Guest guest Posted June 11, 2008 Report Share Posted June 11, 2008 what type of insurance do you have? > > Okay - I am a mom of 5 kids with some form of autism - my youngest is > just starting the process and is waiting the eval from CDTC to get > the therapies started. > > My problem is that it feels like I am starting all over again - my > two oldest are very high functioning, in fact - my daughter has PDD- > NOS and and my oldest son is very high functioning. But, my two > middle sons are low functioning and now my 4 year old is regressing > significantly. > > I have been having a hard time getting therapies since they stopped 2 > years ago due to scheduling, staffing, etc. - you all know the > problems we face. Now I have an appointment on Sat for a speech and > OT eval but the availability is limited to Saturdays for 1 hour for > both of them. > > I have called everywhere and everyone I know and all I keep getting > is no we do not take your insurance or no we do not have availability > or even worse - yes, your children need 45 minutes three times a week > but we can only give 1/2 an hour once a week. > > Any places you can recommend me calling? I feel like I am back at > square one again!! > > Also, I have not tried the biomedical approach because of the cost - > do any of you do this and have it covered by insurance? A friend of > mine jsut emailed me that she was able to get her DAN doc covered by > her insurance for all 3 of her kids - yet, she lives in Virginia, not > Florida. > > Any help would be great! Thanks!!! > > Krystal > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2008 Report Share Posted June 11, 2008 My son has a speech, feeding/swallowing and OT evaluation at the Dan Marino Center in Weston. They take my insurance. I don't know where you live though. I know it is very hard having one child with ASD so I can't imagine what you go through. The governor of the state just signed a bill that will make most insurance carriers cover treatment for autism but it wont go into affect until next year. there are other states that already make insurances cover treatment. > > Okay - I am a mom of 5 kids with some form of autism - my youngest is > just starting the process and is waiting the eval from CDTC to get > the therapies started. > > My problem is that it feels like I am starting all over again - my > two oldest are very high functioning, in fact - my daughter has PDD- > NOS and and my oldest son is very high functioning. But, my two > middle sons are low functioning and now my 4 year old is regressing > significantly. > > I have been having a hard time getting therapies since they stopped 2 > years ago due to scheduling, staffing, etc. - you all know the > problems we face. Now I have an appointment on Sat for a speech and > OT eval but the availability is limited to Saturdays for 1 hour for > both of them. > > I have called everywhere and everyone I know and all I keep getting > is no we do not take your insurance or no we do not have availability > or even worse - yes, your children need 45 minutes three times a week > but we can only give 1/2 an hour once a week. > > Any places you can recommend me calling? I feel like I am back at > square one again!! > > Also, I have not tried the biomedical approach because of the cost - > do any of you do this and have it covered by insurance? A friend of > mine jsut emailed me that she was able to get her DAN doc covered by > her insurance for all 3 of her kids - yet, she lives in Virginia, not > Florida. > > Any help would be great! Thanks!!! > > Krystal > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2008 Report Share Posted June 11, 2008 Krystal, I am so sorry that the situation in Fl is not better for you. Our state is truly behind in services and other resources. I can only imagine the struggles you face on a daily basis. Everyone says to go to CARD, but they have nothing to offer my 4 yr old. I don't know where you live, but I believe that Broward Children's Center provides Speech and OT as part of their therapy department. I remember someone mentioning that BCC has special rates through the north broward hospital district. I don't know if you live near one of their locations. You may want to give them a call and check it out. www.BCCkids.org Best of luck. Subject: Mom of 5 with ASDTo: sList Date: Wednesday, June 11, 2008, 3:47 PM Okay - I am a mom of 5 kids with some form of autism - my youngest is just starting the process and is waiting the eval from CDTC to get the therapies started.My problem is that it feels like I am starting all over again - my two oldest are very high functioning, in fact - my daughter has PDD-NOS and and my oldest son is very high functioning. But, my two middle sons are low functioning and now my 4 year old is regressing significantly.I have been having a hard time getting therapies since they stopped 2 years ago due to scheduling, staffing, etc. - you all know the problems we face. Now I have an appointment on Sat for a speech and OT eval but the availability is limited to Saturdays for 1 hour for both of them.I have called everywhere and everyone I know and all I keep getting is no we do not take your insurance or no we do not have availability or even worse - yes, your children need 45 minutes three times a week but we can only give 1/2 an hour once a week.Any places you can recommend me calling? I feel like I am back at square one again!!Also, I have not tried the biomedical approach because of the cost - do any of you do this and have it covered by insurance? A friend of mine jsut emailed me that she was able to get her DAN doc covered by her insurance for all 3 of her kids - yet, she lives in Virginia, not Florida.Any help would be great! Thanks!!!Krystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 I have CMS North Broward for three of them and the other two are on Amerigroup > > > > Okay - I am a mom of 5 kids with some form of autism - my youngest > is > > just starting the process and is waiting the eval from CDTC to get > > the therapies started. > > > > My problem is that it feels like I am starting all over again - my > > two oldest are very high functioning, in fact - my daughter has > PDD- > > NOS and and my oldest son is very high functioning. But, my two > > middle sons are low functioning and now my 4 year old is > regressing > > significantly. > > > > I have been having a hard time getting therapies since they > stopped 2 > > years ago due to scheduling, staffing, etc. - you all know the > > problems we face. Now I have an appointment on Sat for a speech > and > > OT eval but the availability is limited to Saturdays for 1 hour > for > > both of them. > > > > I have called everywhere and everyone I know and all I keep > getting > > is no we do not take your insurance or no we do not have > availability > > or even worse - yes, your children need 45 minutes three times a > week > > but we can only give 1/2 an hour once a week. > > > > Any places you can recommend me calling? I feel like I am back at > > square one again!! > > > > Also, I have not tried the biomedical approach because of the > cost - > > do any of you do this and have it covered by insurance? A friend > of > > mine jsut emailed me that she was able to get her DAN doc covered > by > > her insurance for all 3 of her kids - yet, she lives in Virginia, > not > > Florida. > > > > Any help would be great! Thanks!!! > > > > Krystal > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Yeah, my kids go to DMC for Neuro and Psych but their therapy depts for OT & ST are on waiting lists. The social worker from DMC called me yesterday to see if she can help me out. I don't know how that new law will affect medicaid though - I thought it was only for large private insurance companies. > > > > Okay - I am a mom of 5 kids with some form of autism - my youngest > is > > just starting the process and is waiting the eval from CDTC to get > > the therapies started. > > > > My problem is that it feels like I am starting all over again - my > > two oldest are very high functioning, in fact - my daughter has PDD- > > NOS and and my oldest son is very high functioning. But, my two > > middle sons are low functioning and now my 4 year old is regressing > > significantly. > > > > I have been having a hard time getting therapies since they stopped > 2 > > years ago due to scheduling, staffing, etc. - you all know the > > problems we face. Now I have an appointment on Sat for a speech and > > OT eval but the availability is limited to Saturdays for 1 hour for > > both of them. > > > > I have called everywhere and everyone I know and all I keep getting > > is no we do not take your insurance or no we do not have > availability > > or even worse - yes, your children need 45 minutes three times a > week > > but we can only give 1/2 an hour once a week. > > > > Any places you can recommend me calling? I feel like I am back at > > square one again!! > > > > Also, I have not tried the biomedical approach because of the cost - > > > do any of you do this and have it covered by insurance? A friend of > > mine jsut emailed me that she was able to get her DAN doc covered > by > > her insurance for all 3 of her kids - yet, she lives in Virginia, > not > > Florida. > > > > Any help would be great! Thanks!!! > > > > Krystal > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 thanks! I didn't know about that - I live near Coral Springs - I 'll definately give them a call! > > From: momofautism5 momofautism5@... > Subject: Mom of 5 with ASD > To: sList > Date: Wednesday, June 11, 2008, 3:47 PM > > > > > > > Okay - I am a mom of 5 kids with some form of autism - my youngest is > just starting the process and is waiting the eval from CDTC to get > the therapies started. > > My problem is that it feels like I am starting all over again - my > two oldest are very high functioning, in fact - my daughter has PDD- > NOS and and my oldest son is very high functioning. But, my two > middle sons are low functioning and now my 4 year old is regressing > significantly. > > I have been having a hard time getting therapies since they stopped 2 > years ago due to scheduling, staffing, etc. - you all know the > problems we face. Now I have an appointment on Sat for a speech and > OT eval but the availability is limited to Saturdays for 1 hour for > both of them. > > I have called everywhere and everyone I know and all I keep getting > is no we do not take your insurance or no we do not have availability > or even worse - yes, your children need 45 minutes three times a week > but we can only give 1/2 an hour once a week. > > Any places you can recommend me calling? I feel like I am back at > square one again!! > > Also, I have not tried the biomedical approach because of the cost - > do any of you do this and have it covered by insurance? A friend of > mine jsut emailed me that she was able to get her DAN doc covered by > her insurance for all 3 of her kids - yet, she lives in Virginia, not > Florida. > > Any help would be great! Thanks!!! > > Krystal > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Krystal, I can send you some therapy places of line, I have a all list. Also you can call 211 broward for special needs and if you give them the insurance that your children have they may be able to help you to find the right therapy center. In regards to the biomedical approach, there are a lot of things that you can start on your own. I do lectures at the office once a month to help the parents that are doing biomedical interventions on their own. Also Dr zeno (DAN Dcotor that I work with) is a pediatrician and is filing credentialing with the insurances to see if they will cover the consultations, as soon as we have the ok from the insurance companies I will let everyone know !!! Do not give up, you have to be strong!!! That is was this groups are for, everyone in this group is going through similar experiences, all different but connected in a way! > > From: momofautism5 momofautism5@... > Subject: Mom of 5 with ASD > To: sList > Date: Wednesday, June 11, 2008, 3:47 PM > > > > > > > Okay - I am a mom of 5 kids with some form of autism - my youngest is > just starting the process and is waiting the eval from CDTC to get > the therapies started. > > My problem is that it feels like I am starting all over again - my > two oldest are very high functioning, in fact - my daughter has PDD- > NOS and and my oldest son is very high functioning. But, my two > middle sons are low functioning and now my 4 year old is regressing > significantly. > > I have been having a hard time getting therapies since they stopped 2 > years ago due to scheduling, staffing, etc. - you all know the > problems we face. Now I have an appointment on Sat for a speech and > OT eval but the availability is limited to Saturdays for 1 hour for > both of them. > > I have called everywhere and everyone I know and all I keep getting > is no we do not take your insurance or no we do not have availability > or even worse - yes, your children need 45 minutes three times a week > but we can only give 1/2 an hour once a week. > > Any places you can recommend me calling? I feel like I am back at > square one again!! > > Also, I have not tried the biomedical approach because of the cost - > do any of you do this and have it covered by insurance? A friend of > mine jsut emailed me that she was able to get her DAN doc covered by > her insurance for all 3 of her kids - yet, she lives in Virginia, not > Florida. > > Any help would be great! Thanks!!! > > Krystal > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Have you tried calling UCP (United Cerebral Palsy but has services available for all developmental disabilities) They are in Ft. Lauderdale. Also, try Easter Seals , 6951 W. Sunrise Blvd., Plantation I have been having a hard time getting therapies since they stopped 2 years ago due to scheduling, staffing, etc. - you all know the problems we face. Now I have an appointment on Sat for a speech and OT eval but the availability is limited to Saturdays for 1 hour for both of them.I have called everywhere and everyone I know and all I keep getting is no we do not take your insurance or no we do not have availability or even worse - yes, your children need 45 minutes three times a week but we can only give 1/2 an hour once a week.Any places you can recommend me calling? I feel like I am back at square one again!!Also, I have not tried the biomedical approach because of the cost - do any of you do this and have it covered by insurance? A friend of mine jsut emailed me that she was able to get her DAN doc covered by her insurance for all 3 of her kids - yet, she lives in Virginia, not Florida.Any help would be great! Thanks!!! Vote for your city's best dining and nightlife. City's Best 2008. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 CMS is supposed to assign a case coordinator to each one of your children (it could be the same for all) and it is their job to do all the necessary phone calls and work to ensure that your children get the therapies they need. I say suppose to because its the luck of the draw. If you get a good case worker, then you get help, and if you don't well, you will have to be the one to do all the work. But even if you get a not so helpful case worker, you could talk to the supervisor and ask for their help or to change your case worker. At least that has been my experience. good luck, idamomofautism5 wrote: I have CMS North Broward for three of them and the other two are on Amerigroup> >> > Okay - I am a mom of 5 kids with some form of autism - my youngest > is > > just starting the process and is waiting the eval from CDTC to get > > the therapies started.> > > > My problem is that it feels like I am starting all over again - my > > two oldest are very high functioning, in fact - my daughter has > PDD-> > NOS and and my oldest son is very high functioning. But, my two > > middle sons are low functioning and now my 4 year old is > regressing > > significantly.> > > > I have been having a hard time getting therapies since they > stopped 2 > > years ago due to scheduling, staffing, etc. - you all know the > > problems we face. Now I have an appointment on Sat for a speech > and > > OT eval but the availability is limited to Saturdays for 1 hour > for > > both of them.> > > > I have called everywhere and everyone I know and all I keep > getting > > is no we do not take your insurance or no we do not have > availability > > or even worse - yes, your children need 45 minutes three times a > week > > but we can only give 1/2 an hour once a week.> > > > Any places you can recommend me calling? I feel like I am back at > > square one again!!> > > > Also, I have not tried the biomedical approach because of the > cost - > > do any of you do this and have it covered by insurance? A friend > of > > mine jsut emailed me that she was able to get her DAN doc covered > by > > her insurance for all 3 of her kids - yet, she lives in Virginia, > not > > Florida.> > > > Any help would be great! Thanks!!!> > > > Krystal> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 Hi Krystal, I sent an email to Dr. Rossignol's office regarding your request for biomedical. He indicated to call the office and speak with the staff and ask about financial assistance. According to their website, "ICDRC" they provide some financial assistance when needed. I don't know what that entails really, but I would look into it. Their website has a lot of information. In particular, there is a document titled: Simplified Evaluation and Treatment of Autism Using Biomarker Directed Algorithms This document outlines a lot of what they do and is for mainstream pediatricians and family practitioners. Often if the pediatrician will write scripts for some of these labs, insurance may cover. Mom of 5 with ASD> To: sList > Date: Wednesday, June 11, 2008, 3:47 PM> > > > > > > Okay - I am a mom of 5 kids with some form of autism - my youngest is > just starting the process and is waiting the eval from CDTC to get > the therapies started.> > My problem is that it feels like I am starting all over again - my > two oldest are very high functioning, in fact - my daughter has PDD-> NOS and and my oldest son is very high functioning. But, my two > middle sons are low functioning and now my 4 year old is regressing > significantly.> > I have been having a hard time getting therapies since they stopped 2 > years ago due to scheduling, staffing, etc. - you all know the > problems we face. Now I have an appointment on Sat for a speech and > OT eval but the availability is limited to Saturdays for 1 hour for > both of them.> > I have called everywhere and everyone I know and all I keep getting > is no we do not take your insurance or no we do not have availability > or even worse - yes, your children need 45 minutes three times a week > but we can only give 1/2 an hour once a week.> > Any places you can recommend me calling? I feel like I am back at > square one again!!> > Also, I have not tried the biomedical approach because of the cost -> do any of you do this and have it covered by insurance? A friend of > mine jsut emailed me that she was able to get her DAN doc covered by > her insurance for all 3 of her kids - yet, she lives in Virginia, not > Florida.> > Any help would be great! Thanks!!!> > Krystal> Quote Link to comment Share on other sites More sharing options...
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