Guest guest Posted November 14, 2005 Report Share Posted November 14, 2005 Hello Serap, Here is our whole doctors' list for Pennsylvania - I know that Dr. Fred Burton (see list) has treated a number of our patients. Welcome to the group and please let me know if I can help you with more information. Chris. Mantell, M.D. – holistic – enthusiastic about AP 589 Ekastown Rd. Sarver, PA 16055 – nr. Pittsburgh PA P: 724-353-1100 E. Peirsel, M.D. Total Health 505 Poplar St. Meadville, PA 16335 P: 814-337-7429 Francis Powers, M.D. – alternative medicine – oral and IV 1625 Elliott St. port, PA 17701 P: 717-326-8203 Helen Oven Hiserman, PA-C - offers AP Nutritional & Preventive Clinic 1201 Grampian Blvd. – Suite 3 port, PA 17701 Rose, M.D. – takes referrals (No record of this name) 42 Dogwood Dr. Maple Glen, PA 19002 F. Pepe, M.D. (RHU – 1966) Center Medical & Surgical Associates 1850 E. Park Ave. State College, PA 16803 P: 814-234-8800 Dr. Marzena Bienick (rheumatologist) East Pennsylvania Rheumatology Association, Bethlehem, PA. P: 610-868-1336. and Straudsburg, PA. P: 717-424-9153. Frederick D. Burton, M.D. (Alternative) (oral and IV) – Uses antibiotic or anti-fungal therapies 69 W. Schoolhouse Lane Phildadelphia PA 19144 P: 215-844-4660 Mon Wed Fri & Sat also at 321 E. Emmaus Ave. town, PA 18103 P: 610-791-2453 Tues & Thurs http://burtonwellnesscenter.com E. Engel, M.D. (RHU – 1984) 3317 Liberty St., Erie, PA 16508. P: 814-868-8531. P. Gallagher, D.C., Medical Wellness Associates, 91 Lincoln Way East, Jeanette, PA 15644. P: 412-523-5505. Hurst, M.D. Leola Family Health Center 146 E. Main St. Leola, PA 17540 P : 717-656-2141 F : 717-656-4986 Goldstein, M.D. 9401 McKnight Rd. – Suite 301B Pittsburgh, PA 15237 P: 412-366-6780 F: 412-366-8644 no Medicare W. Shay, D.O. (FP – 1973) 19 s Mill Rd., Barto, PA 19504-8811. P: 610-845-8400. M. Sullivan, M.D. (FP – 1975) 1001 S. Market St., Suite B., Mechanicsburg, PA 17055. P: 717 697 5050. Uma P. Viswanathan, M.D. Medical Wellness Associates, 91 Lincoln Way East, Jeanette, PA 15644 P: 412-523-5505 M. Fisher, M. D. – uses levaquin & flagyl 11-2-00 Holistic Medicine 500 mg. Levaquin daily Lotus Medical Arts, P.C. 500 mg. 3 x a day flagyl 530 S. 2nd St. Suite 108 also uses Diflucan Philadelphia, PA 19147 P: 215-627-3001 F: 215-627-8401 Dr. Chesner - oral only Rheumatic Disease Associates, Ltd. 2400 land Ave. Upper Moreland, PA P: 215-657-6776 On 14/11/2005, at 1:04 PM, serapozcan03 wrote: > Hello, > My name is Serap and I am new to the group. I have been suffering from > lupus initially, now doctors say it is RA. I am on sulfalazamine > naproxen and prednisone. I am trying not to use prednisone, but I > cannot give up because whenever I try, my pain elevates. Right now,I > am consistently suffering from pain in my joints, hands, feet, > shoulder, knee...and they are also swollen. I don't know what to do, I > have seen 4 doctors in Pittsburgh, PA, but I am worse than ever. I am > looking for a doctor in my area who is going to find something that > fits me. I am very dissappointed with the Dr.s I have seen. They just > want to give prednisone and that's it. I am 32 years old female, I > have a 6 years old daughter and want to have more. With this pain, I > can hardly go to work. Please advise me a good Dr. around > Pennsylvania, I appreciated. > Thanks, > Serap > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2005 Report Share Posted November 14, 2005 Serap.....Go to the bookstore or library and get Henry Scammels book " The Arthritis Breakthrough " . If you have not tried antibiotic therapy, you should really consider it. It is the only thing that really worked for me and I have had RA for 13 years now. If you need a doctor who does this I will give you a name to contact. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 I had reiters, it turned out to be a bacteria called chlamidia, I cured it with an abx called Cipro, @1.5g per day for min of 6 weeks. Biaxin also helped long term (got into the back). YOu need research those keywords and ReA. (reactive Arthritis). Hope this helps. bleu On 17 Jun 2006, at 09:54, michaelr_321 wrote: > I suppose I should introduce myself since I posted a few times > tonight. My name is Iliff and I live outside of Seattle, and > I get the bulk of my treatment from The U of Wash medical center. I > can't complain about the treatment I have gotten. Its just been top > notch except my body is rejecting all the treatments and they are > running out of things to try me on. I've been trying to find some > clinical trials with no success. > I was diagnosed in '87 at the age of 17 with first Reiters with a bad > case of dermatitus. Then a diff dr diagnosed PA. In '90 I got better > and even went into almost remission until '94. I got steadily worse > through '97 when I finally had to quit my job. I went on disability > there abouts. I did my monly's with avery Dr I needed, rhuem, derm my > general pract, and various specialist I needed like orthopedic to > repair all the joint and muscular problems I had since I had been on > God awful PREDNISONE since day 1 of '87. No one took me off since it > was such a wonder drug and no one had anticipated the problems coming > down the line. > I got a horrid Septic infection on 9-11-01, yes the dreaded day 9/11. > It sucked because I needed to go to UWmed but they couldn't airlift > me because all air traffic was grounded. It was touch and go for 4 > days but I finally came out of my delerium. This was the beginning of > infection after infection after infection that climaxed with a leg > infection, as near as they could tell, in'04 and my left leg BTK > being amputated. Then the next year The right leg was infected, as > near as they could tell, and it was BTK amputated. I am now a double > btk amputee. I'm not sure what is in store for '06 but I hesitate to > ask. > I am completely intrigued by this reactive arthritis thing, as my > problems all went awy with a healthy dose of augmentin first, then > another I can't remember, which kept the knife at bay until last year > when it stopped working and I had the second amputation. Now > Clindamycin. Any info BESIDES the stuff I already got from a lot of > googled stuff on the Reactive Arthritis thing, like does it attach > itself to certain autoimmune diseases including PA? Does anyone with > PA out there know anything like that? (Kinda of subject but on topic, > what is AP you've been talking about as opposed to PA?) Are there any > PA support groups in the Seattle area? > (Again sort of off subject but on topic, are there any other amputees > of any kind out there?) > Thank you for this little intro/tyraid/rant or rave... Nice to meet > you all. > > > michaelr_321@... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 Great list Chris. Is there one for every state? Wash state? Is there some sort of rating system to know quaks to sharks to good little Dr's? Thanks for the help and thanks to whoever put that list together no matter how extensive it may or may not be... michaelr_321@... > > Hello Serap, > > Here is our whole doctors' list for Pennsylvania - I know that Dr. Fred > Burton (see list) has treated a number of our patients. Welcome to the > group and please let me know if I can help you with more information. > Chris. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 I had a triple-arthrodesis when I was 18, that would be in '88. The best thing I had done was an insole for one foot, and possibly buy a smaller shoe for the other and remove the factory insole. Just what I had done. michaelr_321@... > > Hi everyone, I'm new.I have RA. I had my ankle fuse 3 months ago, now > my left leg is shorter than my right. Does anyone know where I can get > good looking shoes? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 oh yeah, that's the other AB I can't take, Cipro. And I didn't have clamidia at the time. I was still a teenager and hadn't had sex yet. Sorry already looked there. And I did download a bucketload of info on Reactive Arthritis. still needing answers from my earlier questions. Maybe I just didn'tdownload the right info from the right place. If anyone has a good sight for me to look at, great, let me know. I'll download til my hands or my printer bleeds, whichever comes first. Thank you very much for your info tho... > > > I suppose I should introduce myself since I posted a few times > > tonight. My name is Iliff and I live outside of Seattle, and > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 You can also get ReA from food posining, campylobactor, infection. also cured with cipro many people have a reaction the first time they take cipro and think that they are allergic when in fact that was a bacteria die off response, often it only happens the first time, why can you not take cipro? On 17 Jun 2006, at 10:39, michaelr_321 wrote: > oh yeah, that's the other AB I can't take, Cipro. And I didn't have > clamidia at the time. I was still a teenager and hadn't had sex yet. > Sorry already looked there. And I did download a bucketload of info on > Reactive Arthritis. still needing answers from my earlier questions. > Maybe I just didn'tdownload the right info from the right place. If > anyone has a good sight for me to look at, great, let me know. I'll > download til my hands or my printer bleeds, whichever comes first. > > Thank you very much for your info tho... > > > > > > > > > I suppose I should introduce myself since I posted a few times > > > tonight. My name is Iliff and I live outside of Seattle, > and > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 Hi , We keep a worldwide list - the list is made up of doctors whom patients have told us prescribe the antibiotics, but it's difficult to keep it up to date. We have notes beside the doctors' names where we have information - and where you see " IV and oral " that usually means the doctor knows the protocol. We are always happy to help if we can. As I'm in Australia I always muddle up Washington and Washington State - our list is long for Washington so perhaps you can narrow down the area or town? Chris. On 17/06/2006, at 6:00 PM, michaelr_321 wrote: > Great list Chris. Is there one for every state? Wash state? Is there > some sort of rating system to know quaks to sharks to good little > Dr's? Thanks for the help and thanks to whoever put that list together > no matter how extensive it may or may not be... > > > michaelr_321@... > > >> >> Hello Serap, >> >> Here is our whole doctors' list for Pennsylvania - I know that Dr. > Fred >> Burton (see list) has treated a number of our patients. Welcome to > the >> group and please let me know if I can help you with more information. >> Chris. > > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 Hi , I just read your further post. Doctors in Seattle on our list are: Bobbi Lutack, Evergreen Natural Health Clinic, 2008 WE 65th St., Seattle, WA 98103. P: 206-729-0907 Bove, ND, Lac oral & IV son, M.D. (IM) University Health Center 5312 Roosevelt Way NE Seattle, WA 98105 P: 206-525-8015 Ralph Golan, M.D. Preventive medicine Ravenna Medical Arts 7522 20th Ave. NE Seattle, WA 98115 P: 206-524-8966 Chris. On 17/06/2006, at 5:24 PM, michaelr_321 wrote: > I suppose I should introduce myself since I posted a few times > tonight. My name is Iliff and I live outside of Seattle, and > I get the bulk of my treatment from The U of Wash medical center. I > can't complain about the treatment I have gotten. Its just been top > notch except my body is rejecting all the treatments and they are > running out of things to try me on. I've been trying to find some > clinical trials with no success. > I was diagnosed in '87 at the age of 17 with first Reiters with a bad > case of dermatitus. Then a diff dr diagnosed PA. In '90 I got better > and even went into almost remission until '94. I got steadily worse > through '97 when I finally had to quit my job. I went on disability > there abouts. I did my monly's with avery Dr I needed, rhuem, derm my > general pract, and various specialist I needed like orthopedic to > repair all the joint and muscular problems I had since I had been on > God awful PREDNISONE since day 1 of '87. No one took me off since it > was such a wonder drug and no one had anticipated the problems coming > down the line. > I got a horrid Septic infection on 9-11-01, yes the dreaded day 9/11. > It sucked because I needed to go to UWmed but they couldn't airlift > me because all air traffic was grounded. It was touch and go for 4 > days but I finally came out of my delerium. This was the beginning of > infection after infection after infection that climaxed with a leg > infection, as near as they could tell, in'04 and my left leg BTK > being amputated. Then the next year The right leg was infected, as > near as they could tell, and it was BTK amputated. I am now a double > btk amputee. I'm not sure what is in store for '06 but I hesitate to > ask. > I am completely intrigued by this reactive arthritis thing, as my > problems all went awy with a healthy dose of augmentin first, then > another I can't remember, which kept the knife at bay until last year > when it stopped working and I had the second amputation. Now > Clindamycin. Any info BESIDES the stuff I already got from a lot of > googled stuff on the Reactive Arthritis thing, like does it attach > itself to certain autoimmune diseases including PA? Does anyone with > PA out there know anything like that? (Kinda of subject but on topic, > what is AP you've been talking about as opposed to PA?) Are there any > PA support groups in the Seattle area? > (Again sort of off subject but on topic, are there any other amputees > of any kind out there?) > Thank you for this little intro/tyraid/rant or rave... Nice to meet > you all. > > > michaelr_321@... > > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 AP means antibiotic protocol as described at www.rheumatic.org. PA stands for psoriatic arthritis. rheumatic Re: Hello > still curious... What is the diff in postings AP or PA abbreviations > > thanks > > > > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 As far as I know, the chlamydia infection which could be at the root of many of our health problems is not the chlamydia which is sexually transmitted. It is chlamidia pneumonae and is transmitted through the moisture of breathing. Gail On 17/06/2006, at 8:39 PM, michaelr_321 wrote: > oh yeah, that's the other AB I can't take, Cipro. And I didn't have > clamidia at the time. I was still a teenager and hadn't had sex yet. > Sorry already looked there. And I did download a bucketload of info on > Reactive Arthritis. still needing answers from my earlier questions. > Maybe I just didn'tdownload the right info from the right place. If > anyone has a good sight for me to look at, great, let me know. I'll > download til my hands or my printer bleeds, whichever comes first. > > Thank you very much for your info tho... > > > > >> >>> I suppose I should introduce myself since I posted a few times >>> tonight. My name is Iliff and I live outside of Seattle, > and >> > > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2006 Report Share Posted June 18, 2006 AP stands for antibiotic protocol rheumatic Re: Hello still curious... What is the diff in postings AP or PA abbreviations thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Talk to the doc who is taking care of you now, and ask for referrals for the areas you want checked that bothers you the most. Keep searching till you are satisfied that you have chosen the right docs. I put together my own team of doctors. Buy the books on the subject, or call the library re: your diseases and have them notify you. Go to other sites and google up your disease. Educate yourself and follow your instincts. I lost my first cousin to Lupus. Good luck to you Mae, Dolores S/D & R/A. koukla782002 <koukla782002@...> wrote: My name is Mae. I lost my mom to Lupus in 1992. I am 38 and already have oain in my joints. They said three years that it was my thyroid and Graves but they burned it. I do have hypothrodism. Does anyone know if it is possible for me to have lupus as well. TOday my bones are killing me. It is very hard for me to walk. Do i taalk to my endrocronologist or is there a different type of doctor. I appreciate the help To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Yes unfortunately you can have lupus as well....But you may also want to be tested for Rheumatoid Arthritis as well. I have a long list of diagnoses and Lupus and Ra are the two main ones that I have...Get tested... koukla782002 <koukla782002@...> wrote: My name is Mae. I lost my mom to Lupus in 1992. I am 38 and already have oain in my joints. They said three years that it was my thyroid and Graves but they burned it. I do have hypothrodism. Does anyone know if it is possible for me to have lupus as well. TOday my bones are killing me. It is very hard for me to walk. Do i taalk to my endrocronologist or is there a different type of doctor. I appreciate the help --------------------------------- How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Blessings to you Dede, I wish the same for you. Patty > > My wish for everyone is to have a > happy, healthy, hopeful, grateful > New Year full of love and joy and > spontaneity in lifes ventures, and > definately I always hope for World Peace.... > Many Blessings and Much Love ~ > Pay it forward ~ > Dede > > > > ************** > New year...new news. Be the first to know what is making > headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 I was just appalled when I read what your mom said. I was going to suggest you read a little book that has helped me tremendously in dealing with what other people say or do. It is called The Four Agreements by Don Ruiz. I used to carry it in my purse and just randomly read parts of it when I waited on doctors, etc. One thing you learn from it, what other people say and do -- don't take it personally. It is there problem not yours. You know within yourself what you have and what you are dealing with and you don't need anyone else to validate that for you. I hope you get relief soon. I am in the same boat, pain in both wrists but working full time plus. I have been lucky I can work around bad days. Dale Ellen Quote Link to comment Share on other sites More sharing options...
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