Child's Headaches after Decompression?

[Guest guest]

My child, Clayton (3yr.) has had 2 decompression surgeries in the past

4 months. First from the back of head, second from the front through

the mouth. After the 2nd decompression he has not been able to stand

or sit-up for a very long extended period of time. This makes it

impossible for him to go anywhere or even ride in a car seat. I am

desperate for answers. He had a MRI last Thursday to look for

leakage of spinal fluid, but there was none. (They looked for this

because in his 2nd surgery the lining to the spine was punctured by a

bone and they had to put a patch and tube into the spinal area to

stop the spinal fluid leakage.) Now the Nero Surgeon is going to

talk with the Orthopedic Surgeon on Tuesday and get back with us. I

do not know what they are looking for and wonder if anyone might have

a clue. Please contact me if anyone else has had a similar

experience. (mstacy@...) Thank you.