Re: Introduction

[Guest guest]

Sally,

Just read your introduction and thought that the description you gave of

tonsils not dipping below the foramen magnum are much like my daughter's.

Doctors refer to her as slight ACM. She is only 4 yrs. So it is hard to know

exactly which symptoms she displays are true ACM. She does have many things

that other ACM folks have. As she gets older I guess things will become

clearer for everyone.

I myself plan on sticking around in this group for a while, even just to

bounce ideas back and forth. People here seem to be excellent resources for

much of the neurological stuff we may/may not experience. For me it is

something I am doing to prepare for my daughter's future. Knowing what she

may encounter later in life.

I hope you stick around a little longer...Even reading will help educate you

and enable you to speak to neuro. on a more informed level. This group gives

me confidence.

Thanks,

Karyn~~~~~~~~~~~>sweatin in Redding, CA

('s mommy)

[Guest guest]

Sally,

Dr Rosner seems to prefer using the diagnosis " hypoplastic posterior fossa " when

you don't have the classical

tonsillar herniation. Chiari I, technically, refers to tonsillar herniation,

although more and more docs are

of the belief that tonsillar herniation is NOT a requirement for neurological

problems. Milhorat et al

published " Chiari I malformation redefined " and list out several factors found

in " Chiari I " symptomatic

cases, and symptomatic patients with tonsillar herniation of less than 5mm

should not be excluded from the

diagnosis. They believe that a small posterior fossa due to an underdeveloped

occipital bone is the reason the

tonsils herniate. A Small posterior fossa due to an underdeveloped occipital

bone IS a hypoplastic posterior

fossa.

In the end, it's all the same disorder. My daughter had numerous symptoms and

had NO tonsillar herniation -

she couldn't - Dr Frim found, during surgery, that her cerebellar tonsils were

" short nubs " - being short

nubs, they couldn't descend into the spinal canal unless the cerebellum did too!

Decompression surgery

alleviated her many symptoms.

Therefore, to make a long story short, yes, you belong in this list.

Eurico

> Dr Flechas has

> given me a diagnosis of hypoplastic posterior fossa and referred me to

> Dr Rosner for surgery. He did not give me a diagnosis of Chiari

> Malformation, so maybe I don't really belong in this group. You'll have

> to let me know.

>