Some doctors! LONG and cranky!

[Guest guest]

Oh MY.......I am so upset and angry at my neuro that I have had for over 2

years, that I could sue him and I may! I have never, ever brought a lawsuit

against anyone in the world but, because of the shabby treatment that so

many of you have had to put up with, coupled with

what happened to me at my regular neurologist appointment......I AM

READY!!!!!!! It just might even bring some awareness about chiari to this

town! After you read this, please tell me what you think. Should I file suit

or not. I am so tired of these arrogant, God-like-syndrome, know-it alls,

who know nothing......about ACM/SM and

yet they take the money and pretend they are giving you good care. Well,

someone mentioned the Oath " Above All, Do no Harm " My x-neuro.....has done

me a harm!!

As you guys know, I posted about having a decompression, etc, etc, etc

surgery.......on Halloween. I have just returned home from

Columbia and the next day I had an appt. with my reg neuro. After I waited 2

hours to see him (this he always does, even if I call first to see if he is

running late) Grr. My time is worth nothing!

He came into the room. He says " Judy " and I say " Yes " He is now flipping

throw my chart. Now keep in mind this so-called doctor has supposedly been

taking care of me for 2 years/ He says " hmmmmm.... lets see, we did an MRI

for you, to check for chiari. " (very cheerful sounding fellow) I didn't

answer, but by then, had my back to him.

He then says " Nope, NO chiari....well at least nothing to worry about,

nothing that would cause any symptoms!....I was seething but did manage to

keep my cool. I told him that was exceptionally good news...he agreed!!

Guess he is too dumb to recognize sarcasm as well as chiari. I then asked if

I have a syrinx.......he is quickly thumbing through my chart once again (I

hear him)

He then ans. " No! No evidence of syringomyelia either! Very confidently! I

told him that was really a miracle........once again He agreed!

I told him that I was in severe pain and wondered what was causing it.

He said arthritis!

double Grrrrr! I asked what he could do for the pain as I am allergic to

anti-inflamatories. His answer was that they just didn't like to give pain

meds for chronic pain.....NOW this is when I lost it!!!!!

This is the same doctor that would allow me only 2 vicodin a day!

I asked him WHAT pain meds are made for...he says, only acute pain. I told

him that he was lying and just wanted to cover his own butt with the state

so that he didn't have to answer any inquiries from them.

He admited that the state can cause doctors a lot of trouble. Hmmm I guess

he will be answering to me, in court!!

He says well....you don't want to go to that Dr in Columbia.........I said

WHAT???

He says well, I mean you don't want surgery. I said that is NOT SO!!!!.....

I have always told him that if I progressed I would have surgery! He claimed

that my additional pain that I told him about 6 months ago when I had an MRI

is/was from arthritis and that since I have been seeing him....my condition

has NOT progressed.

Dr Oro and Mueller have seen a considerable amout of progression since I

began seeing this jerk, ( the same MRIs xrays that he had seen and in fact

ordered. I took them with me. )

Otherwise I would NOT be having surgery this month . I have a gag reflex

problem, some lack of feeling on the right side of my face, less hearing in

my right ear and actually many other things, dizziness, weakness....well you

guys know the drill. I may have some permanant damage from this syrinx

groeing so large. I remember one time this jerk was looking at my MRIs about

7 months ago and saying......I don't see how you are even able to walk,

Judy!

so now on this day......sheeeeesh I don't even have chiari, let alone

syringomyelia.and this jerk also has all of my records (copies) from the get

go!!! The ones from Mayo clinic, the ones from the gp who dx me, and any

other files MRIs X-rays......etc, that I have had since 1996!!!

I told him that I felt as if I was progressing months ago because of the

additional pain that I was having.....lower in my c-spine. I was feeling

like it was chiari/sm because it felt the same........those sharp

zig-zagging horizonal pains that come out from the spine in a path like the

shape of a lightning bolt! (not to be confused with the lightning feeling we

get (L-Hermittes)

So he seemed to act as if I was out of my mind when I told him I have a

surgery date, right away ,and I have progressed since he took me as a

patient and told me the first day that he could and would watch me closely

for progression and let me know immediatly. He assured me he would be able

to do this and this is all I asked of him until about a year or so later

when, I asked him for medicine for pain. Or guess I could say, I begged

him! Ended up having to go to a gp for help there....just what we all

need...one more Dr appt. in our lives. huh?

Anyway ....if this is making any sense at all???...I feel that he had been

negligent in my care. Had he told me when I first began the progressing and

my cervical spine began the melt down,

I would have called Dr Oro much sooner and possibly had the surgery behind

me and with a lot less pain than I am likely to be left with now because the

more I progressed, the more permanent damage is done, according to what Dr

Oro told me when I was there.

The gp who DX me just blew it off too, long ago. He says oh you have a

little birth defect in your neck...nothing to be concerned about. That was

in 1996 and as the pain worsened, the more I knew I was getting worse, and,

then my feet went numb and stayed numb. I began researching and you all know

the shock when you find out what CHIARI really is all about! It really

brings you down!

I went baack to him and he was so sorry...hmmmmmmm were those real tears in

his eyes...I don't know if I will ever know but... I didn't sue

Anyway back to the so called x-current neurologist s, He started

right away, passing the buck. He says well all I can do is go by the

radiologist report1

I just asked him if the word " Malpractice " was in HIS dictionary?

He still kept blaming the radiologist and said to me, Judy this will not

happen again.......I said, " You have finally gotten something right!!! "

Because I won't be back. Once again he remarked about the radiologist......I

just said tell him he needs to talk with his attorny also!

I was and am still so angry!!!!! Why am I not important enough, as a

patient, to have logical medical care. Is it too much to ask? I have never

wanted to sue anyone but, I do now!! What do you think?

Warmest regards Judy Marie