Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Dennise, when Max was really having a hard time with the shots, we found that giving them to him while he was sleeping got him over the hump. Also, we only give him his shots in his thighs - the meatiest part we can find. He just could not handle the thought of having them in his abdomen or hips. I think everyone goes through a period where there is a lot of resistance, then you just seem to get over it and move on. It is hard, I know, but making Ross part of the process is the best you can do. Keep up the good work. Jodi P.S. As for giving them to Max while he is sleeping, I did have a difficult time with it because I felt that Max should feel comfortable while he is sleeping and not have to subconsciously worry that he would be " stuck, " but he chose to do it that way,too. It did relieve a lot of stress on all of our parts. Re: GH for Ross > > >Thanks for the support, Debbi! It breaks my heart, too, just to think about >it. It's one of those, " it's going to hurt me more than it's going to hurt >you " kind of things. Well, maybe not, I'm not the one getting the shots. I >have to keep telling myself that if we don't do this now, we may regret it >in the future and we only get one chance at this. If we don't do it, Ross >may be the one who will be regreting it more than any of us. I feel like >it's just one of those decisions that is so hard to make, but once it has >been made, you've got to give it all you've got! If anyone has any tips for >making the shots easier and less painful, please let me know! Like I said, >though, I think it's the thought of the shots that is far worse for him than >actually getting the shot. I'll keep you filled in on how it's going, as I >know a lot of you may face this in the future. > >Dennise > > > >> >> >>oh, Dennise, I can't stand the thought of going >>through the same thing with Jake: GH shots! He's the >>same way. We haven't started, but may after 6 mo's or >>so--depending on a few things-- dr's advice, growth >>over the next 6 mos, insurance-coverage for non-ghd, >>and our own decision. Jake is terrified of shots >>already--everytime we go to just the pedi, he asks if >>he's gonna get a shot. My heart was hurting just >>reading about Ross crying and pushing your hand away. >>Jake also worries before the " event " , so does my >>daughter. >> >>Just wanna say, good luck! I hope the shots get much >>easier for him real soon! >> >>Just today, I was telling my dad and his wife about >>the possibility of shots in Jake's future and she >>said, " he will hate you! " I guess we all fear that, >>huh? Tough decision! >> >>Anyway, good luck! >> >>Debbi, Jake's mom >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Dennise, It was hard to give Alisha her shot at first I had her dad do it because I cound'nt. I would just about cry right along with her. It don't take long and they get used to getting the shot.... She was about 3 when started on the shot. The Inject-Ease is wonderful, It really helped, that she couldn't see the needle.It really helped me too.. Now she don't ever let me forget to give her the shot. Lot of kids do it them self, but she just isn't ready yet.She is 8 and I was told kids alot younger than her give their own shot.. I know that it will be a long time till you get to that point. But things do get better. It just take time..Hang in there Alisha tells her little sister that the shot doesn't hurt, and it is helping her to get big, and strong.. Hope it gets easier real soon for you. Alisha's mom 8 with RSS </B> > GH for > Ross</DIV> > <DIV><BR></DIV> > <DIV><FONT color=#000000 size=2>Jodi and > Kathleen,</FONT></DIV> > <DIV><FONT color=#000000 > size=2></FONT> & nbsp;</DIV> > <DIV><FONT color=#000000 size=2>Thanks for > your support in our next step > with growth hormone therapy. & nbsp; We had a > wonderfully positive > experience at our teaching session with our > nurse, Debbie. & nbsp; As I > said before, we are using the Genotropin > pen. & nbsp; She gave all of us, > including Ross and Bryce, a pen to put > together and then we actually > injected each other with a placebo for > practice. & nbsp; She treated the > kids just as if they were Jeff and me. & nbsp; > It put them and us at ease > and they felt so important. & nbsp; It was > definitely a & quot;family > affair & quot;. & nbsp; Ross was only injected > once yesterday with the real > stuff, which I did for him. & nbsp; Last night > Jeff did the injection and > it went smoothly. & nbsp; Ross is such a > trooper. & nbsp; He's got this > & quot;whatever & quot; attitude towards it and > I'm just thrilled. & nbsp; > Tonight went great too, but Ross has been sick > all day with 102 & deg; and > not eating - OF COURSE. & nbsp; He just vomited > what little he did > have. & nbsp; If it's not one thing, it's > another, isn't it? & nbsp; Thanks, > Jodi, for the advice about letting Ross help > in any way that he > can. & nbsp; He's picking out the spots for his > injections and then > putting the stickers on the calendar > indicating where he was injected, > to help assist in the rotation of the > injections. & nbsp; Our next > appointment is April 6 and I'll be sitting on > pins and needles - pun > <EM>definitely</EM> intended - until we find > out how much he has > grown. & nbsp; Wish us luck!</FONT></DIV> > <DIV><FONT color=#000000 > size=2></FONT> & nbsp;</DIV> > <DIV><FONT color=#000000 size=2>I'm so glad to > see some of you are > getting the hang of uploading pictures - > wow! & nbsp; Lots of them to see > if any of you haven't yet gone into the Files > area to check them > out. & nbsp; I haven't had a chance to see the > new ones yet, but will > soon. & nbsp; I especially want to see Keagan's > picture. & nbsp; Even though > Ross is only 5, he seems to be losing his > & quot;RSS look & quot;, > too. & nbsp; I'll upload one soon of him and his > sister, Bryce, who just > turned 8.</FONT></DIV> > <DIV><FONT color=#000000 > size=2></FONT> & nbsp;</DIV> > <DIV><FONT color=#000000 > size=2>Dennise</FONT></DIV></BLOCKQUOTE></BLOCKQUOTE></BODY></HTML> > > > <HR> > <html> > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2000 Report Share Posted January 3, 2000 Hi Dennise- Sorry I'm just now replying to you. I started back to work today after having 2 weeks off & it's killing me To answer your question about Keagan's MRI it had to be done basically for the same reasons Ross had his. We already knew there was no hydrocephalus (a CAT scan at 10 mos told us that) but they wanted to make sure that the problems weren't the result of a tumor. Talk about scaring the bejeebies out of a mom!! We had his initial endo appt on Oct 4th but they didn't schedule his MRI until Dec 9th. That's almost 2 months that we had to wait to see if he had a tumor. I was literally sick to my stomach every day for two months. To top it off, we had the MRI done at 9:00 in the am & they didn't call with the results until 7:00 that night. Anyway, thank GOD it wasn't a tumor. Just an " underdeveloped pituitary gland of unknown origin " . I'm really sorry that Ross isn't doing so well with the shots. It makes it that much harder doesn't it? I think the reason that Keagan is doing so well is his age. That and the fact that for the first time in his life it bothers him that he is so much smaller than everyone else. At Ross' age, he could probably care less!! Just know that we're all thinking about you & your family. I wish there was something that could be done to make this easier- especially for the little ones sake--------------------------Marla GH for Ross Jodi and Kathleen, Thanks for your support in our next step with growth hormone therapy. We had a wonderfully positive experience at our teaching session with our nurse, Debbie. As I said before, we are using the Genotropin pen. She gave all of us, including Ross and Bryce, a pen to put together and then we actually injected each other with a placebo for practice. She treated the kids just as if they were Jeff and me. It put them and us at ease and they felt so important. It was definitely a " family affair " . Ross was only injected once yesterday with the real stuff, which I did for him. Last night Jeff did the injection and it went smoothly. Ross is such a trooper. He's got this " whatever " attitude towards it and I'm just thrilled. Tonight went great too, but Ross has been sick all day with 102° and not eating - OF COURSE. He just vomited what little he did have. If it's not one thing, it's another, isn't it? Thanks, Jodi, for the advice about letting Ross help in any way that he can. He's picking out the spots for his injections and then putting the stickers on the calendar indicating where he was injected, to help assist in the rotation of the injections. Our next appointment is April 6 and I'll be sitting on pins and needles - pun definitely intended - until we find out how much he has grown. Wish us luck! I'm so glad to see some of you are getting the hang of uploading pictures - wow! Lots of them to see if any of you haven't yet gone into the Files area to check them out. I haven't had a chance to see the new ones yet, but will soon. I especially want to see Keagan's picture. Even though Ross is only 5, he seems to be losing his " RSS look " , too. I'll upload one soon of him and his sister, Bryce, who just turned 8. Dennise Quote Link to comment Share on other sites More sharing options...
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