Fwd: Relapsing Polychondritis- P, for Dr. Eisenberg

[Guest guest]

Hi all I wanted to share the letter I sent to my Doctor today, He wants to

start " Enbrel " on me, but we hit road blocks with the INS company, nothing

new LOL.

I am very excited about this, I am going to be in a study, if my doctor is

willing to do it, and I WILL MAKE SURE THAT ALL FINDINGS ARE MADE PUBLIC TO

ALL OF YOU. When I spoke to the Doctors nurse today, she said they have done

these types of study's in the past and she is sure that my Doctor will do it!

I will keep you all informed with his decision and the outcome, but he might

pass this up and go straight to the Plasma Exchange thing, I will let you

know.

[Guest guest]

Hi all, I am SOOOOOOOO HAPPY!!!!!!!! I just read my e-mail's, and my Doctor

has agreed to go ahead and do the study!!!!! So I do NOT have to pay the

large amount of money for the " Enbrel " be low is his letter, PLEASE do not

give his E-Mail addrs out to anyone!

Thanks,

P...... p.s. I will update you all on if it works or not, I feel good

about this !

[Guest guest]

great news ! praying it works

Angie