a race between him turning a year

and me losing all mobility.  I may have to give up early, but I'm hoping to at

least get through this nasty flu season for his sake.

 

Yes, my kids are awesome, and I try really hard to make sure they know they are

appreciated and to be sure I don't take advantage of their good natures! 

 

Blessings!

Terri

From: Cooky Stonkey <cookee1comcast (DOT) net <mailto:cookee1% 40comcast. net> >

Subject: rheumatic tendonitis

" rheumatic " <rheumatic@grou ps.com <mailto:rheumatic% 40groups.

com> >

Date: Saturday, December 12, 2009, 7:40 PM

Hi Everyone,

I hope everyone is doing really good. I know I am really ready for Santa!

I have been on antibiotics (mostly Minocin) for 11 years with IV's to start.

So I slacked off this spring and started having problems this fall. After

restarting antibiotics I realized the pain is not like rheumatoid. It is

tendonitis in different areas depending on the day. They don't travel like

rheumatoid does. To give you an idea, My left ankle tendon feels like it is

" going out " or wants to break. I splint it for a few days and its better.

Both rotator cuffs behaved the same way but I just din't use them as much as

I was able to not. Knees both.the same. Knees only hurt when going

downstairs. I also have osteo in my fingers.

So do any of you ,that do a lot of looking on the medical sites know

anything about such a disease as compared to RA? I have been using curcumin

because OTC and script meds really upset my stomach. Anybody have any other

ideas of meds specifically for tendonitis? Supplements? ? Ideas?? Hepl!

Hugs

cooky

[Guest guest]

I still take mino 100mg once a day, and yes I have hormone problems, still

working on that one too. started meno at 47, started HRT at 50, still having

alot of trouble, may quit the HRT, have an appointment this week to discuss this

with 2 DRs. Kathy

[Guest guest]

Hi ,

I did not get back yesterday because I have a bad sore throat with (of

course) sinus. I feel really rotten but hope to get back to a few people

today.

Wow your tendonitis is way worse than mine. I have only torn one tendon and

it is mymiddle toe. No one seems to be concerned by it. It doesn't move

except when I move the one next to it. I had a bad tendon in my rt ankle and

was on pred at the time (way back in 1997). I saw a foot specialist and he

injected it. I fought with him over the injection since I was on Minocin and

wanted the minocin to take care of it. He actuall had people hold me down to

inject it. The ankle is bigger than the other and my foot is really flat but

the inflammation did go down without splitting.

I don't like ginger but I will try capsules. Thanks for your input and I

hope you don't rupture anymore tendons.

Hugs,

Cooky

Hi Cooky,

My RA is affecting my tendons, not my joints. It has from the beginning. My

rheumy said this is unusual as it normally affects joints before it affects

the tendons. I have had 4 surgeries over the last 6 years on my wrists. Two

to replace broken tendons, one to remove inflammation, and one 5 weeks ago

to remove inflammation and repair a torn tendon. I get synovial tendonitis

and the inflammation sits in there and causes the tendons to rupture. I have

had flare ups in both my achilles tendons and milder flair ups in other

places. The minocin seems to help me, but I am also on Plaquenil. Ginger is

supposed to be good for inflammation and ginger helps settle the stomach. I

sometimes use ginger capsules during flare.. Although I don't like taking

Prednisone, I do take it for a few days when I get a flare. Otherwise, I

seem to be doing very well.

,___

[Guest guest]

Hi Kathy,

I have been on Armour thyroid for about 10 years I could only take 30 and he

wanted me to take 90. Doc kept insisting this was the right one for me even

tho I never had any energy or had any kind of improvement. In September I

had an app (he is horribly expensive and does not take insurance). He went

to a conference on thyroid where they talked about why I do not see any

improvement. Apparently I do not absorb armour like other people. He put me

on cytomel and I feel great! So far I still have knee tendonitis but the

rotator cuffs are better! I have been on cytomel for about a 2 months.

Started out with ¼ of a pill. I now take a full pill but run out of energy

(he said it does not last all day). I have tried ½ a pill and I started

losing hair which happened when I took more than 30 of armour, He suggested

½ a pill at night so after I get over this horrible sore throat I will try.

The biggest improvement with the cytomel is that I wake up in the morning

ready to go!

Thanks for your input it really has helped me understand my problems better.

Hugs,

Cooky

It could be related to thyroid problems. I had terrible tendonitis along

with the attack of RA. I got on natural thyroid (not the synthoid stuff!) it

took awhile to get stabalized gradually working up from 1 to 3 a day.. the

tendonitis went away, the RA has been great (along with the mino) also added

5000 vit d3 and iodoral tabs, a few other supplements. anyway, I ran out of

my thyroid meds.. not available in the USA right now.. and didnt get a

shipment from canada yet.. as of today I am out.. I cut down to try and save

them.. and yes.. my shoulders are hurting again, last nite my leg was

hurting, my back hurts.. so I think the thyroid meds really did help with

pain that is tendon or muscle. check out the " stop the thyroid madness " web

site for more info. If you DR only orders a TSH then you will never find

out.. I had that test for YEARS and they kept saying " normal " when i was

actually hypothyroid.. the web site can tell you what to ask for, but

especially get FREE T3 and FREE t4.... Kathy

[Guest guest]

Terri why are you taking it every other day?? I would think it would be better

for you to take it for 10 tays and off 10 days but I am not a doctor. Maybe you

could ask for erythromycin 4times a day daily instead of Zithromax…it might

help more. It can’t hurt too ask!

This is for any other mothers that breast fed….how did you take meds after the

baby being born and feeding??? I am sure someone here can help??

Thanks for your comments and bet wishes for you and baby.

Hugs,

cooky

Hi, Cooky!

Sorry to hear you have fibro, too, and that the antibiotic never helped. I

actually did pretty well on mino for my RA, fibro, and psoriatic arthritis, but

now, I'm limited to a dose of azithromycin every other day until I wean my

newborn. Needless to say, it is going to be a race between him turning a year

and me losing all mobility. I may have to give up early, but I'm hoping to at

least get through this nasty flu season for his sake.

Yes, my kids are awesome, and I try really hard to make sure they know they are

appreciated and to be sure I don't take advantage of their good natures!

Blessings!

Terri

[Guest guest]

your note is exactly what I wanted. I always felt there was more to my RA

but all the rheumy’s (5) said it was RA and fibro.

No I have never had the HLAB27 but I asked for it and way back then (12 yrs

ago) I was naive and went with what the docs said†Women do not get ASâ€. I

have never had costochrondritis or sacrolitisis but have had all the rest at

some time. The iritis is bad most of the time but they continue to call it dry

eye even tho there is NO eye drop that helps.

I do good on Cipro (good for AS) but it increases the tendonitis and Cipro is

known to cause tendon splitting.

Before I look all this up…do you know what other meds are specific for AS?

Thanks so much.

Cooky

Hi, Cooky:

The tendonitis is more indicative of AS; have You ever had the HLA B27 test?

Some symptoms of AS are morning stiffness, chronic IBS, characteristic " flares "

(cyclic), costochondritis (ribcage pain), lumbago (and sacroiliitis), hip and

shoulder bursitis, plantar fasciitis, TMJ, and iritis would seal the deal,

especially with the positive tissue type.

There are ReAs that can also cause tendonitis and these are most commonly

associated with LGS as is AS.

HEALTH,

[Guest guest]

Cooky,

I am a female and I have tested positive for HLA B27, so don't let a doctor tell

you different. If you have a good AP doctor you should be able to ask him/her to

do the test next time you in the office. I have the x-ray to prove that the

lower part of my spine has fused already. This has caused me to have scoliosis

of the lower back. I started to take LDN and have some relief from the pain.

stay well,

Eva

..

From: Cooky Stonkey <cookee1@...>

Subject: RE: rheumatic tendonitis

rheumatic

Date: Monday, December 14, 2009, 2:28 PM

 

your note is exactly what I wanted. I always felt there was more to my RA

but all the rheumy’s (5) said it was RA and fibro.

No I have never had the HLAB27 but I asked for it and way back then (12 yrs

ago) I was naive and went with what the docs said†Women do not get ASâ€. I

have never had costochrondritis or sacrolitisis but have had all the rest at

some time. The iritis is bad most of the time but they continue to call it dry

eye even tho there is NO eye drop that helps.

I do good on Cipro (good for AS) but it increases the tendonitis and Cipro is

known to cause tendon splitting.

Before I look all this up…do you know what other meds are specific for AS?

Thanks so much.

Cooky

Hi, Cooky:

The tendonitis is more indicative of AS; have You ever had the HLA B27 test?

Some symptoms of AS are morning stiffness, chronic IBS, characteristic " flares "

(cyclic), costochondritis (ribcage pain), lumbago (and sacroiliitis) , hip and

shoulder bursitis, plantar fasciitis, TMJ, and iritis would seal the deal,

especially with the positive tissue type.

There are ReAs that can also cause tendonitis and these are most commonly

associated with LGS as is AS.

HEALTH,

[Guest guest]

Eva, I have no back problems at all. But I have all the rest. I am still gonna

ask for the test but the back is the major player in AS.

Cooky

Cooky,

I am a female and I have tested positive for HLA B27, so don't let a doctor tell

you different. If you have a good AP doctor you should be able to ask him/her to

do the test next time you in the office. I have the x-ray to prove that the

lower part of my spine has fused already. This has caused me to have scoliosis

of the lower back. I started to take LDN and have some relief from the pain.

stay well,

Eva

[Guest guest]

Hi, Cooky!

 

Well, the every other day dose is a holdover from the last time I saw my doc

(before I moved away).  My original dose had been mino twice a day (I think)

and azithromycin once a day.  This worked super for me, but after about 8

months, my liver started showing signs of inflammation, so he backed off the

azithromycin.  A month later, I was expecting and off all meds except Advil

until 20 weeks pregnant.  Then, I was allowed to return to the every other day

azith.  I actually did try to do a full week of Azith after baby was born, but

it sure upset my bowels --even eating a ton of yogurt!  I've been chicken to

try again.

 

Reading all of these posts has opened my eyes to the fact that I have tendon

issues I didn't even recognize for what they were, and I probably have thyroid

issues, too.  Gosh, how do you find someone to run the labs, figure stuff out,

and plan a treatment?

 

Ooops, gotta run.  Baby woke up mad!  : )

 

Blessings!

Terri

From: Cooky Stonkey <cookee1@...>

Subject: RE: rheumatic tendonitis

rheumatic

Date: Monday, December 14, 2009, 3:06 PM

 

Terri why are you taking it every other day?? I would think it would be better

for you to take it for 10 tays and off 10 days but I am not a doctor. Maybe you

could ask for erythromycin 4times a day daily instead of Zithromax…it might

help more. It can’t hurt too ask!

This is for any other mothers that breast fed….how did you take meds after the

baby being born and feeding??? I am sure someone here can help??

Thanks for your comments and bet wishes for you and baby.

Hugs,

cooky

Hi, Cooky!

Sorry to hear you have fibro, too, and that the antibiotic never helped. I

actually did pretty well on mino for my RA, fibro, and psoriatic arthritis, but

now, I'm limited to a dose of azithromycin every other day until I wean my

newborn. Needless to say, it is going to be a race between him turning a year

and me losing all mobility. I may have to give up early, but I'm hoping to at

least get through this nasty flu season for his sake.

Yes, my kids are awesome, and I try really hard to make sure they know they are

appreciated and to be sure I don't take advantage of their good natures!

Blessings!

Terri

[Guest guest]

Hi, Cooky:

If You've had iritis, You certainly have AS!  The B27 test is only minor

verification after symptoms are so obvious--but the bad news is that taking

Cipro without doing the diet (starch exclusion) will create resistive

colonies.  Tetracycline is much better.  Take before meals and when You

eliminate starch from Your diet You will not need the Cipro or any other

antibiotic. 

Many of the broad-spectrum antibiotics have good effects against Klebsiella

pneumoniae but it is not good to be on these agents too long and although AS is

caused by this germ, the main trigger is LGS, so taking NSAIDs or doing other

things that affect gut healing (lifestyle choices/food choices) can be a

problem.  Please log onto www.kickas.org and have a look at the NSD Forum

there.  Carol Sinclair's book " The New IBS Low-Starch Diet " is a good read

(available amazon-UK).

Hope this helps,

From: Cooky Stonkey <cookee1@...>

Subject: RE: rheumatic tendonitis

rheumatic

Date: Monday, December 14, 2009, 12:28 PM

 

your note is exactly what I wanted. I always felt there was more to

my RA but all the rheumy’s (5) said it was RA and fibro.

No I have never had the HLAB27 but I asked for it and way back then (12 yrs

ago) I was naive and went with what the docs said†Women do not get ASâ€. I

have never had costochrondritis or sacrolitisis but have had all the rest at

some time. The iritis is bad most of the time but they continue to call it dry

eye even tho there is NO eye drop that helps.

I do good on Cipro (good for AS) but it increases the tendonitis and Cipro is

known to cause tendon splitting.

Before I look all this up…do you know what other meds are specific for AS?

Thanks so much.

Cooky

Hi, Cooky:

The tendonitis is more indicative of AS; have You ever had the HLA B27 test?

Some symptoms of AS are morning stiffness, chronic IBS, characteristic " flares "

(cyclic), costochondritis (ribcage pain), lumbago (and sacroiliitis) , hip and

shoulder bursitis, plantar fasciitis, TMJ, and iritis would seal the deal,

especially with the positive tissue type.

There are ReAs that can also cause tendonitis and these are most commonly

associated with LGS as is AS.

HEALTH,

[Guest guest]

Yeah well I’m not sure about the iritis. I am a nurse and usually like to

treat myself if I can. I would ask doc’s I worked with for the meds (bad I

know) so I have never been diagnosed. I do appreciate the info. As for the no

starch…it is not gonna happen anytime soon (smiling).

cooky

Hi, Cooky:

If You've had iritis, You certainly have AS! The B27 test is only minor

verification after symptoms are so obvious--but the bad news is that taking

Cipro without doing the diet (starch exclusion) will create resistive colonies.

Tetracycline is much better. Take before meals and when You eliminate starch

from Your diet You will not need the Cipro or any other antibiotic.

Many of the broad-spectrum antibiotics have good effects against Klebsiella

pneumoniae but it is not good to be on these agents too long and although AS is

caused by this germ, the main trigger is LGS, so taking NSAIDs or doing other

things that affect gut healing (lifestyle choices/food choices) can be a

problem. Please log onto www.kickas.org and have a look at the NSD Forum there.

Carol Sinclair's book " The New IBS Low-Starch Diet " is a good read (available

amazon-UK).

[Guest guest]

Where do you live? If you let us know I’m sure someone could find you a doctor

to do all this. Baby’s need a mommie without pain!

cooky

Hi, Cooky!

Well, the every other day dose is a holdover from the last time I saw my doc

(before I moved away). My original dose had been mino twice a day (I think) and

azithromycin once a day. This worked super for me, but after about 8 months, my

liver started showing signs of inflammation, so he backed off the azithromycin.

A month later, I was expecting and off all meds except Advil until 20 weeks

pregnant. Then, I was allowed to return to the every other day azith. I

actually did try to do a full week of Azith after baby was born, but it sure

upset my bowels --even eating a ton of yogurt! I've been chicken to try again.

Reading all of these posts has opened my eyes to the fact that I have tendon

issues I didn't even recognize for what they were, and I probably have thyroid

issues, too. Gosh, how do you find someone to run the labs, figure stuff out,

and plan a treatment?

Ooops, gotta run. Baby woke up mad! : )

Blessings!

Terri

_

[Guest guest]

,

Your email sets a new record for acronyms in our Group. Am I

understanding you right with the following?

AS: Ankylosing Spondylitis, a chronic and often progressive

inflammations of the joints of the spine.

HLA B27: Human Leukocyte Antigen B*27, a genotype (or gene sequence)

which has been associated with ankylosing spondylitis, reactive

arthritis and other diseases.

IBS: Irritable Bowel Syndrome, a disease characterized by cramping,

abdominal pain, bloating, constipation, and diarrhea.

TMJ: Temporomandibular Joint and muscle disorder, which leads to pain

in chewing muscles and joints.

ReAs (or ReA): Reactive Arthritis, a type of arthritis caused by an

infection. It can affect joints, the skin, eyes, bladder and more.

Unlike ankylosing spondylitis, it does not normally affect the spine.

LGS: Leaky Gut Syndrome, a condition where increased permeability of

intestinal walls allows unwanted proteins, bacteria, fungi, metals

and toxins to enter the bloodstream, thereby causing an inflammatory

response, such as arthritis.

Yes, reactive arthritis can create many of the symptoms grouped under

fibromyalgia syndrome (FMS), which is really not a well-defined

disease, but a set of varied symptoms. The problem is that while the

medical profession has labeled these conditions, it does not really

understand their cause, nor does it have an effective treatment. The

medicines and food supplements that are available can alleviate

symptoms, but only for a statistical sampling of the affected population.

Sincerely, Harald

At 09:04 AM 12/13/2009, you wrote:

>

>Hi, Cooky:

>

>The tendonitis is more indicative of AS; have You ever had the HLA B27 test?

>

>Some symptoms of AS are morning stiffness, chronic IBS,

>characteristic " flares " (cyclic), costochondritis (ribcage pain),

>lumbago (and sacroiliitis), hip and shoulder bursitis, plantar

>fasciitis, TMJ, and iritis would seal the deal, especially with the

>positive tissue type.

>

>There are ReAs that can also cause tendonitis and these are most

>commonly associated with LGS as is AS.

>

>HEALTH,

>

[Guest guest]

Hi, Harald:

Yes, Your analyses of these abrev. are each correct.

And with regards to FMS...well it is the number one most misdiagnosed " disease "

in women who actually have AS.  There is actually a strict guideline related to

FMS but not understood very well my most physicians (if I press hard enough on

any muscle, I suppose I could get it to hurt), and FMS is not, while AS is, an

inflammatory condition. 

Also, there is " HLA B27 Disease, " that is a continuum of AS, Reiter's, Crohn's,

uDiff, etc etc but these are all related to the process of " molecular mimicry "

explaining cellular destruction.  The pathogen cause is always the same germ

and I'm going to propose that this germ also causes many other conditions,

heretofore unrecognized and not all related to the mechanism.  Some people end

up with a million diagnoses--Crohn's AND AS AND hypermobility AND DDD (a new

one...sorry) AND...but it is really just different facets of the same crystal.

Best to You,

 

>

>Hi, Cooky:

>

>The tendonitis is more indicative of AS; have You ever had the HLA B27 test?

>

>Some symptoms of AS are morning stiffness, chronic IBS,

>characteristic " flares " (cyclic), costochondritis (ribcage pain),

>lumbago (and sacroiliitis) , hip and shoulder bursitis, plantar

>fasciitis, TMJ, and iritis would seal the deal, especially with the

>positive tissue type.

>

>There are ReAs that can also cause tendonitis and these are most

>commonly associated with LGS as is AS.

>

>HEALTH,

>

[Guest guest]

You guys are super knowledgeable! Keep talking please.

OK so is the Minocin we take going to eradicate this germ or what do we

need? What are you doing?

Cooky

Hi, Harald:

Yes, Your analyses of these abrev. are each correct.

And with regards to FMS...well it is the number one most misdiagnosed " disease "

in women who actually have AS. There is actually a strict guideline related to

FMS but not understood very well my most physicians (if I press hard enough on

any muscle, I suppose I could get it to hurt), and FMS is not, while AS is, an

inflammatory condition.

Also, there is " HLA B27 Disease, " that is a continuum of AS, Reiter's, Crohn's,

uDiff, etc etc but these are all related to the process of " molecular mimicry "

explaining cellular destruction. The pathogen cause is always the same germ and

I'm going to propose that this germ also causes many other conditions,

heretofore unrecognized and not all related to the mechanism. Some people end

up with a million diagnoses--Crohn's AND AS AND hypermobility AND DDD (a new

one...sorry) AND...but it is really just different facets of the same crystal.

Best to You,

[Guest guest]

Hi, Cooky:

No, Minocin will not eliminate the germ, but it has some 'procreation

moderation' effect upon them so that they will not increase numbers enough to

cause more trouble.

Tetracycline group are bacteriostatic.

It is the bactericidal agents are better for taking down existing colonies--even

strictest diet cannot do this because our nemesis bacterium can survive on even

cellular waste of any nature. 

Using these antibiotics should be done with some care, since all kinds of bad

things can happen--like if the LGS is due to candidiasis it will get worse and

stuff like C. dificile colitis can also happen (I take Flagyl on occasion just

in hopes of reducing this potential).

Once the major colonies are eliminated, the disease activity is greatly reduced

and intestinal healing then progresses proportionately.  In AS this cannot be

accomplished without some severe reduction of refined starches; resistive

strains will re-colonize before the tract can heal adequately.

Really have an ophthalmologist check out Your eyes for debris from inflammation

to make sure it was not iritis--this is the second most common cause of

blindness, I think.  A few of our ASers have become blind and my own eyesight

has been severely affected.  Once I (too late) learned the cause, I did not ask

" Can I just eat starches until I need glasses? "

HEALTH,

From: Cooky Stonkey <cookee1@...>

Subject: RE: rheumatic tendonitis

rheumatic

Date: Wednesday, December 16, 2009, 9:49 AM

 

You guys are super knowledgeable! Keep talking please.

OK so is the Minocin we take going to eradicate this germ or what do we

need? What are you doing?

Cooky

Hi, Harald:

Yes, Your analyses of these abrev. are each correct.

And with regards to FMS...well it is the number one most misdiagnosed " disease "

in women who actually have AS. There is actually a strict guideline related to

FMS but not understood very well my most physicians (if I press hard enough on

any muscle, I suppose I could get it to hurt), and FMS is not, while AS is, an

inflammatory condition.

Also, there is " HLA B27 Disease, " that is a continuum of AS, Reiter's, Crohn's,

uDiff, etc etc but these are all related to the process of " molecular mimicry "

explaining cellular destruction. The pathogen cause is always the same germ and

I'm going to propose that this germ also causes many other conditions,

heretofore unrecognized and not all related to the mechanism. Some people end

up with a million diagnoses--Crohn' s AND AS AND hypermobility AND DDD (a new

one...sorry) AND...but it is really just different facets of the same crystal.

Best to You,

[Guest guest]

Well I have been to a lot of opthl over the last 12 years and no one has

dxed me with iritis and I think they would have said SOMETHING if this were the

case. I have had some of the best opthl in Pittsburgh and one or 2 of the worst

(hah). I am 63 yrs old and still do not use reading glasses. I attribute this

to eyebrite which I started in my 30’s. I have worn glasses since 5th grade

and my prescription has never changed.

Before starting AP I was on Wayburn Marshal (I think this was the name of the 2

men)protocol which consisted of a LOT of Flagyl. (I even say the word now and I

get nauseated). After the first week ALL and I mean every one of my symptoms

went completely away. I talked to the Doc in the south where they are based and

he said to stop I didn’t need any more. BIG mistake. In 2 weeks or so all came

back with a vengeance. This is when I got my very minor but a pain in the butt,

deformaties. I tried again many times to do the program but it never worked

again.

I also did 5 years of IV Clindamycin as in the protocol. This is what actually

took my symptoms away. (my story is on the histories page).

As for Minocin and tetra and waste….this is probably we will have to take

antibiotics the rest of our lives…??

Thanks for the info I really appreciate talking to you.

Cooky

From: rheumatic [mailto:rheumatic ] On Behalf Of

Merchant

Sent: Wednesday, December 16, 2009 2:14 PM

rheumatic

Subject: RE: rheumatic tendonitis

Hi, Cooky:

No, Minocin will not eliminate the germ, but it has some 'procreation

moderation' effect upon them so that they will not increase numbers enough to

cause more trouble.

Tetracycline group are bacteriostatic.

It is the bactericidal agents are better for taking down existing colonies--even

strictest diet cannot do this because our nemesis bacterium can survive on even

cellular waste of any nature.

Using these antibiotics should be done with some care, since all kinds of bad

things can happen--like if the LGS is due to candidiasis it will get worse and

stuff like C. dificile colitis can also happen (I take Flagyl on occasion just

in hopes of reducing this potential).

Once the major colonies are eliminated, the disease activity is greatly reduced

and intestinal healing then progresses proportionately. In AS this cannot be

accomplished without some severe reduction of refined starches; resistive

strains will re-colonize before the tract can heal adequately.

Really have an ophthalmologist check out Your eyes for debris from inflammation

to make sure it was not iritis--this is the second most common cause of

blindness, I think. A few of our ASers have become blind and my own eyesight

has been severely affected. Once I (too late) learned the cause, I did not ask

" Can I just eat starches until I need glasses? "

HEALTH,

From: Cooky Stonkey <cookee1@... <mailto:cookee1%40comcast.net> >

Subject: RE: rheumatic tendonitis

rheumatic <mailto:rheumatic%40>

Date: Wednesday, December 16, 2009, 9:49 AM

You guys are super knowledgeable! Keep talking please.

OK so is the Minocin we take going to eradicate this germ or what do we

need? What are you doing?

Cooky

Hi, Harald:

Yes, Your analyses of these abrev. are each correct.

And with regards to FMS...well it is the number one most misdiagnosed " disease "

in women who actually have AS. There is actually a strict guideline related to

FMS but not understood very well my most physicians (if I press hard enough on

any muscle, I suppose I could get it to hurt), and FMS is not, while AS is, an

inflammatory condition.

Also, there is " HLA B27 Disease, " that is a continuum of AS, Reiter's, Crohn's,

uDiff, etc etc but these are all related to the process of " molecular mimicry "

explaining cellular destruction. The pathogen cause is always the same germ and

I'm going to propose that this germ also causes many other conditions,

heretofore unrecognized and not all related to the mechanism. Some people end up

with a million diagnoses--Crohn' s AND AS AND hypermobility AND DDD (a new

one...sorry) AND...but it is really just different facets of the same crystal.

Best to You,