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Jenn, I get 'musical Lymph Nodes' Ya know, thats when first one area

swels, then another LOL. When the ones under my arms swell, I have a 2 " or

so swollen spot, then one next to it about the size of a pea which hurts

like the dickens. I have had them swell all over, several spots around the

neck, both underarms but not the ones in my groin, yet. Take care, Pepi

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--Thanks pepi...good to know..makes ya feel better when others have

em.

At least it is a little adventure for ya with your musical nodes!:) I

am looking forward to seeing if my nodes play games like that.:)

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  • 4 months later...
Guest guest

-----

> My lymph nodes are so swollen that they paralize my left arm, no I am not

on

> abx, but have had a 28 day IV Rocephin, I thought this would take them

down,

> and they do hurt. My neck, my left arm, under my arms and I think they

are

> making my legs go numb.

, here is a link to a chart of the body's Lymph system , I printed

off a copy and chart each months sweellings so that LLMD can see.

http://www.merck.com/pubs/mmanual_home/illus/167i1.htm

I have LN's popping up all over! I have one on my neck, just to the left of

the Spinal column and below the hairline that got so swollen,

pre-abx/pre-dx, that it always freaked Drs out. I get them from under my

arms, to all over my neck, they even make my throat sore and eating/drinking

difficult. Groin ones swell, and just above my collarbone.If you dont know,

they foretell of the body having an infection, they are kinda the body's

'oil filter' lol Why arent you under abx tx now? You may need to be.

Take care, hope this helps some, Pepi

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My lymph nodes are so swollen that they paralize my left arm, no I am not on

abx, but have had a 28 day IV Rocephin, I thought this would take them down,

and they do hurt. My neck, my left arm, under my arms and I think they are

making my legs go numb.

Does that sound familiar with you all?

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  • 2 months later...

Organise some ozone cupping over and above the area where the lymph nodes

are swollen.

Regards

Noel

Please request a 'Read Receipt' to ensure that I receive your Email.

Prof. Noel P O Box 137 Parkville VIC 3052 Australia

Phone 03 9639 6090 International 613 9639 6090

Mobile 0412 994 001 International 61 412 994 001

Fax 03 9639 6392 International 613 9639 6392

Email noelc@... Web: http://smile.org.au

######################################################################

Attention:

The information in this email and in any attachments is confidential.

If you are not the intended recipient then please do not distribute,

copy or use this information. Please notify us immediately by return

email and then delete the message from your computer.

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######################################################################

Sapere Aude: Dare to be wise.

Dare to care: Clinton.

All truth goes through three stages: first it is ridiculed: then it is

violently opposed: finally it is accepted as self evident. Schopenhauer.

There are three stages in any revolution.

The first is that of derision, when the innovators are ignored or laughed

at.

The second stage, depending on the persistence of the innovators and how

correct they are in their innovation, is that of resistance. This is the

" bloody " stage, where " heads roll " and persecution is exercised by the

authoritarians of the day. If the " rebels " increase in number and as their

philosophy becomes unmistakably better than that which they are attempting

to replace, the authoritarians become increasingly angry and hostile. The

war between the two factions heats up.

The third stage of revolution is that of acceptance by those who were

previously the persecutors. Not only do they embrace the new philosophy, but

in the annals of history they become the discoverers. The original pioneers

are forgotten. "

Genius is the ability to look at what others have looked at, and see what

they have not seen. Szyent-Gyorgy.

Effort only fully releases its reward after a person refuses to quit.

A great deal of talent is lost to the world for want of a little courage.

lymph nodes

Hello all,

I was wondering if anyone has had any swollen lymph nodes during their

hiv experience........I have some slightly swollen lymph nodes in my neck

under where my ear and jawbone meet and a new swelling level with my ear

right under my sideburn. Doc says its common with young men with hiv - at

any rate it shows my body is fighting off some infection - although I

dont know what that infection is. I've been upping my vit. C intake to

near 6 grams a day.

My recent blood draws show t-cells have gone up a little to 168 - and

viral load up a little to 17,000 - which is still low. I know, some of

you are saying the blood tests are a waste of time........but I'm

investigating here.

Any help with the lymph node issue is very appreciated.

paul

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On Fri, 21 Sep 2001 11:02:04 EDT curedaids@... writes:

> ,

>

> I haven't had this problem, but I've seen quite a bit of it. I

> believe it more related to the things people do to " treat " their HIV

> than to HIV. Regardless, you can reverse and eliminate this problem

> in just days doing the simple " lymphatic bounce " (a gentle up and

> down movement that is not the least bit strenuous) on a quality

> rebounder.

>

> I would recommend 20 minutes a day -- not necessarily all at once

> (or more if you like)to start. If you don't notice marked

> improvement in 3 days, I would double that.

)===========thanks Ed, I actually do have a cheapie rebounder but it

works. I will try your advice - I just havent been persistent in doing

the rebounding lately.

shalom,

paul

________________________________________________________________

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On Fri, 21 Sep 2001 10:40:35 +1000 " Noel " <noelc@...>

writes:

> Organise some ozone cupping over and above the area where the lymph

> nodes

> are swollen.

)========Hi Noel, will H202 work? I dont know what ozone cupping is or

how to aquire. Any other tips?

thanks,

paul

________________________________________________________________

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,

I haven't had this problem, but I've seen quite a bit of it. I believe it more

related to the things people do to " treat " their HIV than to HIV. Regardless,

you can reverse and eliminate this problem in just days doing the simple

" lymphatic bounce " (a gentle up and down movement that is not the least bit

strenuous) on a quality rebounder.

I would recommend 20 minutes a day -- not necessarily all at once (or more if

you like)to start. If you don't notice marked improvement in 3 days, I would

double that.

If you order your rebounder from me at Sobehealthy.com and your problem isn't

substantially (if not totally) eliminated in 3 weeks, you can return the

rebounder for a complete refund.

I'd be interested in knowing what you were doing (besides having your blood

sucked at regular intervals) before this problem appeared.

Ed

In a message dated Thu, 20 Sep 2001 8:19:02 PM Eastern Daylight Time,

freelightexpress@... writes:

> Hello all,

>

> I was wondering if anyone has had any swollen lymph nodes during their

> hiv experience........I have some slightly swollen lymph nodes in my neck

> under where my ear and jawbone meet and a new swelling level with my ear

> right under my sideburn. Doc says its common with young men with hiv - at

> any rate it shows my body is fighting off some infection - although I

> dont know what that infection is. I've been upping my vit. C intake to

> near 6 grams a day.

>

> My recent blood draws show t-cells have gone up a little to 168 - and

> viral load up a little to 17,000 - which is still low. I know, some of

> you are saying the blood tests are a waste of time........but I'm

> investigating here.

>

> Any help with the lymph node issue is very appreciated.

>

> paul

>

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Dear ,

H2O2 will not do the job.

Ozone cupping involves finding a plastic container that will fit over the

area concerned & seal against the skin.

You drill 2 holes in the container.

Ozone at 1/8 lpm 50 gamma concentration generated from medical oxygen is

infused into one hole & another hose is inserted into the second hole &

exhausts the excess ozone outside the room so that you do not breathe it.

1 hour treatments are indicated.

Another way is to use noise reducing ear muffs (like headphones) that you

purchase from the hardware store.

Drill 2 holes in each ear muff.

Infuse ozone into one & then have a connecting tube across to the other

muff, then an exhaust hose to the outside.

Again 1 hour treatments at 1/8 lpm and 50 gamma will do the job

This also works well for brain tumours, reducing the incidence of fits &

spinning.

Regards

Noel

Please request a 'Read Receipt' to ensure that I receive your Email.

Prof. Noel P O Box 137 Parkville VIC 3052 Australia

Phone 03 9639 6090 International 613 9639 6090

Mobile 0412 994 001 International 61 412 994 001

Fax 03 9639 6392 International 613 9639 6392

Email noelc@... Web: http://smile.org.au

######################################################################

Attention:

The information in this email and in any attachments is confidential.

If you are not the intended recipient then please do not distribute,

copy or use this information. Please notify us immediately by return

email and then delete the message from your computer.

Any views or opinions presented are solely those of the author.

######################################################################

Sapere Aude: Dare to be wise.

Dare to care: Clinton.

All truth goes through three stages: first it is ridiculed: then it is

violently opposed: finally it is accepted as self evident. Schopenhauer.

There are three stages in any revolution.

The first is that of derision, when the innovators are ignored or laughed

at.

The second stage, depending on the persistence of the innovators and how

correct they are in their innovation, is that of resistance. This is the

" bloody " stage, where " heads roll " and persecution is exercised by the

authoritarians of the day. If the " rebels " increase in number and as their

philosophy becomes unmistakably better than that which they are attempting

to replace, the authoritarians become increasingly angry and hostile. The

war between the two factions heats up.

The third stage of revolution is that of acceptance by those who were

previously the persecutors. Not only do they embrace the new philosophy, but

in the annals of history they become the discoverers. The original pioneers

are forgotten. "

Genius is the ability to look at what others have looked at, and see what

they have not seen. Szyent-Gyorgy.

Effort only fully releases its reward after a person refuses to quit.

A great deal of talent is lost to the world for want of a little courage.

Re: lymph nodes

On Fri, 21 Sep 2001 10:40:35 +1000 " Noel " <noelc@...>

writes:

> Organise some ozone cupping over and above the area where the lymph

> nodes

> are swollen.

)========Hi Noel, will H202 work? I dont know what ozone cupping is or

how to aquire. Any other tips?

thanks,

paul

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

http://dl.www.juno.com/get/tagj.

Read AIDS-Cured

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  • 2 weeks later...

Check her dental stuff...tooth and gum infections can cause problems like these

also...she also needs to be checked for EBV virus, CMV virus, and HHV6

(hhv6.com)

Dr.B.

Dave wrote:

> Hi all,

>

> I have just learned from my 27 year old daughter that she has

> been experiencing something odd for a year or so. Every couple

> of months, 3 lymph nodes on the back of her neck will swell up

> and become hard and in some cases visible under the skin.

> They stay like this for 1-2 weeks. During this 1-2 week period,

> she also gets a headache across the back and top of her head,

> and her sinuses become quite swollen but produce no mucus.

> Also, her ears become " plugged " , produce dark wax, and she has

> difficulty hearing.

>

> Her doctor has no idea what is going on and prescribed antihistimines

> and decongestants. A lot of tests were run but turned up nothing.

> The decongestants helped the sinus pressure, but that's about it.

>

> Also, since 2 years ago, she has had occasional episodes where her

> heart beats very rapidly and hard. These episodes last 1 or 2 hours

> and almost always begin at night and wake her up. They don't seem

> to be connected to her dreams (no nightmares, etc.). She has also

> been having occasional incidents of forceful palpitations since these

> heart racing episodes began. She has been running a low-grade fever

> off and on for two years.

>

> The lymph nodes and palpitation incidents do not occur at the same

> time, but she feels in her gut that they are related. Also starting 2

> years ago she frequently experiences something strange bronchially.

> Like there is mucus or congestion, so she coughs a few times and

> feels and breathes better, but no mucus is coughed up.

>

> She is an art director in Washington DC, doesn't smoke, drinks minimally,

> and eats conscientiously. She takes a daily birth control pill (for 10

> years).

> No other prescription or over-the-counter drugs except for an occasional

> Tylenol.

>

> Does anyone have a clue what might be going on with her? Your help

> much appreciated.

>

> Thanks,

> Dave

>

>

> OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

>

> THERE IS NO MEDICAL ADVICE HERE!

>

> This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing information

we believe in. If you act on ideas found here, you do so at your own risk.

Self-help requires intelligence, common sense, and the ability to take

responsibility for your own actions. By joining the list you agree to hold

yourself FULLY responsible FOR yourself. Do not use any ideas found here

without consulting a medical professional, unless you are a researcher or health

care provider.

>

> You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

> DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the

message! :

>

> oxyplus-unsubscribeegroups

>

> oxyplus-normalonelist - switch your subscription to normal mode.

>

>

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Check her dental stuff...tooth and gum infections can cause problems like these

also...she also needs to be checked for EBV virus, CMV virus, and HHV6

(hhv6.com)

Dr.B.

Dave wrote:

> Hi all,

>

> I have just learned from my 27 year old daughter that she has

> been experiencing something odd for a year or so. Every couple

> of months, 3 lymph nodes on the back of her neck will swell up

> and become hard and in some cases visible under the skin.

> They stay like this for 1-2 weeks. During this 1-2 week period,

> she also gets a headache across the back and top of her head,

> and her sinuses become quite swollen but produce no mucus.

> Also, her ears become " plugged " , produce dark wax, and she has

> difficulty hearing.

>

> Her doctor has no idea what is going on and prescribed antihistimines

> and decongestants. A lot of tests were run but turned up nothing.

> The decongestants helped the sinus pressure, but that's about it.

>

> Also, since 2 years ago, she has had occasional episodes where her

> heart beats very rapidly and hard. These episodes last 1 or 2 hours

> and almost always begin at night and wake her up. They don't seem

> to be connected to her dreams (no nightmares, etc.). She has also

> been having occasional incidents of forceful palpitations since these

> heart racing episodes began. She has been running a low-grade fever

> off and on for two years.

>

> The lymph nodes and palpitation incidents do not occur at the same

> time, but she feels in her gut that they are related. Also starting 2

> years ago she frequently experiences something strange bronchially.

> Like there is mucus or congestion, so she coughs a few times and

> feels and breathes better, but no mucus is coughed up.

>

> She is an art director in Washington DC, doesn't smoke, drinks minimally,

> and eats conscientiously. She takes a daily birth control pill (for 10

> years).

> No other prescription or over-the-counter drugs except for an occasional

> Tylenol.

>

> Does anyone have a clue what might be going on with her? Your help

> much appreciated.

>

> Thanks,

> Dave

>

>

> OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

>

> THERE IS NO MEDICAL ADVICE HERE!

>

> This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing information

we believe in. If you act on ideas found here, you do so at your own risk.

Self-help requires intelligence, common sense, and the ability to take

responsibility for your own actions. By joining the list you agree to hold

yourself FULLY responsible FOR yourself. Do not use any ideas found here

without consulting a medical professional, unless you are a researcher or health

care provider.

>

> You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

> DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the

message! :

>

> oxyplus-unsubscribeegroups

>

> oxyplus-normalonelist - switch your subscription to normal mode.

>

>

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Check her dental stuff...tooth and gum infections can cause problems like these

also...she also needs to be checked for EBV virus, CMV virus, and HHV6

(hhv6.com)

Dr.B.

Dave wrote:

> Hi all,

>

> I have just learned from my 27 year old daughter that she has

> been experiencing something odd for a year or so. Every couple

> of months, 3 lymph nodes on the back of her neck will swell up

> and become hard and in some cases visible under the skin.

> They stay like this for 1-2 weeks. During this 1-2 week period,

> she also gets a headache across the back and top of her head,

> and her sinuses become quite swollen but produce no mucus.

> Also, her ears become " plugged " , produce dark wax, and she has

> difficulty hearing.

>

> Her doctor has no idea what is going on and prescribed antihistimines

> and decongestants. A lot of tests were run but turned up nothing.

> The decongestants helped the sinus pressure, but that's about it.

>

> Also, since 2 years ago, she has had occasional episodes where her

> heart beats very rapidly and hard. These episodes last 1 or 2 hours

> and almost always begin at night and wake her up. They don't seem

> to be connected to her dreams (no nightmares, etc.). She has also

> been having occasional incidents of forceful palpitations since these

> heart racing episodes began. She has been running a low-grade fever

> off and on for two years.

>

> The lymph nodes and palpitation incidents do not occur at the same

> time, but she feels in her gut that they are related. Also starting 2

> years ago she frequently experiences something strange bronchially.

> Like there is mucus or congestion, so she coughs a few times and

> feels and breathes better, but no mucus is coughed up.

>

> She is an art director in Washington DC, doesn't smoke, drinks minimally,

> and eats conscientiously. She takes a daily birth control pill (for 10

> years).

> No other prescription or over-the-counter drugs except for an occasional

> Tylenol.

>

> Does anyone have a clue what might be going on with her? Your help

> much appreciated.

>

> Thanks,

> Dave

>

>

> OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

>

> THERE IS NO MEDICAL ADVICE HERE!

>

> This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing information

we believe in. If you act on ideas found here, you do so at your own risk.

Self-help requires intelligence, common sense, and the ability to take

responsibility for your own actions. By joining the list you agree to hold

yourself FULLY responsible FOR yourself. Do not use any ideas found here

without consulting a medical professional, unless you are a researcher or health

care provider.

>

> You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

> DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the

message! :

>

> oxyplus-unsubscribeegroups

>

> oxyplus-normalonelist - switch your subscription to normal mode.

>

>

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  • 5 months later...
Guest guest

In a message dated 3/8/2002 7:56:05 PM Central Standard Time,

conniek@... writes:

> Hi Donna,

> Don't assume everything is lyme.............make sure you are going to

> someone who can make sure you are dealing with only Lyme, and not some

> Lymphatic disease. There are tests that can be run to determine

> this..........see a good Dr. that understands lyme and lymphatic problems.

> I don't want to scare you, but if you have been on abx for some time and

> the

> lymph nodes are very swollen in your neck without any decrease in

> size............or if you are finding other lymph nodes though-out your

> body

> that are swelling, you need to see a specialist

Hi Connie: I will see another specialist but I am taking aloe vera to see if

this helps with inflammation. If this doesn't work, I will most definitely

call on a hematologist. Thank you for your concern and advice. It is well

taken.

Blessings,

Donna

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Guest guest

>>>>>>>Donna-

ANA levels measure inflammation...when it comes to lyme, we have

inflammation

from the spirochetes. Below is Art's links to lyme/lupus.

sue in nj>>>>>>>>.

Hi Donna,

Don't assume everything is lyme.............make sure you are going to

someone who can make sure you are dealing with only Lyme, and not some

Lymphatic disease. There are tests that can be run to determine

this..........see a good Dr. that understands lyme and lymphatic problems.

I don't want to scare you, but if you have been on abx for some time and the

lymph nodes are very swollen in your neck without any decrease in

size............or if you are finding other lymph nodes though-out your body

that are swelling, you need to see a specialist.........to make sure you

aren't developing another disease or disorder. Please don't pass it off as

" probably Lyme " make sure! Lymphoma and Lyme are not the same disease!

There are definite differences, I am not a Dr. , but I know of someone that

passed their symptoms off as ALL lyme, and now has stage III

Lymphoma.........if your Lyme Dr. can't figure out if you don't have

anything else going on..............then he or she should refer you to

someone who can...............starting with a good Hematologist, would be a

good start.

Good Luck,

Conniek nwnj

Leave no stone unturned.......and ask questions!

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Guest guest

Becky-- SO sorry to hear about Maddie! Poor thing! Give her a birthday hug

from us.

I wish I had some tips for you.

has another sinus infection-- we went back to the doc yesterday and his rt

sinus was swollen shut. He had been running a temp for 2 1/2 weeks... we saw

the doctor 1 1/2 weeks ago...

anyway... not that you wanted to know about us! I hope maddie gets to feeling

better soon! Glad to hear that your husband gets to go on the mission trip!

That is wonderful news for you all!

Pattie

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Guest guest

Becky-- SO sorry to hear about Maddie! Poor thing! Give her a birthday hug

from us.

I wish I had some tips for you.

has another sinus infection-- we went back to the doc yesterday and his rt

sinus was swollen shut. He had been running a temp for 2 1/2 weeks... we saw

the doctor 1 1/2 weeks ago...

anyway... not that you wanted to know about us! I hope maddie gets to feeling

better soon! Glad to hear that your husband gets to go on the mission trip!

That is wonderful news for you all!

Pattie

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Guest guest

Becky:

Oh, I hate that feeling of sitting there watching your child so sick lying

around, it's so un-kid-like. I hope she recovers soon, you BOTH need the

break!

(mom to , 3yrs old, polysaccharide antibody def)

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  • 5 months later...

Gail,

Problems with lymph nodes and a tight throat all sound familiar...have you

ever tried massage therapy? The theory is that massage can help " move " the

bugs along, flushing out the lymphatics. It is so unfortunate that your body

can't handle the antibiotics...the tight throat was becoming quite a problem

for my son until antibiotics were started, and that helped tremendously.

You might even try gentle massage of your neck yourself if you have the

strength in your hands and fingers to do it. I know the massage therapist

recommended self-massage of the neck while standing under a warm shower

stream.

I hope this helps...

~Judie

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Gail-

It is possible to have 'knots' and many are diagnosed with " non-Hodgkins

lymphoma " .

** http://www.geocities.com/lymeart3/misdiag-links.html#diseaseLymphoma

Lyme Disease and Lymphoma

MEDLINE - Lymphoma AND Lyme disease - 58 on 29 Jan 01

------------------------------------------------------------------------

Medscape Clinical Full-Text: Lyme Disease and Lymphoma - 3 on 13 Feb 00

Medscape News: Lyme Disease and Lymphoma - 3 on 13 Feb 00

sue in nj

sue massie

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In a message dated 9/6/02 8:46:20 AM, GoodLittleDobee@... writes:

<< The theory is that massage can help " move " the

bugs along, flushing out the lymphatics. >>

The body has approx. 15 pints of blood and 45 pints of lymphatic fluid. We

have a heart to pump the blood but there is no pump for the lymphatic. To

move the lymphatic, one can exercise, 'pump' the ankles by using a

mini-trampoline 10 mins. twice/day and do dry skin brushing. Lymphatic

massage is excellent also. Don't forget to drink half your body weight in

ounces of water.

sue in nj

sue massie

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Sue, thank you so much for your quick reply. I did try to get into the web

site that you suggested, but it said that I had to have a health library

before I could register. Unfortunatly, I do not have any idea what they are

talking about. If you can get the article and forward to me at

rggause@..., I would appreciate it. Thanks, Gail

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dear gail

posters here have indicated that these symptoms have been ascribed to lyme.

if you have a belief you have lyme than treat it -in your case

perhaps using alternatives to abx-

and these symptoms may abate. some individuals have linked lymphoma

diagnoses with lyme

too. this means that the symptoms docs thought were lymphoma abated

with lyme treatment.

treat your lyme as hard as you can to try and clear any symptoms that

will mimic other

diagnoses.

you can try and explore:

hyperthermia

oxygen therapies including hyperbaric with abx

eechinacea

golgoldenseal

olive leaf extract

garlic

sarsparilla

try search for " Dr Zang " Lyme.

>Good morning everyone. I was wondering if anyone has experienced getting

>knots in your lymph nodes. Over the past week I have had five knots come up

>in the lymph nodes in my neck and the back of my head. Today, my throat

>feels very tight. I have also had seizures with front lobe brain damage

>discovered. My LLMD had also diagnosed me with chronic elipsy along with

>chronic and acute lyme. Of course I have many more symptoms, but these knots

>are very unnerving.

>

>I was on rocherin for a while but had to stop because my white count dropped.

> My body can only tolerate very low doses of antibotics. I am now on 50mg of

>doxy daily.

>

>My LLMD has also discovered that I have several mycoplasmas that are

>increased indicating a secondary tick born infection. I have had lymes for

>over ten years but was just diagnosed with it early this year.

>

>I eagerly await to hear from all of you. Thank you, Gail

>

>

>

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Hi Gail,

Before I was diagnosed I had a large mass in my throat preventing me from

swallowing. My lymph's were clogged and full for years. As is typical the Doc's

wanted to remove my voice box and biopsy my Lymph's( treat the symptoms only). I

reacted in destitute with a quick trip to the Optimum Health Institute in San

Diego, CA. It cost 200.00 for the flight and 700.00 a week. In three weeks I was

cured and never felt so good in the entire 11 years before diagnosis. I am still

sick with Lymes yet I keep my Lymph's clean through extensive exercise and when

I can't exercise through TAC's. I still force myself to use a mini trampoline 10

minutes in the AM, at noon, and PM. When In a dire straights I pray that you

will take your abx and head out to OHI in San Diego.

You will be blessed,

Bernadette

Good morning everyone. I was wondering if anyone has experienced getting

knots in your lymph nodes. Over the past week I have had five knots come up

in the lymph nodes in my neck and the back of my head. Today, my throat

feels very tight. I have also had seizures with front lobe brain damage

discovered. My LLMD had also diagnosed me with chronic elipsy along with

chronic and acute lyme. Of course I have many more symptoms, but these knots

are very unnerving.

I was on rocherin for a while but had to stop because my white count dropped.

My body can only tolerate very low doses of antibotics. I am now on 50mg of

doxy daily.

My LLMD has also discovered that I have several mycoplasmas that are

increased indicating a secondary tick born infection. I have had lymes for

over ten years but was just diagnosed with it early this year.

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  • 7 months later...
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I had insomnia real bad also but......as the die-offs occured it got better,

thats when i deceided to keep a journal of all my happenings because i

couldn't sleep and it helped me months later i could go back and know what

happened and what meds i was taking and how long because you forget a lot of

this. i had more than one die-off.

Mog

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