Re: cough causing gag reflex

[Guest guest]

At 07:55 AM 12/6/00 -0500, wrote:

>I've recently started gagging when I cough. So far no vomiting, but its

>been close a couple times. This has also happened when I've had trouble

>breathing. The episodes never last long, so my neuro says not to worry

>about it.

I do this too, . Mine seems to be related to how much pain I am

in. The higher the pain level, the more of a gag. And when you consider

that I have virtually no gag reflex...

>Question: should I be worried about it? Should I be searching for a new

>neurologist? Anyone have a good one within a couple hours of Hagerstown,

>MD?

>

>Thanks for any help anyone can give me.

I am just living with mine right now - have not even mentioned it to my

Neuro. But, then, I am searching for a new neuro, so...

> in land

>ACM and Syrinx

>decompression....2/98

>

Best of luck, .

[Guest guest]

,

I too had trouble breathing and occasional bouts with gagging. I

didn't even have to be doing anything to cause the gagging. It would

happen spontaneously and continue for various periods of time, sometimes as

long as a couple of hours. I could even be sitting at the computer or

watching TV. I didn't vomit, but it came very close on occasion.

Also, I didn't gag when I coughed. Instead, I had intense

electric-like shocks that would run down my arms to my fingers and also

down my back into my legs and feet. This wasn't really painful, just

bothersome. However, just prior to surgery, I would get an intense,

blinding pain down the right side of my neck upon coughing or sneezing.

This pain would literally drop me to my knees no matter where or what I was

doing. And I was always coughing (I'm happy to say that since my recent

surgery, I rarely ever cough and the drop-me-to-my-knees pain is gone).

Also gone is the gagging.

You asked if you should you be worried about this. In my opinion,

anytime anyone is having breathing difficulties they should be worried and

consult their doctor. If their doctor doesn't respond (which is what

happened to me) or doesn't respond in a manner which you are

comfortable/satisfied with, then see another doctor. This is how I ended

up with Dr. Weingart at s Hopkins. He took my breathing difficulties

very seriously for which I am very grateful. I had to have another

decompression surgery in August 2000 (my first was done in 1990) to remove

scar tissue and to further enlarge the foramen magnum. The scar tissue

(from my original patch) had grown into my cerebellum and had to be

dissected out. Also, Dr. Weingart found that the immense scar tissue had

also surrounded my medulla (it's a wonder I could breath at all). Hence,

lots of compression and no CSF flow. Also, a very, very large syrinx.

Anyway, I believe Dr. Weingart is within a couple of hours of

Hagerstown, land. I told him I was going to recommend him to other

Chiarians in need of a doctor. In my opinion, he's great. I don't believe

I would be here today if not for him. Please give his office a call and

speak with Betty. He is accepting patients and since you are both in

land, hopefully you won't have any problems with insurance.

Dr. Jon Weingart

s Hopkins University Hospital

600 North Wolfe Street

Harvey 811

Baltimore, MD 21287-8811

Terri in Delaware

ACMI and syringomelia

Decompressed 9/90 and 8/00

I've recently started gagging when I cough. So far no vomiting, but its

been close a couple times. This has also happened when I've had trouble

breathing. The episodes never last long, so my neuro says not to worry

about it.

Question: should I be worried about it? Should I be searching for a new

neurologist? Anyone have a good one within a couple hours of Hagerstown,

MD?

Thanks for any help anyone can give me.

in land

ACM and Syrinx

decompression....2/98

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